Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

I know snoopy I have majorrrr scan phobia. So much so that if I ever get preg im transferring to another epau as I can't bear that ceeling and the waiting room. Too many awful memories and also bad scans with retained products etc.
Drtcc where r uuu? Hope ur ok
Rosa let us know ur results...I hope they come soon and hope ur doing
Ok.

Was it seeking who said they were going to get a puppy soon? What kind of puppy are you getting?

Do you think this is an omen? DH got me a little ceramic pot and some forget me not seeds ( they are the official flower of where we went on our honeymoon and also quite an apt name considering what we've been through ) so I'm not the most green fingered person but I try, I followed all the instructions and out of about thirty seeds only one has sprouted

Don't worry snoopy ive lost track of the postive and negatuve omens!
I have myself my first injection (well Dh did) and then randomly there were amazing fireworks at the lake where we were staying. Straight after I got up we saw and heard them from our room. Good omen?
Then the next am I saw a black crow-it was following me all day! Bad omen?!
(glad it's not just me who thinks these things!)

No such thing as bad omens girls! I don't believe in that rubbish. You're all going to get there one way or another. I truly believe that!! A black crow or one seed sprouting is not going to change your future. DrS told me last week when I was panicking about my brown discharge issue - that there's no point worrying about what you can't control. He said I was doing absolutely everything in my power and that's all I have to focus on. It definitely helped.

Rosa you're sooo close to 2nd Trimester!! Your pregnancy seems to be flying by yet mine seems to be going ridiculously slow!!

Yes Snoopy - it's me getting the dog! A German Shepherd so not a small one either! Going to have my hands full!!

Drttc- any news? Hope all is ok.

Really sorry to hear about your grandad Rosa- hope your bearing up alright!

Not great news from me. Hcg for 15dpo was only 57. Which is basically atrocious enough to have no hope, but cruel enough to not be an impossibility. So tomorrow I see if it doubles. Emailed Louise and that's what she advised. Can't say I'm surprised. I don't like being so negative all the time, but if I'd really let myself believe this... I'd be in bits. I don't want to be a downer though! I'm sure I'll get a BFP again & one of these days it'll work out. I was really hoping the treatment might just magically fix whatever is going on. Now I'm just wondering how many chemicals/miscarriages it's going to take to get there :(

Drttc, I don't know much about what levels should be...but could u have ovulated later? 15dpo some
People only just get a bfp which is 25 sensitivity? There is still hope! Try cling onto it, let us know wot Louise says....if u ovulated even a few days later 52 would be a great no? Are u having it repeated to see if it doubles?
Rosa had a level check maybe she can help? But even then every preg is so so diff.
Hope ur ok xxx

Drttc, I am sorry things are not looking so positive for you, but hopefully your blood results will come back with a better answer - what day are you on at the mo? It's so hard - i keep thinking if I don't believe it it won't be hard if something goes wrong - I don't think it will be any easier for me if something does go wrong this tine - wish I could fast forward to my scan. Is this your first mc on the treatment? If do might be worth a chat with Mr s - he might suggest hydroxy - that's what I was given when I went to see him after my last mc on the treatment.

Snoopy/trying - I know what you mean about omens - I went to some counselling once and was advised something similar to what seeking says - you have to remain positive and no one/ no thing can Externally influence what is going on inside you. Easier said then done though.

How did dH get on with injecting you? Are they proper injections or a pen like device? I did all my injections for SO as they were a pen like thing and quite easy plus I don't think dh could have done it to me! Lol!

Sorry to hear about your grandpa rosa - hope you're doing ok. Can't believe your 12 week SCSI us tomorrow - feels like it has flown by where as my time is going very very slowly!

