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To think there is a definite surge in annoyance towards the disabled?

1000 replies

WarySwan · 03/12/2025 06:32

I have seen it in real life. Not just social media forums and news outlets where every other post seems to be about 'free money this for disabled' and 'free cars'.

My 2 children have autism. They get highest rate DLA. About £800 a month. We get respite care funded that costs the tax payer about £700 a month.

Just had an extension on our new build house, housing association, brand new bedroom and ensuite installed. Free of charge through the council.

Motability 7 seater car. 25 plate.

People seem to just see this and see the money. They do not see the costs that are present because of disability. The amount of time and resources it takes to keep 2 profoundly children at home.

They do not see that my children will need 24/7 care for life. 2-1 support in public. The constant cleaning and caring. Waking up at the crack of dawn, years on end. Cleaning smearing and endless washing. Endless marks on your body from a child who doesn't get that taking a chunk out of you will hurt that much and scar

Watching your eldest almost die as he can't speak a word or use a communication device. Meaning appendicitis went undetected until he was almost dying. The constant battle of keeping a cannula in his arm with hospital staff just not getting why a play therapist does not bloody cut it and he needs constant supervision that I cannot possibly do 24/7 without moving from the bedside. The weeks spend in recovery because of this.

If we do not or cannot provide this care, residential placements are about £40,000+ per month. Yes. Per month. It is eye watering in cost. That won't change anytime soon because social care is beyond shot to bits.

My children deserve the best life possible. And a dignified society should surely want to ensure this happens? Children who are not disabled and their parents have options. They have chances and doorways. Mine will never work. Never have a marriage or children, they won't even be able to cook a basic meal.

There is no overtime or upskilling for me. No situation where they fly the nest and I can focus on my career again. Unless they become some dangerous through no fault of their own that a 40k plus a month placement goes ahead as the alternative means I could die or be seriously injured, and that would mean they'd be at risk if I am literally unconscious on the floor.

They still deserve dignity and compassion. The chance of a good life. They are very happy currently. Good routines that are followed to a T. Safe at home because I have the resources to do it.

Care placement does not save money. Unfortunately. It would cost over ten times what I get in benefits.

I have seen so many mentions of people saying those on benefits should have no savings at all. Nothing. Really? You think my life isn't hard enough? You think I shouldn't be allowed a small nest of savings too?

When I finally drop down from caring, I will have next to no pension. After spending a lifetime ensuring the state doesn't have to take full responsibility for 2 adult men that will mean at least 4 paid members of staff are present at all times.

I am not just talking about MN. It is everywhere. Even 'funny' reels on Instagram targeted about how the disabled get this and that. How they should all drive a basic tiny car that has something written in bold to make sure everyone knows its a free car, as if they're really disabled, they'll use. That'll stop the chancers eh!

This is NOT about criticism towards PIP and DLA for things people deem questionable... even though they almost certainly dont have all the facts. This is about the blatant and not hidden disgust and begrudge of help to those with lifelong and profound disability

PEOPLE keep saying in black and white, no room for confusion in their words, that the disabled get too much. That it isn't fair.

I suppose this thread will get deleted. But a lot of views seem to be going unchallenged about the disabled that wouldn't be allowed if it was about something else that's suppose to be a protected characteristic. Seems to have quite a few comparisons with a certain country in Europe 80 or so years ago. When the hatred and deceit was being thrown around and brain washing people before not many years later, the public became okay with euthanasia of them.

Hell, I am sure we are already there for some. As I have seen with my own eyes, people commenting on MN and the likes of social media where their bloody name and pictures of themselves and their work can be traced, that euthanasia could be an option, ideally.

OP posts:
Thread gallery
9
Imdunfer · 03/12/2025 08:58

I do have to admit that I am getting pretty pissed off with the pain and anguish and the level of taxpayer support that is required to cope with the disability being knowingly created by the offspring of two cousins whose parents/ grandparents etc were also cousins.

The figures from areas high in the cultures which do this are absolutely shocking. The disabilities are often severe. I would outlaw more than one generation of cousin marriage, or possibly all cousin marriage.

bittertwisted · 03/12/2025 09:00

And my DS1 is autistic
at 7 he was diagnosed through the NHS
he got a very expensive SEN, 24000 a year funding

he got taxi transport to a school that met his needs
he was awarded high level DLA, low level for mobility

All the ‘tax payers’
money spent on him provided the support, therapy and education needed to help him.
he is now 25, has lots of friends, a girlfriend. Lives independently, has a first class degree, is doing a masters, and works in a bar. He is an extremely talented musician and performs in a band.
none or that would be possible without the help he received, his behavioural problems were so extreme I believe he would have been dead or in prison by now. That taxpayers money IMO saved his life and allowed him to be a functioning and contributing member of society

I am eternally grateful that all this help was available, however I still had to work through all of this, I still had 2 younger DS to support.
i never received a penny in tax credits, housing etc.
I did not make a lifestyle choice, I had a disabled child

80smonster · 03/12/2025 09:01

Kirbert2 · 03/12/2025 08:48

Because a baby isn't born with a tag attached to them that says 'I'm profoundly autistic'.

