TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Ok - had my scan really early this morning, although we were still kept waiting to be seen!

Really awful as Mr S must have had that probe thing in me for about 10 minutes and was completely silent, with the occasional shake of his head.

Then he asked me to empty my bladder and we tried again.

The good news is that there was a hb, but he revised my dates as 6+1 (rather than 6+4) - which I know is not great news, and he also asked me how long my cycle usually was.

He also said he was concerned as the yolk was a little too big, but he did say he'd seen that before at 6 wks, and it worked out ok.

He said he was cautiously optimistic, and gave us 70/30 odds. Next scan late on Wed 18th.

Don't feel positive at all if I'm honest.

OOh terribly evil Sarah... :) I am actually applying for a couple of jobs to see whether I get any interviews - there would be something a bit easier for me about having a job to go back to. My worry is I could get stuck at home, when I love my work so much and want to do a lot more of it, just because I already spend a lot of time working wasting time on mn at home. I've specailised in travel previously too so that might need a bit of adjustment. Mind you, I love having no boss and I also love the endless holiday days with no-one to count down how many I am having.

Early evening or weekend is good. Euro and PQ might want to join us as local lasses too. I guess it will have to be next week on my behalf! Lets have a think about it and PM each other.

I've also thought that about the cinema Olives, actually went on the weekend and might try it again this weekend. There's sod all on but I don't mind watching some mindless tatter for a couple of hours as a way to pass the time.

LJ71 I'm sorry it wasn't more positive. DO you think Mr S is being over-optimistic? When are you having another scan? Try not to lose heart just yet - a heartbeat is good.

LJ71, my DS was 2 days smaller than he was meant to be at the 6 week stage, and I was sure of when I'd ovulated, and it all turned out fine. Was the baby hiding in a strange place? Mine was when he scanned me, which explained why the NHS earlier that day had thought the baby was 1.3mm; Mr S said it was impossible to pick up something that small and the baby was in fact over twice that size. I've got everything crossed for you.

Sorry - crossed posts earlier with LJ. Seeing a heartbeat is really really good, especially if it is only 6.1 as that is still very early. Some people only see sacs at that point and then go on to have positive scans galore after that. You might have ovulated and/or implanted a couple of days later than thought and at this stage, it really isn't an exact science. It's horrible having to wait and go back for another scan though, I really feel for you. It's going to be a long week 10 days or so for you.

eeek to the 2nd Trimester - thanks for being on the ball Free!!

Love the knicker checking talk was only thinking today I wonder if at any point in this pregnancy I will stop presuming any funny feeling in my pants is bad news and guess that means no!

YAY to prams the house and plan B re the move
Hip Hip Hurrah for heartbeats, although I really appreciate that all it feels like is one minor milestone has been reached and another nail biting wait until the next scan.

Hugs to all those having a tough time
xxx

Helterskelter congrats for graduating to the 2nd trimester - you've made it to the next stage of the journey.

Great scan news today. Although worrying for you LJ, Free is right, it's great to see a heartbeat so early. I'm sure that Mr S wouldn't give such good odds lightly knowing what you have been through. I read a lot in between my scans last time round and it it notoriously hard to accurately date this early on.

Massive sheepish to all the knicker checking chat. If I am out and about or chatting to someone and I think I can feel something 'leaking' I absolutely can't focus on anything or anyone else until I've checked.

Does everything seem a bit more real now that you pram has arrived, Free?

I can't get at the pram at the moment BellyD as it is firmly wedged under the big heavy box of the car seat fixer thingy so it has just added to the rest of the boxes in the way!

I know this is an awful story but I was having a meeting about doing a charity filming freebie for a child bereavement charity last summer and it was the day I had started bleeding heavily with my pregnancy immediately before this one. We were pouring over their material about children coping with losing parents and parents coping with losing children and I was sitting there having a really heavy miscarriage bleed in the middle of it all. It was all I could do to hold back the tears.

But moving on...yes it has been rather wryly amusing - furtively nipping down side streets, checking no-one is around, so I could pop a finger into the pants to check!

I have started to get a bit less obsessive with it helter, no finger checking when out and about for a good few months, but still giving the loo roll and knickers a full petri dish style analysis and writing a report and conclusion afterwards :)

Sorry for the uncertainly LJ.

free I'd be up for a SE london meet up if it's outside work hours. Now I'm taking a break from ttc I find it much easier to be around pg women than I did.

