Page 37 | TTC/Pregnancy on Prednisolone or similar part 8

Jemimapuddleduk · 19/08/2012 13:25

X posts with you free. Thank you for offering to update my stats. X

mercator · 19/08/2012 20:28

Buster congratulations in the BFP! Fab news. Enjoy the lipids!

PQ thinking of you and hope lo is hanging in there. Sounds like your in good company.

snoopy not sure if you ever drop in butif you do been thinking about you today and hope all is going well with the chemo.

free. Good on you getting out with lo and hope your making a good recovery after the cs. I'm beginning to get nervous of the recovery especially now the countdown has begun - eek!

Hope Busters news is the first of the next wave of BFP's on here.

Havingkittens · 19/08/2012 23:42

Great news on your scan jemima, do I understand right that you're not seeing Mr S then, just having the treatment prescribed by your GP? If that's the case and you've not seen previous comments on this, Mr S sees 9 weeks as a big milestone, so that's all good!

buster, that's fantastic news! I don't think taking the pill for a few days will cause any problems. Looks like there's a flurry of luck on here recently. Long may it continue!

PQ, thinking of you lovely. You're in the best place and the best situation with a cot ready and waiting and some good stories of hope from the ladies on here to keep you positive. Hang in there!

Welcome to the thread megmum, so sorry to hear of your recent mc. Lovely to hear that you have two beautiful children as a result of the treatment. They must go a long way to give you the hope to persevere.

euro, I know you don't come on here so much now but I just wanted to ask you how you are doing? Have you decided what to do about treatment or any further test results?

free, You sound like you're getting a good handle on motherhood, whilst maintaining a bit of your own time too. Very admirable!

I had to concentrate pretty hard on that eyeliner I must say! The make up was for a lady's wedding so I didn't think the smudgy eyeliner would wash! In fact, I'm so bloody shaky, my hands are shaky and my legs feel like jelly. It's hideous. I just feel like hell at the moment with the pred, really out of it .

I've been keeping away from the list I'm afraid. I'm too scared to even put myself in the BFP waiting for scan section yet! Maybe I'll be brave if all goes ok on Thursday.

Buster76 · 20/08/2012 06:31

Thanks everyone! Just on the train now, was up at 4am! Already worrying as I haven't got up in the night the last 2 nights for a wee. I normally always done when preggers :o( and I wasn't constipated this morning,in fact it was a bit sloppy (tmi!!?) worry poo maybe? Or cud it be the steroids or omeprazole?
Goof luck with your scan kittens. I haven't booked in for mine yet.
Have a good day everyone! Xx

Buster76 · 20/08/2012 06:35

Oh dear sorry about the spelling and unnessary smiley face! OH I phone to keep me entertained!! My phone is like something from the 1980s!!!! xx

MegMum25 · 20/08/2012 07:31

Hi ladies. Thanks for your soothing words, am feeling much brighter although on my way to work which is bound to blacken the mood! Just wanted to say to buster, panic ye not (although my dH says I maintain a urination spreadsheet when I am pg as i am so obsessed with how
Often I go!) - yesterday was the hottest day of the year and you're a bit dehydrated I suspect. Sending best of wishes for your scan xx

Does anyone know how much the chromosomal
Testing is? I just signed the form Last week and realised now it would not be covered by private medical cover as the erpc was. All the previous chances I have have for such tests the samples have been thrown away or wrongly stored so am Completely in the dark about them. Thank you.

freelancegirl · 20/08/2012 08:11

OK - please do edit if I have got anything wrong. It was last updated a week ago so have just added a week to all BFPs and edited Jemima's info. Kittens have not changed you yet but hopeful that will be adding you to the first trimester as soon as you've had your scan. Have moved Bertha, Olives and Delta to second trimester, so congratulations to all three!

