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Conception

TTC with PCOS (Thread #3)

999 replies

RoseBud2015 · 02/09/2015 19:04

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find the stats >>>>>HERE

Smile

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battenberg101 · 14/09/2015 19:29

Hi everyone! Sorry I dropped off of the old thread I got lost in the hacking and couldn't remember my password!

I'm trying to catch up on everything I've missed. Rosebud you ovulated that is bloody amazing! I'm keeping everything crossed for you!

Good luck to everyone starting new meds and IVF soon - hopefully will see some more BFPs before the end of the year.

I have forgotten just what a positive and happy/inspirational thread this is. I'm ashamed as I have been suffering with antenatal depression and I have to remind myself how lucky I am. Wishing for luck for everyone and will try and stay on the thread to see how everyone gets on!

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IsItIorAreTheOthersCrazy · 14/09/2015 19:34

stealth I don't blame you at all. I could murder a cocktail right now but I'm too crippled by fear to attempt anything stronger than tea, just in case! I hope you had / are having a great time!

rosebud how are you feeling? Isn't it the biggest test of patience in all the world? Try not to feel sad I know how much I should take my own advice but it's impossible Can you try and focus on the positives - YOU OV'D and that's amazing!

ponty when are you having your bloods?

newhere I understand that feeling. When 50mg didn't work it felt like that was it, I was sure nothing would help, my body was clearly broken and there was just no point in trying. It's part hormones and part desperation, but please don't despair. If 50mg doesn't work, you can try 100mg. It's taken 150mg to make me ov.

dollface thank you! And I'm sending you positive wishes, although I don't think you need them. Good luck for your scan.

feefee I hope you're being well looked after and are feeling better

pebbles I'm so glad you're staying on the thread!
Flowers for the upcoming 'you next' nonsense that will follow your friends baby being born. It's rubbish isn't it? You would think that somewhere in their minds they would think there may be an issue and it's not tactful to assume that everyone wants or can have babies this rant may be based on the lovely conversations I've had this weekend about why I'm waiting if I'm 30 and what gap I'm planning between dc1 and 2

AFM - I had a lovely weekend away, just got a bit stressed with the conversation. There were 4 of us, only 1 with a dc (who was a happy accident). She's the only one who knows what I'm going through so the others talked about babies a lot as they're both broody and it was so hard. They were niavely planning when to start trying, working on the assumption that it will all work out perfectly.
And the person in the cottage next door has the most adorable baby and toddler. Made me ache every time I saw her walking around with them, playing and singing Sad

I am on cd26 and am walking on eggshells waiting for AF cramps. Should be due around cd30, so Friday.
Hormones are still making me weepy. I had some 50/50 feedback in work today then had to go and sob by myself. No idea why, it's not like me normally! I'm struggling with patience at this point.

As always, good luck to everyone!

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Lucina6 · 14/09/2015 22:03

Hello! Your answers brought a smile to my face. One question though... I' on a carb free (almost) diet, no coffee, but I'm craving salt. Like mental. Never had it before. My gyno was hopeful for a miracle bfp before we even started, but no, lining is 5.5 mm and won't budge... Right now CD 55 and leaving it to CD 78 before inducing a bleeding. Trouble is, everything is waiting for AF, so my progesterone level can be determined (one taken on AF-7 days). And thats my take off. Still hoping my own ovaries will kickstart AF, but doesn't seem cooperative. Would be interesting to know if BFP is more common in cycle after your own AF or an induced one? Confused...

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stealthbanana · 15/09/2015 15:11

Isit I have had a BOOOOOOZY few days Grin Am now cd7 so it's back to the metformin and the odd glass of wine. But it was a v v fun long weekend. Hopefully it doesn't mess up this cycle (if indeed I'm going to have a cycle - am sure I didn't ov last month).

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Freddiesmother · 15/09/2015 21:25

Stealth - sounds like you have had fun and let your hair down. Good for you!

I have had a crappy week felt totally bannanas last week. Left my overnight bag on a train that had all my clomid in it so had to get an emergency prescription.. it nearly sent me over the edge. Spent the rest of the week sobbing and feeling unable to manage anything.

Feeling a bit better this week. Scan on Friday.

Rose - how you doing?

