Hello everyone.
I've done quite a few niggly jobs today and then went to physio. They can't see me on a long term basis as the NHS no longer pay for more than 6/10 max physio sessions and long term Hydrotherapy sessions so I'm going to have to go back to my GP and ask his advice;do we go private or do we stay with the every 6/10 weeks, a new referral goes in?
My physio is very 'it's up to you to make yourself better' 'Mind over matter, pain is in the mind' and I've tried acupuncture, which helped for a while but then when that stopped, I went right back to where I was.
When you're in constant pain, with a disabled toddler to lift, and care for, and whose needs change daily, if not more, then there's no way of knowing what your day is going to bring. I'm up in the night with him, in his bed which hurts so much, I often get stuck on one side too.....
Thank you all for your kind words and for understanding. Of course you do. 
When does it become 'real'? It doesn't feel real because we don't live near to where mum and dad do, did. It's still as if we've just not called for a while and I'm waiting for a text or call from her any day. Grief is so cruel.
Reading all of your posts really do help though, knowing that I'm not alone is helping. I wish I could put how I feel into better words, articulate my feelings more but I just feel so many mixed emotions, regrets, 'ifs' 'buts' etc....
Last night, I slept in with Nemo as he was really unsettled. I lay next to him just holding him as close to me as I could. He kept turning to face me to say 'I love you mummy'
Silent tears came from my eyes as I held his little body. He's so small for his age (5 in may, in 2/3 yr clothes) so cuddles are always so lovely because he wriggles into my stomach and we 'fit' just right. :)
I'm so glad I found this thread, but sorry there is a need for one and for all of the pain you are all going through. xxx