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RESPONSE Trial for Recurrent Miscarriage - Thread 4

624 replies

Vicki272 · 05/08/2015 00:24

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

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Vicki272 · 16/08/2015 07:21

Morning girls... More twinges and brown watery discharge this morning!

Somehow I can't help but think that this isn't good news. Would be due on AF tomorrow.

I don't know how you ladies have coped, I feel so so anxious this time. And I've only known for a few days... Feels like an eternity if I'm honest.

I don't know what to do with myself... We did loads of walking on our little day trip to Norfolk yesterday so thinking a relaxed day today. Can't help but think I'm feeling crampy today. Had really bad lower back ache yesterday evening. It could be the car travel etc but I can't help but think the worst.

Seeing L tomorrow morning... Seems like a lifetime away now.

How are we all doing today?

Kazz, loving the coping method! I truly don't blame you!!
Klou, that cake looks amazing! Xx

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Marchgirl · 16/08/2015 07:36

Sorry the spotting has continued vicki. I really hope it's like mine that's just around when af is due and will disappear afterwards.

Sorry to hear you're still so anxious size. I'm starting to wonder if I'll ever be able to relax in this pg either, although understand how much harder it may be for you without a dc already. The thing I'm trying to tell myself is that first trimester losses are a totally different beast to later ones, and just because of we had the earlier ones does not make us any more likely to have later ones. One we are after the first trimester we are effectively just 'normal' preggos. I obv don't entirely believe it myself all the time but I'm trying to repeat it as much as possible. Unfortunately i think it's inevitable that were going to worry until the babies are here safely. Big hug x

Great cake choccy Smile

MAS7 · 16/08/2015 08:24

I like that way of looking at it March. I might that try that one!

Sorry you've got more brown March. I was always on the phone to L and D about this as it kept coming and going for me from 5 to 10 weeks, I was convinced it was over as all my other mcs started the same but this time it was ok. Hope it's the same for you. How far gone will you be tomorrow? That test you put up was really strong, that's a good sign! x

MAS7 · 16/08/2015 08:26

Forgot to say vicki, backache and cramping are normal early pregnancy symptoms and muscle aches eg backache are normal side effects of the drug too!

sizethree · 16/08/2015 08:31

That cake looks amazing choccy, well done, so creative.
I think I need to be a lot more honest with my midwife when I see her on Wednesday. I've found it very difficult having so little contact in the 2nd and 3rd trimester after all the support early on.
The closer I'm getting to full term the more I'm seeming to worry as I'm so aware that there's an actualy proper baby inside me to lose. I do feel like I lost babies with the miscarriages too, but feeling the kicks and having the bump and having bought things, there seems so much more to lose this time around. I'm so very sad that I'm not enjoying it like a normal women would. I'm so very desperate for baby to arrive safely. I can't even begin to imagine the relief of he/she dies.
Thanks everyone. It gets really lovely so I'm so grateful to have you all. X
vicki I know how concerned you must be, but very much hoping it's just your body bedding in that embryo deeply. Glad your appointment is tomorrow, so your worries can be addressed.

Vicki272 · 16/08/2015 10:34

Thanks ladies... It's still going which just fills me with dread to be honest.

mas I'll be 4 weeks exactly tomorrow when I see L. She seemed to think it sounded like implantation bleeding but just worrying more about it combined with the cramps. I guess like you say, that could be from the drug too. I'll ask all about it tomorrow.

Would implantation bleeding even last this long?

size I so feel for you, I do think we are all in that very same boat. We will all never have that worry free, completely joyful pg, we have just been through too much. stay strong! I always say that having all the MCs taught me how much tougher I am than I thought I was! Good idea on speaking to the midwife... It will make you feel better even that she has a better idea of what is going on. X

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Kazz2112 · 16/08/2015 13:38

That's really frustrating Vicki and I know it must be difficult to think of anything else. But if it's brown it's old blood so fingers crossed all will be well.

For peace of mind maybe all for a hcg blood test tomorrow when they take your bloods. Did they do a blood pregnancy test to confirm when you went in last week? if so they can compare and give you the peace of mind you need

Marchgirl · 16/08/2015 14:32

vicki, I think blood can get trapped inside as your cervix is closed and just takes a while to filter through. The worry is when your cervix is open to allow the blood out, but from what you describe it sounds like a closed cervix with a trickle through of old blood. Still such a worry when you're on tenterhooks anyway. Hope the trial nurse can put your mind at rest tomorrow

Vicki272 · 16/08/2015 14:45

Thanks ladies... Seems to have eased off but still can't relax as this is the 2nd time it's happened. The only thing that's stopping me from going in to full on panic mode is that there's no cramping today. I don't even know if that's good or not...

