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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

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Original poster

Likely ovarian. Terrified. Anyone available for a hand hold?

983 replies

Ohjoyohbliss · 29/07/2025 19:15

Blood test yesterday: Serum CA 125 level over 35 indicates possible cancer. Mine is 213. Shit.

DH knows and one friend but I don't want to worry anyone else until I know how bad it is; hence I've name changed for this post. I'd love to know how anyone else has coped / is coping.

CT scan Saturday and USS on Monday. GP has made 2ww gynae referral today.

OP posts:
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Original poster
Ohjoyohbliss · 12/09/2025 16:23

@Weepixie
Don't stay away so long next time.

Sorry if I had anyone worried, but for the first few days I was barely conscious, then reading made me nauseous, then use of my good hand was restricted by a cannula right in my elbow meaning I could only do things at arm's length, which isn't conducive to typing.

You're lucky DH agreed to update, as he normally rolls his eyes at any mention of MN.

OP posts:
BeaLola · 12/09/2025 16:38

So glad to hear from you OP but sorry that it's been so awful for you. Crossing everything and positive vibes that you are released soon & that round 2 isn't as awful.

Mr Joy honorary MN in meantime CakeFlowersCake

jeanne16 · 12/09/2025 16:45

When I had chemo, I was given a number of anti nausea drugs which I took religiously at different times of the day. I never experienced any nausea. Have you been given any?

dancingwhilstfacingthemusic · 12/09/2025 17:11

Good to hear from you. One down!

When I had chemo I made sure my team knew about sickness and other issues in between (In sure your team are updated). This meant that they adapted the chemo dose and gave me various layers of anti sickness meds. I set alarms to take the meds - waiting until I felt sick was too late. They said to me that the aim was to get the chemo in, not to kill me!

Keep on going. I hope future rounds are not so grim for you.

WooleyMunky · 12/09/2025 17:40

Ohjoyohbliss · 12/09/2025 16:14

Dietician has prescribed Fresubin Protein Energy drinks but they are so thick and claggy (is that a Yorkshire word?) that I struggle to down them. Also Cal-shake, which is far more palatable but only if the milk is really cold. Got served one at room temperature and it was horrid.

Show quote history

Good to hear from you.
Claggy is a Yorkshire word, not really heard it anywhere else.
It describes picking up a glass of milk and drinking it to discover it is a glass of cottage cheese.
Not entirely unpleasant, more unexpected.
Unless cottage cheese is your mortal enemy...

Original poster
Ohjoyohbliss · 12/09/2025 17:55

jeanne16 · 12/09/2025 16:45

When I had chemo, I was given a number of anti nausea drugs which I took religiously at different times of the day. I never experienced any nausea. Have you been given any?

Cyclizine, metoclopramide, ondansetron and levomepromazine.

I should perhaps clarify that nausea and vomiting were some of my initial cancer symptoms, so the chemo made it worse but the nausea is always underlying.

OP posts:
Enigma54 · 12/09/2025 18:01

Ohjoyohbliss · 12/09/2025 17:55

Cyclizine, metoclopramide, ondansetron and levomepromazine.

I should perhaps clarify that nausea and vomiting were some of my initial cancer symptoms, so the chemo made it worse but the nausea is always underlying.

Edited
Show quote history

Ondansetron is a good heavy duty anti sickness. Watch for constipation though. Metoclopramide is also good, I take that one too.

Horses7 · 12/09/2025 18:01

Thanks for update Joy - onwards and upwards, got everything crossed for you!
So impressed with how you’re dealing with all this - what a woman!
ps claggy is a fine Yorkshire word and sounds a good description of your drink.

whyayepetal · 12/09/2025 18:06

Hi Joy - so pleased you’re feeling up to MN again! Also great to hear “claggy” too!! Quite common in the North East - usually referring to something sticky/gloopy. However, when applied to something you are about to eat or drink, it’s not really the descriptor you wish for!

ERthree · 12/09/2025 18:15

Joy, i have just come across your thread. I am rooting for you x

Weepixie · 12/09/2025 18:40

Ohjoyohbliss · 12/09/2025 16:23

@Weepixie
Don't stay away so long next time.

Sorry if I had anyone worried, but for the first few days I was barely conscious, then reading made me nauseous, then use of my good hand was restricted by a cannula right in my elbow meaning I could only do things at arm's length, which isn't conducive to typing.

You're lucky DH agreed to update, as he normally rolls his eyes at any mention of MN.

