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ALYPALY? NIGHTCAT?? ARE YOU THERE??

106 replies

mad4myboys · 15/11/2009 19:46

I'm so sorry but its me again. Really need some advice if you dont mind?

You remember me and my ds2?

here

i really dont know what to do. Last few nights have been up with him at the longest stretch every 2 hours. Mainly every half hour. Rolling around moaning and crying in pain but still half asleep. Nothing is helping. Not his age (1 this week) what would you do? He has so much wind its unbelievable. His poo is still very 2 tone. Like a lump of dark green, a lump of yellow but all together IUSWIM? Also last week or so ive noticed he's been spitting up what i think is stomach acid as he'll take his dummy out, spit it out like a raspberry and its all foamy and he will cry until i can wipe his mouth.

During 90% of the day he is ok other than ALOT of wind and the food issues.

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Are your children’s vaccines up to date?
mad4myboys · 23/11/2009 10:19

hmm well last night wasnt so good, was awake 11.30 and then at 3.30am for ages, had really bad wind for ages

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alypaly · 23/11/2009 11:25

2 out of three aint bad...it might be temporary

mad4myboys · 23/11/2009 11:37

very frustrating not to know what to do about the medicines. Wether to stop all together yet or not.Well he still needs the laxatives as still constipated but dont know about the domperidone.

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alypaly · 23/11/2009 11:46

just do what the consultant advises and do one thing at a time....if you stop them all then you cannot work out which one is upsetting him more or which one he needs.

It may well get to the point where the consultant brings him into hospital for a short stay. takes him off the lot and then adds in gradually the ones he needs. I would be wanting doc to do that if it was me.

nightcat · 23/11/2009 11:55

Well, I would keep a food&med (& reactions) diary.

Personally, I would ditch the meds. I am afraid they just deal with symptoms not the cause, so they shift the problem elsewhere. They might be ok on a single incident or two, but are not meant to be used long term (don't want to give you a full story I know of using them long term).

Instead of laxatives, you can use ground (or not) soaked flaxseeds, just the liquid at first mixed with any dish, it's very soothing and healing for the gut and totally tasteless. If ground then they are even better). You only need a small amount, they are not lax, they help the stool along.

You probably need to consider probiotics (or some sauerkraut liquid) in small doses too.

mad4myboys · 23/11/2009 12:04

he is having bifodus every day at the moment..

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nightcat · 23/11/2009 12:15

that's good, mad4

one more thing, don't give him too much in a way of liquid in the evening so it doesn't sit in his stomach too long when he is in bed and if poss make sure he is on his left side

mad4myboys · 23/11/2009 12:21

he seems to be waking up hungry though now? Has been sleeping better but now seems hungary? I know his diet is very limiting but i make sure he eats plenty before bed..

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nightcat · 23/11/2009 12:31

That's ok, being hungry, but what might work better for him is little and often, within reason of course, only you will know how much is too much.
Some of those meds empty stomach too soon, so it (his stomach) probably hardly got used to having food sitting there waiting to be digested.

alypaly · 23/11/2009 12:41

when you have gastritis or any colicky pains...it is common to want to eat as initially it helps to calm the situation..then later the reflux starts,so it becomes a vicious circle...like i need to eat to get rid of the pain ,then i get the pain and i need to eat IYGWIM.
I would agree with NC ..little and often so that it isnt too much to deal with in one go.

mad4myboys · 23/11/2009 18:03

well the domperidone is a gut motility so makes sense. What else can i give him to eat at tea time to try to fill him up till morning? Tried porrige but he will only eat it for breakfast!

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alypaly · 24/11/2009 09:13

whatabout rice pudding with a spoonful of jam in it.

mad4myboys · 25/11/2009 19:29

thanks. well it doesnt seem to matter how much or how little he eats/drinks, the nights are still the same. Night before last, hardly any milk, not massive tea and woke 11ish then 4.30 and wouldnt settle for long, bad wind. Last night had alot of milk, big tea and still woke 12ish and then 3.30am and really struggled, he kept waking up, unsetllted...