By the time it becomes obvious, there's usually already a second child.

Maybe we all need to go slow where children are concerned? See what the outcome is for first child, check you have resources to cater for their needs - before expanding a family?

Luckyingame · 03/12/2025 09:02

No, I don't see any annoyance towards the disabled.

What I see in this country are people being arrested and charged for speaking out on social media, or for flying a British flag. Otherwise everyone is better off just keeping quiet.

Can't wait to get out of here, when the proverbial door opens again.

x2boys · 03/12/2025 09:03

Portakalkedi · 03/12/2025 08:57

While there are of course many genuine claimants for these benefits, sadly many of us know that the system is abused by the not so genuine. There needs to be a shake up of the whole benefits system really. If you are genuinely in need then you should not object to this. I am physically disabled, with limited mobility, blue badge holder, and walk using crutches. Nowadays every time I go shopping I often can't park as all the disabled spaces are full. Inside the shops it's very rare to see anyone who seems to have any physical limitations, so I'm not sure why they need a wide space. If I can't park in a wide space then I can't physically get out of the car. No doubt I will be told that not all disabilities are visible .... yes I know.

But a blue badge holder is a blue badge holder
My son is eligible because he gets HRM under severe mental impairment rules he doesn't need wider spaces, but closer proximity to shops as necessary zero awareness of danger

If soone qualifies for a blue badge ,that makes them just as eligible as the next person
Save your anger for those who park in blue badge spaces without a blue badge

Southernecho · 03/12/2025 09:03

Badenoch is on the money here and in tune with the nation.

“Anyone who does not provide for their relatives, and especially for their own household, has denied the faith and is worse than an unbeliever.”

At first, the Tory leader tried to laugh it off, saying that “the Conservative Christian Fellowship gets its own specific message.”
That didn’t satisfy Robinson, who pressed: “But is it unchristian to expect the state to do what your family or your household or your wider community should do for you?”
Remarkably, she appeared to agree: “In early Christian times there was no state or welfare, so I think you can argue that actually.” Expanding on her theme, she added that “the Christian tradition is about communities and families and charity, not about compulsory taxation in order to pay welfare”

SwordToFlamethrower · 03/12/2025 09:03

Nanalovesnature · 03/12/2025 06:59

People are not annoyed at all with the genuinely disabled, they are annoyed with the many many people pretending to be disabled. Pretty much everyone now knows people who are exaggerating or fabricating issues in order to get everything increasingly generous benefits whereas those of us not on benefits are skint having to pay for them and people are understandably angry and fed up with it.

How does anyone pretend to be disabled? Claimants need to provide evidence from professionals, carer diaries, doctors letters, diagnosis. They are all checked by pip, phone calls, forms. It's impossible to fake! Everything is checked! Even then, people die before they even get help!

Nonsense ablist post.

Avantiagain · 03/12/2025 09:03

"Have zero or little quality of life"

Who decides that? Some outsiders might think that about my adult son but in fact he has a very happy life.

80smonster · 03/12/2025 09:05

TigerRag · 03/12/2025 08:39

The OP already explained it wasn't apparent with child 1 when she was pregnant with number 2

Not wishing to be disagreeable but I call bullshit on that. I have friends with severely autistic (non-verbal) children, both knew from early months. There are many, many signs. I guess you aren’t looking for them if you’re already invested in the next pregnancy. There’s a lot to be said for watching and waiting if in doubt - for you and for them.

Icanthinkformyselfthanks · 03/12/2025 09:05

Kleeneze · 03/12/2025 06:38

I hsve no objection to you receiving disability and carers payment etc. Your children are clearly severely disabled.

The real cost of disability payments is set to double within a decade. Do you really think all of these claimants are severely disabled? Do you think that those parents who spend their kids DLA on getting their nails done (as some on here have readily admitted!) need that money?

I think there are plenty of recipients of disability related benefits are taking money they don’t need to fund their lifestyle. This needs to be curtailed to give better funding to those in a situation such as yours.

Edited

@WarySwan , your situation sounds awful and I hope no one would begrudge you the help you need. I agree with the above comment from @Kleeneze .

