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dla part 11

972 replies

megan345 · 26/04/2023 16:30

new thread

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Are your children’s vaccines up to date?
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Nicole12345 · 24/05/2023 13:44

@Kenny312 mines been with a DM since Monday too haven’t called today but yesterday still no decision. Not sure wether to call later to see if there’s a update x

TiredOfCleaning · 24/05/2023 13:52

Kelatay · 24/05/2023 12:30

Hi all, this is for the people awaiting on a renewal.

My renewal date was the 20th May. My scan date for the renewal paperwork was the 22nd February.

I called them today (just under an hour wait) and they said that the decision had been made on the 18th May (so 2 days before the renewal date). They also said that that the renewal had changed and that he was now on higher rate care and lower rate mobility, great for us as he was previously on the middle rate.

They said they put a payment request through to cover the extra bit he has been awarded until the next payment day. This was put though on the 19th May and after checking it hit my bank account yesterday (23rd May). They said that my future payments will just continue to be on a Wednesday every 4 weeks like they have always been and I won't have a gap in payments.

Unfortunately, I forgot to ask how long he has been rewarded for, but I can let you know once I get the letter. Previously it has always been for 2 years.

I never received a text and the letter is on it's way apparently. I think that they are leaving renewals to the last minute at the moment.

After reading the thread I'll try and answer the questions that have come up.

I live in the West Midlands.

My son is 13 years old and had Austim and ADHD. This is my 2nd renewal and on both previous occasions he got 2 years of payments. We also previously had middle rate care and low mobility.

On his first claim he was undiagnosed, but had referral letters to the children's unit and also speech and language.

On the second application he had got his ADHD diagnosis and was on medication for the ADHD.

This last one, he is no longer in the ADHD medication (it didn't really work for him) but he did have his autism diagnosis at that point too.

I have never got anyone else to fill in the support statement part as to be honest I've been to embarrassed to ask. I just write in there 'see attached letters'.

The evidence for this last renewal I sent was his diagnosis letter for the autism and also printed off his school 'passport' (that's what the school call thier senco notes that are on the school system for teachers to read).

Hope this helps others. I'm just trying to show that the diagnosis and gettng the form filled in by a 'professional' is not a deal braker because I've never had the support part filled in by a teacher or other professional. Also, the first DLA claim we were successful at getting without a diagnosis, just the letter to say we'd been refered. With the second DLA renewal, I just included the copies of the teachers reports that were completed for his referral to go through.

Good luck everyone and happy to answer any questions.

Thank you so much for this,. This really helped me. Mine is also 13 and has autism and ADHD. I did not get anyone to fill a supporting letter in as I was embarrassed to ask as well.

I sent off all his various ASD reports at various ages, his ADHD report and a couple of cognitive assessments. Fingers crossed it is all fine.

I also sorted out my issues with having to send my passport etc. Thanks to the wonderful posters on this trhead that talked me down after I hit the roof about that. 😀You got me through that bit for sure. xx

Nicole12345 · 24/05/2023 16:34

@Mumto2sengirlsxx @upthewallmumof3 got through after 1 hour 20 mins and my sons been awarded until January 2025 so pleased it over with. Thanks to everybody who sent messages on here and kept me from worrying to much. Also just to add I did request a txt when a decision was made but never received one xx

Mumto2sengirlsxx · 24/05/2023 16:38

@Nicole12345 great!!!! I knew you would! I actually finally received the text 15 minutes ago haha!! My daughter has been awarded until April 2026 I think she said at least the stress is off us both for a couple of years!! @Kenny312 you next!!! Xx

Kenny312 · 24/05/2023 16:42

@Nicole12345 @Mumto2sengirlsxx Ah I’m so happy for you both
I’m beginning to panic as to whether I’ve sent enough info or whether she will even get awarded
she has a brain tumor and epilepsy which has caused some memory loss , so with the memory and epilepsy she can’t be left , she struggles massively with everyday things
I’ve sent reports from the hospital , her care plan from epilepsy nurse and school idp do you think it’s enough ??? X

Mumto2sengirlsxx · 24/05/2023 16:48

@Kenny312 aww I'm so sorry 😞 honestly I think if they declined you they wouldn't be doing their job correctly I think your going to be absolutely fine, actually part of my daughters claim was for her memory core... she has no memory core so basically she's like dory in nemo, she doesn't remember much after 5 minutes so cant follow instructions etc it was all caused by a severe case of dyslexia which has affected her memory core severly, people think its just reading and writing but its so much more!! Thats why i was convinced she would be declined but she's been approved no questions asked, I sent in her ehcp application (which has finally be finalised today) yay! & all her memory core case reports and they didn't even call with questions I think you'll be absolutely fine! If not you need to kick up a massive stink!! Xx

Kenny312 · 24/05/2023 16:53

@Mumto2sengirlsxx my DD is similar she struggles with her memory massively , just this we we had the results of a WISC test that they did at CHAMS but by the time I send it and they scan it in it will be too late … I have stuff from school , local DR , neuro at alder hey , epilepsy nurse , I’m just not sure if what I wrote is enough … I actually can’t even remember how much I put down as loads has changed over last few weeks
fingers crossed I will find out one way or the other soon
x

Mumto2sengirlsxx · 24/05/2023 16:58

@Kenny312 epilepsy is gruelling on the body alone hun! The extra care that needs providing etc I used to look after my aunty when I was 15 and became her carer because cancer had scarred her brain and she had continous seizures and the care I had to give her was 24/7 I really don't see how they would be able too approve conditions such as ADHD and Autism which is also 24/7 care but say no to someone who now has epilepsy and memory loss due to a brain tumour it just wouldn't make sense... so I'm pretty sure you'll be absolutely fine give them a call tomorrow surely you are due your decision real soon xx

