Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

Good luck for tomorrow. I hope your ds is ok.

Wishing you the very best of luck.

Hope everything will be OK for tomorrow 🙏

Can you record the consultation on a phone? It is so difficult to take in everything when you are worried.

Waiting and fear of the unknown are probably worse than dealing with whatever you are going to be told Try to look after yourself until the appointment with some sleep good hydration and don't forget to eat Thinking of you

I will be thinking of you tomorrow, I have been in a similar position and the waiting is always the worst part. Whatever it is you are dealing with, minor or major, it is always better once you know.

All the very best.

Many thoughts for you and your family. Once you know what you are dealing with - big or small - you can make a plan, it is the waiting and catastrophising that is the worst part.

Only sharing in hope this will calm you.
this is not about a child - just my experience of when you get that call.

my husband was struggling to breathe when walking, very I’ll very dizzy. Got bumped around for months being misdiagnosed again and again.

eventually, they did a test to check the pressure inside his heart. Everything changed suddenly after that. They rushed him to QE, they were running about to get him to theatre. Turns out he had an awful heart condition and eventually was operated on and put on life support- thankfully he recovered.

what I’m trying to say is this. Yes it is concerning they’ve called, sadly, I imagine they’ve found something. However, they didn’t rush you in. This means they have time and aren’t panicked. That’s the important thing. They didn’t call and say come now, bring him with you. Instead they want to see you tomorrow and without your lovely child (I imagine this is to give you time to process whatever they tell you.)

I hope that gives you a little comfort.
im So sorry this is happening to you and your family. My heart goes out to you.

Thinking of you OP. Maybe a little walk to try and tire your body a little? There's a beautiful thread on here, something called 'the night watch will mind your worries', I found it so comforting.

You have a whole crowd of mumsnetters sending you warm wishes ❤️.

I'm very sorry to hear this.

I went through something similar a decade ago. I got to the GP and she burst into tears. The next day with the consultant it wasn't great news, but something we can live with.

Don't Google even after you have been in the information is often outdated or wrong.

Thinking of you all tomorrow

Good luck for your meeting tomorrow. How worrying for you all. I hope you get good news. Hugs

OP there will be people on here all night if you need to chat. You are worried sick, nothing will change that. All you can do is put one foot in front of the other until you get to speak to them tomorrow. Some great advice on here about managing your anxiety until then. I hope that it turns out to be something easily fixed. We’re here for you.

Best of luck tomorrow, OP. I think recording the session is a good idea, but if for some reason you can't, then designate one of you as the note taker and that person should try to write everything down. I did it for my DH when he was facing doctors with a difficult diagnosis (years ago and he's fit as a fiddle now). It's amazing how much you forget or mis-remember, and it's comforting later to look back and find you have a good record of what was said. We are all thinking of you

I can imagine how anxious you must be feeling. Sending a hand hold and best wishes.

Good luck for tomorrow OP

Handhold OP

Sending lots of love

Nothing to add, just sending love x

Hope it's nothing bad.

If it was bad, would they not want to tell you immediately?

Sending you and your family my love and very best wishes, OP 💙

If it helps, with kids they usually tell you not to bring them to the follow up. The reason being that the parents are paying more attention to managing behaviour/reassuring the child/explaining to the child than actually listening to the doctor. So that doesn't necessarily mean anything bad.

I really hope everything is ok, will be thinking of you tomorrow.

Thinking of you, and hoping things aren't as bad as you are imagining.

Best of luck OP.
Its so scary and overwhelming when it comes to the kids health.
Take a notepad and pen to write down things so that you don't forget as soon as you walk out, and I'll be hoping it's something minor that's easily sorted

Just echoing other posters, you’ve already had some wonderful advice so I just want to wish you well for tomorrow and hope that your worry is for nothing x