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alypaly · 25/11/2009 19:36

i wouldnt give him alot..it may be too much for his sore system to deal with. I would try little and often. I know this is hard for you but a big meal is probably really hard going for his poor guts.And if he has got gastritis small meals will be better

mad4myboys · 25/11/2009 19:43

is gastritus not what you have when you have a tummy bug?

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alypaly · 25/11/2009 19:53

gastritis can be caused by chronic bile in the stomach and oesphagus. It is an irritant,You are right that it can also happen after an infection like H.pylori but it is really difficult to get under control. He could have that due to the alkaline reflux which would be a reason for him having so much pain after a big meal. has the consultant advised little and often.

mad4myboys · 25/11/2009 20:06

no, he's never said anything about what/how he eats tbh, no one has. He just doesnt eat alot, has always eaten little and often. Including formula from day one! He generally has somthing to eat every hour! Snacks i mean between 3 meals! I just dont know what else i can do for him now.

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alypaly · 25/11/2009 20:08

its just witth you saying,he had alot of milk last night. maybe its too much last thing at night. Dont know what else to suggest,...poor you

mad4myboys · 25/11/2009 20:18

well normally i restrict what he can have amount wise so i decided last night for him to have the amount he wanted and ive noticed hasnt made any difference to him at all

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alypaly · 26/11/2009 10:39

if it hsnt made any difference keep going and just see. OOh you sound so desperate.>

nightcat · 26/11/2009 19:05

sorry you are still struggling, mad4, was the nutritionist able to suggest any food/diet advice? U going back to see them?

Is he still on all the meds? By the way, I wouldn't compare domperidone with flaxseeds, coz flaxseeds are truly super-foods, with soluble fibre & omega3.

Personally, I prefer food approach as it worked for my ds so well. Think back to those 2 better days/nights to work out what you did and how?

mad4myboys · 26/11/2009 20:31

i have no idea tbh! The dietician doesnt have any other things to suggest that i am doing already! oh and yes i am desperate!!

he is now properly walking and that doesnt seem to make a difference!

So...i should head off to health shop for some flaxseeds.

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mad4myboys · 30/11/2009 12:52

just been thinking alot about this. It really doesnt make any sense to me. Ive had him tested (vega) and doesnt come up with any allergies, just intollerant to banana. (wont put him on dairy for a while as ds1 allergic and im intollerant) he will be tested (blood) via nhs for allergies (ds1 just had it done) but so much i dont understand. If there is no sign of allergies internally (via camera and biopsys) why cant he tollerate/digest all these types of food?!

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nightcat · 30/11/2009 14:07

hi mad4, you sound very much like me, I was thinking in all directions and following various avenues but in the end for us it came together, hope it does for you too, eventually..

The cameras and all the macro-stuff mainly look at macro problems, eg structural damage, occasionally miscroscopic if they take the samples to view under the microscope. But they don't look at biochemistry a lot of which is dynamic and depends on nutrition.

Anyone correct me if I am wrong, but camera work is not likely pick up allergies. When I started on my ds problems, I listed absolutely all signs of anything weird/different and tried to look for links.

Have a look at the link stuff below, which explains well how intolerances originate and build-up and how you can work to unravel all this.

Bananas are predominantly carbs, carbs are digested mostly by pancreas enzymes. Maybe he is taking in too much carbs and overloading his pancreas? My ds had a similar test to vega but apart from intolerances, he came up deficient for various nutrients & vitamins. Did the test pick up any deficiencies for your ds? My ds had aminoacid deficiencies and he at the time was vegeterian, but none of over the counter aminoacids were found suitable to supplement.

When they are little they do need proteins and he was living mainly on carbs. We had to go gluten-free and also slowly introduce proteins in soups/caseroles etc.

The link below is not specifically about babies, but I think it describes the allergenic process really well. Whilst that one is mainly about wheat, it does talk about other allergens too, like corn, citrus etc. Maybe it helps you to see a bigger picture.

link

mad4myboys · 30/11/2009 21:11

thanks for that. The lady (recommended by friends) said he was actually quite healthy, no deficiency in any vits or minerals. Just came up that he has candida, so for last 6 weeks he has been having bifidus and sugar and yeast free, that is on top of his already restricted diet.

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