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Lucina6 · 15/09/2015 21:53

Freddiesmother, so sorry to hear that. Know how it feels when things get out of hand, but this must have been on a seizmic scale. Fingers crossed this is your cycle. hugs

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ShortyK · 15/09/2015 22:44

Rose How many dpo are you now?!

Freddiesmother At least you could get an emergency prescription!

Luciana Hopefully you won't have to wait too long before af

Isit When do you think you'll start testing?

I have my follicle tracking tomorrow and really hoping 100mg clomid makes me ov. Did anyone else have 50mg not work then find 100mg did the trick? Trying to stay positive!

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MrsC2013 · 16/09/2015 00:19

Hi all,

It's taken a while to catch up on all the messages/ thread moving but I'm there!lol Congratulations to those of you who have had BFP's. Looks like the rest of us need to keep going but reading the threads again has renewed my hope that it will happen. I needed that as it's been getting me down more than usual lately. Brother in law and wife are having scans and buying things for their twins and here I am without ever being pregnant :( Worst thing is family so excited for twins, mother and grandmother in law knitting and I'm just screaming inside 'It should be me!!' Also I'm looking after our niece tomorrow and much as I love her, I can't help thinking 'It should have been me!!' Angry Rant over!I can only say it so much to hub, as he feels the same but then feels guilty as it's his younger brother and he wants to be/ is happy for them.

Some of the posts have been making me smile though, especially this one from Is It- 'And I sometimes wonder what our DHs actually think when we're peeing on ov tests, marking off calendars and telling them not to come in/look away while we insert preseed, then trying to look a bit alluring and ask them for sex? Confused' Haha!

As for an update, I started tempting for the first time this cycle and am currently 7dpo according to FF. I have seen on the posts that quite a few of you use FF for this and wondered how accurate it is likely to be? I was surprised that it showed ovulation for me but took it to be right and DTD lots to catch the egg if there was one lol so fingers crossed, for all of us!x

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RoseBud2015 · 16/09/2015 07:02

Hi all. Just a quick update from me for now! Ill catch up properly after work. I'm either 13dpo or 15dpo depending on which thermal shift you count from on FF but my last 2 temps have been huge temp drops below cover line so I haven't bothered testing.... without a doubt AF must be on her way! Sad

I'm now phoning my clinic each day to try and get a cancellation as my consultant has asked to see me but earliest appointment is Feb! No way am I waiting that long! I'll phone everyday until they find me an appointment for the next few weeks Wink

I'm also going to get my day 3 bloods redone and a hycosy done on the NHS (consultant has agreed to both) before we start the IVF process with Reprofit in Czech.

I had a good cry yesterday with DH (he cried too) Sad but now I just want AF to arrive so we can get on with things. We honestly couldn't have done more this cycle... great nutrition, tonnes of sex throughout cycle, and a positive attitude.... so upsetting.

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mistletoeprickles · 16/09/2015 08:29

Ahhhhhhhhhhhhhhhhhhhhhhhhhhh just popping in for a rant if that's ok?

So I'm now officially 3 days late and I've been trying my best to ignore it but I'm now seriously symptom spotting. I currently have a heightened sense of smell and I'm continuously dry heaving. I have even checked my cervix this morning (I never have before) it's very high and that's about all I can tell.

I have no tests in the house, which is the only way I haven't tested in the last 3 days but I think I'm going to get one today. Only thing is DP has the car today so I can only use the local chemist so it'll be stealthy as I know too many around here.

Wish me luck

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Dollface136 · 16/09/2015 09:48

Unfortunately my scan did not go well. Our little one has HPE which means due to a chromosome problem the brain has not developed. They are having to book me in for a termination this week. I am beyond devastated and don't know how I will ever pick up the pieces from this. I'll be awol for a bit but back to the drawing board of ttc with pcos no doubt sometime over the coming months. Thanks for your support. Xx

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PontyGirl · 16/09/2015 11:08

dollface i am so, so sorry. I cannot imagine the pain you are going through. Sending a lot of love your way - life can be so cruel.

