Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

[sunnyday01]

Continuing from 13th thread

Hi all, just catching up on everything after a few days away. I'm so sorry to hear your news Sunny. You are so right staying positive about getting pregnant again soon though. This proves how fertile you are and I know it won't be long before if happens for you. Not sure if you prefer to wait or need some time, but we are always extra fertile after a miscarriage. Sending you a big hug.
Dildoos was super excited to see your posts! Wow, it sounds really positive. I think the fact you are getting such strong tests is a really good sign! How are you feeling in yourself? I was freaking out majorly until 12 weeks, and I'm still not exactly an oasis of calm. As everyone says, a total pavlova!
rosa so sorry only just getting back to your scan question. I'm not sure about anyone up here that you could go to but I only looked into it a little. Such a nightmare paying for trains and planes on top of everything else! How is the accu is going? I am going back next Friday.
Hope everyone else is doing well. Sending positive thoughts your way, determined, trying and hula.
Seems amazing that I am now 14 and a half weeks but still deflated like I have a long way to go. Mainly because I have! Next scan is next week so should have a clear idea then how baby is doing. Have been tapering the pred and only two days left now. Girl at work said my face looked chubby yesterday. So kind of her! Anyway, can lose weight later! What a long journey this is but we will get there, xxx

Thanks hope - ideally I want to continue with SO so will need to wait one month until next period arrives I guess!

Glad things are progressing well for you, I guess you have to just take it a week at a time and have mini milestones to get through the time.

Good luck for your appt determined

Thanks hope and rosa .
No still no symptoms whatso ever nothing,zero. Zilch I can't even marginally fabricate any.
Pavlova pavlova pavlova!
Still I thought on a positive I should be thinking today I am pregnant?
Tomorrow is yet to come!
I thought of doing my own tests but loads of tesco one and see if they get brighter every morning? X

At work and started to bleed

oh no dildood, that is rubbish. is it just spotting? It might be nothing (easy for me to say I know).

Hope you are ok - are you able to go home?

Oh no...could it not be implantation blood coming through? At 9dpo that would be about right?! Did you test this morning?

(I had early spotting with the last 2, never with the first 2. I wonder if the aspirin is a culprit). Stay positive xxx

Oh no dildoos?! What's going on :(. Can u go home. Are u ok? Is there a lot? Could it be implantation like determined said?
How stressful :(

Hi ladies,I'm the biggest lurker ever I tend to post then not post for ages.

Anyhow I've had some results back,my thyroid is working normally and my blood has no plotting issues. on the 4thof March me and my hubby are having bloods taken for another test. Then that's were the nhs testing stops I think. I know you all talk about your doctor is Coventry but I live in merseyside and my husband lives too far. Does anyone have any recommendations for a doctor in Manchester or Liverpool please?.

After 3 loses I am keen to try again,I just think I'm not "unlucky" I think there must be something out thereto keep me pregnant longer than 8 weeks.

Hi OneFoot

Most of us are under a Dr in London/Epsom called Mr Shehata, I think the dr you are referring to is Dr Quenby who is based in Coventry.

From my limited experience, I don't know of any private dr's that way who 'treat' immune issues. Sadly a lof of us travel quite a way to see Mr S.

Trying may be able to help as i think she lives in the North west.

Hi one foot. I'm from near Mersey too! I saw mr farqashon at the liverpool womens who is lovely but doesn't really do the whole NK cell thing. They do offer a great service for reassurance scans etc. so I'm under them as well. He did give me progesterone and asprin-It didn't work and I ended up having another miscarriage. Which led me to mr shehata. But they are very supportive.

Quenby is in Coventry-u only see her once and that's it. She gives u results over the phone. So u would only ever see you the one time. I think it's a one off charge of 360. She does a uterine biopsy.

Shehata in London u tend to see more as he gives intralipds as well as steriods if you nk are higher. He's lot more exp and obviously a lot of time and energy to see him. It cost me 2 Grand In just blood tests so far! I've invested in a two together rail card for Me and DH( saves loads on train fares!)

If u do choose to see either, i found it hard to choose between the 2. But shehata does a bit more in depth immune testing that quenby (although more controversial) and so I went with him. Sucess on the recurrent miscarriage thread (mainly quenby patients currently) and on the old pred threads (mainly shehata) suggest they both help and I couldn't say which was "better". There isn't anyone closer to us to do all this sadly. There are a few more in London - nduke and gorgy.

