TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

sue am so sorry.

Oh sue I'm so sorry

picolina congratulations!!!

Feels weird putting those two sentences next to each other - but I wanted to acknowledge both of your news.

Wednesday 4th January

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 30+4 Due 10/03/12 next scan 13/01

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 25+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 22+3
Comedy - V High NKC - BFP cycle#2 ? 19+4 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+6 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 18+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 11+1 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 10+6 Next Scan 10/1/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 7+4 Scan 29/12/11
Cornflakes30 - V High NKC, underactive thyroid, intralipids, prog, 7+4 Next scan 11/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 7+1, Next scan 11/01/12
picolina123 - V High nkc, pred cycle 1

TTC
Waiting to test
buster76 - V High NKC, Factor V Leiden.
Janethomas
Snoopygirl - V High NKC TTC, #3, testing 10/11th ish

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
Cherrycheeks - V high NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Hopefulfor2nd - High NKC - TTC#2
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle3

WTTC
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2

Oh sue so sorry, what a bloody roller coaster this is :(

Congrats pico, great news and 1st cycle too!

sue I am so sorry to hear that it was a chem preg. You know, it might not have been an NKC issue. It could have been a non-viable embryo. That might explain why it is your first chem preg.

digi I am kind of in limbo at the moment. I still do not feel like I have ovulated (didn't get the usual bloated/constipated ov day feeling, boobs are not hurting like they usually do post ov) but my temps are up slightly and yesterday fertility friend drew me an ov line for last Friday (which is I think the very day I was on here ranting about the Letrozole messing up my system!). The day before that was the day of the last of my ov pains, and they were pretty strong, and I also had acu then and she tried to make me ov, but I just don't feel like I did. After much humming and hawing, I have started the pred this morning, but I am very much unconvinced! I guess I will only know for sure if my period turns up 12/13 days (my usual LP) after last Friday. I'm updating myself on the list to waiting to test for now anyway.

Wednesday 4th January

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 30+4 Due 10/03/12 next scan 13/01

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 25+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 22+3
Comedy - V High NKC - BFP cycle#2 ? 19+4 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+6 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 18+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 11+1 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 10+6 Next Scan 10/1/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 7+4 Scan 29/12/11
Cornflakes30 - V High NKC, underactive thyroid, intralipids, prog, 7+4 Next scan 11/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 7+1, Next scan 11/01/12
picolina123 - V High nkc, pred cycle 1

TTC
Waiting to test
buster76 - V High NKC, Factor V Leiden.
Janethomas
Snoopygirl - V High NKC TTC, #3, testing 10/11th ish
eurochick - High NKC, superovulation cycle 1, pred cycle 1, period due 13thish. Maybe.

Waiting to ovulate
Cherrycheeks - V high NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Hopefulfor2nd - High NKC - TTC#2
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle3

WTTC
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2

PS - is there anyway to copy the bold and underlining across when you copy the list or do you just have to re-enter it all manually every time?

Oh, and congrats on the BFP, pico!

Sues, sorry to hear the low numbers. Totally understand a need to lay low for a while. Hopefully you won't need to have a break for too long before you can think about going for it again. I've been in your position before and the waiting for the inevitable is horrible.

Pico, well done!

After getting my smiley face yesterday, I'm starting my pred tomorrow am. Feels like big news, finally recommencing ttc and so wary of it and what it may bring. 5 times bitten, 6 times wary and all that!
Waves to all x x

Thanks for all your kind words. I spoke to Louise earlier and she said as it was so early on it is not even classed as a pregnancy I can start on the superov plan as soon as I start bleeding so just waiting now. Talk about a rollercoaster of emotions. I dont think I will believe the next pregnancy test I take as I will be convinced I will be having another chemical.
Euro you are right, it probably was just a non-viable embryo. Still doesnt make me feel any better though! Saying that, I would rather it happened now than get to 6 or 8 weeks pregnant as I think everyday that goes by gives us more hope that the pregnancy will last. Louise also said I wont need to take a 2 month break once on the superov programme as I will be more closely monitored. Hopefully next time around will be the right one. Don't know what I would do without all of you!!!