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IsItIorAreTheOthersCrazy · 16/09/2015 11:37

Oh dollface I am so so sorry Flowers Do whatever you need to to get through this. We're thinking of you

rosebud as AF isn't here yet, there's still a chance but I understand your feeling. It's horrible feeling so helpless isn't it?

mistletoe good luck getting that test. Make sure you let us know!

shortyk not sure about testing. Indont have a great update - I don't think tests are going to be necessary Sad

mrsc we all understand the feelings you have. Fingers crossed for you

AFM I am also very upset right now. Day 21 bloods came back today to show that I didn't ov. Level was 7. I don't understand this, we did everything exactly the same as last month. And on 100mg clomid this happened - first month I ov'd, second one I didn't and then they increased the dose.
Why would this happen?
Just like Rosebud, we did everything we could this month. I have no AF symptoms but it's bound to come sooner or later. I'm on cd28. I felt so hopeful too, that we could have conceived on holiday, that we would be able to tell people at Christmas. And now I feel so stupid to have been so hopeful Sad

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FeeFeeLaFew · 16/09/2015 13:06

Dollface how devastating. Flowers Flowers Flowers You poor thing. Good luck getting through this and we will see you when you get out the other side.

Isit aargh that must be so frustrating. But hope is what gets us through this - don't feel stupid for daring to think it might have been your turn. What's next - 150mg?

mistletoe good luck on your stealth run for tests! Keep us posted.

Stealth, glad you had a relaxed weekend. Do you stop metformin when you drink, then? I seem not to have any side effects from the met, and in the run up to the op when I wasn't allowed to TTC (ha!) I let myself have a few glasses of vino here and there but carried on with my 2g/day (at some point presumably I should admit defeat on the met...).

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stealthbanana · 16/09/2015 13:07

Doll face FlowersFlowersFlowers you poor thing. Thinking of you.

Rosebud nooooo. Stay positive. Will send some good vibes in your direction.

Isit maybe you have one good ovary and one bad ovary? (I think this might be my problem too.) Ask your Dr about alternating cycles. Flowers for you too. This is a tough game we're playing x

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mistletoeprickles · 16/09/2015 13:19

dollface so sorry for your scan wasn't good. Thinking of you.

isit I had a cycle where I ovulated then a failed then a cycle that worked so it does happen.

rose your not out yet. Everything crossed for you.

Stealth pregnancy test run failed as someone from school was in there so DP is going to get one on his way home so I've got one for the morning

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FeeFeeLaFew · 16/09/2015 13:24

Rosebud only just twigged your update. So disappointing - Flowers for you. But as others have said, you aren't out until AF arrives. Hope you can get your consultant appointment quickly. What about that other drug you were mentioned in this thread or the previous one, that isn't often given in the UK? Is that an option before you head to the Czech Rep?

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ellewalk · 16/09/2015 13:37

dollface I am so sorry, heartbreaking, thinking of you Flowers

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RoseBud2015 · 16/09/2015 16:51

God there is so much heartbreaking news here today! Sad

I am so so so sorry to hear what you are going through Dollface- I cannot even beginning to comprehend how you are feeling. Be kind to yourself and take care Flowers Flowers

Isit I'm so sorry to hear you didn't ov on 150mg- that's so odd and very frustrating. Are you sure you didn't ov late and so hasn't been picked up by bloods because they were too soon iyswim?! Esp if you don't feel AF is on the way- maybe it's just a late ov rather than an anovulatory cycle? Do you temp?

Batternberg So nice to hear from you! Hope you are doing well xx

MrsC FF for me has been pretty accurate. Although it hasn't confirmed ov for me, I could tell from my temp chart that I was either 13dpo or 15dpo and it predicted my AF for today..... IT WAS RIGHT! AF turned up this afternoon Sad SOOOOOO glad I didn't waste one of my FRERs!

Lucina Can I ask why you are waiting to induce bleed until CD78? If it were me, I would be cracking on with it but that's because I'm extremely impatient! An induced AF does the came as a real AF- it resets your system, sheds your lining and starts afresh so I dont think there is any reason for it to be less likely to result in a BFP! Hope that helps.

Feefee Thanks lovely! I think the consultant wants to see me to discuss the alternative to clomid but I just cant seem to get a cancellations at the moment! Grr! If I could try that first I definitely will do! I want to avoid the cost of IVF if I can but it's looking less and less likely!

Good luck Mistletoe- we could do with some good news on this thread today!

As for me I am officially CD1! AF came in all her glory this afternoon, mid-way through a lesson Angry- I'm surprisingly ok about it today. I just knew it was coming so had already prepared myself- and on the positive side only a 34 day cycle WOO HOO! This is MASSIVE for me! 3 day bloods booked in then I can start Czech clinic paperwork.

