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Dn just diagnosed with diabetes

262 replies

supermama212 · 29/11/2011 17:22

niece (12) just diagnosed with diabetes. In hospital :( they are teaching her how to use insulin. she went to A&E after her throat was burning - she drank orange cordial- what could cause this? Blood test confirmed. im in york she is as well - at the same hospital my DD just home from!! Has anyone been/ is in this position? thank you - its just so Confused

OP posts:
Are your children’s vaccines up to date?
accidentprawn · 21/01/2012 09:46

i think they took it from donald duck to donald dog!
they are trying to train him as a hypo dog. He is a golden labrador.
i love him and i would bring him home with me if i could but they need him as superdog!

Oblomov · 21/01/2012 13:56

Bramble, the more bolshy I get, the more you know I am hypo. I start to get really stroppy when people insist I have a mars bar, and in the past have told people to (non politely) get lost. Then they KNOW I am low.
But your consultant would not want you to be as low as 1.9 or 1.5. In some ways, it is good that you can function at that low. But your warning signs should be better, to pick it up earlier. You should be able to spot yourself going low as you are in the 3's, slipping down into the 2's. When my consultant found out about my 'roast 1.9', she was far from happy.
My mum has mentioned a hypo dog to me, but I wasn't keen. Like the idea though. Love the name!!

paddyclamp · 21/01/2012 15:39

I'm a teacher and i can still teach when low...if i'm talking at the board i just carry on as normal...the kids say it's when i sit down they can tell something's wrong!

Other times when i'm low i hallucinate and talk complete jibberish..last week i went so low that the meter was saying LO! .... When i'm going high i am very very bad tempered and my side hurts :S

paddyclamp · 21/01/2012 15:40

By the way...i don't tell my consultant how low i've been because have you seen how fussy the DVLA is now about Type 1 diabetes :(

Oblomov · 21/01/2012 17:13

Paddy, did you not know that I lost my licence during the summer, becasue of the DVLA and their 'new rules'. I won't be telling my consultant anything anymore. She knows this. we talked about it being the end of honesty as far as diabetics are concerned, becasue of the DVLA situation. She knows that this is a problem. But what can be done to get around it? nothing.

paddyclamp · 21/01/2012 17:38

Yes i remember! Have you got it back again? ..... I would be up the creek without a canoe if i lost my license :(

Even though i have bad hypos i would never get in the car without checking my levels and making sure they were erring on the high side...and i always drive with a lucozade in the drink holder!

I hate the way some faceless organization thinks they know better than us!!

Oblomov · 21/01/2012 17:52

I got it back. Had to hire the top driving solicitor in the country though. All because I told consultant that I had had 2 nightime hypos, where I had been so low I needed dh to open the bottle of lucozade. Yes night-time hypos. Not daytime, not whilst awake, nothing to do with driving. whilst asleep. Now they don't differentiate between night-time and daytime. I too have very good hypo awareness, when awake, and always test before i drive, and always have lucozade in the car.
But that didn't count for anyhting, with the new EC rules, apparently.
Was awful. Atleast I got it back.

paddyclamp · 21/01/2012 18:25

Thank goodness you got it back!!! Did consultant tell them you weren't fit to drive? Or just that you'd had 2 nightime hypos? .... Makes my blood boil!!

accidentprawn · 22/01/2012 07:37

oblomov they took your license after nightime hypos!?!?
thank goodness you got it back! its terrible, DN isn`t driving yet but when she does if this happens bil is a lawyer and will be after the DVLA like a bullet from a gun!

accidentprawn · 23/01/2012 17:24

paddy its good that your pupils can tell when you are low.
at school do you keep your insulin with you?

Niece has been offered the chance to go on an exchange trip to spain. sis and bil don`t want to stop her from this once in a lifetime chance but are worried about her being away for 3 weeks. Any advice? If she can go then we all want her to but if you clever mumsnetters have any advice sis will be grateful.

paddyclamp · 23/01/2012 19:29

yeh i keep it in my handbag or my coat pocket..keep my blood machine in my desk, along with a stash of lucozade and glucogel :)

When you stay an exchange, would she be staying with another family? or would all the kids from her school be staying together?

accidentprawn · 24/01/2012 15:57

she would be in a youth hostel with the other kids. she would go to a spanish school evrey day and at w/kends spend the days with a family doing the touristy things.

paddyclamp · 24/01/2012 16:46

i'd say that so long as she's with people she knows then she should absolutely definitely go for it! ... might have been tricky if she was staying at somebody's house with nobody she knew, although even that is possible if she is totally in control and very hypo aware

i can honestly say hand on heart that diabetes didn't make me miss out on anything...in fact the only time i can remember being refused something on the grounds of diabetes was a waterbirth!!! :)

accidentprawn · 24/01/2012 16:54

super! sis has to send forms in by next friday.

it is in the next school year. she will be yr 9 by then and much more hypo aware (hopefully!) i think it is because of meetings and money deadlines etc.

accidentprawn · 24/01/2012 16:55

that the deadline is this friday!

paddyclamp · 24/01/2012 19:12

She'll be fine by then...i think it's great that your sis is gonna let her go!

I mean one of these days DN is gonna go to uni, live with other people, go out on the lash, have babies..maybe they will find a cure by then but if not she has to find her way..it's really good that your sis isn't wrapping her up in cotton wool :)

accidentprawn · 24/01/2012 19:21

sis has signed the form.

she did say that she will one day go to uni, marry,have kids. sis can not wrap her in cotton wool .

we are all pleased and sis has just realised that she now has to have a spanish kid for 3 weeks! she and bil speak french could be good. the spanish child comes in june i will see if i can go up for a weekend as i speak it well and i fancy seeing how sis copes!

accidentprawn · 25/01/2012 15:40

Dn is having lots of hypos. she has had 2 today alone! she went to 1.3 the lowest she has been.

she is going to the clinic next week. sis will tell them about the multiple hypos but is there anything we can do that could help??

paddyclamp · 25/01/2012 20:40

If she's having more than one in a day it's almost certainly the long acting insulin that needs reducing...she's treating the hypo but the long acting is still in her system and brings it down again...a classic case of being in the honeymoon!

1.3 is very low...just out of interest, does she ever go high?

accidentprawn · 26/01/2012 16:04

she sometimes goes high, not very often though - highest was 6.7.

when she goes to the clinic next week should Sis ask for the insulin to be reduced??

paddyclamp · 26/01/2012 18:04

6.7 is normal, completely normal...when i was diagnosed i went up to about 45!! do you know what she was at diagnosis?

yes i think she def needs the insulin reducing, not cos 6.7 is the highest but to be in the 1's is very low

accidentprawn · 26/01/2012 18:10

was somewhere around 57!

accidentprawn · 27/01/2012 16:36

she has had her clinic slot moved to first thing monday morning.
they are a bit worried about the amount of hypos she is having.

accidentprawn · 28/01/2012 07:05

she takes 4 units. they said over the phone that they will look at possibly getting a pump. DN isnt to keen though, i dont think i would want something like that stuck to me. She is more worried about clothes it could affect!

paddyclamp · 28/01/2012 10:29

i'm with your DN on that one...i def wouldnt want to be hooked up to something all the time, and i def share her worry about clothes!!!! have read a lot about the pump and people do say they're a pain to hide :/

tell her not to be pushed into something she's not comfortable with