ALYPALY? NIGHTCAT?? ARE YOU THERE??

[mad4myboys]

I'm so sorry but its me again. Really need some advice if you dont mind?

You remember me and my ds2?

here

i really dont know what to do. Last few nights have been up with him at the longest stretch every 2 hours. Mainly every half hour. Rolling around moaning and crying in pain but still half asleep. Nothing is helping. Not his age (1 this week) what would you do? He has so much wind its unbelievable. His poo is still very 2 tone. Like a lump of dark green, a lump of yellow but all together IUSWIM? Also last week or so ive noticed he's been spitting up what i think is stomach acid as he'll take his dummy out, spit it out like a raspberry and its all foamy and he will cry until i can wipe his mouth.

During 90% of the day he is ok other than ALOT of wind and the food issues.

ok, so now he only has 10mls of omeperazole at night. There is no change to him at all. Will it take a while for this to make a difference if it was going to?

r u there?

ok trying again ladies. He is now on 5mmls of omeperazole at night as paed said to do it gradually. /anyway last few days he has got quite bad, went to doctors this am who said that he has a blockage building up and to put him back on senna which i have now sadly done. Im waiting for the paed to ring me back. we arent due to see him till 1st feb but i think all of this is now cruel. He is suffering so much (let alone the rest of us) with the lack of sleep. I cant help but think maybe he should have had a scan of his tummy to see what is going on? do you think that would show anything up?

hi, sorry you still struggling..
Scan will show macro-picture, ie structural view, but I think your ds is affected by biochemistry/nutrition. If he had camera done, then they would have picked up anything major.
I would concentrate on nutrition.

Withdrawal of drugs is not problem-free and you have to accept that whatever you do, it won't be sorted day1. His absorption/stomach function has been adversely affected by it, drugs are usually toxic to the liver, so he will need to slowly detox them first. (The other option would be carry on adding/increasing drugs that would make it worse long term).

Antacids often contain aluminium, that takes time to get out of the system, in fact you don't want to speed it up as too much toxins in the blood stream could affect his liver/kidneys. I think reducing meds has strted the detox, Mg in bath salts should also help detox in a gentle way and w/o going via liver/kidneys. Might even help sleep.

Slowly decrease meds as advised; add a few flaxseeds to each liquid food; a few coriander leaves too(remove metals); handful of bath salts in his bath (Mg acts calming). No vitamins/minerals internally while detoxing not too put extra load on his liver/kidneys - use foods instead. Cook with olive/sunflower oil, butter (not marge).
I am sorry, but I am not buying the vegeterianism at this age, he does need quality proteins in soups/caseroles (liquid part), as he won't get the same quality from beans/pulses/other grains.

Strongly suggest you read Gut and Psychology Diet by Natasha Campbell McBride.

thanks nightcat, by the way, i havent chosen to make him vegetarian, if he eats any type of meat, pulses etc it makes him ten times worse so therefore i dont give it to him

I know what you mean, my ds was also rejecting meat, that's b/c anatcids reduce stomach acid that is needed to digest it. Pulses don't replace quality animal protein.
In that book you will find how to s-l-o-w-l-y go about breaking the vicious circle.
My ds was rejecting meat b/c too much grains also suppres stomach acids.
Do read it if you can, it explains not only what and how but also why. Best book I have seen on the subject.

i tried him with white fish thinking that was the 'mildest' but he was the same as he has always been with those foods. Have also tried oats and the same thing. It doesnt make sense as have had him intollerance tested and all fine except banana and the surgeon says there are no signs of any allergies or intollerances...

Maybe not fish, my ds still won't go near fish. Banana intolerance points to carb issues (either carb overload or low pancreas function). Whatever you give, you don't want it in chunks, my ds just gagged on anything less then creamy, I still liquidise meat in soups to increase his proteins, then it's so hidden that he doesn't pick it out.

As per the book, you could try eg. egg yolk (white is more likely to cause the reaction). Boiled and made into a spread/paste with butter & salt/seasoning, even mixed with mash or similar. Salt would help to digest it in the stomach. Egg yolk is v. nutritious and you only need salt to improve taste. You need to start in tiny steps.

he can have egg, havent seen any change to him when i have given that to him. My dh seems to think it would be a good idea to give him say chicken for a few days on the run as he thinks his tummy has to get used to it... not sure really. I try prob every 4 weeks (as per paed advice) to reintroduce and give it in the day, always fine when eating it, it is always during the night it causes the problem.

Yes, chicken sounds good, lamb is also less likely to cause reaction than say beef.
If it was me, I would make it invisible/liquidised at first or v. finely chopped up into a mash of some sort (been doing it here for years). Protein meal should make him filled up longer than all-carb meal and also should help his health generally.
Make a list of evening foods, maybe something will stand out.

You could consider hair analysis for mineral deficiencies, eg zinc is involved in production of loads of enzymes, inc digestive, also growth, immunity etc. My ds even on gluten-free was still zinc deficient and I am now including zinc & B's and he seems to be more open-minded about meat.

just seen your mention of mouth ulcers, classic symptom of candida which could be caused either by antibiotics or low zinc; zinc + B6 can help with this too

Hello, just seen that you said you are supplementing with Bifidus. Could I suggest that you are careful with this because there is research to show that, although it is a good bacteria, it is not good for a damaged gut. This is from research by Elaine Gotschall who developed the specific carbohydrate diet based on research by a Dr Haas. She suggested to stick with acidophilus and l.plantarum.

