RESPONSE Trial for Recurrent Miscarriage - Thread 4

[Vicki272]

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

Hey all, just got back from the hospital... All positive there too!

Been checked over and randomised... Had my first injection (which wasn't too bad at all! Stung a bit) good old chinwag with D too!

I've just realised that I haven't eaten anything since breakfast!! I hadn't even realised until the bloods were done!!

Feel a bit weird still... Booked in for my next check up on Monday. Will be 4 weeks then they think.

X

I've missed so much !!

Vicki and little congratulations how exciting !!

Gen what a lovely scan photo :)

Ah Vicki shame your not in Tuesday as I'm in for my 20 weeks scan L is coming with me as D is on holiday xx

Oh sorry hi crochet sorry your here tho :( xx

brummiemum I thought that today being my 10 week would be my last scan (even though I'm only 9 weeks 2 days) but she said I would get one in 2 weeks and at 16 she also said with my anxiety kicking in (I get upset prescan) that she could do one at 14 weeks I'm getting a right little collection of scan photos!
Glad it went well vicki I would say they get better but mine possibly got worse! Sorry!! But hopefully all be worth it! X

That's great news vicki. Are you going to find out the sex Louise? I was so nervous in the build up to my 20 week scan. How are you getting on?

Eeeeeeeeeeek!!!!!! I don't come on all day as been celebrating ds' 4th birthday today (cry, where's my baby gone????) and I miss all this FABULOUSLY WONDERFUL news!!!!

Congratulations Vicki, little and Gen!!!!

Vicki I would've told you to take fmu as they used mine at Cov, but you got a + anyway. Absolutely thrilled for you all, gen beautiful little blob there!!!!

Absolutely shattered here, baby has not stopped moving, and I mean that LITERALLY for 2 days and so frikkin heavy. Think the braxton kicked in last night, then I went for a number 2 as felt bloated, as I was pushing I was sick! Haven't been sick so far (except making myself sick once to try and get the nausea to bugger off!)
Today haven't stopped, been to the fair, and played with ds all day. We've been to the beach every day since Sunday (been away in the caravan in Norfolk since Saturday afternoon) and think everything is catching up on me now lol.

Choccywoccydodah 8 m/c pregnant due 24th Oct 2015
Sizethree 3 m/c pregnant due 5th Nov 2015
Indiedog 4 m/c pregnant due 2nd Dec 2015
MAS7 pregnant due 10th Dec 2015
LouiseM1987 3 m/c pregnant due 4th Jan 2016
Philippa88 4 m/c pregnant due Jan 2016
Joy2713 6 m/c pregnant with twins due Jan 2016
Brummiemum87 4 m/c pregnant due 12th March 2016
Genwah85 pregnant due 15th March 2016
Marchgirl 5 m/c pregnant due 22nd March 2016
Vicki272 3 m/c pregnant
Littleb84 3 m/c pregnant
Kazz2112 4 m/c
Clairemorgan81 3 m/c
Crochetlover32

mas I'm still undecided I don't feel
Ready to find out yet but i do want to know ! I hate surprises tho so I don't no ha ! I'm not really thinking about the scan but I've booked Monday and Tuesday off work as I know I'll be super anxious.

Has anyone claimed back the parking / mileage ? X

I haven't Louise. I said to D at the Tommys day about that I didn't want the £50 odd that it's cost, I've got a baby out of it!! I wasn't sure about who paid it as i didn't want it to come out of their budget at Cov after all they do to help people. She said the American testing co paid for it so claim it, buy something for the baby. But I don't feel comfortable though and said I'd rather give it back to the hospital or put it into the teams Xmas fund or something. But it's there to claim it back x

That's nice you've got the time booked off Louise. I'm sure you'll be fine x

I felt awkward claiming the Mileage too, I'd much rather have the baby than the money! Although I remember L saying the drug company pay our costs so it's a nice idea to claim it and give something back to them. D suggested I use it to pay for my 3d scan but still feel cheeky asking after all I've got of it!

My trial nurse literally has given me a completed forms and packed me off to the cashier at the hospital with each visit as she got my prescription from the pharmacist.

Ranged between £12 and £8.10. 18 mile round trip for me. I said I didn't really want it though, just a good outcome. just hoping now I was on the placebo and that I'm contributing to a new miracle drug that will save 1000s future heart ache.

feeling upset. text DHs sister half an hour ago and told her our bad news. no response. yet she's been creating pinterest boards on new converse for her daughter.

That's a bit of her kazz.
Maybe she's using something other than her phone?
How's everything?

My parking was between £3 and £7 per visit and 28 mile round trip (I don't know what they pay for mileage). I've been in 7 or 8 times I think x

Lots going on.