Monday 20th August

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 39+3
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 35+3
Mercator - V High NKC, DC#2 35+3 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 34+1
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 34+1
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 30+1

2nd Trimester

HelterSkelter (IVF and immune therapy) 19+6
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 17+3
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 13+3
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 13+2 Next scan 14th August
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 13+2

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 10+6
Jemimapuddleduk (33), 9+6. 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 ? 5th cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
LJ71 - mc on treatment
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Original poster

Arianrhod · 20/08/2012 08:12

Just sticking my head around the corner briefly .. PQ keeping everything crossed for you. megmum Welcome, and so sorry for your losses. Just wanted to say, are you sure the testing isn't covered by your private medical insurance? Only mine was - or would have been if my hospital had bl**dy bothered to test - as it was all part of the RMC investigations. Just a thought, you might want to double-check the terms of your policy.

And of course a big congrats to buster for your surprise BFP .. what a lovely thing to happen!

kittens Your reaction to the pred - have you asked Mr S if there's anything he can give you to help? I understand you may not want to take anything else, but way back when OH was expressing his concerns to Mr S about what the pred did to me, Mr S said there are medications he can prescribe to offset some of the worst symptoms, if necessary. Just thinking what you're saying about your work, I can understand the jelly wobbles not being particularly helpful in your line of work!

Going back to my skulking corner now ...

OP posts:

Jemimapuddleduk · 20/08/2012 08:51

busteri hope the intralipids go well today. Sorry to hear about your bruising. I am on fragmin which is similar and have moved on to my thighs now, the look shocking! Hopefully will be worth it.

Thank you to you all who have reassured me about 9 weeks being a big milestone with Mr S.. kittens you asked about my treatment, we are actually at an nhs fertility clinic as it takes us ages to get pg. We started IUI with SO at the start of the year and it worked and then had 3rd mc. The consultant prescribed the pred, fragmin, aspirin, progesterone, high dose folic combo this second IUI cycle (without testing I guess to save costs?). He also works at CARE (private) and I think they are big on the imminological side of things and this seems to be the standard drug mix for recurrent miscarriers on IUI/IVF cycles.

Hi to everyone else.
I am so shocked to hear how so many of you have had your Erpc test results buggered up, i can't believe they get it wrong so many times.
megmumi hope you manage to get yours covered by your med insurance.
X

BellyD · 20/08/2012 12:38

Hi. Just wanted to say that I am thinking of you PQ and hoping you hang on in as long as possible. Glad the voming wasn't anything contagious, although feel bad for the allergic lady obviously.

Welcome to megmum so sorry for you losses, you have definitely found the right place for support.

Kittens sorry the is making you feel so rubbish. Interesting what Ari said about Mr S being able to treat the side effects with other meds, not that you really want to pop more pills than you have to.

Jemima great news on your scan result. Can imagine your and DH's disbelief - a lovely kind of shock for a change I expect.

Merc have you heard anything on your revised offer? Keeping fingers crossed for you.

Buster great bfp news, whispered congrats. Hope the lipids kick in and do their job.

Hi mummy free very impressed with how you seem to be getting out and about. How is your lo? Sorry that you seem to still be chief-list-updater, stagnating at the bottom of it doesn't really seem a good enough excuse not to update it myself.

Bit gutted, like LJ, that Mr S now away until 4th Sept as are still waiting for our erpc results. Is it wrong to hope there was something wrong with the baby? I hope not as if there wasn't I would feel worse than I do for not taking the Pred and just relying on the hydroxy. Our plan of action is to research all available options including extra testing with Dr Gorgy that duggs very kindly sent through, IVF, trying again, surrogacy, adoption and then weigh up which one gives us the best chance of having a family, which is ultimately what we would love. Going back to the nutritionist on Sat followed by seeing a counsellor at Zita West just to help me get my head around things. Feels good to have a plan but it all takes precious time.

