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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
snoopygirl · 03/01/2012 15:31

free no I didn't do that sorry. if somone else doesn't I'll do it later. Are you feeling any more normal reducing pred yet? Good luck for the scan. Aren't you off to St Lucia at end of month? Heaven -can I squeeze in case pls? I 'll have to put that on travel list. Already got the holiday brochure out for a little trip to Brittany at half term, discovered Concarneau last yr and I loved it. Always have a good laugh trying my schoolgirl french out.. which is linited as the French Exchange was taken up by snogging an older boy and having a mini romance (theres a whole thread to that one which carried on another 30yrs on and off!)
PQ sorry you've got meetings and you can't indulge much - Just trying to amuse son, despite him having all these presents! He's skulking around like a moody teenager with headphones/ipod on and he's not even 6 yet!
ari I am not personally bothered too much about age - think I look ok (well apart from hideous fat hol pictures I've just downloaded). It's not a good thing to admit but I spose I care too much about what other people think - the school gates can be a gossipy bitchy place. You can virtual slap me if you like for having such thoughts!
x

snoopygirl · 03/01/2012 15:34

Oh shitsue hope it gets darker and as cheerful says it was dilute urine possibly.

digitalgirl · 03/01/2012 15:55

Also lurking via phone, but stuck in car while dh shops at Majestic...

Have just been to Brent Cross to look at cot mattresses then realised don't really need to get it till March. We also looked at a yummy new sofa that we're hoping to get once living room is refurbed. And some lovely eames-style dining chairs to replace our knackered ones. And a 'nest' of retro side tables. And we're also in the market for a coffee table (realise my list of designer furniture is longer than list of baby stuff to buy which consists of: mattress, sling, nappies)

Still have a hacking cough which dh keeps threatening to march me off to the gp about, but apart from suctioning all the crap in my lungs out I don't know what else they can do. Vaguely worried that I'll give myself an abdominal hernia with all the coughing - belly button has already flattened out and the top part is verging on being an outy (this did not happen last time). Despite having done eff all this Xmas and being a little bored I don't really want to go back to work. I have 10 weeks of work before going on mat leave. Nevertheless I need to leave on a high so they miss me when I'm gone and send me loads of work that I can do from home (or how else will we be able to afford my long list of designer furniture?).

In other news, dsis is having ds on Thursday so we can go on a day date for his birthday. Thinking Tate Modern, a lovely lunch and then maybe cinema?

free 11 weeks!!! Am hyperventilating with excitement for you. I think I'm looking forward to your scan on Friday more than you are (only because I feel so much that it will be good news)

iggi you have a scan on Thursday right?

Then I think we have loads of pred thread scans next week. I have my Glucose Tolerance Test next Tuesday. I have eaten so much High GI foods since getting pg that I won't be surprised if it comes back too high. In one way it'll force me to eat healthily for the rest of the pregnancy - but I'd rather not be worrying about having too big a baby and ending up diabetic for the rest of my life.

snoopy I heart Daniel Craig too (but only as Bond). I actually hated Eva wasserface at the time for getting to snog him.

kittens thinking of you.

OP posts:
digitalgirl · 03/01/2012 15:59

Xposted sue oh arse Sad sorry tests are getting fainter. Hope hcg results don't take too long. X

OP posts:
Arianrhod · 03/01/2012 16:15

sue So sorry to hear about your lines getting fainter ... those damn tests, they cause so much bl**dy stress! Fingers crossed that hCG tests stick two fingers up to those wretched lines!

batteryhen · 03/01/2012 16:18

sue Oh god, I know that awful feeling, however, don't forget my HCG was crap and barely detectable at the start, and when I went to St Marys and POAS for them - they told me I was not pg! So I know how it feels, you may just have a slow burner in there. I really hope so . Waiting is dreadful x
coley I am under St Marys as my local hospital referred me there after my last mc in June. I just saw MR S in the interim. I am glad I saw st marys as my teg test was high so I double up on the aspirin now. I am having a scan there next week - I don't know if they will take my blood again to see if I am sill a big clot or not. Frankly I will see anyone if it helps!
kittens I hope you are ok, and things went as smoothly as these things can xx
free !!!! 11 weeks! OMG how very very exciting!!
digi Yay for an outy!

