Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

Sending Love and Light to you and your family.

Thinking of you, all the best for tomorrow

Just in case you didnt know, a really easy way to do an audio recording on your phone is use the camera, out it on video and then put it camera side down on the desk in between you. Then it just records a black screen and the voices.

The PP who said to ask for the spellings of a few key words is v clever, some of them are spelt shockingly differently to how they sound.

Maybe also take a paper and pen in case you think of questions as you go along and want to jot them down to ask at the end.

If they have found something that requires treatment or follow up, ask if there is a number or email address you can contact if you think of more questions once you get home. Also ask what symptoms or change in symptoms would mean that you should take DS in for an immediate evaluation and what would mean you should get back in touch with the consultants office but isnt immediately urgent iyswim.

sending hugs

Good luck; hoping for the best.

Hope you manage some rest, and that tomorrow is soon here so you can make a plan to deal with whatever ‘it’ is. All the best.

No experience of this but hopefully they are just clearing the backlog of people with minor things quickly

Sending love for tomorrow ❤️

Our minds always go to the worst case scenario but there's every likelihood it's something far less serious. I really hope everything is okay and I will be thinking of you tomorrow.

Usually our worst case scenario doesn't play out. Big hugs and thinking of you all. Good luck tomorrow. It could be a million and one things. Xxxxxx

Op that sounds so stressful. The uncertainty must ge horrible.

Good luck op to you and your family. Hope it turns out to be something straight forward and ds will recover soon.

Sending my most warmest hugs

It’s pretty standard to not take a young child to a meeting where there will be things to discuss - too distracting and things would need repeating. For the same reason they like to have both parents - so they don’t have to repeat the meeting another day because one parent passes on wrong info to the other. Recording with permission is a good idea as pps have said. You know your DC wasn’t right and now hopefully there will be a plan. Best of luck tomorrow. Thinking of you💐

Good luck OP; saying a prayer for you

Sending you a hand hold. I hope you manage to get some sleep tonight. I hope the fact they haven’t’ called you all in as an emergency is a positive sign. Look after yourselves too.

Hope you manage to get some sleep tonight OP

Thinking of you abd sending positive vibes. I hope it goes okay xxx

OP, my own DM was you around 11 years ago with me. I was 17, had an MRI due to a routine eye test picking something up so I was referred. It turns out that I had a benign meningioma which had been growing since birth, I had emergency brain surgery the next day to remove it and have had three operations since as it kept coming back but it’s never really affected me apart from the headaches. I am absolutely fine, good job, house and a six month old. It is so scary at the time I can’t imagine how my parents felt but it was the best case scenario and super rare to begin with. We are all here for a hand to hold OP and wishing you all the very best 💐

All the very best tomoro Op. @dirtynancy has posted some very comforting advice x

good luck tomorrow xx

Hugs and best wishes for tomorrow, OP. Like many here I know a bit about what you are going through and that at this point it could truly be anything. Recording the meeting is a great idea.

Try to stay focussed on the fact that from tomorrow you and the doctors can start working together to do everything possible to help your precious DS.

We will be thinking of you.

Thinking of you and keeping fingers crossed for tomorrow xx

Worrying won't change anything you hear tomorrow, good or bad. Please try to get some sleep.

What you need to focus on is your child has been seen and they are calling you in quickly to address whatever it is they've found. Focus on where you go from here.

Good luck.

Crossing fingers for you! Well done on pushing for the MRI and not being fobbed off...whatever it is has been found because of your persistence, so give yourself a pat on the back for that, whatever happens.

Thinking of you for tomorrow

Thinking of you OP. The waiting and ‘what ifs’ are unbearable. But whatever they tell you, if it’s anything, it’s already there, so knowing about it is the best possible outcome.

You knew something was off, you pursued it and now relatively soon after any symptoms have been showing, there will be a diagnosis and a plan of action in place. I imagine, often, things get left much later before they’re diagnosed, so you’re in the best possible position to fix it.

This pales in comparison now but I remember my baby son being under investigation for having enlarged lymph nodes. We went for a blood test in the afternoon and they told us to call for the results in a week. The following morning, I’d had a voicemail from the doc “following up” by 8:30am. I nearly had a panic attack on the train! And what with it being the doctor’s, when you call back you’re just number 20 in the queue; the doc is unavailable and the secretary can’t tell you anything. The sec just said “it says in his notes to book you in for tomorrow.” I pleaded for her to ask the doc to get back to me before then as I’d be going out of my mind. So the doc called me pretty quickly and explained that his red blood cells were down and his inflammation levels were up. So obviously more investigations were needed. But it turned out to be nothing. I remember for a short time thinking he had leukaemia and sitting at my desk openly trawling mumsnet for similar stories with a good outcome! So, in summary (!), every mother’s worst nightmare, but it could just be some kind of anomaly that warrants further investigation but will turn out fine.

Sending you strength for tomorrow xx

Well done for pushing for investigations, no matter what it is it’s better to know so they can get in with the next steps. I’m so sorry you’re going through this.