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Conception

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TTC: Pregnancy on Prednisolone or similar part 7

999 replies

ChoccyPud · 17/04/2012 13:58

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
GreenOlives · 10/05/2012 22:11

Great new Frozen! Please do try and relax a little. And yes, you worded it really well, that's exactly how I feel when I see pregnant people/or hear them chatting on here seemingly without a care in the world and assuming that all will be well. I feel sad that even when/if I do get pregnant again there are absolutely no guarantees I will have a real live baby at the end and I will be constantly worried throughout the pregnancy. But we are resilient and I hope we will all eventually get our much wanted babies despite all the scares and worries on the way!

GreenOlives · 10/05/2012 22:13

When I say on here I mean on other MN threads, can't imagine any of us having a not a care in the world attitude to pregnancy! Blush

batteryhen · 10/05/2012 23:08

frozen - I am so glad you have had some reassurance :)

As for the rest of your post - I could have written it myself. I am 26 weeks now - and even though I can feel my baby move, I still am not sure I will have a take home baby. If I feel a bit of discharge, I am still rushing to the loo to see if I am bleeding. I catch myself hiding my bump when out, in case .....well I don't know why really.

I have bought some stuff for the baby but have stopped myself buying anything else in case it goes to waste :(

I do wonder if other ladies look at my bump and feel envious because of the difficulties they may have. It makes me sad as I would hate other women to feel the ache that we are all too familiar with.

Reading some of the sad threads that are around at the moment doesn't help either. Maybe it is time to just have a bit of faith??

igggi · 10/05/2012 23:53

Frozen that's great reassurance, very pleased for you.
I definitely haven't talked about this pg as much to people at work etc (whose circumstances I don't know) as I did with ds - though it is probably being over-sensitive to act as if most people view a pg announcement as a reason to cry in the toilets! (As it would have been for me before).
I've had to buy lots of things now but have noticed a reluctance to cut tags/take the plastic off Sad. And I still check for blood every single time.
Choccy I took last summer off after a mc in May last year, and got pg quickly after - I'm choosing to believe having that relaxing time off helped this pg to last so long!

Comedyworks · 11/05/2012 04:29

Really pleased to read your news Frozen and hope you can relax just a little bit. Agree with what you have said very much and genuinely have not let my mind think about actually having a real baby (so Monday might come as a bit of a shock!!)
The hospital are being really good - went in again yesterday for fetal monitoring and they were really insistent I should just keep going back if I am worried - wish I could just take the machine home! I know it's been said on the thread before but do go in if worried - the midwives are good anyway but once they see our history they really understand the anxiety.
Awake with more period like pains this morning but think it will be similar to Wednesday. Hospital have said not to come in (even with csection booked) until they are 'taking my breath away' - could be a long weekend...

Many of you have made some lovely comments about the new babies and the hope that we can stay on this thread - thank you. It must be really hard though for all of you still in the TTC phase - I haven't forgotten the last four years of this - after six miscarriages we had decided that this was our very last try and I really think it would have been. So, I just hope that these babies prove that our dreams can come true eventually.

Take care all and have a good weekend (especially Free in Florence!) x

duggs1976 · 11/05/2012 05:57

frozen hear what you are saying and although after 4 mc - 5 embryos gone I wish I believed in this treatment - I wish I believed I could experience what it would be like to hold your own baby but if I'm honest I think it is all a bit random. The 70 - 85% success rate stat that is thrown about seems to be thrown about by nhs worth tlc and dr s with his steroids. I really can't see how sometimes it works and sometimes it doesn't as a treatment plan. But what other choices do we have? I feel guilty for posting on here because I am not usually this negative and I want to be positive but I can't see this working for me as he said I've already had the highest of the high treatmemt. My only little ray of hope is hydroxy and free story but she gets pg quickly so I feel too scared to hope. I've got 4 more months -3 more super ov and I may as well do the frozen embryo transfer before the official adoption process can start in September. Glad u had more positive news though. X

duggs1976 · 11/05/2012 06:01

Re read my post - I. Sound like a right misery. SorrySad

The ladies who mc on the treatment who have gone onto have successes and how come what changed? (kind of know) but perhaps can give us a bit of inspiration in black and white ?

free added hydroxy 2nd time
pq added ?

