Thank you for all your posts. I've just got back from work so I'm reading them all now.
To answer a few points, medically we've done everything we can so far and are waiting for the next appointment. In terms of her day to day care, we are very much on it. We see her every week, DH phones every day, we've bought cameras and we're looking into carers. The latter two are difficult because MIL doesn't believe there is anything wrong with her or that she needs help, but we know longer-term support needs to be put in place.
I think what I'm struggling to explain is the emotional conflict. If this were the first Christmas MIL had needed us because she'd suddenly become unwell, there wouldn't even be a question. We'd just do whatever was needed.
But it isn't. For years Christmas has revolved around what MIL can cope with, with either DH or all three of us spending hours driving backwards and forwards.
When we've gone to her for Christmas in the past, it's actually been quite sad. There are no decorations, no Christmas food or anything really happening. We drive two hours to get there, take her out for a meal so we can have some sort of Christmas together, then drive two hours home again. We've always done it because we don't want her to be alone, but it means a huge chunk of our Christmas is spent in the car.
After last Christmas DH and I finally agreed this wasn't fair on our son. He's 11 and there are only so many magical childhood Christmases left. We agreed MIL would of course always be invited and made very welcome, but we weren't going to spend Christmas Eve and Boxing Day driving backwards and forwards again because she only wanted to stay for a few hours. So just as we'd finally decided to put a boundary around Christmas, everything changed.
If she were well, I'm almost certain she wouldn't come this year anyway because my parents are here. We'd probably have Christmas with her the week before, invite her to ours, and if she chose not to come we'd have to accept that — although I know DH would still worry and we'd feel guilty about her being alone.
But now that worry and guilt are magnified massively. There's the horrible thought that this could be her last Christmas, or that by next Christmas she may not know who we are at all.
If DH goes, I'll feel sad and resentful that we've lost another family Christmas. If he doesn't go, I know we'll both spend the day worrying about her and feeling terrible that she's alone.
That's the dilemma. If this were a one-off, there would be no question. But after nearly 20 years of Christmas being affected in one way or another, just as we'd finally decided things needed to change, circumstances have changed in a way that makes holding that boundary feel almost impossible.