I know it's terrible!
Too early for me to celebrate as 12 week scan tomorrow but I did get my Harmony results today - and at age 39 I had the lowest possible risk scores for all the tests they did ... So the Daily Mail can stick that in their pipe and smoke it. They thrive on 'bad news' stories. Yes, there's risks.. We know .. But they are over amplified by the press and absolutely not helpful. I certainly didn't choose to be this age - immune issues the nhs don't recognise meant I repeatedly suffered heartache which likely could have been avoided and so I think the press would be better spending time writing interesting articles on how the nhs could save heartache and money in the long run by funding ways to support people like us- and testing for immune issues before RMC. X

So sorry... There was a whole new page I missed and was clearly responding to the press article! Not dry tv your results. You may be right but you might not... The next blood result will be critical. My 13 dpo was only 51 then 2 days later 174. It's more important to focus on whether it at least doubles - or so I was told.

Trying. I'm embarrassingly superstitious too... Salute solo magpies 3 times and ask them how their wife is?! Know it rubbish but don't take ANY chances with luck these days. I've 'wishes' blown off dandelions in my pocket .. You name it

Dry tv = Drttc. Sorry!

Rosa hip hip hurrah!!! U have a baby inside u and its growing and hopefully v healthy! This is great news. Good luk. Telling everyone soon
Drttc-hope rosa results help u! 54 really isn't that low AT ALL. Get another to check it's going up, that's wot matters. Sleep well
Tonight too!
The injections r proper ones with little needles u have draw stuff up and make it, dh is fine doing it I prefer him doing it! I had acu today which went well. I'm still frreaking up, worried about all these drugs which. Are meant to help, and worried they will stop ivf working?! A new worry every day!!!

Rosa I wish u could write to the daily mail and tell them
To stick it up their arse!

drttc that doesn't sound like it's over by a long shot. Some pregnancies have very slow rising HCG and honestly one result isn't an indication of anything bad at this stage. At about 18 dpo mine was over 2200, and I still had a miscarriage and convinced myself it was a molar pregnancy (crying down the phone to my mum that my baby was going to be a tumour is not my finest moment)! What I'm trying to say is, it's all so individual and there is definitely still hope for this one.

trying you're very brave. I can deal with victims that have been stabbed and shot but do not ask me to see my own blood being drawn, no way could I manage my own injections.

Oh wow seeking I'd love a German shepherd. My grand dad has a German shepherd cross and he's huge but so loveable. DH wants a french bulldog because they make him laugh, but I said I wanted a dog slightly bigger than the cats I like border terriers, loved them ever since I saw the episode of futurama with Seymour the dog in it.

That article really made my blood boil! My mum saw the bbc report and was disgusted, she said she didn't bring me up to be a walking womb!

I prefer this article www.theatlantic.com/magazine/archive/2013/07/how-long-can-you-wait-to-have-a-baby/309374/

Rosa - sorry about your grandad but lovely that he knew about your LO. So pleased your harmony was all good, just the scan and then you can really start believing this is it.

Snoopy - good that your appt with Dr S was helpful. You will get there.

Trying - totally understand you feeling a bit freaked out, you re doing brilliantly just take it day at a time.

Drttc - as the others have said you just can t tell on one result. There s still hope so try to stay positive. You re pregnant now until proven otherwise so just hang in there.

Sunny and seeking- everything crossed for your scans and hoping time doesn t drag too painfully.

Hello everyone else.

Afm - had my apt with dr s and all set up to start SO next cycle, just finishing second course of humira this cycle. He wasn t worried about my fsh and said since i d had two lots of humira i should have enough immune support not to worry about taking pred till bfp since it had messed my cycle last time i took it from ov. Kinda excited to be trying something else.

Rosa and Sunny how many rounds of SO did you do before your bfps and how many follicles were you getting on the scan ?

He s starting me on 7.5mg a day from cd 2-6 plus ovidrelle trigger (i ll be getting good at stabbing myself !)

Off to italy on thurs for my best friends wedding at (she s finally found her man at 40 so will prob join the ttc train soon- i ll point her in the direction of that article snoopy - def bettr reading than the stupid daily mail alarmist one).