ChoccyPud · 11/05/2012 07:47

frozen that's exactly how I feel too.

Comedy you're right too - it is hard, but equally I know you've been exactly where I am with mc's, and at least I know people who've made it or are about to make it! Keeps the hope alive. Keep us posted with developments!

duggs try not to be too despondent... Bear in mind so much else could go wrong too not just NKCs that causes mc's. Even if chromosomes are all right. I know it's hard when you're still getting over the last mc, but try to get back to neutral if not actually thinking positive before you go into the next cycle of hugs

Have a good Friday all, it's actually sunny here for a change!

OP posts:
duggs1976 · 11/05/2012 08:25

You r very strong choccy enjoy your little break. Where r u off to on hols? X

Havingkittens · 11/05/2012 09:25

duggs, I feel a bit like you do at the moment but from a slightly different perspective. I feel like this treatment is still all such a gamble, especially as I fear it may be what's causing the problems conceiving in the first place. And then if I finally do, what's to say I won't have another m/c? But then, if I come off it and manage to get pregnant there's the risk of the same result. I am feeling a bit like a roulette playing guinea pig these days!

I'm not holding out much hope of a BFN I'm afraid but thanks to those of you being optimistic on my behalf! I have been having very AF type cramps the last 3 days and I think it may only be the progynova keeping my period at bay. Oh, and maybe just a luteal phase of 10dpo. We didn't do a load of SWI this month as we didn't think I was going to ovulate, and also we were both ill.

choccy, I think that's a great idea that you give yourself a little time of anxiety free normality. It's probably just what your head and heart need right now. Enjoy your holiday. I'm pleased to hear that your work are being amenable. What a difference it must make to work for a company like that.

PQ, sorry to hear about your shitty time and work. That's one of the things I really appreciate about being self employed and never working with the same people for longer than a day at a time. When I've had 'normal' jobs, whether they be in an office or in retail, it's always working with other women that ends up being a problem. Not in general, of course, but there always seems to be one or two who are nasty and competitive and find it necessary to be a complete bitch.

greenolives, I know what you mean about reading the other MN threads. When I used to get pregnant quickly I used to read the conception threads a lot more. I've not spent much time on that part of the forum (apart from our threads which are bookmarked) for a while but I used to wince whenever I read the threads that said things like, "I've just been offered a promotion/new job but I've just found out I'm pregnant. Should I take it, or be honest and turn it down?". It used to make me remember all my missed opportunities and want to tell them that there are no guarantees and that they should take the job in case it was the only thing to look forward to that year but you don't want to ruin their optimism or naivete, which we once had too!

I can't believe there are so many babies due now! It's amazing. Those of you who have your babies, and those of you due any time now, please do (time permitting) stick around. You are still our hope!

Thinking of snoopy. Hope you're holding up ok. x

free, have a lovely time in Florence. I'm jealous!

Best of luck to comedy, coconut and igggi. I will be lurking for your news.

Buster76 · 11/05/2012 12:06

Hello all!!
choccy were you late for your appt yesterday? I think I might of snuck in before you! Enjoy your break Smile
Ive started the SO programme. Had a scan yesterday but too early to tell. So managed to get a scan sorted locally for Monday, hope the follicles have grown!!
Will be lurking for good news!
Thinking of snoopy

xx

ChoccyPud · 11/05/2012 12:22

Buster my appt was at 5.30 but he was a few mins late. There was a lady with two (v well behaved) dcs playing in reception in with him when we arrived, then another lady who went in v quickly before us. Were you one of them?? There's always the temptation to yell out "are you on the Pred thread" but the fear of being looked at like you're mad overrides :).

Good luck with SO.

kittens I feel the same about people who are lucky enough to be that naive. I think it's only natural in our situation.

OP posts:
eurochick · 11/05/2012 12:38

Afternoon ladies. I had my pre-IUI scan this morning and have one 19mm ripe follie. So hopefully I should get my LH surge very soon and can have the IUI in a couple of days. As usual, follie and lining looked good. Which just makes it all the more frustrating that I can't get pregnant!

duggs I understand how you feel. After getting the diagnosis of "unexplained" I was hugely relieved when my NK cell tests came back showing high levels. I felt like I finally had an answer. But I have 5 pred cycles behind me and am on the 6th and I am still not pregnant. So there is obviously something else standing in the way. I just wish I knew what it was!

choccy it sounds like you are recovering well. Enjoy your holiday.