As for parking/mileage, I'm only a couple miles from my hospital, but on every visit, they gave me a parking ticket to get out with, just put it straight in at the barrier, so haven't paid any parking cost. Not worried about mileage, that was well down my list of concerns. They never mentioned it to be honest, just dished out the carp park tickets.

Oh Kazz! That's rubbish of her! Big hugs for you! Wish we could cheer you up in real life! It's just so unfair.

I feel like today has been the most bizarre day! Just done a frer and got the below... I was worried as the hospital test took ages to show a positive!

Today on here has been a bit of a whirlwind!! Good idea ladies on donating the cash back! I'm going to start taking my magazines in too... Always good... Especially for the appointment today as it has long waiting bits in it!!

Xx

We've just worked it out at 45p a mile bit no parking. Sounds right. I genuinely didn't want it but having g been taken to the cashier I couldn't then walk away and we just put it into a cash pot in the house which has now been completely blitzed on wine. just keep thinking that I've got a month to do what I want them I need to restart my healthy focus.

Just realised tonight... not a single Bruise from injections.. until last one I did ... massive Bruise on my belly. Nice reminder!

I'm sorry if I'm being negative ladies. I'm excited and hoping for the success of this drug but my SIL has pissed me off too much today

Sorry your sil pissed you off kazz. Maybe she's finding it difficult to find the right words to say. Not really an excuse to say nothing, but i think some people do struggle and think that "I'm sorry to hear it. That's totally shit" isn't enough, when really that all you want to hear. Hopefully she'll come back to you today. Does she know about your previous losses?

I know exactly how you feel kazz it's awful when there isn't even an acknowledgement. I think march is right though, sometimes people don't know what to say so they do the worst thing and don't say anything.

A close friend of mine recently confessed exactly that. We lost touch and drifted apart since the losses and she had a baby... But she said, she didn't want to bring it up to remind me and when is first told Her, she just didn't know what to say. Saud she wrote and deleted the text loads of times.

It's either that or we can just come to the conclusion that she's a bit of a cow!

Hope you are feeling a bit better this morning! I think that wine is a great investment too! Xx

Morning ladies!
On the topic of claiming expenses - I haven't bothered. Like someone else said, I'm (touch wood) getting a baby out of this and that's priceless! Only thing we got was a parking ticket as our appt overran, but the trial nurse wrote a letter to aid our appeal and we got the fine written off :)
Can't believe I'm 17 weeks tmrw, I actually can't believe it. It seems like it's something that was NEVER going to happen, fingers still firmly crossed all remains well but I'm feeling positive :)
The injections seem a lifetime away for me now, pretty convinced I had the drug!
For those still ttc - there's a new trial starting called 'prism' my nurse was saying - think it's progesterone based. She also said the results from the promise trial (progesterone) didn't have very positive results so I think the new trial is a different version of the progesterone. Maybe worth looking into! Xx

That's what I was thinking :) someone at work said you should claim as its a trial but I don't want to like you've all said I'm lucky enough to hopefully have a baby at the end of it and the support I've received the money just wouldn't feel right. X

Good luck today little

I've just got to work and have a little bit of browny coloured cm... Should I be worried? Xx

Vicki that's a nice strong test! Now stop testing!
Don't worry too much about the brown, but do let them know at hospital so it's noted. Brown is old blood and chances are it's from implantation. I had a bit of red blood at 9 weeks, they don't know where it was from, but just keep them up to date.

Philippa eeek 17 weeks. Has it started flying by now?
I was 17 weeks when we went to Rhodes on hol and it has absolutely FLOWN!!
I'm 30 weeks tomorrow :) Scary that anytime 7 weeks from now I could have a baby boy in my arms!!
I did a list of all the stuff we've got to do first in the house and there's masses!!

Choccy I find day to day it drags, but looking back it's flown!! I can't believe you're nearly 30 weeks!! This trial thread really has gone the distance - I love our little group! X

Thanks choccy - i feel like i am getting a lot of discharge, mostly clear but that little bit of brown has freaked me out no end (it was sort of stringy if that makes sense)... i am in such a tizz now!! have literally been to the loo about 20 times this morning. I feel like I can feel it down there if you know what i mean (TMI...Sorry!!)

Have rang L and waiting for a call back now. The midwife i spoke to said it could be implantation bleeding as have been having those cramps. Am now convincing myself that the cramps are getting worse but think that might just be me being paranoid!!

Well done on 17 and 30 weeks ladies! that is amazing!! xx

It's a lovely little group :) Sorry I was 18 weeks when we went away!
It'll fly once you've had your 20 week scan I bet.
I'm on an Oct AN thread on here (but we've moved to FB), and they do a bump pic every weds, I can't believe how quick they come around!

Vicki totally understandable you're worrying. Cramps are normal in most cases too as it's stretching and things going on to accommodate baby x

And where's that size? How you getting on?