Nicole12345 · 24/05/2023 17:09

@Mumto2sengirlsxx thank you both it’s a relief!
@Kenny312 I genuinely thought the same but my sons been awarded HRC so don’t worry. You are sending off more than I did. I wrote a huge part out about my sons daily life and the teacher done a part and then I sent his letters from consultant about my son that’s it really. No diagnosis as of yet waiting for ASD assessment should be in the next few months.
hope that helps xx

Shan001 · 24/05/2023 17:28

@Hei1234
I'm not sure why I am so happy to know someone else has a similar scan date to me but I am!🤗
@upthewallmumof3 so this is week 14 for your first application? What is the timeline they gave you on your first letter? Hopefully you will hear back with good news within the week.. fingers, toes and eyes crossed😉
@Mummytomy2girls they told you 15weeks? Have they been saying that to you consistently or has that changed? How many weeks has it been for you?
@Peachlollipop 17weeks! Blimey😵‍💫 I think you are right about managing people's expectations and saying longer to stop the calling.
@NDandMe your scan date is a week before mine.. I was also looking at the end of June to manage my own expectations, but as my letter said 12weeks and I've seen a few mummas have a decision at 13, I am hoping!
@Mumto2sengirlsxx Great news!! What a relief that the wait is over and you've had a positive result😜 How many weeks has it been for you and where are you based?
@Nicole12345 & @Kenny312 DM has had your claim since Monday, must be a little lower in the pile as another mumma said, so hopefully shouldn't be much longer😉 How many weeks has it been for you and where are you based?
@Kelatay Thank you so much for sharing, that is amazing and so are you!
@Nicole
Ahh fantabulous news!! Glad your wait is over and it's a positive outcome😜 How many weeks has it been for you and where are you based?

Reading this thread is so uplifting.. Thank you to all you wonderful mummas 💛

Mumto2sengirlsxx · 24/05/2023 17:31

@Shan001 hiya hun would of been 14 weeks tomorrow, I was told 2 days ago not to expect anything until 1st week in June but after seeing people with my scan date go to a dm thus week I decided to call this morning and lucky for me she was the first in the pile so the decision had already been made! I'm in West midlands area so presuming my claim went to Wolverhampton base but not to sure... whats your scan date? Xx

Shan001 · 24/05/2023 17:41

@Mumto2sengirlsxx Seems a bit cheeky to me to tell you 1st week of June, very glad for you it wasn't that long a wait.. I would be quite surprised had it been that long! My scan date is 16 March so I have a few weeks yet.. I'll be hounding them come the 13th week😅, especially as my letter said 12weeks (I'm based in North London) xXx

Mumto2sengirlsxx · 24/05/2023 18:34

@Shan001 I was fuming when they said it. I know they are over piled with claims but it's hard enough as parents having to make the claim and sit through the form and then the wait is mentally draining... not much they can do though I suppose... I'm glad it's all over now... ah so your looking toward the end of June for a decision? Everyone I see on forums get their decisions normally between 13 and 14.5 weeks, all depends on if they request extra info, I've spoken to someone on a forum who is 17 weeks waiting I think I can't remember 100% because they requested more info off a gp and the GPS is holding up their claim... hopefully yours is a quick turn around xx

Nicole12345 · 24/05/2023 21:18

@Shan001 so glad it’s over with, the wait has been so stressful. I’m in Shropshire and it took 13 weeks and 6 days. Scan date 16.02. Went to a DM Monday and awarded today xx

Mummytomy2girls · 25/05/2023 08:41

Ahh I just want a decision now! I’m 13weeks 1 day. Scan date 22/02. I’m Leicestershire. Thinking she won’t be awarded now the longer it goes on lol x

Orangemop · 25/05/2023 10:10

@Mummytomy2girls I think everyone gets to feeling like that as we feel it’s so close but yet so far. Fingers crossed for you you hear something soon. Please don’t worry as there has been others that have felt the same as you and they have been awarded. Good luck

Kenny312 · 25/05/2023 10:41

I know the feeling I’m the 17/2 and panicking a little now , hopefully we get some news soon x

Unknown123qw · 25/05/2023 11:33

Kenny AV u not rang today they should of delt with the 17th by now

upthewallmumof3 · 25/05/2023 11:37

Mumto2sengirlsxx · 24/05/2023 10:54

@Nicole12345 @upthewallmumof3 Well just got through to dla didn't receive a text so my heart sank when they said a decision has been made but turns out my daughters been awarded!!!! I'm absolutely over the moon

Oh wow amazing!!!!!! So happy for you, I'm just catching up as I was working yesterday, I got thru and mine is with a decision maker 🙈 my nerves are gone not going to lie xxxx

Kenny312 · 25/05/2023 13:16

Was given to a DM Monday
I rang yesterday afternoon and no decision wasn’t sure whether to ring again today?

Kenny312 · 25/05/2023 13:17

What date are you @upthewallmumof3

upthewallmumof3 · 25/05/2023 14:11

@Kenny312 16.02 xxxx

Kenny312 · 25/05/2023 14:18

Hopefully not too much longer then 😊

upthewallmumof3 · 25/05/2023 14:28

@Kenny312 I spoke to them yesterday and they said it was with a dm, so could take about another week, I suppose it depends on how many is in the pile 🤷🏻‍♀️ I am tempted to call tho xxxx

Mumto2sengirlsxx · 25/05/2023 14:33

@upthewallmumof3 @Kenny312 give them a call I'm excited for you both so close to getting your answers 🥳🥳🥰