Nothing to report here. I went shopping today for some new jeans and my belly wouldn't fit in any so I left in a huff. I also seem to have taken the phrase 'moonface' to a new level. Scan next week

Waves to everyone else particularly those feeling fed up and down. Waves to duggs especially xx

freelancegirl · 03/01/2012 17:59

Sue I was going to say the same as everyone else, remember what happened to battery with faint tests. Hopefully it will be the same for you. My one bfp this time was also barely visible but I chose not to retest as I needed to spring into action and get the intralipids. Can't scroll bsck on phone to see whether you are high nkc or v high?

Wow Digi 10 weeks until mat leave! Yea I understand how you want to wow them with your brilliance. But am site they are already aware of your brilliance too :) I bet you are super organised at work. I have to say I think I would be pretty crap at a day job right now. My brain won't function and I am so, so tired. Sorry about cough, I think dh had a point about seeing gp. Even to see if there's anything you can take to soothe it? Am a bit jealous of his wanton visit to Majestic wines.

To join in with the chat about age. I guess we all think about it to a certain extent. It's funny, these days I see a lot of posts from people on other threads who are my age or thereabouts (37 - the baby would be due on my 38th bday in July) saying they are old this time around, having had kids younger. It's odd for me as in my social circle the norm has been around 35 Ish, not younger so I haven't felt out of place. Our only now I am aware of the biological clock and, as more people start to have kids around me, the social one.

Who asked about coming off the Pred? Yes I guess it can't help wirh the tiredness, dizziness etc I am getting. I have made the executive decision how loiter at 25mg for an extra 3 days, until I have rhe scan with mr s. For various reasons those of you ahead of me in pg seem to have tapered ever so slightly later so I thought I would too. Only three days overall but it's a token gesture I guess. I am so looking forward to getting off them too.
All that talk about travel - am intrigued about the 30 year spanning holiday romance snoopy! - have and of you been lurking on that holiday booking thread? Mnetters are such travellers! I think bloody hell where does everyone get the cash from but I guess my list of holidays sounds pretty good too. Yes, best case scenario I will still be pregnant and given rhe go ahead from mr s to fly by the end of Jan. My dream would be to be pregnant and healthy and on that beach in St lucia. Right now I can't really see beyond next week, I've never entered a second trimester before so in my experience pregnancy lasts 12 weeks. To get beyond that feels literally incredible. But that's how these things are meant to work I realise!

Sorry if I've missed things, crap phone situation.

PUPO! Thanks PQ :)

suemays · 03/01/2012 18:02

Battery did your line go dark and then turn fainter though? It was quite dark on Saturday morning but was not barely detectable yesterday and even lighter today. When did you realise you were really pregnant and it was progressing? Was it after having the blood tests? How long did they take to start going darker?

I am worried that the blood test tomorrow will come back as not pregnant even though I have had all the positive first response tests. I used first morning urine on them all though so I still think I will start bleeding soon as I am sure they should have gone darker. Really feel like someone is trying to tell me to give up and forget and trying for a baby. Sorry for the moan but I all I keep doing is looking and comparing the stupid tests.

hopefulfor2nd · 03/01/2012 20:41

Hey everyone,
Sues - thinking of you, I've been in a similar situation myself. The waiting is torture, hope the blood results are through quickly. But also, don't let this, IF it happens to be a chem, knock you back xxxx
Digi - \good luck with glucose test, sure you'll be clear. With all else you have to do/take it would be goos not have to think about your diet as well.
Iggi - hows you feeling now?
As for age, I'm turning 30 in the summer. Not particularly bothered but I did think I'd have "completed" my family by 30, so it is a slight mental block BUT have also decided bugger it! It WILL happen but when mother nature and Mr S say so!! No matter if I'm 29 or 39.

