TTC/Pregnancy on Prednisolone or similar part 8

[Arianrhod]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

Thanks brownstag. I had a 32 day cycle a couple of months ago but I'd ovulated on CD24 so it was still a 10 day luteal phase. I did use cyclogest but I stopped that on CD25 or 26 which is what I normally do with no problems. I guess only time will tell.

By the way, have you all been following the Mumsnet Miscarriage Care Campaign? There is a survey on a new terms for ERPC if you want to take a few seconds to give your opinion.

www.mumsnet.com/Talk/mumsnet_campaigns/1509136-Better-Miscarriage-Care-could-you-help-with-the-renaming-of-ERPC-takes-20-seconds

Masses of luck to the scanees today. All fingers crossed.

No nausea for me this morning, just a faint bit of queasiness. Thanks for the encouragement though, Free. I did feel, even as I was sitting there feeling terrible, oooh, this is a good thing!

My belly however, is looking damned attractive, with its pattern of bruises and blood spots and pincushion nonsense. I have to wear a bikini in two weeks' time in Spain! Anyone cracked the mark-free injection technique and care to share?

Kittens, sorry you're having such a rough time. I don't know your history as I'm so new, but I'm really sorry to hear about your mum. I lost mine 18 months ago and there are no words, really. I'm a researchy sort of person so when my mum was dying I read books about what to expect, and the stages of grieving and all that kind of thing, and basically it said to just go with how you're feeling - don't fight any of it. There are five main stages but they can come in any order and you can bounce around from them. You probably know all this. I still find myself sometimes feeling like I've just hit a brick wall - like, wham! She's not here! How can that be possible? Where did she go? And sometimes the tears just come for the most random reasons. I remember getting new blinds in our bedroom about four months ago, finally, after having these awful ones since we moved in 8 years ago. And for some reason my head just went, mum will love those, must tell her. And then I burst into tears. Then again I can have lovely long chats with my godmother about her where we just remember the fun stuff and silly stories and I can laugh. So it does get better.

Stress, of course, might muck up your cycle. So if you're emotionally fired up that might be tied into why your AF is so late. Hope it sorts itself out soon one way or the other.

Thanks sarah. Yes, it did occur to me about the stress factor too actually. My Mum died at Christmas so it's only just 6 months. I feel a bit like the shock and denial stages have just given way to a flood gate of hash reality. We have just had a lovely memorial garden made at my family's place and my stepdad will be bringing her ashes back from France in a month's time so I guess I'm right in the thick of it at the moment. I could so do without all this extra stress with all the Super Ovulation meds but I'm 42 (and a half - which counts at this age when TTC!) so I just have to soldier on and deal with it but it's really doing my f*ing head in! Sorry for your loss too. It's such a shitty thing to go through .

Morning everyone
kittens so sorry for your predicament. It's a nightmare not knowing & just wanting to know what the hell your body is doing. I lost my mum (way too young) 3 years ago following a very short illness & it just knocks your whole world & I am welling up now just feeling your pain. We are never ready to let go of our precious mums & nothing in the world can prepare you for the grief. In my experience, time has helped & by some miracle I fell pregnant 2 months after losing my mum when I was at my emotional & physical lowest - after 5 losses I really felt she'd gone upstairs and had a stern word with someone important! I really pray that things pick up for you quickly x

Well after deciding to postpone our scan, fate intervened yesterday when I woke up & started bleeding. I was crushed as like you olives this has only ever meant one outcome for me. Louise was wonderful at trying to give me a slither of hope & I was booked in for a scan yesterday evening which I arrived for expecting the inevitable (sarah had the similar it could be too early, are you sure of your dates etc conversations in the past). However, to my utter amazement there was a lovely 128bpm heartbeat with baby measuring a day ahead at 6+6! Mr s could not see where the blood was coming from but apparently it happens often. Whilst we are far from out of the woods, I just feel completely blessed to be still in with a chance. As you can imagine my nerves are shot to pieces & my blood pressure was 167/100!!!!! I have been told to double up on cyclogest & try to relax......

free welcome to iPad world - my hubby got me one for Christmas & I love it. Came in very handy during intralipids.

sue, olives & lj best of luck today ladies & hello to anyone I've missed

Six months is a really tough point. People stop asking about how you're coping around this time as they think you'll be over the worst of it. But sometimes, as you say, that's just when the reality is sinking in. The first year is always the worst I think, as there are all those anniversaries and occasions.