Sorry your blood results have you worried Drttc - but as the others have said, one result is not a good enough indicator, it the rise that's important. And you could have ovulated late. Its seems I ovulated 3/4 days later than i thought! DrS told me that even then the egg lasts 12 hours so thats an additional amount of time. I had a positive opk on the Saturday... yet think the sperm must have hit the jackpot Monday/Tuesday if my dates now are anything to go by.... God Knows!! I'm really wishing all is well and you have some better news tomorrow.

Fantastic news about your Harmony results Rosa..... F**k you Daily Mail!!! I hope you feel comfortable enough tomorrow to relax a little and enjoy reaching 12 weeks successfully!! Long may it continue!!
I'm so undecided on the Harmony test..... Part of me wants to know asap. Part of me thinks that I do have age on my side (I'm 31 ...nearly) so maybe wait - have Nuchal done on NHS and IF results are a worry have the Harmony done then.

Snoopy - I just love all animals!! I have two very beautiful Ragdoll cats, would happily have more but I fear I may turn into one of those crazy ladies! Can't wait to go for long walks with the dog

Hope Acu chilled you out a little Trying. Can't wait for mine on Thursday!

Hi hula, I started on 5mg and was getting two eggs until round 3 when I only got 1, after that I was upped to 7.5 and was consistently getting 3 good size eggs. I got a BFP on round 5. After my mc I went back on it for 2 months - again at 7.5 and was getting three good eggs again but we stopped due to dh (supposed) sperm issues.

I generally went for Scan on day 10/11 and injecting on day 12 - ovulation was then day 14 (36 hours after trigger). I also found the day I ovulated I would get a ache feeling in my ovaries - particularly if all 3 were one side and had to rest a bit on that day as well as wear loose clothing!

Seeking u sound nice and chilled yay well done for keeping clam. Ohhh I'm 31 (nearly) too!

Hula have a great time in Italy, I love the place (and the vino!). Don't want to sound like mad woman stalker but think it took rosa 2 cycles and sunny 5-but I'm sure they will inform u better! Hope it does some
Magic for u too and Im glad Mr s was encouraging. :)

Rosa let us know tmrw re ur scan, I know u must still be anxious...

Great news on your results rosa too.

Just noticed we are nearing 1000 posts - will be time for a new thread soon!

Hi all- will reply properly tomorrow but just want to let Hula know I had only 2 cycles of SO. First used 5mg and only one follicle - second 7.5mg like you and 4.. One was about to burst, one looked ready and two deemed likely too small. Good luck x

Ps thanks everyone for congrats but yes still nervous.. And then even after that .. I know I will never fully relax.. But def feeling more positive than I have in such a long time.. Feel teary with it given all the pent up emotion and fact never really 'dealt with' the miscarriages. I so hope this is it .. And for us all now or v soon x

Thanks for the info ladies, lets hope it does the trick !

1st trimester: done
Scan said I was 12+4 and strong heart beat. Due middle of Dec. can't believe it. Quite emotional telling by parents. They couldn't quite believe all the treatment I've been through and sounded a bit sceptical but anyway they seemed happy. They reminded me it's still early days .. Don't I know it! Anyway just thought would share. Hope everyone else doing ok today x

yay, congratulations rosa - what a great milestone to have achieved and don't let anyone take that away from you!

My scan is a week away now - hoping it will go quickly - its my bday tomorrow, and then we are off to Windsor on Saturday for a day out all being well, hoping the next few days whizz by!!

Wonderful news, Rosa!! I agree with sunny- it's a huge milestone and you deserve to celebrate!!! Hope you and your mister have a wonderful time tonight dreaming about your December baby!

As for me, second hcg came back at 94.9, so 66% increase in 44 hours. People keep telling me not to lose hope, but let's be real. Those numbers are terrible! I've not taken my steroid today & think I'll discontinue my cyclogest as well. I don't want to prolong anything. Waiting on Dr S's office to tell me what I should do before it officially decide though.