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TTC: Pregnancy on Prednisolone or similar part 7

999 replies

ChoccyPud · 17/04/2012 13:58

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
PQ77 · 18/04/2012 09:28

duggs brown is good, we like brown. I also had a positive thought for you late last night: two embryos means twice the implantation bleeding.

bellyd welcome back - ssounds like you had a wonderful birthday!

Arianrhod · 18/04/2012 09:55

Morning all ... duggs I was actually going to say something similar to PQ although a little different. I've read quite a few IVF forums over the months and I've seen several ladies who have had multiple eggs put back say they had a bleed early on and it turned out to be one of the eggs hadn't quite implanted quite right but the other one stayed fine, and it was the first egg 'failing' that caused the bleed. Not that it's nice to think of any egg not working, but if the other one is ok that would be good, yes? Fingers firmly crossed, and enjoy your holiday!!

choccy So sorry to hear it's dragging out for you :( I can't remember if you're seeing an acupuncturist but I would highly recommend you do if you want to get things 'moving'; it was very definitely my acupuncture session that triggered the proper bleeding for me last time when my body didn't seem inclined to do it by itself. As in, I was cramping within an hour of having the session, and full-on bleeding by the next morning (sorry if TMI). Also if you're not having acupuncture already, it's an absolutely fabulous way of helping with emotions, as well as helping to settle you physically - and of course to kick your cycles back into touch. I can't recommend acupuncture enough. But of course I may be preaching to the converted :)

Incidentally I understand that acupuncture is used to bring down FSH, and certainly my acupuncturist wants me to alter the day of my cycle that I go to see her so that she can do whatever she does to help sort that out. Oddly enough she said she didn't think my levels were that bad - not great, obviously, but she said she works with ladies with much higher levels than mine. Admittedly they're doing IVF, but still. shrug

coconut I didn't mention to Mr S about the DHEA as I really don't feel he's open to alternative supplements. I mentioned to him quite some time ago about Royal Jelly and Agnus Castus, and he was very dismissive of both.

snoopygirl · 18/04/2012 10:07

duggs I hope you get to enjoy your holiday. Great advice and hold that thought from pQ Aand ari. x

duggs1976 · 18/04/2012 10:16

Thank you PQ and ari yes hopefully it is something like that. Off on hols tomorrow with 2000 tonnes of progesterone to stick up my bum Wink hope you r "alright" (obviously not) but as much as u can be choccy. were you on hydroxy this time ?x

eurochick · 18/04/2012 10:44

Thanks for all the good wishes everyone. I had a small temp rise yesterday and a bigger one today, so it looks like the IUI was pretty much perfectly timed - I must have oved Monday or in the early hours of Tuesday. I think that is pretty good going for an unmedicated cycle with a lot of guesswork involved! I'm still not getting my hopes up though and reminding myself of the 10% success rate

PQ I meant to mention your nuchal results. It must be such a relief to have had those.

Digi I am glad the recovery is going well for you.

Coconut make the most of putting your feet up! It will be for a brief time only.

Duggs I am glad the spotting is slowing down. Have a fab holiday!

ChoccyPud · 18/04/2012 11:32

Ari yes I've been having acupuncture since January. Weekly since BFP. I even found someone up at my step mum's who I saw twice last week - literally round the corner, I'd have got Dad to go there had he come out of hospital.

Will it speed things along quite yet though, as my hcg is still 196... Presumably I won't bleed properly until it's dropped quite a bit more?? I'm only brown spotting today, nothing significant. Oh, and a monstrous cold to boot.

Also, yes Duggs I'm on Hydroxy. Did everything I possibly could on this one. Have a fabulous holiday! You deserve a treat. Hope the spotting stops quickly x

Euro that all sounds promising, fingers crossed.

Heard a phrase on the radio this morning: sometimes you're the pigeon, sometimes you're the statue. I definitely feel I'm the statue at the moment. :(

OP posts:
Arianrhod · 18/04/2012 12:42

choccy I don't think the hCG level has anything to do with bleeding (although I freely admit I could be wrong) - bear in mind you can still be registering as pregnant on HPTs weeks after having had a full-on miscarriage. Have a word with your acupuncturist, see if they think they can help, maybe?
Like the pigeon/status analogy ... hope it's your turn to be the statue next!

mercator · 18/04/2012 13:55

Choccy so sorry to hear your news - life can be extremley unfair! It sounds as though you are being very pragmatic and the counselling sounds a good idea when you're ready.
ps. Thanks for the new thread.

Duggs do hope the spotting has calmed down. Don't forget you have two chances of this being a true success which has also got be a really positive statistic! Really hope all is well.

BellyD Happy Birthday - what a lovely surprise you dh gave you! Hope you get rid of the mouse.

PQ glad all went well and your test results are nice and low. Phew.

Euro good luck with the IUI.