My mum died just before my 40th birthday - I felt like she was hanging on to see it; she had already given me her beautiful rings as my 40th birthday present. We had a little birthday party around her bed in the hospice and cut a cake that I made, and sang happy birthday, so she felt like she had been there. She died a bit later. That was actually two weeks before my birthday; the worst thing was that the funeral ended up being the day before my birthday. Not the greatest of timing.

Totally get the stress thing and needing to plough on through. My dad has gone steadily downhill mentally since mum died and I regularly have to sort out appalling messes, both financial, social and medical, all while working full time, ttc and trying to be a proper mum to my DS (and a wife of course... kind of comes far down the list these days!). Tis all shite, this sandwich generation stuff.

Crossed posts Delta! That is SUCH good news. You must be all over the place though. What a rollercoaster. I can imagine how atrocious you must have felt when the bleeding started. Was it old or new blood? Fingers crossed that it was just a little blip and you are now all set.

sarah the crap life hands out is tough but somehow we find a way of coping. I agree about the first anniversaries etc- awful & something you just have to get past.
The bleeding was new - bright red & utterly terrifying! There was nothing around the baby so it could have just been a sensitive cervix reaction. Mr s was so reassuring & along with Louise it was a bit of a group hug! I was a complete mess but just delighted to hear some positive news - of course it's scary & every toilet trip fills we with terror.....

Hi everyone
Delta that's amazing news re your scan, what a relief.
Sue good luck for your scan today.
I lost my baby son 6 months ago so although its a different grief, I understand the agony of losing someone so close to you. I have suffered two miscarriages since losing him and am feeling so low its unreal. But hopefully the steroids etc will work when I next get pregnant as I feel that another baby is the only way I will be happy again.
kittens I hope you get to know what is going on asap, the waiting and not knowing is just totally head-doing isn't it.
Hello to everyone else x

LJ and Olives huge luck for your scans today too, sorry I missed you out earlier x

Delta that is fabulous news regarding the scan. You hear of bleeds all the time and everything being fine. My mum said she had what she thought were periods throughout the first and second trimesters with both of her children. But when it's US we of course think the worst is happening. So great news that the baby is there and doing fine. It's the best possible start!

The terror of the toilet trip doesn't end either. I've found myself doing some very odd things - scraping things off black knickers to see if they are in any way tinged with pink, holding loo roll up to the light, slipping a finger into my knickers when walking down the road to check that the blob I just felt wasn't blood! Inhibitions go out of the window!

So sorry to hear about your mum Sarah. I can only imagine the sadness that would cause, life changing. And also to hear it has been a challenge looking after your dad and doing the paperwork etc that is involved with these things. How is your dad getting on now? Does he live relatively near you? Like you said with kittens those first-year milestones must be the absolute worst.

Kittens no idea what is going on with your cycle. Were you monitoring follicles and if not is there a chance you could have ovulated later than you thought - leading to either late implantation or late AF? Thanks for the link too, will check that out.

My pram has arrived today, which is a bit 'oooh what is a pram doing in my house?!'. It's in its box though and will stay there until DH gets home as there's another heavy box on top of it. I found myself up at 4am glugging ice cold water from the fridge in a bid to move the baby. These last 11 days (!) feel so worrying in terms of - the baby is alive and well and moving now, what if suddenly it isn't and I am SO CLOSE in completing this whole bloody nightmare of a journey. The first part anyway! And assuming the baby is in good health. And I am too of course. There are so many damn variables! I think that's one big reason I am glad it is coming out at 39 weeks and I have no chance of going over. And also that it will hopefully happen quite quickly. But I still am so worried something will go wrong from here until then.

