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RESPONSE Trial for Recurrent Miscarriage - Thread 4

624 replies

Vicki272 · 05/08/2015 00:24

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

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12
clairemorgan81 · 10/08/2015 07:19

hope you managed to get some sleep kazz, how's things this morning x

philippa88 · 10/08/2015 07:20

How are things this morning kazz?? X

Marchgirl · 10/08/2015 07:46

Hope you managed to get some sleep kazz. Beat of luck for today xx

Kazz2112 · 10/08/2015 08:34

Bleeding heavier and more period like. Decastated. Can't see any way that this isn't going to turn out to be miscarriage 4.

Marchgirl · 10/08/2015 08:38

Oh kazz, i so hope it's not. A little bleeding can pool over night and seem like a lot more in the morning. Keeping everything crossed for you lovely xx

Vicki272 · 10/08/2015 08:42

Fingers and toes and everything crossed for you today Kazz... try and stay hopeful. Big hugs. xx

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clairemorgan81 · 10/08/2015 09:03

so sorry kazz. you really never know though. thinking of you. x

philippa88 · 10/08/2015 09:04

Kazz I'm sorry to hear that it's not stopped :( Let us know what the trial team think is best, fingers crossed xx

Choccywoccydodah · 10/08/2015 09:06

Thinking of you kazz. Who are you seeing at 12.30? Epu or trial mw? Xx

Kazz2112 · 10/08/2015 09:10

The trial nurse. She is going to do my trial bloods and run a hcg test..I'll then have to go to my local EPU for another blood test on Wednesday to test hcg levels. For now I have to carry on with the trial drugs but I already feel like I'm being palmed off

Marchgirl · 10/08/2015 09:12

I know it might not be what you want to see, but have you thought about doing another hpt?

Vicki272 · 10/08/2015 10:08

The other alternative is to show up and wait it out at A&E... they can then refer you for an emergency scan at the EPU. (That's what they did with us on the 3rd one)...

Will tell you either way but might be quite a wait! I felt like i needed to when it was happening with me.

Thinking of you. xx

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Choccywoccydodah · 10/08/2015 10:37

Can you just phone your Epu and make an urgent appt?

Kazz2112 · 10/08/2015 10:47

I spoke to them yesterday. They won't scan me. They'll only do the hcg blood tests repeated again after 48 hours. I figured if I'm having trial bloods done today she may as well just do the hcg at the same time. literally nothing I can do but wait.

Choccywoccydodah · 10/08/2015 10:50

That's a bit harsh of them!! Mine were all before 6 weeks and I got scanned as long as hpt was positive. Ffs kazz, you must be distraught!!

Kazz2112 · 10/08/2015 10:53

literally can't stop crying. dreading going into the hospital. I look a mess

Marchgirl · 10/08/2015 11:26

Oh kazz sweetie, big hugs and strength to you xx

How are you doing claire, any luck?

philippa88 · 10/08/2015 11:28

Hugs for you kazz, are you with someone to help comfort you?
With my losses I was never scanned, they said they wouldn't before 7 weeks as there was not much to see. :/
I went to a & e and waited it out with mine, it was quicker that way and I got answers sooner. X

Vicki272 · 10/08/2015 11:37

I would really recommend the waiting it out at A&E thing - they scanned me at 5.5 weeks there (it was too late but at least i knew then) - that was after the EPU refused too.

It might be worth it Kazz? So sorry - that waiting and not knowing is just the worst feeling in the whole world. Hope you are with someone to hold your hand.

xx

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Vicki272 · 10/08/2015 11:37

How are you doing claire? xx

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Kazz2112 · 10/08/2015 11:56

DH is with me. currently driving me to hospital as we speak. God knows how long his workplace will put up with this but so far they're very supportive.

Vicki272 · 10/08/2015 12:05

Oh good Kazz.... wishing you lots of luck.

How are you getting on Little? xx

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clairemorgan81 · 10/08/2015 12:47

so sorry kazz, not knowing is the worst. I hope they scan you today but from past experience of they do they will want to rescan you next week anyway unless bloods show something. big hugs lovely. we're here whenever you need to chat.

bfn today March. af didnt start after the couple of days of red blood. it's due Wed or thurs I Think. I've been bleeding for a week now it's so annoying and worrying me if I'm honest.
gynae app in 4 weeks, I wish it would hurry up as I'm wanting to go to Coventry after that depending what he says. I'm starting to worry it might be something sinister, my mind isn't very rational.

did you test this morning Vicky? any luck?

waves to everyone else, any scans or apps this week?xx

clairemorgan81 · 10/08/2015 12:49

sorry forgot about you little- were you starting testing today too? x

Vicki272 · 10/08/2015 12:51

Try not to worry claire - i know it is hard but there's not much you can other than wait for the appointment... Hugs though! i know it is easier said than done! Sorry for the BFN too!

Tested today... BFN on the ultra sensitive internet cheapies... i don't know why i bothered really!!! do we think that these are the best ones to test on? i have the trial ones, then a couple of first response ones and then these internet ones...

Thoughts ladies?

xx

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