ALYPALY? NIGHTCAT?? ARE YOU THERE??

[mad4myboys]

I'm so sorry but its me again. Really need some advice if you dont mind?

You remember me and my ds2?

here

i really dont know what to do. Last few nights have been up with him at the longest stretch every 2 hours. Mainly every half hour. Rolling around moaning and crying in pain but still half asleep. Nothing is helping. Not his age (1 this week) what would you do? He has so much wind its unbelievable. His poo is still very 2 tone. Like a lump of dark green, a lump of yellow but all together IUSWIM? Also last week or so ive noticed he's been spitting up what i think is stomach acid as he'll take his dummy out, spit it out like a raspberry and its all foamy and he will cry until i can wipe his mouth.

During 90% of the day he is ok other than ALOT of wind and the food issues.

bump

hi mad4, sorry your ds still poorly

Wind is a sing of fermentation, usually of carbs or sugar or both. If you are still using the formula, then it could be overload of the nutrients coming from formula - have a look at its carb content; whilst carbs are good for energy and make babies put on weight, they also feed yeast in the gut if given in excess. Dairy-based formula can have similar effect, in fact anything that the digestive system is not able to break down, it will ferment and cause wind. Bear in mind that antacids do cause poor digestion further down the gut.
I would drastically reduce formula, in fact I would eliminate evening dose altogether - try veg soup/caserole type food instead.
If you are still giving antacids, the digestion will not improve. More antacids you give, more you force his body to produce the digestive acid, and if the drug means he can't, his system will react even stronger as you are working against it. What often is taken as too much acid, is in fact not enough - and you do need stomach acid to digest foods.

Clearly, you have to do something to break the vicious cirle, I would start with leaving antacids and formula out and concentrating on low-carb foods. If dropping antacids means you need to drop the formula, then so be it, you really don't need to worry about milk intake.

sorry i wasnt on MN last night...
A few questions.....sorry
is his belly very distended?

does it only happen when he is lying down?

Is poo normal consistency or a bit dry.

What food is he eating?

what meds is he on...was it gaviscon sachets or omperazole?

What makes you think it is stomach acid that he is spitting up?

is he catarrhy?

What foods does he react to?

Refresh me ..what were the food issues..cant find your other thread..or send me to other thread and i will read it
poor you and DS

ok, alypaly,

the digestion/tummy issues/reflux yes does really only seem to cause a big problem when asleep (is sleeping propped up still)

his poo has never been normal he has always been constipated. The senna really helps but still hard, mucousy, always veryy 2 toned. So like a lump of yello stuck with a lump of brown for example. I sometimes have to give extra senna but not every day otherwise he gets the squits. It also smells vv vile.

With the food side of thing, he still cant eat dairy, wheat/gluten/any protein inc meat, fish, beans etc.

He will eat rice or wheat free pasta for tea mizxed with a vegetable puree of some sort and fruit. porrige is gluten free aswell.

Doesnt eat a great deal. Still gags quite abit especially if its the wrong consistency.

He is on domperidone, omeperazole and sennakot.

I only think it is stomach acid as he acts abit funny when he is spitting it out, quite abit comes out and he isnt at all happy with whatever it is.

not sure exactly if you'd say catarrhy but he is still under the ent specialist due to the sleep apnea and the fact that his nose is still blocked alot of the time and still has his cough, nose always full of hard bogeys. Also makes an odd noise like a cat purring. They said he had mild layrnomalacia when he was younger...

Nightcat, he is having infasoy. Im not sure about cuttung the antacid out as his reflux is so severe and when he came off it when he was younger and then put camera down him they said osophagus was damaged from the acid so out back on it...If he doesnt eat alot and still cant eat all those im not sure on cutting milk with regards to vitamins/iron etc?

Well, my experience with soya wasn't very good: when we cut out milk and tried soya, my ds also had a tummy ache. Then I tried it myself and omg, I was in agony. Then I flushed the lot down the drain and went totally milk free.
His constipation was sorted within a couple of weeks dairy free. Then, later we had to ditch gluten, but he can now handle some dairy with absolutely no probs.

You might need to cut out antacids as well as formula because you might find yourself chasing more symptoms. The more antacids you give him, the more his digestion and absorption will suffer long term.

i am surprised at the consultant prescribing senna syrup as it is not recommended for use in under 6 years old. It is a very strong laxative9Apurgative) and if used long term ,it can make the bowel lazy. Has he tried all the other alternatives like movicol paediatric.

Has he still got laryngomalacia?

is the noise he makes on inspiration or aspiration?

If he is bringing up stomach acid,that can go into lungs and cause a cough as it irritates the lungs. Has he been checked for pyloric stenosis...does he throw his food up like projectile vomtiting...or did he when he was younger.

If poo is green it could be his age and his diet or gall bladder problems,which can happen in babies. Has he had blood test to check liver function.

