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Anyone up? Dad not expected to last the night.

253 replies

MyGuideJools · 05/09/2017 00:35

Me and mum been in hospital since 10am. Dad has pneumonia and lung cancer and isn't expected to last the nightSad
I've been expecting this but now I'm so scared. I know I shouldn't be on MN but I'm sat holding his hand. His breathing is so laboured now. All monitoring and obs stopped, just meds to calm him
He is still in a ward with 3 other men who are all sleeping. There are no side rooms apparently Confused
He's been in pain for so long, he's not been my strong old dad for weeks. This is killing me.....

OP posts:
littlecabbage · 18/09/2017 21:54

Hi Jools,

I am so, so sorry for your loss. I lost my dear Dad on 18th Dec 2016, after a sudden but highly aggressive cancer. He went from fit and well to no longer with us in 7 weeks.

I was dreading the funeral too. Organising something so important is so hard when you're in the most intense stage of grief. I have two siblings and we divided up the tasks between us. Just remember, emotions can run high at such a stressful time so if you feel like you want to snap at a family member, hold back and say you need time out.

The funeral was very hard but I feel proud that I think we did Dad justice. My siblings and I wrote and read the eulogy and I think he would have been proud of us. It was so hard walking away from his coffin when the service at the crematorium had finished. The wake was much easier and nice to catch up with family we don't see often.

Visiting Dad at the funeral home helped me. I was scared that he would look white but he actually looked quite like himself and very peaceful, and much better than straigh after death (his mouth was open then). It was nice to see him in his own clothes again instead of a hospital gown.

This is such a tough time for you but I promise that things get easier. Reading your posts has brought in all back, and I'm typing this in tears, but generally I'm doing okay.

If I can help at all with any funeral or other questions, please let me know. I am thinking of you xxxx

MyGuideJools · 18/09/2017 22:48

Aah cabbage thanks so much for your post. I'm so sorry for your loss too, it's not easy that's for sure.⚘
You were brave to read the eulogy. I just know I couldn't stand there and do it! Dad belonged to a church so the vicar knows him and we've had all the input to what he will say. Another family member is going to speak too. I feel bad that I'm not speaking but I just can't. Dad had already chosen his hyms so I hope he'd approve of the rest of our organisation!
I decided not to see dad at the funeral home. I was by his side when he died and said my goodbyes then. DH viewed his dad when he died and he regretted it unfortunately.
I'm guessing after the funeral is hard as it feels so final, but I know we have to cope and I'm sure eventually we will.
It's just all so raw at the moment. xx

OP posts:
LondonNicki · 19/09/2017 08:01

I'm so sorry. I still remember so vividly when I lost my Dad in similar circumstances.
Be good to yourself xx

MyGuideJools · 19/09/2017 08:17

Thanks Nicki FlowersI know 1000''s of people lose a parent every day but he was my dad! I visited him every day and there's now a whopping great holeSad

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ThaliaLuxurySpa · 20/09/2017 18:39

Hello OP,

(Obviously don't feel obliged to update, as I'm sure today was utterly draining).
Hope your Dad's funeral went as well as is ever possible with such an emotional event.

Hope, too, aside from the sadness and poignancy, you all gained comfort from the others there, and were able to celebrate his life too. (Perhaps sharing the special anecdotes which made him him and an important individual).

Be gentle and kind to yourself tonight. Flowers

KimchiLaLa · 20/09/2017 18:41

I'm so sorry. This happened to my FIL around this time last year exactly. I'm not going to say I know exactly what you're going through as he wasn't my dad but I we were very close and I loved him like he was.

Message me if you want to chat/rant/scream at the world.

Notreallyarsed · 20/09/2017 19:35

MyGuideJools your post reminded me of something DP said after my mum died. He lost his mum very young, and his dad in his late teens so I was trying not to talk about it because it felt like I was rubbing it in his face (he didn't make me feel that way). He said "but love, loads of people lose their parents every day, but nobody ever lost YOUR mum before." It really struck a chord with me, he's right. I hope you're getting some RL support too, and that today wasn't too hard for you xxx

BonApp · 20/09/2017 19:35

Hope today went as well as poss jools Flowers

littlecabbage · 20/09/2017 21:30

Hi Jools,

I have been thinking of you today. I hope everything went smoothly for you all, and that you found some comfort from friends and family. How is your Mum doing?

I don't expect you feel ready to talk just yet, but just wanted to send a message of support.

I wrote you a lomg message yesterday and then realised later that it didn't send. Just saying that I understand both your decisions re eulogy and funeral home. My Dad had not known the vicar, as his funeral was in a CofE church. Dad was CofE but didn't go to church often, and when he did, it was to Mum's catholic church. So it didn't feel appropriate for the vicar to read the eulogy.

Also, it sounds as though your last moments with your Dad were very peaceful, whereas my Dad deteriorated quite suddenly and didn't look as peaceful as I would have liked, so seeing him more peaceful later on was nice.