Digi hope the feeding improves. I struggled with my dd and ended up having to both breast and bottle feed up until 3 months. I think my milk didn't come in properly due to the c-section. We still laugh at the thought of my dh having to unpack and read instructions on the steriliser at 3am when we got home as daughter was just not feeding sufficiently.

waves to everyone else

mercator · 18/04/2012 13:57

duggs have a fabulous holiday - Egypt isn't is?

duggs1976 · 18/04/2012 14:04

Well it has increased and is bright redSad nothing I can do apart from go on holiday now. What did we all do to deserve all this shite !

ChoccyPud · 18/04/2012 14:32

Oh Duggs honey I'm sorry, it's so scary but it honestly needn't be bad news. I know I'm a fine example of this, but please try to stay positive. Bright red is fresh new blood, and could just be implantation or a bit of the cyclogest enhanced lining coming away because it isn't needed.

Just go prepared in case you can't easily get what you might need in terms of pads or pants etc in Egypt. Sods law dictates that if you take everything you won't need it!

I'm so sorry you have this worry just when you're heading off for a well earned getaway. Take care xx

OP posts:
eurochick · 18/04/2012 14:35

Oh crap Duggs. Loads of people bleed in pregnancy and have good outcomes. I hop you will be one of them.

Arianrhod · 18/04/2012 14:51

Sorry to hear you've got this extra worry duggs. As you say, it's shite! Definitely hoping that it's just one of the eggs that didn't make it, and although it's scaring the heck out of you, hopefully the other one is digging its metaphorical heels in and hanging on in there! hugs

batteryhen · 18/04/2012 15:51

Oh duggs :( sorry you are having this worry. Like you say - the only thing you can do is go on holiday and try to relax which is easier sadi than done. Bleeding is not always a bad sign but I know what a worry it is too :( xx

suemays · 18/04/2012 16:25

Duggs I know you are expecting the worse and its probably a good idea to prepare for the worse but as others have said it could be one of the eggs that hasnt implanted but hopefully the other one is OK. I know you wont be taking any notice of what anyone says because as soon as you see bright red blood you automatically think its game over despite all the good wishes and messages we send you. Dont forget though that you could be one of the lucky ones who do have a bleed that isnt affecting the embryo. It has to happen to someone so why wouldnt it be you this time to have some luck? As Choccy said, make sure you take lots of pads etc with you just incase. Really thinking of you and keeping everything crossed.

igggi · 18/04/2012 18:41

I keep thinking bleeding is always bad news - then I have to remind myself of the 3 bleeds (red) I had in my first pg, which resulted in ds. There's just no explaining it sometimes.

freelancegirl · 18/04/2012 22:22

Duggs what shit timing. When is your first scan meant to be? Try to hold that thought - that so many people have bleeding (as did iggi) and all is fine. Doesn't help you have a calm and relaxed week away though. Bugger.

choccy we all look forward to you being the statue again shortly.

Not much from me tonight, am tired and sprawled out on the couch, can't be bothered to sit upright to type. Sorry there has been so much sadness and stress on the thread recently. I am six months pregnant today (by LMP) and had a midwife appointment with GP - bump measuring well, heartbeat good speed and strength, urine and blood pressure normal. Am not in the clear yet of course but I hope with my history I can give some level of hope to those not yet at this stage.

eurochick · 18/04/2012 22:43

That's great news, free!

digitalgirl · 18/04/2012 23:20

Thinking of you duggs

free lovely normal pregnancy Smile

coconut enjoy your time off! Rest lots!!

Sat here with F snoozing on my lap after a relatively pain-free feed. I'd been having trouble with his latch. Turns out he has minor tongue tie which means I have to work extra hard to position him correctly. It's been a painful week but I think we're about to turn a corner. It's a good thing he's a little cutie!

Really must go to bed. Am sure F will be awake again in an hour.

Cheerfulcharlie · 19/04/2012 04:22

choccy so sorry to hear your news. This year can only get better for you now.

duggs do not give up yet. My friend had bleeding (bright red, rush to A&E) with her IVF twins a couple of times in the v early stages and still gave birth to 2 healthy babies. With this pregnancy I had almost constant light bleeding (including red) up til about 5 wks. Remember you are taking blood thinners too so any little thing will make you bleed more. Could be implantation, could be a little subchorionic hematoma. I hope you get to enjoy your trip to Egypt.

digi I was going to ask you ages ago (but my post got eaten) - what was 'the injection' you said you had in labour?

free - great to hear all is well. Is your due date 24th July? That is my official date too. It's weird reaching the viability stage. Have you bought much stuff yet?

I'm off on a babymoon / anniversary long weekend to the desert today.

GreenOlives · 19/04/2012 08:40

Duggs I know it will be impossible not to worry but please just try and relax and enjoy your holiday, as others have said it's not necessarily bad news.

Choccy Hope you are doing ok.

Free It's lovely to hope that we will all get to where you are and then to where Stogan and Digi are too with lovely snuggly babies.