Pico well done on your BFP, lets hope there are some more this month and that you have better luck than me xx

sorry to be a pain in the arse but can anyone advise?

I have just started pred for cycle 3 I need to go for check up at NLC,as haven't seen him since beginning and says on letter go back to him after cycle 1/2.
I made appointment with Louise this morning but then thought i really need to discuss Super O plan, so have changed it to Dr S. I presume Louise would just check side affects and see how I'm getting on on the drugs and check blood pressure etc.
Did I do the right thing cancelling and booking to see him? I think I would rather as he is the expert and don't want to go down there twice.

What's the cost difference between seeing Louise and Dr S for this sort of thing anyway?

Good luck this time hopeful

Sue, so sorry to hear about the chemical pregnsncy. It must be brry updetting and frustrating. I wonder if they epuld make you wait because of the Pred or anything physical? Either way take care if yourself and try to think of it as one of those things that might well have happened despite the nk cells. I try to think of the mc I had on the Pred like that and find it helps.

Pico, congratulations on the bfp! Yes it is just the first step but it is a very good start.

Euro ov signs are important but am sure in those heady days before we were watching every sign and symptom there must have been plenty if months we ovulated without noticing? Hopefully that's the case with you this month.

Hopeful - good luck with starting the Pred!

Well I actually have news having been for a sneaky denial scan scheduled at St marys. My last one here I think. I've come on my own, didn't tell anyone about it apart from dh. I just didn't want to fall out their system in case I miscarry again.

Anyway, long wait here and still in waiting room to see doc after scan, but just had scan and it's alive and well! Good heartbeat and measured 11+4 weeks! Big relief. Will get more info from mr s on Friday of course but it's been great to have a sneak preview. Am still nervous as hell about Friday as anything can happen in that time as we know, but if it's ok on Friday then I have intralipids and the next thing will be a nuchal next Thursday at the fetal medicine centre as recommended by mr s. There might be a possibility that with my 5th pregnancy I might see my first ever 2nd trimester.

Crossed posts with sue and snoopy. Sue you are bound to feel low and disappointed but good news too that you don't have to wait.

Snoopy yes I would make an appt with mr s if you are going to discuss treatment xx

Fabulous news free, nothing wrong with a sneaky scan, anything that puts your mind at rest is a definite bonus!

That's great news free!

I suppose ov could have passed me by but that would be unusual. Even pre-ttc I used to notice it and note it down so I knew when to expect my period. I can even remember when doing biology at school the teacher asking if anyone got "mittelschmerz" [or however you spell it] and I was one of the few who did. I didn't realise it was unusual because it was normal for me.

sue sorry, I didn't mean to suggest it made it easier. I was just trying to say that perhaps it didn't indicate the treatment wasn't working, if you see what I mean? I probably phrased it badly. That's the problem with words on a screen!

snoopy I think that sounds like a good plan if you want to discuss superov with him. I'm not sure of the cost difference, although I think I have a pricelist somewhere.

So sorry sue, massive hugs to u xxx

Congrats to you pico xx

So unreal how we have so many ups and downs on here, it's awful but we will help each other thru ladies. Xxx

Sue, so sorry. I know it's not much consolation but you are right that it if it does have to go wrong,it is much easier to deal with and move on with your body getting back to normal if it is earlier rather than some weeks down the line. At least it sounds like you can start trying again without a break from the pred.

Ari. I am only the low aspirin. So glad i don't have to bother with the clexane. Both my doc over here and Dr S both said aspirin was fine. I'm pretty sure my doc said even if I was homo MTHFR on both genes (i am hetero on both) they still wouldn't give me clexane as all my other blood clotting tests came back normal. Which begs the question, why test for it at all? Anyway, just to be on the safe side I am not going to fly at all during pregnancy as that can increase a tendency to clot. I am also making a particular effort to keep hydrated so stop blood getting sticky.

free so happy to hear your scan was good! Hopefully Friday will be a little less stressful. Are you having your NT scan then too?

