DLA waiting times part 7

[mammaov3]

Hi everyone i started new thread as the other one was getting full my scan date is 23rd September still waiting for decision.

@ASDmummy2019 It’s crazy how long it takes isn’t it I’m on week 17, I don’t ring up I only rang up at start to make sure they got my claim and rang about blue badge I won’t ring up again now x

@Cody3 Hi my son was awarded a blue badge but only has high rate care no mobility on dla. But I think that's because of his age on that. Took around 16 weeks to be processed but depends which area you live in.

@Melissajade123 Hi i would definitely do a MR as my son has savere asthma and mild deafness and speach and language problems due to his hearing, he's on blue and brown inhalers and on powders like your son and he has been awarded MRC no mobility he's 4 in 1 week , untill 2024 and when i renew it i will be putting in for mobility as he can't walk far without asthma attacks and end in hospital, i only sent in a medical report from asthma consultant and prescription of meds and nursery and family worker report in deffo try again good luck 👍

@mammaov3 Thankyou for your advice, he’s not under the hospital construltant any more, he has yearly reviews with the ashma nurse at the doctors. but iv had to take him to the docs a fair few times for steroids because his chest gets really bad still especially on a night, DLA read the reasons on the phone and most of them was lack of evidence, I now have more recent evidence because he had his appointment from urology and orthotics in October ( this was after I sent the DLA forms in.) It’s so frustrating because I didn’t even want to apply but my sons school said he will be entitled to it with all his extra needs. I hope your son is okay, I know it’s very scary when they have server attack, my son had them a lot when he was 2 and 3 always ended up in hospital. I will do a MR, I told dla what meds he was on but didn’t think to send proof of it. Thanks again for the advice ☺️X

It’s a horrible illness to have, I have severe asthma and I’m on different meds for it, it’s scary for me when I can’t breathe nevermind babies it’s awful for them! Had covid twice aswell so that didn’t help my lungs at all

Our scan date was 14/11 so almost 9 weeks, I think we have a while to wait yet. It’s not an easy process is it. We don’t have a diagnosis yet but awaiting assessment, nursery aren’t at all supportive one minute they say he needs a support plan and EHCP then they say he’s just struggling to settle in. HV is very good and has written a letter plus I’ve sent her assessments off but that’s all.

@Chaz5rascals it is so long and hard to get people on board. i’ve had trouble getting support and acknowledgment for years my daughter is 10 next week and we only got her diagnosis last april. i wasn’t going to claim to begin with because we got rejected in the november 2021 but it’s money she’s missing out on to do things like swimming, days out and piano lessons she keeps asking for which help her concentrate and give her a break from the constant tics, i wish i could afford it and didn’t have to claim but i’ll do anything to make her feel better about herself as she has zero self esteem 😞 i really hope your son gets all the help he deserves! just keep persisting you know your child best x

@tourettesadhdmum yes it is and that’s infuriating because it’s so common for children to be different in front of other people and although we’re at the start of our journey I’ve already come across two separate situations where it appears to matter more what nursery see as opposed to what I say! Do you mind me asking what she has a diagnosis of? Please don’t answer if I’m being rude. I totally understand where you are coming from our children need extras and it can be so expensive, all the sensory bits, keeping them busy, replacing stuff and we have a colour obsession here so everything has to be a particular colour. Thank you!

Hello, how far back did they backdate from? The delays in getting the dla means that from scan date to getting awarded it could be 14 weeks. Are they backdating from the claim date, so 14 weeks? Thanks

This is regarding tax credits once awarded dla

@Chaz5rascals i don’t mind, she has been diagnosed with tourettes so as you can imagine she disrupts classes etc but she gets so embarrassed aswell because everyone stares at her or makes comments like be quiet, so she tries to hold them in and then she’s a very noisy, bouncy explosion at home bless her, she’s being assessed for adhd and autism too as the psychiatrist said they usually go hand in hand. aww it’s so hard for their little bodies and brains to have to cope with it all and for us parents when we can’t do anything to take it away for them. and yes it is expensive 🙈 my daughter likes to chew things so i’m forever having to replace things that have teeth marks in

Hi i recently got awarded (last week) phone tax credits to let them know and they do backdate to your scan date also ☺️

Your daughter sound just like my son, he’s diagnosed adhd and tics they are bad at times but he doesn’t even realise he’s going them so we don’t acknowledge them when he’s bad, he’s constantly got something in his mouth and has major sensory issues regarding his mouth, i buy him fidgets and really hard rubber chew bricks for him to chew down on and they seem to help him stop putting inappropriate things in his mouth plus stops him sucking him thumb which is ruining his teeth! He’s also 10 years old

@Losttheplot1 thankyou I’ve been accepted for one I was just wondering what rate mobility people got as I’m still waiting claims taking total of 21 weeks

Anyone heard anything this weekend? Just wondering what date they are up 2 latest I heard is 10th october 😀

Thank you 😊 at least it’s back dated, this is such a long wait for a decision, 8 weeks is what they state, and 14 weeks later, still not with a DM!

