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RESPONSE Trial for Recurrent Miscarriage - Thread 4

624 replies

Vicki272 · 05/08/2015 00:24

Thread for all ladies on the RESPONSE trial - all stages welcome, for a bit of well needed silliness and good old fashioned all round advice and support!

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12
MAS7 · 11/08/2015 19:47

So sorry kazz. Like little said, treat yourself to something nice and be kind to yourself. Big hugs x x

clairemorgan81 · 11/08/2015 20:08

how's the bleeding kazz? hope its not too bad?

sorry about bfn little. you still have time though. its def not my month I've had brown and red spotting discharge for a week now and I think af will be around thurs or Fri. my bleeding prior to af is the worst its been this month. my gp referred me for a pelvic ultrasound a month or so ago (before I got gynae referral) and they rang me today so I'm having that done Fri night. wondering what/if anything that may show x

clairemorgan81 · 11/08/2015 20:26

Oh and little my last mc was Dec too Sad. can't believe how time has flown yet no further forward x

Kazz2112 · 11/08/2015 20:31

I feel ok actually. I think the toughest part is the not knowing. The hoping and the unknown. Now I know that that's it over (or at least it's not going any where... not convinced the process is yet..I've not bled enough!)

I'm extremely sad and scared for the future but I can't dwell. We've got to look forward. Can't do anything about he past, only the future. I've already enquired at Coventry and got my follow up rmc appointment booked in. now just focusing on holiday!

Vicki272 · 11/08/2015 20:43

Kazz well done you... sounding as positive as you can be... I know what you mean with the not knowing, it is the worst. Hope you can enjoy your holiday.

What will the appointment be for? (Hope you don't mind me asking...) xx

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LouiseM1987 · 11/08/2015 20:53

Oh kazz I'm so sorry ! It's so bloody shit ! Like everyone else has said I hope your OH is looking after you.

Sorry I've not replied sooner my bipolar has come back with bad depression so I've been a hermit for a few days.

Xxx

Kazz2112 · 12/08/2015 00:02

Vicki... I have no idea atm! and from friends working at the hospital I know I'm seeing a locum. I expect theyll pat my shoulder and suggest progesterone or something to try but I'm going to beat them to it and try Coventry and maybe look at genetic blood tests. I don't care what expenses are involved. (when i say this I don't want to sound like some rich bitch... We're not... I've been saving for mat leave for 18 months which there's no point in having without a baby) but we will do anything it takes.

Thing that really got me yesterday was one of my best mates who's a midwife, with 2 kids and a phobia of sex said 'You will have your own genetic child. even if I have to carry it for you'. It occurred to me that if it got to that stage, she's the only person I would ever consider doing that for us and I know she really would.

(Sorry for the rambling. bit drunk!)

Vicki272 · 12/08/2015 11:14

kazz how are you feeling today?

I don't blame you on the testing - you just have to do anything that needs to be done to get there, i would be exactly the same!!!

That is a good option, your friend. And lovely of her to say so too.

So, another BFN today... not too surprised really but will be trekking out to the shops for more frer today... still only 9dpo at the moment... so am guessing if there is anything there and i am on the 28 day cycle again then i should start seeing results this week (due on earliest of 17th if am back to 28 days again).

Any joy today little?

Sorry to hear louise anything that we can do to help?

How is everyone today? xx

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Genwah85 · 12/08/2015 11:30

vicki there is still time!

kazz how's things going? Wish there was more we could say :(

louise I've suffered depression in the past And feel it may make a come back especially my anxiety it's really making a come back :(

Hi to everyone else hope you are all ok, I've got a scan tommorow and I'm convinced it's a bad one....yesterday I woke up and I just felt different all symptoms have vanished and I just feel like somethings changed :( x

Choccywoccydodah · 12/08/2015 11:30

I don't blame you for getting pissed kazz, you must be totally heartbroken. I'm heartbroken for you too.
I hope you get into Coventry ASAP.
You can self refer, would you like our response teams phone number in Coventry, they'll probably fast track you x

philippa88 · 12/08/2015 11:34

Gen what scan do you have tmrw? How many weeks will you be?

Fingers crossed you have later bfp's those still testing, I got mine at 10/11dpo so there's still time!!! On the clearblue it was so faint and wasn't until 13dpo it darkened, keep
the faith!! X

philippa88 · 12/08/2015 11:35

Oh and don't worry about feeling like you've got a lack of symptoms, they really do come and go with me, currently other than my bump I would have no clue I had a little boy in there x

Vicki272 · 12/08/2015 12:03

How far along are you gen?