And on the other side there is so much to do! We had negative news from the solicitors yesterday morning followed by more positive news later on. But still no actual news of potential moving. We are formulating a Plan B in case we have to bring the baby home to the flat - planning on getting storage for everything piled up here and just leaving the essentials.

I am sure we are all thinking of everyone with their scans today! WIll be checking in regularly xx

Mollie I'm really sorry for your devastating loss, too. All the harder when you don't have a very big bank of happy memories to cling on to. So tragically unfair.

Free, do you know what flavour baby you're having? It's perfectly understandable that you are still worrying, even at this late stage. I can tell you the worrying doesn't stop once they're out, either! All part of being a mum. What work do you do? And how long are you planning to stop work for - will you go back?

Sorry, crossed posts with Mollie too.

No I am in Team Surprise still Sarah which is quite good now I know the date of birth I think. Am sure the worry is just beginning too, as you say!

I am a freelance journo so good in a way as I can work from home but the work I do outside of home (presenting, producing etc) is important too and as it's ad hoc rather than scheduled it might be difficult re childcare. I want to work as soon as possible really but I don't have a set time. I wish in a way I did have something set to go back to then it would be more predictable. Anyway, as soon as I have moved to a new house you can come round for a cuppa :)

mollie I am so sorry for the loss of your baby & truly cannot imagine the pain you have been through having him for such a short time. To then have further losses is just cruel. Many of us on here are testament to the steroids working so I have everything crossed for your next pregnancy.
free you really made me laugh as I ticked off everything you've done looking for any tinge of 'colour' - what have we all turned into?!! At least we all completely understand what we're going through. The weird thing is, all you want is the safe arrival of your baby thinking you'll relax when in fact you'll spend the next 3 months practically creeping into the cot to check they are breathing!! The worry just changes but all worth it.
Is it ever going to stop raining?

free that's so weird, I had a feeling you were a journo. Me too! I'm on one of the big broadsheets, staff, been there years. Too long really. I sub more than I write but writing's the exciting bit.

Loved the knicker checking in the street detail. Been there and done that too.

I am also one who checks constantly to see if there is pink tinges on the loo paper. I had a fit when we went to Swanage over the bank holiday as the B&B we were staying in used toilet paper that had pink in the paper when it got wet! I was convinced it was the start of another MC until DH told me what had happened!

Kittens so sorry to hear you are still in limbo. I had a really long cycle when the preds started to mess up my cycle - think it was around 36 days compared to 26 normally so I know exactly how you feel. I even went and had a progesterone test at NLC to see if I had ovulated as had no idea what was going on. Lets hope you know one way or the other in the next few days.

Mollie I hope its your turn next time as it must be awful to lose a baby at that stage. No wonder you feel down - I think we all feel the same in that the only way to get over a loss is to have another pregnancy.

Delta fab news on the scan. My friend bled throughout the 1st trimester and now has a 2 month old son so it does happen. Must have been so scary though! Did you cry when you saw the heartbeat etc??? Louise at NLC has given me so many hugs from my tears of joy and desperation! Right off now to make the trip for my scan so very very worried.

Hi ladies. I can't even begin to imagine how it would feel to lose my mum - you are doing amazingly well Kittens, 6 months is not long at all and it could well be that stress/grief is delaying your cycle.

Sorry to hear about your mum's too Sarah and Delta and Mollie the loss of your son must have been truly devastating - I really hope you have a healthy successful pregnancy soon, there are lots of people on here who have proved it really can happen.

Free Pram arrival is very exciting!! I hope baby obliged with some kicking after your early hours iced drink! Please try not to worry over these last few days - try and concentrate on some nice couple things and make the most of your final few child-free days! Life will never be the same again after the birth (mostly in a good way!)