Has his consultant done a gastric emptying study where they follow the track of radio active porridge through the stomach and bowel and xray it at different times.

mad4, in the meantime, explore diet suggested in this GAPS website which is aimed at rebuilding the gut culture and restoring absorption.
You can adapt it to what your ds / family can handle, but it's been widely tried and tested. The author of the website is a dr with nutrition and neurology qualifications. The best part is that she explains it really well not only what needs to be done to repair gut, but also why.
all the best

the layrngo was never 'proven' thats what the ent specialist thinks..

The noise he makes now (was differnent when a small baby) i think is both in and out breathing.

he was tried on movicol when was smaller but he had really bad stomach pains so had to take it off him. Was then a diff laxative beginning with d but didnt do its job as poo was still very hard. This has def benn the best. He always does his pooey nappys in the afternoon one after the other. He has just done one and it had a big bit of jelly like stufff? Not mucousy streaks but like a lump of jelly. Ive asked the consultant to call me back..

He has never projrctiled. ds1 used to with reflux, was tested for Pyloric anyway via blood.Liver function also been tested.

he hasnt had that porrige xray, had a barium one wheb a few months old.

thanks nightcat, will have look later

was it docusate the other laxative..
How was he tested for pyloric stenosis via blood...are you mixing that up with h.pylori(the bug)
Pyloric stenosis is different.Its the valve at the top of the stomach that stops the regurgitation

yes docusate.

he was tested for pyloric stenosis with a blood test when he was small. Im not sure about pylori thingy...would it have come up when they did a stool sample test?

what was the outcome of all the tests he had recently...did you say he was going in to hospital a while back

last time was end of september. he had OGD, colonoscopy and sleep study. the ogd was normal apart from minor non specific changes. Which i was told was nothing to worry about.

i meant ph study. that showed acid aswell as alkaline refluxing

MY only other thought with you mentioning his noisy breathing and snotty nose/catarrh is infant GERD which after reading all his symptoms sounds a distinct possibility. Has the doc mentioned it all?
have a look at the webpage,and see what you think. Worth asking if it hasnt already been mentioned or looked at. I would be looking at everything and not taking no for an answer.

www.medicinenet.com/gerd_in_infants_and.../article.htm

i cant open that page...

yes that has come up before when i have tried to research but i cant see that it is treated any other way than what he is already?

www.medicinenet.com/gerd_in_infants_and_children/article.htm
try and paste that into http.

that one works,just tried it off post...and then look in symptoms

if he is refluxing alkaline for definite then i would suggest there is a link to gall bladder as that is the only thing that is alkaline around that area. Has he had tests for gall bladder problems,because that can give really bad colic as i found out earlier this year when i had my gall bladder out.And it made my poo a funny a colour too.

im new to all this linking...how do you attach a link? so that it comes in blue

i asked about the alkaline and was told it was normal at this age??

with a link do then copy and paste the page address then you can either do or if you want to write something like :here then do the link page then a space then

just did another nappy just pure yellowy/light brown mucous, like big globs of it. That isnt right is it? He's never done this bad before...what could that be??

You must be so tired with all this worry mad4. I have tought about so many things to try and help and pulled on all the bits of knowledge i have. I dont know what else to suggest other than finding a different consultant.

The domperidone could be what is causeing the yellow poo as it speeds up digestive transit. If the poo isnt in the bowel long enough, it doesnt turn brown and remains yellow.

The information below is taken form a paper i was reading for you:
a stool begins green and changes to bright yellow as it passes through the digestive system. Bile and bacteria finally turn it brown. Yellow or green stools may indicate that the stool is passing through the digestive tract too quickly. Bright yellow stools may indicate insufficient bile.

if the poo is mixed colurs...domperidone will make it yellow....senna will speed it thro the bowel and make it yellow and then when he is not having the medicine (ie in between doses) the poo will be a normal colour. So then the two lots will mix and you will get a two clour poo.
it could just be as simple as that.
Has doc suggested slowly weaning him off domperidone and senna, just to see if bowles return to normal.
Also with all these drugs sppeding up the transit it might be making it more mucusy?

Hope you get some help.
Still here if you need to bounce anything off me though

thanks for that alypaly. Im going to see gp today anyway so will ask about the odd nappies yesterday. Also have to show her the recordings of the noise he makes when breathing

if he has had the breathing problems most of his life.....my only other instinct is a condition which i really didnt want to worry you with,but all the other symptoms seem to fit together,is unfortunately cystic fibrosis. has this ever been discussed as tou get all these symptoms.
Initially wanted to cover the less frightening things as its no point looking at the worst scenario first...otherwise youll have a nervous breakdown with worry...but seriously i would mention it, especially with the inspiration and expiration noises and the constantly mucusy nose...they may be all conected.
keep me posted

i did ask about that when he was smaller but i was told that he had CF tested in the newborn heel prick test.

Just been to my gp, she said the noise IS mild floppy layrnx..dont know how long it is left for? She has also referred him to one of our other (!!) paed to do allergy tests. In the meantime she said to try to speak to our current paed in london about the poo issues and that he isnt getting better and how the sleep is now affecting him! She said i was amazing for what i cope with! Cant get more of a compiment i dont think! Still didnt help though

you seem to have gone through everything...are you medical or is it just desperation that you have looked at every possibility