Ach, I was just being nice 🤣

Gonners · 12/09/2025 19:42

@Ohjoyohbliss Great to see you back! I think I picked up "claggy" during four teenage years in North Yorkshire, but just asked DP if he knows what it means and he said "Sort of thick and glutinous, like the kind of canned soup that you have to dilute". He is originally from Brooklyn! He blames the fact that he knows this word on far too many years with me. 😁

TheLivelyViper · 12/09/2025 20:39

Glad to hear the worse of the infection and sickness is over Joy, hopefully having a good strong regime of the antiemetics will stabilise it and now you can continue recovering. Hopefully the next round doesn't destabilise anything too much, wishing you well.

Original poster
Ohjoyohbliss · 12/09/2025 21:09

and... I just sicked up my tea (dinner to any southerners reading.) Back to square one after about 40 blissfully vomit-free hours.

OP posts:
TheLivelyViper · 12/09/2025 21:12

Ohjoyohbliss · 12/09/2025 21:09

and... I just sicked up my tea (dinner to any southerners reading.) Back to square one after about 40 blissfully vomit-free hours.

Oh I'm so sorry, it was going so well for the last few days, try and eat smaller meals that sometimes helps me. It can be hard to have an appetite with so much nauesa and vomiting, hoping it improves. Sometimes taking some antiemetics 30-40 minutes before you eat as well can help.

Enigma54 · 12/09/2025 21:12

Ohjoyohbliss · 12/09/2025 21:09

and... I just sicked up my tea (dinner to any southerners reading.) Back to square one after about 40 blissfully vomit-free hours.

Oh no.
Sickness is grim. Really hope some heavy duty medication, will blast it into space!

Mischance · 12/09/2025 21:21

I'm really sorry to hear the nausea is still so troublesome... its so horrid. Good luck.

BoilingHotand50something · 12/09/2025 21:45

Oh Joy! So lovely to hear from you but so rotten to hear you are still 🤮 . Hope you get some respite soon.

NotPerfectlyAdverage · 12/09/2025 23:06

Oh Joy so glad you are OK but my God your going through the mill right now. Is there any kind of bad milkshakes you could handle? Mccay D's? Any thing full of yummy crap? Then maybe put a scoop of the good stuff in ( is it a powder?) When you get home and have a nutri bullet you could do ice cream, milk and and a scoop of the good stuff. Or try the dreaded spinach and berry smoothy. It's surprising what tastes good in that ( ask my kids 😅)

I have no idea really. I'd be sucking on milk buttons. But when your feeling sick nothing is tolerable. Trick your body somehow. Like sipping on a oxo. Then if that's tolerable add in something to it. Not eating and feeling sick in turn makes you feel sick.

Good God to the canula in your elbow. I will be outraged on your behalf so that's one job I can take off your plate. I can also take on the frustration of needing calories but being sick if you like? I can offer up hourly "really? Are you kidding me? Seriously?" If it helps?

I do like a eyeroll at the sky and a "are you joking?"

SleepLuxury · 13/09/2025 05:49

Good to hear from you OP.

So sorry about the nausea. Feeling sick is the worst. I would take any symptom over that.

When my daughter was unwell she could not tolerate any of those build-up drinks. She stuck to chocolate when she could, instead…

I hope you can get some weight and strength back before the next chemo. Hopefully it won’t be quite as hideous. Thinking of you xx

KimTheresPeopleThatAreDying · 13/09/2025 06:23

You seem a modest and sensible woman but I am in awe of your humour and grace in what must be truly frightening circumstances.

annonymousse · 13/09/2025 06:49

You poor thing! I had brain surgery a few years ago. It caused uncontrollable vomiting. Every time I moved I was sick. It was a horrible time. I had all the other antiemetics you listed but they couldn't control the vomiting. Eventually they gave me anti sickness patches applied behind my ear. I think they were called hyocine patches? Not sure of the spelling. As I said this was a few years ago but if they still exist they might help? I'm no expert and they might not be at all appropriate. Wishing you all the best and hope you start the feel better very soon.

butterfly0404 · 13/09/2025 09:43

Oh sweetheart, this sounds utterly horrific. If you can, peppermint tea in small sips ? Sending you love and hope xx

Words · 13/09/2025 13:28

Thinking of you Joy. It seems that initial double dose of treatment was not such a great plan after all. I do hope they can get your nausea and vomiting under control, and the next round of treatment does not affect you so badly. Flowers

Enigma54 · 13/09/2025 22:54

Hope the sickness is calming down a bit @Ohjoyohbliss ?