What a sad story about your last miscarriage. But look how far you have come in a year. :)

oh my goodness...there are so many posts since I was last on! I don't even know where to begin...(and to be honest, I actually haven't a clue where I left off)

Welcome LJ71 - please stay positive. 3 days really isn't that much in the scheme of things. At my 6 week scan the doctor wouldn't even date me. She said it would be much better to wait until 8 weeks (which will also be the 17th) when things are clearer. There was a whole week's difference between what the computer was telling her based on my last period and what the flashing minnow-bean was telling her... (I do know that sometimes, very early on, some babies hides up tight against the wall of the sac which means that unless it is viewed at the right angle, it is really misleading...) Deep breaths until the 17th and big hugs!

I actually just want to give a lot of people hugs right now for what they are going through and what they've gone through! It is amazing what we are capable of dealing with both emotionally and physically - but I wish there was a way to make some of the stress/emotions/situation easier. I can't even imagine losing either of my parents, and then dealing with family issues, fertility issues, parenting, working...all at the same time... I don't really know what to say, but, my heart goes out to you kittens and sarah mollie delta- I am more than happy to listen to anything you ever want to talk about - even if it is just to get a thought or a stress off your mind...

Olives good news on your scan! I'm currently part of a trial documenting how early regular scans improve the outcome of pregnancies. I was asked to join when I asked how regular scans could do such a thing and asked if it was related to a reduced stress level, or a knowledge of constant care. They didn't have any answers - but the trial is trying to find out why. Whatever the case, I'm happy for the routine care
Delta I'm so happy for a positive result after what must have been a shocking start to your day
free you had me giggling on this slow Friday afternoon at work. Last week, I was trying on trousers in a change-room with my OH (yes, he was in the change-room with me), when I just pulled down my pants to look at some discharge. The look on his face! I told him it all just felt a bit wet suddenly and I needed to see what colour it was. I even cursed flecked toilet paper last week when I was out because it had bits or red and brown on it. I'm pretty sure spitting on toilet paper while sitting on the loo is a sign of being crazy.

and cringe - I feel very self conscious about my spelling and grammar now that I know we've got some professional writers in the house! Rule of thumb - I type too fast, I like the use of comma's and I have horrible spelling. Please forgive me!

free how many days/weeks left? helter the second trimester! That's great news!

sarah the pred hasn't made me gain any weight yet...but I've only been on it for 2 weeks. I do feel more...bloated...or hard across my abdomen, but my trousers and everything still fit comfortably. I do notice that I'm hungry all the time, but I've totally gone off sweet things so I am satisfying those cravings with fruit and salads at the moment. The lady at Mr. S's clinic said to me that 'pred might make you fat, but you are pregnant, so you'll get fat anyways. Just be aware of what you are eating...' I think I may be in an bad mood because of the pred though. My temper is noticeably shorter. I'm just avoiding everyone and everything in order to stay calm and collected.

And thanks girls re: feeling deserted by Mr. S. I contacted Lissa again about leaving the prescription and she's now on holidays! Go figure! I will have to call someone else and hope that they can leave the prescription at the reception at St. Heliers. I wonder if they would leave It at Harley Street (despite me not being treated there) as that is actually the easiest place for me to collect it from....

Hi to everyone else - and have a good weekend.

LJ Please try not to worry, a heartbeat at this early stage is fantastic! Both mine and Bertha's doctor say that they dont try and date at these early scans becauseof the difficulties with being accurate with something so tiny. Try and focus on the positive - a little heartbeat is there

LJ don't worry too much as I was told by Louise at NLC that the scan can be a couple of days out as its hard to accurately measure the baby if it is tucked up. I think we try to read the expression of the specialists to see if they are not telling us something but in my dealings with mr s he is very honest and straightforward and would have told you there and then if it was anything to worry about. I had my first scan at 7 weeks so that I could see more as was worried it might not be developed enough and cause more stress.

I also had my scan today and all was well and measuring at 10 weeks and 3 days with a good heartbeat. Focussing on the nuchal scan now!

olives fab news - we are exactly the same stage! Terrifying but good to reach the first step
free thanks for updating the list & definitely squeeze in a really special meal for the two of you before 2 become 3!
sue I was crying before the scan as was so sure I was about to hear bad news. Had really composed myself but just crumpled when I saw Louise & she was so lovely!! How did you get on today?