That all feels a very long way off for me at the moment Sad BFN here today so that's another steriod pumped month with nothing to show for it! Onwards to the lap & dye next Tuesday I suppose. I think the fact that next month it will be 3 years since starting TTC number 2 is weighing heavily on my mind - I do kind of feel it might never happen and it's a scary thought Sad I'm sure it will all look less bleak once my PMT black mood has lifted! Sorry to be such a misery.

freelancegirl · 19/04/2012 12:54

Charlie yes we are due date buddies now! Although 24th July (my bday!) is by LMP and at 12 week scan they said 22nd. Not much in it I guess. I love the idea of a babymoon in the desert. I do hope you're wearing a white robe mysteriously showing only your eyes as your poke your head out of a camel drawn carriage.

Sorry about the BFO Olives, is there a chance it is too early? I have had BFNs that turned out to be BFPs on days 12 and 13 DPO.

Digi I have a friend on another thread who is having the same breastfreeding challenges. Hope it gets better soon. I held a baby yesterday - you (and my RL best friend Pebbles too) would be proud of me. He is still in one piece! I handed him back when he started to wriggle though. Oh - what do you mean I can't do that with my own..? :)

Thinking of Duggs and hoping that the bleeding stops and also she manages to enjoy her holiday in the circumstances and also of Choccy.

I emailed Louise earlier to let her know my thyroid results etc (we are still in contact due to me having seen her under Epsom General) and coincidentally she phoned me 3 mins after I emailed (without having seen the email!) Just to say they will be testing my blood for other issues relating to being on Hydroxy, when I go in for the GT test on May 1st, so I guess that will be liver etc as someone else has mentioned here.

I was tempted to book a Wellbeing Scan at FMC (which they suggest at 32 weeks anyway) but feel that after things measured ok yesterday I should 'man up' and wait a bit longer if I can.

Other than that just a whole load more house hunting for me (a real PITA as I don't much feel like schleping around anywhere unnecessary at the moment). Coconut so sorry to hear you potential purchase fell through! It really is such a weird market on there at the moment.

freelancegirl · 19/04/2012 12:58

Thursday 19th April

The babies are arriving!
Stogan - V high NKC - cycle#2, DC#1, Baby girl born Sunday 11/03/12 7lb13.5. Our First Pred Thread Baby!
Digitalgirl - High NKC - BFP cycle#2, Baby boy (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12 Our Second Pred Thread Baby!

BFP 3rd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 37+3 Due date: 07/05/12
Comedy - V High NKC - BFP cycle#2, DC#2 ? 37+3 C-section booked: 14/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- 34+2 c-section booked for 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 33+4

2nd Trimester
Freelance - V High NKC TTC#1 Hydroxychloroquine, Pred, Intralipids, 400 Cyclogest, Thyroid/hashimotos. MC 1st Pred cycle. DC#1 26+2 Next appt with Mr S, 19th May
Cheerfulcharlie - V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 26+1
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 22+6
coleyoz - V High NKC. DC#2, BFP cycle2, 22+2
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 18+1
Mercator - V High NKC, TTC#2. 18+0
Hopefulfor2nd - High NKC - TTC#2. - 17+0
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 17+0

1st Trimester
PQ77 - V High NKC TTC #2 (BFP cycle one but mc) 12+3
London - High NKC, add details!??
duggs1976 - High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest ? 4+6

TTC ? ASSISTANCE - SO/IUI/IVF
Havingkittens - Upgraded from High to V High NKC TTC #1 -10 pred ? 3rd cycle SO
Snoopygirl - V High NKC TTC, pred cycle 5, Super Ov Cycle 3
Abney, V High NKC, TTC#2, super ov cycle 1 ?
eurochick - TTC#1 High NKC, pred cycle 4, Super Ov & IUI
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, combining IVF with Immunotherapy
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Suemays - V High NKC, TTC #2. Superov. (Pred & Hydroxychloroquine)

TTC
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April mc on treatment.
Willitbe - RMC, NKC not tested, TTC #4 cycle 2 (after m/c 12) Fertility consultant
prescribed pred.
GreenOlives - High NKC, TTC#2, Pred Cycle 2
picolina - V High NKC MC on treatment (taking a break on holiday)
Holldoll - High NKC - Pred, Cyclogest & aspirin
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine

Current status?
Cherrycheeks - V high NKC, TTC#2
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

igggi · 19/04/2012 15:51

Well have just been a further drain on the nhs resouces! Have been in for another heart trace due to reduced foetal movements, and also had weird flashy lights things near my eyes. Had a scan too to check fluid (all fine - baby no longer breech so that might be why movements feel different?) Have to go for another trace in a few days, hope that doesn't mean they think it's bad but haven't told me.
Hope everyone is ok. Duggs is that you away on the holiday now? (Not that you'll answer if you're on a plane!)

Comedyworks · 19/04/2012 18:37

Thank you for the pm Choccy. I am so so sorry to hear your news and I hope you are as good as you can be under these horrible circumstances.

Duggs - I can only echo what the others have said and hope that you are able to enjoy your break.

Igggi - I am being a drain and pain in equal measure - spent Monday afternoon at hospital and have just been on the phone again to triage about reduced foetal movements. Just feel so stressed and can't even remember what to expect re movements - perhaps they are just so big they can't move. My dates are wrong on the list and I am only 35 weeks so I know it's too early for baby to come now but part of me wishes she would ...
How are you now?