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Pebbles086 · 16/09/2015 16:53

Cannot believe all the upset we have had this week.
Dollface I am devasted for you and your DH. I hope you both get through this together and soon feel ready to try again. So heartbreaking, sorry xxx
Rosebud don't give up yet hun, your poor DH crying too. FX for you xx
freddie I bet there was other things in your bag that you was upset to loose but, Clomid, no way! Glad you got some more and GL for this cycle.
Isiti Don't give up on Clomid yet. have your another round to try for next month? Must be heartbreaking, too many ups and downs with meds xx
mistle hope you've managed to sneak in and out of the pharmacy, GL for a BFP
Lots of Flowers for everyone. So shit, no other way to describe TTC xxxx

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chandelierswinger · 16/09/2015 17:53

Spot on Pebbles. We seem to have cycles (I don't just mean related to AF) of positivity followed by extreme sadness on this thread. Flowers to everyone, but especially gorgeous Dollface for such devastating news. Xxx

We must be due some good news on here soon, surely? Confused Be kind to yourselves ladies (and DHs/DPs) Flowers

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bananafish81 · 16/09/2015 20:48

Oh Dollface that's utterly devastating, sending you and DH so so so much love and strength. Please be kind to yourself, take time to grieve, and know that we are all here for you. I realise it's of no comfort whatsoever at such a tragic time, but just to say my cousin had something very similar (possibly even the same - the baby didn't have a brain) with her first pregnancy, and had to have a termination - but she went on to have three very healthy pregnancies. Thinking of you xxx

Rosebud massive huge sloppy hugs to you too, it's just not fair. It's f*ing shit and no mistake. I hope a cancellation comes through so you can see about Femara soon, but also v positive to be able to get your bloods done to get the wheels moving with Reprofit. I hope you don't end up needing treatment there but I can totally relate to wanting to have a plan - this whole thing is just so awful as it's so out of our control, I know I certainly feel less helpless when I do feel I've got a handle on the things I can do something about. Which it sounds like is exactly the case for you and your DH. Much, much love.

IsIt Oh lovely, that's so unbelievably frustrating. I can't remember if you have follicle tracking or not with your clomid - if not then is there any way you could get a tracking scan for the next cycle?

mistletoe keeping all fingers and toes crossed for you

Freddiesmother so so glad you were able to get an emergency script - can imagine how stressful that must have been

Battenberg lovely to hear from you!

Feefee gosh you have been through so much - I hope you're on the mend and taking care of yourself. Hope November rolls round quickly and you get the right treatment

God it never rains but it pours. So much sad news for so many amazing women who all deserve only good things Sad

I do genuinely feel that you are all a v special group of women and I know I personally feel incredibly supported. I hope good news is round the corner xxx

Afm, just on countdown really - This time next week should be my first day of stims. The fear of the whole process is really getting to me - I lie awake with my brain running at a million miles an hour thinking about everything and wake up shattered as I've lain awake for hours. I had my first hypnotherapy session as frankly I will try anything to try and help the whole process. I just want to get this cycle over and done with. It's my birthday at the end of October - if we get to transfer that would be an OTD of 19th Oct, so at least we can get the BFN out of the way before then.

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PontyGirl · 16/09/2015 21:08

dollface i had to come back on just to write that i'm still thinking of you. I don't really have the words, i just wanted you to know i'm thinking of you.

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Lucina6 · 16/09/2015 21:29

Dollface, I'm so sorry for what you're going through... If it helps, order 5k folic acid, take it and try again. This is scientifically proven to reduce neurological deformities even in cases of women who were born with spina bifida. Give it a try. Lots of baby dust for your next try...

Rosebud2015 CD78 is a max for a normal endometrium. And inducing AF has been connected with yellow body failure, which ends a lot of time in early pregnancy loss. Not always, but it does happen, which is suspected to be the cause of why so many women on clomid ovulate (80%), but only half of those conceive and give birth. So I'd rather kick my own ovaries into action... still, getting prodded and poked every week to see if it is about to happen... -.-

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bananafish81 · 16/09/2015 21:39

Just to echo what Luciana said, my cousin took the prescription strength 5mg folic acid as it's recommended for anyone with a history of neural tube defects. I have to take it because my epilepsy meds double the risk of neural tube defects - my GP prescribes it, yours def should too xxx

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