Crossed posts sue - fantastic! The worry hurdles are never ending!

Great news on the scans this week ladies!

sue especially happy for you passing the all important 9 week mark. Really fantastic!!!

Took F to get him weighed yesterday and at 3 mhe is 7.82kg and is just under the 98th centile! .

hey ladies.. I've not been on here for a while. DH and I were taking our month of hardcore antibiotics and we've just finished. I see a few of you on here and super ov thread have been/are being tested for the infections with a few getting positives too. I am not sure if Ari posted an interesting link on here a while back..? apologies if she already has. It made intersting reading coming from the angle of why our NK cells may be elevated for those who don't have a reason/diagnosis and don't seem to be getting very far with pred alone.

www.justmommies.com/forums/f1215-pregnancy-loss-and-ttcal-info-spot/2327951-1-3-major-causes-miscarriage-mycoplasma-ureaplasma-and-infertility.html

Congratulation sue for getting past 9 weeks. You are on hydroxy aren't you?

free not long now..
PQ can't believe you are well into second trimester and will be hitting third soon or are you in third already ? no..

Kittens how are you and pebbles ... I know about euro I feel we old timers have been on here almost a year or more :0(

Glad to hear from snoopy what an inspiration... scooter and choccy...should be about...I guess... it is quite difficult not being able to move forward so my break did me some good. I've been seeing a councillor at Zita West clinic who suggested my break and it has helped.

Anyway.. my NK cells are supposedly normal levels..my concerntration is getting cleared of my hidden infections (hopefully done now) and DH infection to get his sperm DNH back to where they should be for a healthy pregnancy to occur. So in theory I should be able to TTC as normal from next month. We will see. I am not hoping for much.. going to an adoption information session next week as well. Have learnt I need to keep avenues open as they all to quickly slam in your face.

It feels like 5 million people I know have announced their pregancies over the past 3 years we've been trying. 4 pregnancies and 5 potential babies and a year on from first seeing dr S I hope we are on the home straight.

Anyway.. am sure there are newbies who I need to catch up on so adios for now. I shall lurk from time to time as I think about you a lot.
x

opps forgot to congratulate olives and belly D..

Thank you everyone for all your support over my ridiculous mentalling and sadness. I had to go out yesterday and have only just got back online.

Mollieboo, I'm so incredibly sorry to read of the loss of your baby. Just devastating. And to be followed by two miscarriages, it's really not surprising you're so low. I wish you all the luck in the world with your TTC journey this time.

Congratulations on all the great scan news this week. It seems to come in waves on here doesn't it?

LJ sorry to hear your scan was so stressful. That waiting in between scans is just awful, I know. I'll be keeping my fingers firmly crossed for you. Don't loose hope yet. It's really not unusual to measure a couple of days out at this stage and a heartbeat at the stage you're at seems promising.

Duggs, good to see you back. I was wondering how you were.

As for me, well the fat lady is warbling away in my pants! Turned up not that long after my last post actually. I was in mid panic about trying to decide whether to order my SO meds at £130, not knowing 100% whether they would be used or not but worrying that if I didn't order them yesterday for delivery today they wouldn't get here until Tuesday which was a day later than I may have needed them. In between to-ing and fro-ing with phonecalls between Central Healthcare and New Life AF decided to help me with my decision, which was pretty lucky as Tuesday would've been too late. So, back to square one again. I have two more shots at this and then I have to decide where to go from there if it doesn't work. This cycle I will be starting Hydroxy. I'm hoping that's a different malaria tablet that I took when I went to Costa Rica as I had to come off that due to it making me feel so dreadful. Mind you, that was 14 years ago so I can't remember if it made me feel more dreadful than the pred does. It's all relative now. I'll also be interested to see if not being on pred makes any difference to my chances of conceiving. Especially after Sue's success.

I can't believe there are two more babies just around the corner!

Something we did on the other thread I was on - TTC/Pregnant after termination for abnormalities was to start the new thread with a "Hope list" of all the thread babies that had arrived since the thread started. Might be nice to do that here too? Once we start the next one there should be a good few to list.