Legobricksinatub · 03/12/2025 09:05

SwordToFlamethrower · 03/12/2025 09:03

How does anyone pretend to be disabled? Claimants need to provide evidence from professionals, carer diaries, doctors letters, diagnosis. They are all checked by pip, phone calls, forms. It's impossible to fake! Everything is checked! Even then, people die before they even get help!

Nonsense ablist post.

Of course you can fake difficulties when they rely on self-reporting.

usedtobeaylis · 03/12/2025 09:05

WarySwan · 03/12/2025 06:32

I have seen it in real life. Not just social media forums and news outlets where every other post seems to be about 'free money this for disabled' and 'free cars'.

My 2 children have autism. They get highest rate DLA. About £800 a month. We get respite care funded that costs the tax payer about £700 a month.

Just had an extension on our new build house, housing association, brand new bedroom and ensuite installed. Free of charge through the council.

Motability 7 seater car. 25 plate.

People seem to just see this and see the money. They do not see the costs that are present because of disability. The amount of time and resources it takes to keep 2 profoundly children at home.

They do not see that my children will need 24/7 care for life. 2-1 support in public. The constant cleaning and caring. Waking up at the crack of dawn, years on end. Cleaning smearing and endless washing. Endless marks on your body from a child who doesn't get that taking a chunk out of you will hurt that much and scar

Watching your eldest almost die as he can't speak a word or use a communication device. Meaning appendicitis went undetected until he was almost dying. The constant battle of keeping a cannula in his arm with hospital staff just not getting why a play therapist does not bloody cut it and he needs constant supervision that I cannot possibly do 24/7 without moving from the bedside. The weeks spend in recovery because of this.

If we do not or cannot provide this care, residential placements are about £40,000+ per month. Yes. Per month. It is eye watering in cost. That won't change anytime soon because social care is beyond shot to bits.

My children deserve the best life possible. And a dignified society should surely want to ensure this happens? Children who are not disabled and their parents have options. They have chances and doorways. Mine will never work. Never have a marriage or children, they won't even be able to cook a basic meal.

There is no overtime or upskilling for me. No situation where they fly the nest and I can focus on my career again. Unless they become some dangerous through no fault of their own that a 40k plus a month placement goes ahead as the alternative means I could die or be seriously injured, and that would mean they'd be at risk if I am literally unconscious on the floor.

They still deserve dignity and compassion. The chance of a good life. They are very happy currently. Good routines that are followed to a T. Safe at home because I have the resources to do it.

Care placement does not save money. Unfortunately. It would cost over ten times what I get in benefits.

I have seen so many mentions of people saying those on benefits should have no savings at all. Nothing. Really? You think my life isn't hard enough? You think I shouldn't be allowed a small nest of savings too?

When I finally drop down from caring, I will have next to no pension. After spending a lifetime ensuring the state doesn't have to take full responsibility for 2 adult men that will mean at least 4 paid members of staff are present at all times.

I am not just talking about MN. It is everywhere. Even 'funny' reels on Instagram targeted about how the disabled get this and that. How they should all drive a basic tiny car that has something written in bold to make sure everyone knows its a free car, as if they're really disabled, they'll use. That'll stop the chancers eh!

This is NOT about criticism towards PIP and DLA for things people deem questionable... even though they almost certainly dont have all the facts. This is about the blatant and not hidden disgust and begrudge of help to those with lifelong and profound disability

PEOPLE keep saying in black and white, no room for confusion in their words, that the disabled get too much. That it isn't fair.

I suppose this thread will get deleted. But a lot of views seem to be going unchallenged about the disabled that wouldn't be allowed if it was about something else that's suppose to be a protected characteristic. Seems to have quite a few comparisons with a certain country in Europe 80 or so years ago. When the hatred and deceit was being thrown around and brain washing people before not many years later, the public became okay with euthanasia of them.

Hell, I am sure we are already there for some. As I have seen with my own eyes, people commenting on MN and the likes of social media where their bloody name and pictures of themselves and their work can be traced, that euthanasia could be an option, ideally.

I'm not going to read the whole thread because it will just make me angry but I agree with you. Disabled people and refugees/asylum seekers are two groups of people that are absolutely fair game right now and I don't know how anyone can say otherwise and keep a straight face. I have definitely noticed an increase in people saying they don't believe autism is even real.

I hope you continue to receive the support your family needs.

Avantiagain · 03/12/2025 09:06

These threads always go the same way.