Buster76 · 20/08/2012 15:02

Hello!!! I'm out, went pretty well. Although felt a bit abandoned at first, attached me to the drip in this boiling room with no water or entertainment!!! When I realised I was allowed to move opened the windows! 3 hours later ..£390, thankyou very much! Well hopefully it's kicked into action and blasting the little blighters as I txt. ;o)
Going for a local scan next week.
Well done to Bertha,olives and delta!!!
Mr S was at Nlc today - mayb he is on paperwork duties in his holidays?? Xxx

Buster76 · 20/08/2012 15:06

I felt the same as you bellyD when waiting for my last results, I had 1 abnormal and 1 normal. Not sure if either made me feel any better but it's good to know. How far on were you this time? Xx

GreenOlives · 20/08/2012 18:39

Hi ladies!

Welcome Megmum, so sorry to hear of your losses and I hope that the results from the ERPC give you some answers (and that it is covered by your ins!)

Buster What fabulous news on your BFP! Glad to hear the intralipids are safely infused

PQ Hope you are ok and baby is staying put for a while longer.

Jemima Great news that all is going well*

Kittens I have my fingers crossed that the side effects settle down for you but if they don't it's definitely worth asking whether there is anything to counteract them.

Free As others have said it sounds like you are coping very well with motherhood and still managing to get out and about too - no mean feat if I remember correctly! Thanks for updating the list, I need to add my next scan on - nothing now until 20 week one as my consultant is happy that all is well and is going to treat me like a normal pregnant person now - very scary indeed!!

There really has been lots of good luck on here recently and I hope and pray that that continues with lots more BFPs

Well done for graduating to second trimester with me Bertha and Delta!

Monday 20th August

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 39+3
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 35+3
Mercator - V High NKC, DC#2 35+3 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 34+1
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 34+1
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 30+1

2nd Trimester

HelterSkelter (IVF and immune therapy) 19+6
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 17+3
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 13+3
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 13+2 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 13+2

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 10+6
Jemimapuddleduk (33), 9+6. 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 ? 5th cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
LJ71 - mc on treatment
London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

mercator · 20/08/2012 19:12

Belly good to hear you sounding so positive in terms of researching all your options. I hope you manage to find the right path for you. It must be so frustrating that Mr. Is on hols. I recall my ERPC and being so annoyed that they didn't appear to have tested at all but that as on the NHS and the only reason I agreed to one.

Still no news on the house front, thanks for asking but I was starting to get cold feet. I've become such a wimp with 'old' age. Crazy really as loved on two other countries before although a Brit by birth.

Kittens can understand not wanting the shakes with your profession, must be a nightmare,hope the eyeliner went on ok!

olives lovely to hear fm you and congrats on graduating with Bertha and Delta. Normal pg now! Scary as that is.

Jemima good to hear about your success with IUI as I have a friend embarking on this but without having had NK's tested.

buster glad to hear you've nuked those NK b...ers!

Waves to all.

mercator · 20/08/2012 19:15

Quick question. I have a whole box of 20 clear blue digital ovulation tests unused obviously and expiry date may ' 13. Seems a shame to chuck them so if anyone wants them let me know. Also have the preconception and pregnancy vits Mr S recommends. Didn't use them as was on NHP so all free to a good home or they'll be binned.

Will offer up my Doppler like free once baby arrives.

mercator · 20/08/2012 23:03

Just a quick post to say that I have takers for both the vits and sticks.

duggs1976 · 21/08/2012 07:17

hi guys,

Having my first SO scan today since the last MC in April. Dr S is "on hols" so have one of his Harley st colleagues. Think Im going for the how many men can see my vagggginnggeee in my lifetime award. Reckon we'd have an olympic worth team here ?

Anyway.. been a little absent and was looking at the list that free dutifully updates even though she is "post natal" so to speak.

The top of the list is important and encouraging and when I was briefly pregnant it was comforting and do pls keeep that going amongst those who are moving. There are some of us who've been on the list for over or almost a year now. I reckon we could sort out the bottom of the list so it is a little less depressing.