I haven't read all of your thread so not sure if you have looked into the SCD diet. One has to be very careful of course with little ones but there are a lot of websites discussing the use of it in babies and very small children.

Mouth ulcers are certainly often a sign of B deficiency and often a sign of general gut problems. Has your DS been tested for B12 deficiency?

i have taken him to see a biochemistry/nutrition lady and she said he has candida, had a banana intollerance and that was it. she was convinced the candida was his whole problem so was on candida diet and put on lamberts good bacteeria suff. Took him back new years eve and she said he didnt have candida but keep giving good bacteria. Needless to say he hasnt improved at all.

Really really dont know what to do/think any more

Poor you. Sounds awful for you all. Have to say that I would stop on the lamberts as it has bifidus in it.

Gotschall, suggests to only have bananas when they are very ripe, turning black, as this means the sugar has turned from a complex sugar to a simple one (probably not explained that properly).

As I mentioned, mouth ulcers can be a sign of low B12 - has he had a blood test for B12 levels recently? There is a lot of new research showing the importance of vitamin D for bowel health so if he has to undergo some blood tests do get them to check vitD while they are there.

How are his iron levels? Mouth ulcers can also be a sign of some sorts of anemia.

How are his ESR and CRP levels in blood tests? Has inflammation been ruled out?

A note on longterm bowel health, just in case he is unfortunately showing early signs of an inflammatory bowel condition - new research has shown that too much omega 6 might be a factor so all these foods sold as healthy as they are made with sunflower oil, might not be the best unless you are being careful to make sure good amounts of omega 3 are being ingested as well.

i thought they were ulcers, (sorry losing track of what i posted) but he had oral thrush (the OFH GP thinks, as was on anti b's for tonnsilitus)

It seems to have gone now with the liquid stuff the gave me beginning with N. A question i have been mulling over....he has enlarged adenoids and 'moderate' tonsils. His nose (since birth) is always full of bogeys and this causes problems and he gets very frustrated with this. HAve had to use olbas oil/saline nose drops every night since birth. Always sounds 'chesty' but lungs always clear and been told it is mucous i think they said? In the back of his throat. Well i was told by ent they wouldnt go straight in and take them out when they saw him last as he was 6 months. Im going to discuss/ask them to do it, he has also had tonnsilitus twice in 6 months.

Anyway, im wondering if this could have any effect on his tummy do you think? Or am i clutching at straws?!

Infected tonsils could affect the tummy too but normally that would clear up when the tonsils do. If he has had antibiotics (nystatin?)then do think about about trying him with very small amounts of acidophilus and plantarum but no bifidus for now. When I was small, which was a very long time ago, I remember drs checking for tenderness in my tummy when I had tonsilitis but I don't think they do that anymore?

Interestingly, I have read some people on sleep apnoea forums say that digestive problems improved once they got the apnoea sorted - however, again this is adults, not little ones. I believe Chinese medicine often connects lung problems with digestive problems too.

It doesn't sound like there is much in his diet that could be causing excess mucous production? Do you have carpets or pets? Just in case there is a dust/pet hair allergy happening?

no pets, do have carpets but paed doesnt think it can be an allergy esp as how it affects his sleep. They are going to do allergy testing though.

ok so i gave him liquidised chicken in potato and his poo is almost white. im guessing thats the chicken and nothing to worry about anyone?

hi mad4, I think it's a good news that he can handle it without throwing up .
It could well be chicken, another option would be low bile production, but this can improve in time with small steps, he is only little still and to be honest the antacid meds didn't help earlier and if anything, probably delayed introducing (protein)variety in his diet.
To make digestive enzymes, you need aminoacids, some you just can't get from a veg diet, so you need to provide those building blocks from variety of foods. Then you need to stimulate the body by providing variety of foods, that's why you need small steps. If he is only making small amounts of enzymes, he can only handle small amounts of protein. I would give some protein with each meal, but in small doses. You can also make pumpkin mash or other veg (parsnips, broccoli etc), so it doesn't get too boring for him. I put millet into soups, caseroles, it has a good mineral content.

yes im amazed and very happy about it. Not sure what to try next? what is the next that us easier to digest? /i dont have any millet and cant get out! fish is still a no and dont really want to try red meat yet!

Dark parts of poultry (leg), any bird really, then lamb - but go slooowly and
don't give protein and omep in the same meal.

PS. Omep side effects mention sleep deprivation (plus others), so long term no good really.

i give him omeperazole before he goes to bed as advised by the paediatrician! When you say slowly do you mean a little bit every day of a bit one day, then a few days without and then try again?

I would try a little with each meal, except when you give omep.

so i give omep before bed, you mean dont give protein at tea time? Thats what we did last 2 days but that was chicken. He has done another whiteish poo. Dh thinks it is the chicken...when should i be worried about that?

If you give omep long after protein meal (say 2hrs), then there should be no problems with digesting the protein.
I would worry if you saw undigested food in the nappy, but if it's just the colour then can't see that being a problem.
Some meds can rush the food through too quickly, before it's digested, so as long as you give enough time for food to be digested before meds you should be OK, 2 hrs is about average for it to move down from the stomach.