The other issue is that I don't feel pregnant! Other than the positive test there's no real symptoms!

I don't know if they did a blood pregnancy test... Is that in the standard suite of tests? Hpt is still coming back positive.

How you bearing up kazz?

Xx

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Kazz2112 · 16/08/2015 15:37

I'm ok. Feeling a bit lost and lazy today. Hating how fed up DH seems to be today and no idea what to do about it! Sad

Vicki272 · 16/08/2015 16:48

It's horrible isn't it kazz? Somehow it all seems so much worse when it gets on top of them too. Sending big hugs.

I've cracked out the colouring book. At least it seems to help keep my mind occupied for a little bit. X

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Kazz2112 · 16/08/2015 17:16

are you a pencil crayon or a pens person? I need some felt tips I think

Vicki272 · 16/08/2015 17:33

I have gone pencils. I'm afraid that if I use felt tips it might run on to the next page. X

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Kazz2112 · 16/08/2015 17:37

Ohhh the dilemmas we face. Altough my new book has very think pages so i think itll be ok. Ive just been looking at pens online and some of them are like £15. For felt tips! Hmmmmm....

Ive just started with really bad cramping again. Grrrrr..

Vicki272 · 16/08/2015 19:04

Oh kazz... That is shit! There's no other way to describe it. You dosed up on painkillers?

X

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Vicki272 · 16/08/2015 19:55

Anyone else get lower back pain about 30 minutes after the injection? X

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Kazz2112 · 16/08/2015 20:11

Not anything I noted. cramps seem to have subsided now

littleb84 · 16/08/2015 20:53

Kazz you sound just like how I was after my MCs, don't remember much of christmas last year lol! Hope your feeling better with the cramping etc soon and that your OH is ok...must be so hard for them because they feel like they need to be strong for us but inside they must be falling apart.

Jigsaw puzzles seem to be doing me the world of good at the moment to take my mind off everything....and spending a good few hours in emergency dentists last night as OH filling had fallen out! He's petrified of them so the evil in me found it quite amusing!!

How's the injection going now Vicki? Any less painful? I'm getting a bit of lower back pain every evening...always in same place, feels like just to the right of my spine. Not painful as such but a dull ache. I have my injection around midday and ache in evening.

Vicki272 · 16/08/2015 21:54

Ouch on the dentist little!!

Injection still stings but today was less painful than yesterday! How's yours going?

The backache seems to last a few hours... I was worried yesterday as thought it was cramping but there seems to be a pattern of it following the injection.

The colouring helped a little today but I just can't seem to relax... I'm so paranoid that I'm still going to the toilet every half hour to check!

Going to talk to L about it all tomorrow! Thank God I have L and D and you ladies!!!!

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littleb84 · 16/08/2015 22:30

My injections are going well so far....touchwood. I take one out about 15 minutes before so it's not cold anymore & it seems to do the trick.

Fingers crossed they can shed some light on it all tomorrow for you.

Has anyone else been told to take baby aspirin? My doc told me to take it as it can't hurt & may help increase blood flow to uterus.

Marchgirl · 17/08/2015 06:58

Hmmm. Are you allowed to take aspirin on the trial little? I thought it was one of the ones listed in the not allowed section. I would also suggest caution with it, as the latest research indicates it can do more harm than good in the absence of clotting issues. I'm not sure all gps are aware, as a lot of them still prescribe 'just in case'. But anyway, I'd check your trial docs first.

kazz, hoping the cramping hasn't come back and you get some reassurance today x

Vicki272 · 17/08/2015 07:23

D was saying that exact thing to me march about the aspirin doing more harm than good.

Woken up to a lot more spotting today... Lots of brown blood. Felt sick this morning too. Way too early for that right?

X

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philippa88 · 17/08/2015 07:28

little I'm on baby aspirin, but I was only put on that at my 12 week consultant appt - so I wasn't taking it alongside the injections. Ask the trial team about it!
Can't believe it's Monday again, I know I complain time is standing still but actually last Monday feels like 5 mins ago!
How is everyone today??

philippa88 · 17/08/2015 07:29

Oh and I'm on it as my bmi is more than 30 - for me they want less clotting risks!

Marchgirl · 17/08/2015 07:34

Not necessarily too early for sickness vicki. Sorry you've had some more spotting. This time is so stressful. Big hug x