Delta Sorry to hear about the bleed but fabulous news on the scan front - I find it so amazing that something so tiny can have a little HB flickering away

Talking of which my scan showed that Olivebean has a little flickering HB too! No measurements taken as my consultant says they're not that accurate at this point but he says everything looks absolutely perfect! I have graduated from his infertility clinic to antenatal for my next appt which is on 16th July. He basically said he will scan me regularly as there is lots of research that shows that even regular scans alone improve the outcome of pregnancies in ladies with previous RMC. I'm not going to argue with that! Still a very long road to travel but another mini-milestone reached

fantastic news olives! You must be thrilled. What gesstation are you?

6+6 according to my dates which I think are pretty accurate. I am thrilled but obviously still very nervous!!

I guess mine will be too small to measure too then - I'll be 6+2 when I see him. Was this at new life?

No, good old local NHS! I haven't seen Mr S since I got my treatment plan as my NHS consultant was happy to support it saving me lots of travel time (and money!) I would guess that the scanning equipment that Mr S uses may be more sophisticated than the one at my local hospital so he may well be able to do some measurements for you.

Oh my goodness, so much news to take in on this thread today already. Olives that is great scan news. You must be so happy. Well, I know the comfort from a scan can be fleeting as then you start mentalling about the next one...but it is a great start. Yes you are right about the pram and also life never being the same - I am thinking DH and I should go out for a nice posh meal or something, as we have spent 12 years just the two of us hanging out and enjoying ourselves :)

I was 6+2 at the first pregnancy on this scan too Sarah and they reckoned (I had one at St Mary's then one two days later with Mr S) that the HB had just started. So yes it could be one way or the other for you when measured - hb just visible or still not quite there. So try not to freak out.

Ahh you are a fellow journo! Was it my beautiful turn of phrase when describing the contents of my pants that gave it away? We will have to have a good catch up about that too. Are you working every day? Maybe we should do coffee next week somewhere local? PQ can also join us if around.

I've done that pink loo roll thing too Sue, also the same with yellow loo roll as that can look a bit pinky when wet. I've also freaked out after eating a lot of beetroot (pinky wee) and also when having (oh the TMI...) a bit of spotting from the other end after terrible constipation.

Ok, am going to do some list adjusting now we have some good scan news in. Such good going! Who else is today?

Ok, HelterSkelter welcome to the second trimester and Olives and Delta have gone on the 1st trimester list after seeing hbs. Good news ladies, long may it continue! Hope I've got everyone else right, but if not or you have new news/scan dates etc etc please feel free to edit. I might not have time soon to be virtually the sole Keeper of the List... If you make changes on any day after today just change the date and add the days along for the BFPs.

Friday 6th July

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 37+3 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 37+3 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 34+2
coleyoz - V High NKC. DC#2, BFP cycle2, 33+1
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 29+6
Mercator - V High NKC, DC#2 28+2 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 27+6
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 27+6

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 23+2
HelterSkelter (IVF and immune therapy) 13+4

1st Trimester

Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 10+5
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 7+1
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 6.6. Next scan 16th July
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 6.6

BFPs awaiting first scans

BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine. Scan 18th July when will be est 7+3
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin and cyclogest. Est 4.4. Scan 19th July

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred ? 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

Posh meal sounds perfect Free! And if you enjoy the cinema I would get a couple of films in too. DH and I have only been to the cinema once since DS (and he is 4 now!) I think it's because when we have sorted a babysitter we tend to go out for a meal/and or theatre as it seems more like going out than just popping to the flicks but I actually really miss cinema trips. Of course now we have to go and see all the latest Pixar films with DS too!

Hurrah for good scan news and a pram delivery!

free, that would be great. I am one of the terrible evil mums that works full time though so it would either have to be an early evening thing or a weekend.