To think this is a really awful thing to say? Tw

[Goldyy]

Referring to children who don’t have behavioural issues or SEND as ‘normal’ children?

i have three DC with ASD, and one with ASD +ADHD. Have avoided using the word normal around them for many years because they're not "abnormal". I tend to use neurotypical or just typical, but I don't get triggered by other people saying normal. I do get frustrated with people claiming their NT child is exactly the same because they had a tantrum once. Or that everyone is on the spectrum. FFS.

what a surprise. the OP posted once and never came back,

And did you not consider, even for a moment, that it might be a slight exaggeration? There are a lot of people out there that say ADHD is not real. Should we take them at face value too?

Well is what it is re £750, if you want to claim it claim it. All I was saying is that a lot of people are trying to get their kids assessed for it for financial purposes. Shame as it’s problem blocking up the system for those who genuinely need it.

But coming back to the ‘normal’ children comment, when schools arrange a trip that any child can go on which is called the SEN school trip it starts segmenting children which leads to the ‘normal’ children being excluded. Think it just was just lazy, unthought through speech. I wouldn’t be offended personally as I am educated enough to know we are all different and some people just don’t get it, bigger things to worry about. Move on…

Well is what it is re £750, if you want to claim it claim it

You don’t choose how much to claim. You tell them what your child’s difficulties and challenges are, again WITH PROOF, and they calculate how much support you’re eligible for.

As someone who is trained to assess ADHD I can say that ‘most people’ aren’t trying to get their children assessed for financial gain. To me this just sounds like another part of the benefit scrounger narrative which is toxic and ableist.

Exactly this. I also wonder why some people think that assessors are so untrained and unprofessional that they’re regularly diagnosing conditions that people don’t actually have.

I agree with you.
Where's the inclusivity in that? Really doesn't make sense.

That seems to be actively causing division. I wouldn't be happy with that and I have an autistic son myself.

Strange!

Oh well, if a mum online said it it must be true!

Firstly they won't all get the diagnosis. Secondly a fraction of those who get a diagnosis get any kind of money for it.

I fully agree with you and here's an example.

My adult autistic son lives in a "supported living" building. There are staff there and he has a key worker.
He was placed there by the authorities. He pays towards the cost from his PIP

His PIP was suddenly stopped without warning because DWP said he "didn't need support"
With a fight and the help of an MP, we managed to get the PIP back.
But not without great distress and anxiety for my son and upset and worry for his family.

THAT'S how difficult it is to get PIP/DLA.
The DWP will even go against the authorities, diagnoses, medical reports.

They will even state in writing that someone does not need support when they're living in a supported building!!!!

That’s awful.
Honestly people who think getting support for their SEND children is easy (financial or otherwise) have obviously never had to navigate the system on behalf of their child.

Yeah, do people realise they're insulting the professionals and experts as well?

Mind boggling.....

We don’t use SEN where we are in Scotland, it’s ASN, additional support needs.

Some reasons (other than to actually offer similar opportunities to non SEND kids) WHY separate trips might be happening.

Funding for the trip is from a different pot.

Different ratio needs. For certain trips we NEED 7 staff members (for 15 kids) . That’s if everyone goes , if not , we need extra staff to stay behind . Only certain staff can go when there are additional medical needs due to specific training.

Different transport needs.

Targeted sessions for SEND kids which have limited times ,numbers , etc.

There are more trips children with SENDs miss out on , than trips they get extra.

This. It’s a disgusting attitude.

That's much better. I can use that for my son. He's adult now so SEN doesn't really apply.
ASN is perfect, thanks.

It doesn't work like that
You can't just phone DLA up an say hi my child has a diagnosis of ADHD ,please give me DLA at the highest rates thank you
And they say no problem
My son has been getting DLA since he was three he's severely autistic with severe learning disabilities, non verbal, challenging behaviour goes yo a school for children with severe and profound learning disabilities he was awarded MRC and LRM ( at five)
He does now get the highest rates becsuse I took it to tribunal and the Dr ,lawyers etc that made up the tribunal could clearly see with the EVIDENCE i provided ( from actual.professionals ) that he was severely mentally impaired. It's laughable people think it's so easy to cheat thr system.

I think it depends on needs of the person. ,neither SEN or ASN really cuts it for my son as its to broad a term imo, and can range from mild to profound I use severely disabled/ complex needs/ disabilitie for my son.

Yes indeed ,I'm on a DLA Facebook group and I see people everyday putting in claims for very tenuous reasons, they rarely gey anywhere with them but it doesn't stop them applying.

What's the preferred terminology? I can't keep up.

I refer to my older two as NT, if it comes up and my youngest as having SEN (youngest has global development delay due to a genetic condition)

I see lots of people on her saying their DC is SEND / SEN (as opposed to their child has SEND / SEN) so I'm not sure I even use the right terminology!!

Get a grip.. not everything revolves
around with child with SEND needs or disabilities. Of course, they need to have full access to many specialist services and rights etc but the whole world doesn’t have to suffer because of their problems. Don’t ram it down our throats. Of course we need to be fully aware of disabled people in society and I fully appreciate it’s a challenging life having kids with disabilities, I wouldn’t wish it upon anyone. However, sadly. we don’t need to be reminded about this all the time, it is a minority of the population. There are ‘normal’, ‘healthy’ (whatever you want to call ‘us’) non disabled people who just want to get on with their life. Just don’t be so sensitive. Terminology changes all the time and as long as it’s not meant to be malicious who cares.

I found the various forms very difficult to fill out from an emotional point of view too. Felt like a betrayal of DC somehow, listing all the things he can’t do. Praying he never sees them. This is not what we wanted for him.

Did you know your existing child/ren had autism before you went on to have more?

I’m sorry you had it so hard, but I don’t think I would have had more children when I already had some with disabilities.

I’m not being judgemental, we’re all different, but I just understand why you’d choose to make your life harder.

My BIL had a middle child with autism and seeing their struggles was the reason I stuck at one child.

It depends really doesn't it I know various families with more thsn one disabled child,
The first family the oldest son is severely autistic, his there not much of an age gap between him and his middle sister and she waa born before his disabilities were apparent she's NT
They decided to have a third child who appeared to be developing normally but is also diagnosed with autism her needs are not aa profound as her brother it's such a vast spectrum .