Well, got my smiley face this am. And going by all your lovely advice I'm thinking to start tablets on thursday morning. Do you all think thats a good time? I'm thinking that the smiley is just an indictor it will happen in the next 24hrs so thinking by thurs am it'll all be done and so I'm not likely to delay it. Sound ok? Or should I be starting tom am?!
Waves and hugs to all xxx

snoopygirl · 03/01/2012 20:58

free your gonna be a mummy I feel it!

Re: 30yr thing - if we ever meet (hope so) I'll tell you about it, it's embarrassing and well actually quite funny now I look back on it...turned out to be a right W*kr which is also kind of sad.
Christ, think 2 glasses down (and you can see I have serious MN withdrawal symtoms today) I had better head off for bath.

hopeful your a mere slip of a thing.......
xx

hopefulfor2nd · 03/01/2012 21:19

Am sooooo intrigued by your story snoopy! X

Coconutfeet · 03/01/2012 21:33

Oh Sue, how difficult for you. When will you get the results of your blood test back? Fingers crossed it's just a slow burner.

Duggs - I feel for you, waiting this long. It must be so frustrating.

Iggi - How's the bump today? Still hurting??

Free - 11 weeks! I'm getting really excited for you. I know you need to hold back a bit until you know but am I allowed?

Well I attempted to do a pregnancy excercise dvd today and am now worn out and eating ice cream on the sofa. I haven't got it booked yet, but will be due for the GTT test myself soon. I'm looking forward to getting a bit more active and eating more healthily now that Christmas is over. My bump has really expanded over the last couple of weeks and I think quite a lot of it was mince pie related.

igginezerscrooge · 03/01/2012 22:55

Hello, hope it wasn't too stormy where you all are today (I have random bits of someone's bbq in my back garden). Sue how crap for you, I hope the results go the right way for you - remember every pg test itself is slightly different in its sensitivity.
I've been better today thab yesterday pain-wise though had a rough night. I did call maternity and they wanted me to come in only if it gets worse/doesnt stop - as usual I am thinking is it constipation/stretching/stress? (It's amazing what fear can do to my stomach!) I have felt tiny movements today and got a doppler hb this morning so my panic is subsiding a bit - thanks for support Thanks
Back to work tomorrow, then have taken thursday off for my scan. Who is scanning first this week?

digitalgirl · 04/01/2012 00:02

Being a bit OCD and needed to update list with correct pg dates...

Tuesday 3rd January

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 30+3 Due 10/03/12 next scan 13/01

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 25+1 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 22+2
Comedy - V High NKC - BFP cycle#2 ? 19+3 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+5 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 18+3 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 11+0 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 10+5 Next Scan 10/1/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 7+3 Scan 29/12/11
Cornflakes30 - V High NKC, underactive thyroid, intralipids, prog, 7+3 Next scan 11/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 7+0, Next scan 11/01/12
Suemays - High NKC, TTC #2, Awaiting HCG results

TTC
Waiting to test
buster76 - V High NKC, Factor V Leiden.
Janethomas
Snoopygirl - V High NKC TTC, #3, testing 10/11th ish

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
picolina123 - V High nkc, pred cycle 1
Cherrycheeks - V high NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Hopefulfor2nd - High NKC - TTC#2
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle3

WTTC
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC

Which prompts a few questions:

euro has that egg turned up yet?
buster any news?
brownie if you're lurking - hope you're ok. Do you have another scan coming up?
coconuts are you all done with scans now?
snoopy 2ww - eek! Have my fingers crossed for you.
breezy haven't heard from you for a while, hope you're ok too.

OP posts:
digitalgirl · 04/01/2012 00:03

Arse, it's officially Wednesday now, so list is already innaccurate!

OP posts:
digitalgirl · 04/01/2012 00:04

Fuck, can't even spell inaccurate accurately. Clearly time for bed.

OP posts:
picolina123 · 04/01/2012 07:25

im back, took me a while to find you again. im in a bit of shock, did early response test yesterday morning and got positive, trying not to be excited as this is only the start ! feeling a bit like here we go again, but i suppose this time there is help.
started taking all the other stuff yesterday, anyone know how long cyclogest take to absorb? i went to bed early last night coz had a pounding headach and woke up with a sore throat

lemonsherbet · 04/01/2012 08:13

pico congratulations on the BFP.