I know it is so horribly raw now and you must wonder how you will ever start to feel better. I remember feeling weirdly envious of a friend who was a year further on in grieving for her Dad. But now I feel better myself, and that is a relief. I still feel just as sad not to have Dad here, but it doesn't dominate my thoughts any more and I feel happiness at other things. I hope that helps a bit. Take care of yourself and take each day at a time - a cliche, but it does help xxxx

MyGuideJools · 20/09/2017 21:33

Thanks everyone ⚘
Dad's funeral was very emotional but also really lovely. 2 people spoke at the church service about dad which was really touching, and so many people had lovely things to say about dad. He would have loved it and I felt proud to be his daughter.
DS struggled a bit at the crem as he's never been to a funeral before bless him.
We had cakes and sandwiches after the service and mum, me, my brother and all the grandchildren went for a meal tonight to toast dad.
All in all a 'lovely' day which I think dad would have approved of.
Now the hard bit.....life goes on.......

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MyGuideJools · 21/09/2017 17:19

Why do I feel worse today than I did before the funeral?! I cannot stop crying today, I've got some beautiful flowers from the church with a photo of dad and I can't stop crying over them.
I was doing OK but it's hit me againSad
Sorry for ramblings, feels better if I 'write' things down.

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Notreallyarsed · 21/09/2017 17:26

Oh Jools Flowers

I didn’t crash for weeks after Mum died, then I had a day when I just couldn’t stop crying. It comes in waves, sometimes they’re little and sometimes they’re enormous and knock us off our feet. I’m so sorry today is particularly hard for you Flowers

Breezy1985 · 21/09/2017 17:33

Thinking of you Flowers

tiredteddy · 21/09/2017 17:45

I'm just post funeral after my lovely mum died. I coped in the day, it's was lovely too like you said about your dads. But then this weekend I was more tearful and emotional than I've been so far. I wonder if it's more of an end. No more calls to make, organising. A flat feeling. And as you say life goes on now, without them. And that just hurts right now. Not helpful or wise maybe but I understand how you feel. Hugs x

MyGuideJools · 21/09/2017 17:48

Thank you teddy & everyone. I think you are right, it's the finality of it all. I keep reliving his last few days. I am meant to be going back to work on Monday but I just can't face it, although I know I need to get back to a 'normality '

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Notreallyarsed · 21/09/2017 17:55

I’m 3 months in Jools and only just beginning to navigate a “new normal”. We’re off on holiday tomorrow, and I’ve not even started getting organised because I’m just floored today.

MyGuideJools · 21/09/2017 18:00

Flowers to everyone suffering too.
We are due on holiday next month and I'm not at all interested in going. I will go because it's paid for and DH needs a holiday and my dad would have gone mad if I missed a holiday because of him!
It just doesn't feel right, plus it will mean I won't see my mum for a week either.

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Notreallyarsed · 21/09/2017 18:04

I hope you manage to enjoy the holiday Jools. I feel exactly the same but the kids are bouncing with excitement so I’ll get off my arse and get organised let DP pack.
If you’re not ready for work on Monday, can you get signed off for a week or so?

ShowMePotatoSalad · 21/09/2017 18:07

I'm so sorry OP. Flowers

The "dad shaped hole" you're talking about really struck with me - I remember when my grandad died, we all stood in the living room before the funeral and no one would sit in his chair. We just left it free as he should have been sat there.

You're doing really well. I am surely he is immensely proud of you.

littlecabbage · 21/09/2017 18:16

I really find grief comes in "waves" too - v frequent and longlasting at first, but the gaps between the waves gradually get bigger, and the waves get shorter and less intense.

I think you are perfectly entitled to be signed off work for longer. I had a couple of weeks after the funeral - just couldn't face it before that.

MyGuideJools · 21/09/2017 18:25

You're all so kind. I'm blubbing again. I've had 2 weeks off work already as dad was ill and I was caring for him. I'm actually really glad I had that time with him now.
Work have been good but I just feel guilty.
It doesn't help that I work in the hospital where dad died.
I may try and see my GP tomorrow.

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Notreallyarsed · 21/09/2017 18:42

It’s a really hard thing to go through Jools, if you need more time, then that’s fine. I can imagine going back to where your dad died would be very traumatic, I still struggle to go to my parents house because Mum died there.

alphajuliet123 · 21/09/2017 21:37

Someone sent me this when my dad died and it struck a chord (originally longer, I have snipped it a bit). Hope it helps x

*As for grief, you'll find it comes in waves. When the ship is first wrecked, you're drowning, with wreckage all around you. Everything floating around you reminds you of the beauty and the magnificence of the ship that was, and is no more. And all you can do is float. You find some piece of the wreckage and you hang on for a while. Maybe it's some physical thing. Maybe it's a happy memory or a photograph. Maybe it's a person who is also floating. For a while, all you can do is float. Stay alive.

In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don't even give you time to catch your breath. All you can do is hang on and float. After a while, maybe weeks, maybe months, you'll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what's going to trigger the grief. It might be a song, a picture, a street intersection, the smell of a cup of coffee. It can be just about anything...and the wave comes crashing. But in between waves, there is life.

Somewhere down the line, and it's different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or landing at O'Hare. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you'll come out.

Take it from an old guy. The waves never stop coming, and somehow you don't really want them to. But you learn that you'll survive them. And other waves will come. And you'll survive them too*

MyGuideJools · 21/09/2017 21:50

alpha that's lovely and so true. Thank you Flowers

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alphajuliet123 · 21/09/2017 22:29

My friend didn't write it by the way, I googled it and it's been all over the 'net.

My waves are just ripples now, haven't been "hit" too hard for a while. I'd advise you stay clear of Facebook on Father's Day though, gotta be the toughest day in the social media calendar. Google the seven stages of grief, too. Shows what you are going through (and are yet to go through) is normal. Stay strong x