TigerRag · 03/12/2025 09:06

Portakalkedi · 03/12/2025 08:57

While there are of course many genuine claimants for these benefits, sadly many of us know that the system is abused by the not so genuine. There needs to be a shake up of the whole benefits system really. If you are genuinely in need then you should not object to this. I am physically disabled, with limited mobility, blue badge holder, and walk using crutches. Nowadays every time I go shopping I often can't park as all the disabled spaces are full. Inside the shops it's very rare to see anyone who seems to have any physical limitations, so I'm not sure why they need a wide space. If I can't park in a wide space then I can't physically get out of the car. No doubt I will be told that not all disabilities are visible .... yes I know.

People said before that when pip came in the genuine wound have nothing to worry about. But so many are turned down

Genevieva · 03/12/2025 09:06

The meaning of the diagnosis autism has been so diluted by the likes of Simon Baron Cohen that when you say your children are autistic they imagine someone who is socially awkward, not someone nonverbal who can’t manage basic self-care, can’t read etc.

SleeplessInWherever · 03/12/2025 09:07

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Just checking, are you suggesting that our disabled children be allowed to die because really they’re just violent and smelly?

Doodadidi · 03/12/2025 09:07

x2boys · 03/12/2025 07:27

They won't be getting disability benefits.

They can and they do.
My daughter lives in private rented accommodation but next to several housing association properties with a communal space. They are friendly but are all non-working due to mental health issues (ADHD/autism/agoraphobia).
My daughter works long night shifts and comes home exhausted and is becoming increasingly angry watching them sit around chatting, smoking weed, ordering multiple deliveroos a day, they post on social media about their lives which include road trips overseas in a recently bought camper van.
She is mid-20s, they are early 30s and have no intention of ever working.

Something has to change.

Kirbert2 · 03/12/2025 09:08

80smonster · 03/12/2025 09:01

Maybe we all need to go slow where children are concerned? See what the outcome is for first child, check you have resources to cater for their needs - before expanding a family?

Or maybe everyone should be forced to stop at only 1 child? You know, just in case.

I8toys · 03/12/2025 09:09

There are genuine claimants and those that will fleece the system for everything they can get. My issue is people who have worked for their entire lives and cannot work any longer that cannot claim anything. They have become disabled and then because they have built up a small pension they receive absolutely nothing for all those years worked which would help the anxiety of the family still having to run a household and pay a mortgage. Those that have worked and contributed to society always get shafted in some way. I've never wanted to live off benefits but sometimes I just think what is the point of working. I've had the comments that you should exaggerate the symptoms to get PIP - say you can't walk far, can't cook for yourself etc but I'm not prepared to go down that route.

angelos02 · 03/12/2025 09:10

The problem is that people with mild mental illness are seen to be playing the system. I have anxiety and ADHD but have never not worked. I am well enough to go out with friends, have holidays etc so the conditions are not that severe for me.

TigerRag · 03/12/2025 09:10

Luckyingame · 03/12/2025 09:02

No, I don't see any annoyance towards the disabled.

What I see in this country are people being arrested and charged for speaking out on social media, or for flying a British flag. Otherwise everyone is better off just keeping quiet.

Can't wait to get out of here, when the proverbial door opens again.

As someone without a disability you probably don't notice it. As a disabled person I have noticed it a lot.

IncompleteSenten · 03/12/2025 09:11

Avantiagain · 03/12/2025 09:06

These threads always go the same way.

Yup.
I expect it will be deleted.
Hope not because id like to be able to link to it next time someone claims that genuinely disabled people are not being targeted

This threads got it all.
The deserving v undeserving
Racism
Eugenics

x2boys · 03/12/2025 09:11

80smonster · 03/12/2025 09:05

Not wishing to be disagreeable but I call bullshit on that. I have friends with severely autistic (non-verbal) children, both knew from early months. There are many, many signs. I guess you aren’t looking for them if you’re already invested in the next pregnancy. There’s a lot to be said for watching and waiting if in doubt - for you and for them.

My son is severely autistic non verbal etc,it certainly wasn't apparent in the early months ,it gradually became apparent when he failed to meet milestones
He was diagnosed at three but it was still a long time before it became apparent just how complex his needs would be.

CheekyChickenFucker · 03/12/2025 09:11

SleeplessInWherever · 03/12/2025 08:49

Why specially disabled boys?

Disabled people wash, for a start, or certainly can be washed.

The rest of it, I’m not really sure what you’re suggesting we do with them. My assumption is that you mean don’t support them to live, and therefore allow them to die - which really, is just beyond words.

It really demonstrates a complete lack of compassion and ignorance. They are still people, not objects. Notice how they don't really say what they are thinking should be done, just skirt around it. Go on, be brave CanSeeClearlyNowTheRainHasGone

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