I've given it a go let me know how this works for people.
Not currently pregnant.
Children already (you give us childless folk some hope as your bodies can do it technically) speaking.
Then the ones who haven't yet got off the mark.
I will try to sort by who is having Super Ovulation treatment, IUI or IVF. This may make it a little more useful for us .. what do you think? Happy for anyone to butt in or suggest another category.. but I'll go sort and then post in a minute.
oh and many thanks Merc for my vits !

duggs1976 · 21/08/2012 07:35

Is a long list..although I have taken out the unknown status chicks as it has been so long..a PG perseon can update the pg list with their dates and us TTC bunch will be sure to move or update any status we need to when something happens. Does that sound fair..?

If I've got anyone in wrong place apologies.

Tuesday 21st August

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 39+4
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 35+4
Mercator - V High NKC, DC#2 35+3 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. ? 34+2
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 34+2
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 30+2

2nd Trimester

HelterSkelter (IVF and immune therapy) -20
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 17+4
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 13+4
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 13+3 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 13+3

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 11
Jemimapuddleduk (33), 10. 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC ? ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) ? super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov

TTC ? UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)

TTC ? ASSISTANCE - TTC 1st..

Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 ? 5th cycle SO
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 ? last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC ? UNASSISTED - TTC 1st..

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
LJ71 - mc on treatment
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

Mel3062 · 21/08/2012 07:44

Hi ladies please can I join??
I'm 37, hubby 42. We have 1 daughter aged 18 who was born at 29 weeks. Suffered 4 miscarriages getting increasing earlier. Saw Mr S in May diagnosed with v high and active nk cells so I'm on month 4 nearly of his programme and also superovulation as it took us 18 month last time. So hopeful to hear your stories and advice, Melissa x

MegMum25 · 21/08/2012 07:58

glad to hear the intralipids were ok buster. thru the lister u have them done at home and i have to say the three hours of enforced rest was very therapeutic. i just wanted to share a few things from my successful pregnancies which i think have helped the outcome. Its so easy to forget the goal sometimes as our early pregnancy and, for some, conception, experiences have become so medicalised. id just say allow yourselves to daydream a bit about a gorgeous lovely baby and amidst the knicker checking, boob squeezing and all that, focus on the dream come true. i can safely tell you it does not lessen the pain of a further m/c if you'd imagined a different outcome, they always hurt the same. i always feel envious of normal women who pee on a stick and never doubt for a second that in 40 weeks they'll be wheeling a buggy around, but f* it, allow yourselves a bit of that belief!! also acupuncture, i cannot recommend it enough and the two m/cs i have had since pred i did not start acupuncture as early or frequently as my two successful pgs. i know it sounds like superstition but it also helped me feel i was having a positive input on the outcome of the pregnancy.

yesterday was a shocker. rampaging pregnancy symptoms and pain in my womb and a hollow emptiness made worse when a colleague asked after a meeting whether i was pregnant again as they'd noticed my bump. compounded by my mum laughing (?!!) when i told her this.....ive gone right down to 7.5mg of the pred so am feelin less steroidy at least x

it's so good to hear the positive stories comiing from such awful experiences and to know that this support is here, four years ago I felt so alone in this experience.

MegMum25 · 21/08/2012 08:15

Hi Melissa
So sorry to hear of your sad losses. My friend called me a 'warrior' yesterday and I thought to myself, you don't know the half of it, we are all warriors sticking at this game! It's great that you have a diagnosis, first step on the road to getting it right for next time and you'll see from here, so many great results when the situation feels so hopeless and like you'll never smile again. The girls on here know much more about mr s treatment programme, I am at the lister so a slightly different approach, just got to get those cells under control now and you will be on your way. Best of luck in the world x

Mel3062 · 21/08/2012 08:26

As that's really kind thank you. I do feel positive now I have a reason yet sad that it took so long and so much heartache but focusing on beating it now and all the hopeful stories are such a strength x

Original poster

Arianrhod · 21/08/2012 16:03

duggs Loving the revamped list, although personally I'm not sure how much hope I can give to anyone in that I've already had a DD, since it was apparently that pregnancy that Mr S believes triggered both my hypothyroidism and my v high NK cells. Seems just because you've already had a child, doesn't in any way mean you can have another! :(

Waiting to hear the outcome of your SO scan too, is it Mr (Dr?) Gafar you're seeing/have seen (if you're reading this after your appt)? I think it may have been him who actually did my hysteroscopy, although I'm not sure - it listed Mr Shehata/Gafar on the hysteroscopy letter I got afterwards.