Hello :)

I just want to say congrats to all good scans this week :)

Also LJ when I have my early scan they put me a week behind! So try not to mental too much xx

I am sat with my feet up as my ankles seem to have swollen and we have a summer ball to go to tonight. I am going to try and get a power nap in before we go.

Waves to all x

Thanks everyone for your messages of support. I think I'm more concerned about the yolk being a bit too big than the dating thing, but day by day till my scan late on the 18th!

Great scan news Sue!

Sue that is brilliant news! Did Mr S mention to you that he sees over 9 weeks as being a really big milestone? Hopefully you can now keep the mentalling in check for a bit, until the next one gives you another boost.

LJ I know what you're probably doing as I would be doing it too - googling slightly large yolk sac and pouring over any info I could get - but the heartbeat is definitely a fabulous sign and like others have said the measurements can be quite a few days, weeks even, out. We have a little mantra we have adopted on here PUPO - ie Pregnant Until Proven Otherwise that has helped us try to stay sane in between scans.

Battery hope your feet and ankles are coping with the summer ball and that you indulge in at least a sip or two of something enjoyably alcoholic

kittens sorry about the arrival of AF. I do hope too that the hydroxy does something good for you. The Planequil he prescribed is not strictly anti-malarials per se, although I think the ingredients are used in some. So far they have really just been used for autoimmune conditions such as lupus. I too have taken a wide variety of anti-malarials - including having horrible reactions to them ages ago (larium is the really awful one I think but there are others). These days they are much better and anyway, hydroxycholoroquine is pretty good when it comes to side effects - just a bit of mild nausea possible and loss of appetite, which I rather enjoyed to help me lose a couple of Pred/miscarriage pounds before going into this pregnancy.

Great to see you again Duggs, I hope you've enjoyed your time away from TTC as much as possible. Good news about finishing the anti-biotics and getting ready to start again.

Who is Lissa Bertha? Is she one of the people in his office/NLC now? I am pretty sure they would give you a prescription to pick up at Harley St, would def be easier than heading down to Epsom.

Loving the cuddly size of F Digi. He must be so cute! I had the opportunity to hold a 5.5lbs baby the other day and I was the only girl in the group who declined, I was just so afraid of his tininess!

Baby Brain is well and truly getting me now. I left my handbag in a park cafe today and had to turn around and head back there when we were more than 20 mins in the other direction. I sent DH ahead running and luckily they had spotted it and kept it behind the counter. Feeling rather huge but also feeling that the baby is heading in a downwards direction. Still getting some mild period pain everyone now and then but it is very sporadic and very mild. Still, I realise that things are starting to slowly happen and I do hope I can hold out until Mr S gets back from holiday and the 17th July date! Sods law I will go into an early and quick labour and have to rush down to Epsom General at rush hour when Mr S is still away or something similar.

Hello all. Really good news on all of the scan results. I watch every day to see what the outcomes are in order to give me some hope. I am on hydroxy and have been on it for about 2 months now and I think the lack of appetite has definitely kicked in now. I was trying to diet but not really getting anywhere but now I find I am not getting hunger pains anymore so I am finding it easy. Was 10.5 now 9.10. It has to be the hydroxy as I have been trying to lose weight since Jan. Luckily I have had no side effects from the hydroxy or Gonal F.

The Overitte (not sure how to spell it) will be out of my system today. So it will be a few days of am I aren't I. For those who have taken intralipids if DR S is on hols and I need it do you think there will be a problem. I am going on hols next Saturday and I am running out of hydroxy and pred. Will NLC be able to give me a prescription without DR S being there?

Are there any others that are waiting to test next week? If there are then all the best of luck.

Hello also to all newbies and sorry to hear of all of your losses.

Abney, that's interesting about hydroxy and appetite. I have lost a bit of weight too, I think, and have been on hydroxy over a month now, and whereas a few weeks ago I was indulging my addiction for a box of grapes every day (no doubt because of the sugars) I frequently now forget to eat lunch when I'm working.
Has anyone here found a difference between 5mg and 7.5mg of letrozole? Last month on 5mg I had really good cervical mucous, but it seems to have dried up on 7.5mg, like with Clomid. Having my follicle scan tomorrow, so hopefully better than the one egg I produced on 5mg.