All the best with whichever u decide. even if you decide neither the stats are always on your side (over 50 percent) even after multiple miscarriages xxx

Ok bleeding minimal and sludgy brown (sorry for too much info!) emailed louise as can't speak at work she said take cyclogest twice daily.So is that am and pm? Also if bleeding gets more or red stop aspirin. Called acupuncturist she said she will try help Monday. Thinking tomorrow I am going to rock up at gp and ask to be referred to our EPAU for bloods as that is the only way I will know. Limbo limbo limbo but i know it's not looking good!
Still no symptoms xx

Meant minimal now not the case this am xx

Hi dildoos, hope it's just spotting and that everything will be okay!!

Thank you mackoo, me too. But I think we all know that feeling when it starts xx

Goodluck one, I don't really know too much but the swing for me was Dr shehata you can have testing anytime I. Your cycle where as prof Quenby I think you have to go 10 days after ovulation so is more stressful xx

Dildoos - what at trial this all is and how horrid to be in limbo. Hoping for you that now the bleeding is minimal things will settle. If louise said twice daily for the cyclogest then yep i d say first thing and last thing. I gather that can cause irritation of the cervix if you re using that route....so u could change that if so. Really hoping this is a sticky bean for you. X

Oh and good idea to ask for bloods.

Thank you hula. Am and pm makes sense thinking this should hopefully help? In meantime I need bloods I think as don't want to be taking all this medication for no reason as can't be good for us xx

Hi dildoos, I'm so sorry you are going through this. You know if you call the EPU first thing you should be able to make an appointment direct without seeing your GP. I think they all work through self referral. Just thought it might save you some time, x

Thank you hope I didn't realise I could do that. I may as well call them direct. Did you just explain everything and who you see to them? X

Hey dildoos. How r u?
Yes ring them direct. My epau takes direct referals. Then them u have had recurrent miscarriages and ur on (6th or 7th sorry I can't rem) preg and bleeding-tell them it's dark etc. tell the if u have any pain too. They won't be able to scan u I don't think this early but they may do ur hcg for u. So sorry all this stress. How r u feeling. Pavlova!

Determined hope ur appt went well

Hope-congrats on getting this far. Here's to more weeks of it plain sailing but loss of moon face.

Mackoo when does ur first humira start?

Just calle them trying they want gp to refer and they open at 8 so I am chomping at the bit.
It's my 8th I have lower af pains and scratching if that sounds as you can imagine? On double cyclogest but not using the path in which could upset anything. Still brown sludge today. When I called the ward had epau book and they have nothing for today so I have to wait until tomorrow at the earliest . It's the waiting the constantly going to the toilet checking.
Anyway I do have an upnote to today! Its Friday, I am going to watch sister act at the theatre, it's the weekend, I have my health.

How are you all doing? Determind is it your appointment? X

Oh I'm sorry. Are u gonna call ur gp then? Just wondering are u not under a RM clinic at ur local hosp? At mine because I am I have a direct access to epau. Lots of hugs . Have u done another test?
Enjoy sister act I hope it distracts u. Hope the brown stops soon too-rem sue said she spotted all the way through.

Sorry to hear you are still bleeding dildoos - fustrating about the epu - when i rang last weekend - even though i am under them for rm, then still wouldn't see me until 6 weeks which is annoying! I totally understand the constantly wanting to go to the toilet to check - lat weekend i only allowed myself to go once every hour/hour and a half to help keep me sane!

Hopefully you can still enjoy your weekend x

Sorry this is so frustrating Dildoos! am so sorry I know this limbo well and I wish I could take some of the anxiety away from you! Big Hugs xxx Why is this never straightforward for any of us. I hope you get a speedy response from epu and sending positive vibes your way! Sorry not been on here much to support. I am having the most horrendous headaches and am struggling with the screen! (apparently its coming of the pred that probably causing it :()

Appointment with Dr S was good thanks. He took the time to go through my questions and I/we do feel better about it all. Long shot is I am increasing my metformin by another tablet (thanks Trying :)) and going to have my immune tests done again to see if there has been any change as may need to up my dose of pred and take hydroxy (possibly). I can have karyotype if I want but believes this is such a small percentage the solution is to keep trying anyway. I do still think there is something with my thyroid but will see what the results of my tests say.

He thinks the Jan m/c could be caused by not having a proper break (period) and hormones and egg quality not ideal from the previous one and I wasn't on meds (I expected that one :) ). Didn't have the heart to tell him my mum had a m/c then got preg with my bro in the exact same way! Its a huge positive that I got preg naturally though without super ov or anything like that so am holding onto that.

I quizzed him on lifestyle diet and fundamentally its not that fragile a process. Of course we must look after ourselves and take our vitamins, eat well etc but its important to be happy in life and he stressed that - glass of wine for me later then :)

So next step blood tests and also finding out more about Hydroxy? I did a bit of googling but there isn't much info. Be great if anyone has any experience of this they can share?

Hope everyone else is good today! the weekend is here (almost)

xxx