Melissa Welcome to the thread, and so very sorry for your losses - we all empathise hugely on here, and understand how you're feeling.

OP posts:

Havingkittens · 21/08/2012 16:45

duggs, I know what you mean. I feel like the last 5 years has been open season on my fanjo! I'm guessing you probably saw Mr Mahfouz. He's had a look at mine a couple of times too, as has Mr Gafar, and many many others . Hope the scan went well anyway.

megmum, poor you, still having to suffer pregnancy symptoms. Especially being asked that by your colleague. I don't know why people don't have the good sense, or sensitivity not to ask about pregnancy unless they are told that's the case. Even before I started TTC, before there was anything to be touchy or get upset about, someone asked me if I was pregnant. It was just after Christmas and I was just suffering from post festivity bloat and even in those circumstances it was tactless and cringey, so people really should just keep their mouth shut I reckon! I suspect your mum's laughter was a nervous reaction or one of disbelief.

megmum, I think there is definitely something in your words of advice about allowing yourself some hope and fantasy. My grandma used to tell me off in my last pregnancies because when she would say that I was "expecting a baby" I would say "I'm not expecting one, I'm hoping for one. There are no guarantees" she would tell me that I have to be positive for the baby otherwise they might pick up on my negativity. Mind you, she used to be a physchotherapist and is of the school of thought that every emotion fed to you in, even your very most, formative years has an impact on your future. So, I am trying to take that stance now. We'll see how long that lasts! It's a fine line to tread, allowing yourself hope whilst trying to protect yourself from disappointment/devastation.

Abney · 21/08/2012 17:00

Hello all. I have not had much to write recently as I am now off the SO programme and back to trying for number 2 unassisted. I have been lurking everyday though. I am pleased to see such good news re the BFP's and scans and I am saddened by the newbies stories. Just wishing you all the best of luck.

As I have had 1 DC I have picked up on a few things. Firstly I did not have any issues with VHKC before I had DS. After and during the 3rd MC I did have VHKC. For all newbies before DC I had 6 mc's (mostly unexplained) so potentially my DS may have caused the VHKC but who knows. The DR told me it can increase after each miscarriage. The only thing missing from my treatment for 3 out of 4 of the mc's after DS was born was the fragmin. Anyway what has crossed my mind also is that when I took the pred for the first time and DS was born could this have given me comfort that everything would be OK. Why is it in tests people who get TLC and repeat scans have such a higher percentage of success? I 2nd what Megmum (hello) is saying. Does the stress and anxiety cause some chemical reaction in our bodies that increase the risk of MC? Just a thought so those with the BFP's and those of us who may get a BFP let's just be confident about the outcome. I for one wore black knickers last time and told myself I would only check once a day when I was leaving work to go home. I think it helped although the outcome was still the same.

Also I have no idea what acupuncture is or does? I am willing to give it a go but not sure where to go. I can only realistically go on a Saturday. I live in Morden, Surrey so if anyone can provide a good contact that would be great. What are the main benefits? I haven't a clue. Does it supposedly get rid of toxins? If so how? I am assuming that it also relaxes you.

Good luck on the scan front HavingKittens I think everyone will be praying for a good outcome. By the way I bought the evening primrose and the star thingey and I think it did make a difference to the you know what. I was pretty sure that I would be ov today (day 14) but I could tell yesterday that it was definitely approaching. You know when they say that old ladies when they laugh they need tenna lady. Well all I can say is that there was definitely a difference so let's hope the little swimmers have a good waterfall to climb.

Also waiting for news on PQ. I hope everything is OK.