Fingers crossed on the bfp i guess... I can't even trust my body with symptoms as have been utterly convinced in the past with nothing and then have been pg without any symptoms!

xx

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Kazz2112 · 12/08/2015 12:23

Hey ladies! Feeling a little ropey this morning but went and had my personal training session which I spent paranoid that I was bleeding heavily even though the bleeding has stopped this morning. Which worries me more cos I don't think I've bled enough. It's not even been as heavy as a period! Grrrrrrr. It's ridiculous. Sunday / Monday I was devastated because I was bleeding. Now I'm pissed off that I'm not!

Thanks for the offer of the contact Choccy but nothing I can do for a couple of months regarding Coventry. You have to have had 2 cycles post mc before they can do the testing. Then I ring up on the day I ovulate on cycle 3 and go I'm 7-10days later sp we're looking mid to the end of October

Genwah85 · 12/08/2015 13:16

phillipa and vicki it's my 10 week appoitment but I'm only 9 weeks 2 days well I will be tommorow hopefully! I just wish the symptoms would have stayed around a lil longer :(

Marchgirl · 12/08/2015 13:35

Kaz, i probably shouldn't admit this, but i went to Coventry after one full cycle (ie during the second cycle) rather than waiting two. I did it because my cycles were long then and the miscarriage was early (4+5). I decided that if i hadn't tested until i was a week late i might never have known i mc'd and could have just gone straight away (obv i know that's bollocks, of course i knew i was pg even without testing, but it's how i justified going early to myself).
The reasons that say to wait 2 cycles is because of the risk of infection (i considered this low for me as it was so early that not much implantation would have occurred) and because your lining may be a bit thinner after a mc (I've never had this issue and period after mc was normal). I'm not saying you should do this, but the same arguments may apply to you (obv don't mention to kerri)

Kazz2112 · 12/08/2015 13:49

Aaarrrghh. Annoyingly when I've emailed i mentioned that im currently in the process of a mc - is she likely to remember that? It's something I may think about.

Strangely atm I just feel totally uninterested. My mum sent me a link to an article about natural ways to reduce the risk of miscarriage last night and atm I just can't be bothered reading it! I'm sure my drive and determination will come back but atm it's just not there

Vicki272 · 12/08/2015 13:55

kazz i think that is completely natural... I felt exactly the same after my 2nd one.

I always go through that strange sort of grieving process, so numbness, followed by complete denial, then the sadness and then outright anger at the situation. I think it is the mind's way of protecting itself (the numbness i mean...)

Plus the whole thing for all of us in trying again, is that knowing that we are opening ourselves up to potential for that pain again. Sometimes it is really hard to look forward because it means acknowledging all of those potential outcomes / things really.

Hope this helps a little... i know that no 2 people are the same but sometimes it helps to get another perspective.

Big hugs!! xx

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clairemorgan81 · 12/08/2015 15:11

kazz hope your okay, glad to see you are looking at future and coventry. that's my plan for after my gynae app in Sept too.

af arrived today, its so heavy, clotty and more painful these last couple of months Sad coeliac bloods normal so not that contributing to mc x

clairemorgan81 · 12/08/2015 15:12

vicki sorry about bfn still very early at 9dpo though, fingers crossed for you. come on bfp xx

Vicki272 · 12/08/2015 15:31

Oh no claire just adding to your worry! At least one more thing eliminated i guess...

I just feel like i can't trust my body at the mo - feeling all sorts of "symptoms" from funny pelvic twinges (like i had with my 1st pg) to the heavy boobs and tiredness, but have had it all before and nothing!!!

Will just keep testing until af comes... x

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clairemorgan81 · 12/08/2015 15:39

vicki its hard as af symptoms so like pregnancy symptoms....keep going lovely you never know til af shows (hoping it won't) x

Vicki272 · 12/08/2015 17:30

Thanks claire fingers crossed ey?

I don't even want to get hopeful! X

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Marchgirl · 12/08/2015 18:20

Sorry af arrived claire. Glad you've ruled out coeliac anyway, and seems like it's even more important than ever that you have the gynae appt. What does dr google say about possible causes?

9dpo is still super early vicki. Keeping everything crossed for tomorrow Smile

littleb84 · 12/08/2015 18:43

I haven't even bothered testing today. Felt so crappy about it that I couldn't bring myself to see another bfn and then feel even shitter.

I'm the same as you though Vicki with the symptoms, the exact same ones as well so maybe something is going on. With last preg I didn't get a bfp until I was 4 days late so maybe I ovulate a lot later than I realise which is why no positive ovulation tests! If no AF on Saturday then I'll test again.

OH & I woke up this morning on a day off & decided to randomly redecorate our bedroom to cheer us up. I'd forgotten how long it takes to decorate argh!!

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