Hello, just sent off my renewal in the week (well, my child's). Her claim runs out mid-March. What are the chances of us getting sorted before then? I would've sent it sooner but I had a delay in some of the paperwork I needed to send with it (thanks local authority!). Sent it special delivery and it was received Wednesday.

@Squishy1911 my daughter has them hard chew bricks too but they don’t last her long lol she used to chew through dummies as a baby and i really struggled to get them off her but now we have this diagnosis it all seems to make sense. she doesn’t realise she’s doing it most of the time either and when she does she can’t stop them so they get worse i ignore them too and so do friends and family, but when people who don’t know her hear or see them (as she has both motor and vocal tics), they can be so rude which then knocks her self esteem even more. i’m just thankful we have a lovely consultant and psychiatrist who are slowly helping build her confidence. she sees the school counsellor weekly too. have you been awarded DLA yet? sorry i can’t remember if you’ve said you have or not 🙈

Yeah it’s hard going especially when people don’t know your child, I know the amount of chews we have been through lol but they do help him, it’s that or he’s constantly putting dangerous things in his mouth, yeah his or vocal and facial mainly. I’m currently waiting on renewal for him.

Hey, I have been watching this thread since I applied. My second son who’s 7 was I an extremely severe car accident in 2021. He was in the car behind the rest of us (5). He wanted to go in my friends car with her son, we were going on holiday. My son suffers with extreme ptsd and is under CAMHS with a diagnosis and therapy plan. Due to start EMDR. His gp has prescribed sleeping tablets and after a week they weren’t working the Dr said that he thinks his body is fighting too hard to stay awake and they cannot give a higher dose.

I have done an application for dla due to the hours at night I spend comforting him, settling him and changing the bedding due to accidents. When we are out and about he’s in flight or fight mode as he no longer sees the world as a safe place. Something as simple as seeing an ambulance triggers his reaction and he bolts, he doesn’t take notice of his surrounding ie, roads etc. He is also under a paediatrician for his weight (he’s always been a big boy) but they have now done genetic testing. Due to find out if they have come back clear or not on 7th Feb. I have to constantly watch that he isn’t sneaking food.
When I take all 4 kids out I always need another adult with me because he’s so unpredictable. My dh works away from home and whenever he is away my son won’t sleep, if he does it’s fully clothed on the floor so in his words ‘I’m ready if anything bad happens’ it absolutely breaks my heart and I feel so guilty that im finding it so hard.

The school are somewhat helpful, they recognise he has severe anxiety and have also done a letter from SENCO saying that he is currently performing at a low level year 1 (he’s year 3) and that they believe the trauma of the car accident has ultimately meant he cannot concentrate and retain the information.

Has anyone else on here claimed for something similar?

sorry for long post xx

You may be waiting a while, they advise 12 weeks and over even for renewals now as it’s still classed as a new claim even though it’s a renewal but they will see you current claim end date and probably push it through. I’m currently on 14 weeks next Tuesday on my renewal

Aww bless him that’s absolutely awful for him, regarding the sleeping meds they need time to work into his system, how long before bed do you give them to him? I don’t know if it would help but my sons have soothing songs on at nighttime with nightlights as they won’t sleep in the dark, my son has sleeping meds as he doesn’t sleep and his consultant said the same that his body will be fighting the effects plus his other meds are stoping him from sleeping

I gave them to him an hour before bedtime. Then he had a nice chilled bath pjs etc. He will not sleep at all until me and husband are in bed hence the reason why he struggles more when dh away from home 🥹.
He used to have his own room but he was petrified after the accident so we knocked the all through and made a bigger room so he could sleep with his older brother, thinking this would work but if anything it’s made it harder on my older son (he’s been very supportive and is only 9 himself) we’ve done the weighted blankets and he says he feels crushed! It’s so hard isn’t it because I often wonder if he had better sleep then he would possibly be able to rationalise things better. Xx

Yeah he would definitely beable to think clearer if he had more sleep bless him, keep going with the sleeping meds and all I can say is to try different things to try and get him to go to bed by himself but make him aware that you literally a shout away, is he having therapy to help him get through it all?

He had his first meeting at CAMHS this October it was so difficult to get them to accept but the gp and the school both did a referral and it got accepted. From the meeting they have decided that the need ‘EMDR’ therapy. This is a trauma related therapy. Trouble is he can’t talk about the crash so I know they are going to have their work cut out. My heart literally breaks for him. He was the only one ‘awake’ in the car once it stopped. I know how scared we were as adults (not in the car) yet him in his own 🥹😭 xxx