I was going to have a scan on Tues at 11+5 followed by intralipids if needed. Then I was going to have my NT on Sunday at 12+3 but now decided just to have the NT scan at 12+0 next Thurs 12th with intralipids after if it is successful. Do you think it will matter that, assuming i need them, the intralipids would be done 4 weeks 2 days after the last lot?

pico congrats! How far on do you think you are? Will you be doing intralipids?

Happy new year to everyone!

Sue... I'm so sorry to hear your news, this is all so cruel to us all, we get our hopes up then it's taken away so quickly. Be kind to yourself xxx

Pico .... Congrats..

Free... Wow fantastic news it must be such a relief nearly at the great 12 weeks brilliant...

I'm having a wobble day today, I had my intrepilids yesterday and it went well, but I'm starting to panic , havn pt had any pregnancy symptoms at all, I keep getting pulling sensations like period pain... I have never made it past this point and I'm struggling to believe I will this time, I have another week till my next scan and it feels like a lifetime.

Is anyone else n here under st helier?

sue am so terribly sorry.
Roller coaster. Hideous sinking feeling like you are falling back into the abyss.
Initial thoughts r to get away from this thread as too many reminders. But then you wander back. I don't even have up and down days anymore, just up and down hours.

euro and snoopy and cherry and kittens fellow super ov folk.

The first app and scan with dr s is £320 (i think) and £220 thereafter. They would take your blood pressure etc then so def combine. The drugs each month on super ov are £60 to £80 depending where u get them. If we have 85% success rate within 6 mths then we have to feel lucky to get pg within 6 mths.

free amazing. Amazing.

Super ov
IUI
IVF

Pregnant by fekking June if it is the last thing I do. Everyone on here will be. Statistically speaking.

Sorry cornflakes! Pulling is your uterus stretching. No bleeding then u r ok chick. X

Thanks for the info ladies but what if you just see Louise for a check up surely that can't cost £200 odd quid?
Anyway like you said will see Dr S to discuss SuperOv and I'm seeing him next Wed at 2.10pm.

Lovin your PMA duggs We will all be fekking preggers by June or else Dr S gets it!!

Thanks duggs no bleeding just being silly I know....

Your post made me crack up...laughing on June. 😄😄😄

Can't remember follow up appointment was over £100 though am sure of it x
yeah exactly - all of us by June !!

Sorry not to have posted before but a belated 'happy new year' to everyone and here's hoping that it's a more positive one for us all. Saying that I'm really sorry to read about your pregnancy sue and have been thinking of you kittens.

Great to hear some positive news though - great news free and pico!

Congratulations pico- sorry totally missed your good news earlier!

love your post duggs that we'll all be pregnant by June!! I really need a bit of PMA right now.

8 dpo for me so testing in the next few days.. Not building my hopes up though- I'm getting used to the BFN's every month!

Fantastic news free on another good scan!

BTW.. just ordered my next round of superov drugs from Asda for £34 Can't remember who posted about it thanks (?duggs) - I paid £106 for the last lot from my local pharmacy!

cherry I stopped bothering testing long ago! I might have to resume on the pred, although as I have a shortish luteal phase I might not need to!

Cheerful I think that will be fine re the intralipids. I found a medical trial somewhere on dr google a while back that said intralipids actually repress nk cell activity for around 5-6 weeks so a couple of data off 4 will be fine. I did it just over 4 one time too. If I am allowed to fly (and still pregnant) and go on holiday at rhe end if Jan I will be making rhe decision between 3 1/2 weeks and 5 for intralipids too.

Wow cherry, that is great re the drugs at asda! I was thinking, as there are a lot of you know trying super ov we should maybe add this info to the list? What does everyone else think? And maybe even mention it in the next thread OP?

Cornflakes sorry you have been worrying. Some days I have been getting pulling and stretching too. Seems to be ok so far.

Pregnant and staying pregnant by June for all! Good one Duggs xx