Sue here is hoping that it is a slow burning one. When will you get the HCG result?

free almost out of the first trimester of doom (you know what I mean all the anxiety etc) I feel that this baby is meant to be.

kittens hope the funeral went OK and that you are getting some TLC in real life.

Sorry have the memory of a sieve so can not name check everyone. Can not even use pregnancy as an excuse. So I will wave at everyone instead.

PQ77 · 04/01/2012 09:11

waving back at lemonsherbert as have just read the last 12 hours of the thread and then forgot everything I was going to say!

digi - how is your cough? Have you got a fever? Maybe you should go to GP after all? Sorry to be a worry, but i was suprised how ill I got with my lurgy before christmas and that it was worth treating but the gp (after years of scoffing that coughs/colds/sick days are for weaklings). I know it's not your day job but you sound like a fantastic home interior designer by the way!

kittens hope you got back ok.

just had two team members resign (for great opportunities elsewhere, can't fault them really and they have been in floods of tears saying they are so sorry to let me down...but still). so too busy thinking about what I have to do re recruiting and training to think about the fact I should be ov any day now...just a bit behind you hopeful. Though I won't see DH until the weekend (I refuse to SWI at 2am when he gets home from work) so this month could be a bit of a write off.

Speaking of which, enjoy your month off duggs (but now I know you are as impatient as I am, I think that might not happen...)

free - I can only imagine that this is a really weird time for you getting so close to 12 weeks. just a couple more days until your scan.

iggi back at work today - going ok? Pain subsided I hope?

battery please don't go jeans shopping - jeans are not the friend of the pred thread. I find dresses are great. Especially wrap dresses from Selfridges...

also wondering if brownie and breezy are ok? Hi choccy and god, everyone else. Sorry not to keep up and mention everyone, I am reading all your news. xx

Arianrhod · 04/01/2012 09:29

Morning all! pico congratulations!!! And now the mentalling starts .. :)

Got my post-MC follow-up appt with Mr S this afternoon, since he's already got me taking the hydroxy I guess it's just a "how are you feeling" kind of appt so doubt we'll learn anything new today.

cheerful can I just ask you, as a fellow-MTHFR person, are you just taking baby aspirin for that or are you on Clexane too? I've been reading around a bit (more), and it seems all of the consultants at places like ARGC have those with MTHFR taking Clexane to thin the blood from BFP, so I'm a bit worried why I'm only on aspirin. Most of the consultants I read about in the States also prescribe Clexane against this too, which makes me wonder even more. I did briefly raise it with Mr S several appts ago and he just said he didn't believe anything stronger than aspirin is necessary, but given that so many other consultants feel stronger is needed, I'm a bit worried. Not that I'm pregnant to have to worry about it, but you know what I mean!

/waves to everyone

suemays · 04/01/2012 09:57

My hcg results were 6.8 so not high enough for a viable pregnancy. Can someone take me off the first trimester list. Prob wont be on here for a few days. Looks like the v high killer cells i have are even more effective as this is the first chemical pregnancy i have had. Louise is calling me later to discuss what to do next as i dont know how long they advise to wait to ttc again. Not sure if i can keep putting myself through this torture any more!

batteryhen · 04/01/2012 10:04

sue I am sorry :( that is crap. I am sorry I didn't get to reply back to you yesterday either - my phone has broken and I couldn't get to a laptop. I understand you wanting some time out, but let us know if you need anything or need support.

Morning all, I hope everyone is Ok. xx

Arianrhod · 04/01/2012 10:10

Oh sue I'm so, so sorry you find yourself with this. Huge hugs, look after you.

snoopygirl · 04/01/2012 10:18

Oh Sue sorry darling, if you need a shoulder to cry on pm me anytime and let me know.x

PQ77 · 04/01/2012 10:20

apologies congrats pico

am so sorry sue. I had to wait two cycles (ie two periods) before trying again but it will no doubt depend on how long you were on the pred so wait and see what Mr S says. x