I hope everyone else is holding up ok. I'm looking forward to welcoming the Pred thread new arrivals soon!

Buster76 · 11/05/2012 13:04

choccy my appointment was at 5pm but I got in early as his first appointment was stuck on the M25 - wondered if it was you! I was out by about 5pm. I know how you feel, I was dying to shout 'choccypud' in the waiting area.....I think my DH would of left me!!!
Good luck euro This could be the one!

xx

igggi · 11/05/2012 13:54

We need badges to wear in the waiting room.
Wonder what our logo should be?

ChoccyPud · 11/05/2012 14:14

A pic of something in a red circle with a line through it?

It's what the "something" should be...

I still go back to the slogan Fertile but Deadly. Maybe there's a plant that is deadly that we could appropriate by way of subtle reference?

OP posts:
igggi · 11/05/2012 14:56

What does a NKC actually look like? Would be a very secret symbol if we had that!

Arianrhod · 11/05/2012 15:11

You asked, I Googled ... here's what an NKC looks like attacking its target:

www.rkm.com.au/immunology/Killer-Cell.html

And here is an article which also shows several different types of NKCs .. en.wikipedia.org/wiki/Natural_killer_cell (good luck with getting through THAT one! :) )

Sorry for the overall silence, I am following everyone's posts, cheering with the sucesses and commiserating with the others, I'm just feeling a bit like duggs was mentioning earlier so keeping schtum rather than drag everyone else into my well of negativity. You ladies are so refreshingly positive, I'm shutting up and reading instead :)

Arianrhod · 11/05/2012 15:12

But I would say .. thinking a lot of snoopy and hoping she feels up to letting us know how she is and how the MRI went.

snoopygirl · 12/05/2012 11:21

Hi ladies

Just did a huge post and lost it. So sweet of you to be asking after me. I don't want to post in middle of what's going to be great news coming soon so I'll get in quick.

Had two (tunnel type) MRI's and CT SCan on Wed. Oncologist scared the crap out of me by phoning with some results on thurs!! I have a completly clear result on CT scan which is all organs and blood vessels! thank god, that's massively good news. Mammography MRI not back yet. or biopsies. Slighlty iffy news is I have an abnormal spot 1cm on right pelvis in bone. But MRI's show absolutley everything so hopefully its nothing to worry about. But I;m having PET CT (more detail) scan to double check. She did say did I want to leave it for later...not likely, I'm getting that checked to. Sometimes it shows things like Arthiritis and all sorts so hopefully it's nothing.

Coping pretty well I think. Just give myself a bit of time each day to have a moment and the put it in a box iykwim.

So should see Oncologist on Thursday for everything results wise. Then get on with blasting the buggers into oblivion! Grin.

We have cheered ourselves up by buying something called Snoopy (predictable I know!) Hope you can see it, hover over my name and go to my photos.

Good luck Comedy it's imminent by sounds of it!

Can't see Cocobaby yet? hope I've not missed anything.

love to you all -I miss you Smile
x

Coconutfeet · 12/05/2012 13:30

Great news snoopy! That must be a huge relief.

I'm still in hospital having a very slow induction. Having waters broken soon which will hopefully get things going. Don't hold your breath though...

igggi · 12/05/2012 13:30

So glad Snoopy your first results are very positive - glad you heard quickly too, it's a bugger you've to wait longer for the rest. Haven't looked to see who/what Snoopy is yet - hopefully fluffy? Smile

digitalgirl · 12/05/2012 14:18

snoopy great news on the first scan results. Have you made your profile public as can't seem to click on your name via mobile.

coconut good luck!!! could go v quickly after they break your waters. I had mine broken at 9:30am and F was born at 1:30pm. Would've been sooner if I hasn't held off from pushing while waiting for the epidural.

snoopygirl · 12/05/2012 14:53

Try it now

igggi · 12/05/2012 15:20

Oh so gorgeous snoopy!
Coconut fingers crossed for you Smile