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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is a really awful thing to say? Tw

238 replies

Goldyy · 04/09/2025 19:39

Referring to children who don’t have behavioural issues or SEND as ‘normal’ children?

OP posts:
Petitchat · 07/09/2025 12:40

x2boys · 07/09/2025 11:16

Yes indeed ,I'm on a DLA Facebook group and I see people everyday putting in claims for very tenuous reasons, they rarely gey anywhere with them but it doesn't stop them applying.

They think like everyone else that it's easy to come by, but it's very difficult.
You have to fight tooth and nail but of course we all do because it's for our kids.
Not for gadding about with, it's to help our KIDS!

People are jealous of everything nowadays. My neighbours are jealous because the council have adapted my bathroom.
I would never be able to bath or shower without it and went through thorough assessments to get it but neighbours are so jealous it's unbelievable.

GagMeWithASpoon · 07/09/2025 12:41

TeenLifeMum · 07/09/2025 12:34

Absolutely, and it changes - all language does. I’ve always learned that people are people first so they are “a person with dyslexia” rather than dyslexic. However, new guidance this summer teaches us (after working with autistic people) that this group prefers “autistic person” not “person with autism”. The argument for the change being their autism is part of them and not an accessory. I wonder if it’s due to the black and white nature autistic people have to see the world so they prefer the simplicity. As such, I’ve learned and adapted my language.

TBF, that’s a really tricky one as there isn’t an actual consensus. , you might get a majority view but it won’t apply to everyone, and it’s not just with autism. Best practice would be to be led by the person you’re talking to and mirror their terminology whenever possible.

TeenLifeMum · 07/09/2025 12:43

GagMeWithASpoon · 07/09/2025 12:41

TBF, that’s a really tricky one as there isn’t an actual consensus. , you might get a majority view but it won’t apply to everyone, and it’s not just with autism. Best practice would be to be led by the person you’re talking to and mirror their terminology whenever possible.

You should always adapt for the individual but the new accessible information standard is very clear on the research for this specific point so in general, that is a shift in language.

Yellowlife · 07/09/2025 12:50

TeenLifeMum · 07/09/2025 12:34

Absolutely, and it changes - all language does. I’ve always learned that people are people first so they are “a person with dyslexia” rather than dyslexic. However, new guidance this summer teaches us (after working with autistic people) that this group prefers “autistic person” not “person with autism”. The argument for the change being their autism is part of them and not an accessory. I wonder if it’s due to the black and white nature autistic people have to see the world so they prefer the simplicity. As such, I’ve learned and adapted my language.

Not all autistic people prefer this though. I’ve heard people describing themselves as ‘having autism’ on MN threads and then being scolded/bullied by other autistic people that they’re using the wrong language. It’s horrible actually when insistence on a particular terminology goes that far, too far. Something positive turned into something negative.

It should be up to the person themselves, or their family if they can’t communicate, to use whatever term suits them best imho.

Plastictreees · 07/09/2025 12:51

OnetwoThree123456 · 07/09/2025 11:19

Get a grip.. not everything revolves
around with child with SEND needs or disabilities. Of course, they need to have full access to many specialist services and rights etc but the whole world doesn’t have to suffer because of their problems. Don’t ram it down our throats. Of course we need to be fully aware of disabled people in society and I fully appreciate it’s a challenging life having kids with disabilities, I wouldn’t wish it upon anyone. However, sadly. we don’t need to be reminded about this all the time, it is a minority of the population. There are ‘normal’, ‘healthy’ (whatever you want to call ‘us’) non disabled people who just want to get on with their life. Just don’t be so sensitive. Terminology changes all the time and as long as it’s not meant to be malicious who cares.

Edited

Who pissed in your corn flakes?

What a disgusting attitude.

Yellowlife · 07/09/2025 12:54

TeenLifeMum · 07/09/2025 12:43

You should always adapt for the individual but the new accessible information standard is very clear on the research for this specific point so in general, that is a shift in language.

You have to remember that this research was probably done on a subset of autistic people only, the more articulate ones.

Alittlefeedbackwouldbenice · 07/09/2025 14:02

I think we should try and chill out a bit with language except for where it's grossly/uninstall offensive. Trying to remember which person is a person with autism (who gets offended at autistic person) and which person is an autistic person (who gets offended at person with autism) is excessive.

Equally, typical is probably better then normal but I'm not sure it's worth getting upset about. Frankly a lot of us have much bigger battles to care about.

C152 · 07/09/2025 14:23

nc43214321 · 07/09/2025 08:42

They do!

I am in the nd online community and I was talking to a mum who said everyone at their child’s school is going for adhd assessment as it will give them a lot of money. The mums even said this to her as she has nd children and was horrified this is happening.

They have no idea of reality if they think they're going to get "a lot of money". My DS receives DLA because of disabilities caused by a brain tumour and the treatment for it. He gets fuck all special treatment and, as I said to another poster, the highest level of DLA, while better than nothing, doesn't even cover the mortgage payment, let alone everything I have to buy because nothing necessary is provided by the NHS, even when we're in hospital (e.g. numbing cream before injections/canulas, special food, toys to strengthen his hand muscles, special cutlery and mats to help him eat, physio, special toothpaste and mouthwash to try and combat the tooth damage caused by radiation etc) - all this on top of the fact that my work capacity is limited because I am a effectively a full time carer. We are surviving on rapidly dwindling savings.

As for school, while we finally have an EHCP, the school refuses to comply with it. Despite knowing he is now colour blind, teachers write on the white board in colour (which he can't see at all); despite knowing he is now hearing impaired, they refuse to make requested adjustments, like provide handouts/have him sit at the front of the classroom so he can lipread; when he puts his hand up to ask for the teacher to repeat what he hasn't heard, he is shouted at "don't make me repeat myself"; he is told he is the only one out of his 3 form year group that can't go on the school residential because it's "too risky" to take him, yet they won't simply think of a different residential that all children can participate in; I was told not to bring DS to school for an entire week, because there were no staff to support him, yet he was then marked down as having unauthorised absence, which the school refuse to correct; he does not received the 1:1 support his EHCP says he needs; the school refuses to address bullying that occurs specifically because DS is now disabled (e.g. he has to wear a hat outside because he still has no hair and is at greater risk of skin cancer than other children - an older child regularly runs up behind him, steals his hat and then taunts him about how he can't catch up and how slow he is because he has ataxia and is unsteady on his feet following brain surgery; another child holds him down on the ground and throws things at his head, while a teacher watches and does nothing, and know DS can't fight back because he's (a) trying to protect his head and (b) doesn't have the balance to get up without crawling onto all fours and using his hands to help. I could go on, but I think this gives you an idea.).

I appreciate many people on here automatically think autism when they think SEND, but it encompasses children with many different needs. I also wouldn't begrudge people who need it from applying for extra support, and I wouldn't think the little I see in public gives me enough knowledge to question how much support they need. A friend is ND and has 3 ND children and a DH who doesn't really help. The youngest child needs significant help, is frequently sent home from school because of meltdowns (friend has to leave work to collect him and then spend the afternoon trying to calm DC and identify what went wrong and politely tell the school to pull their finger out etc), isn't allowed on school trips unless my friend takes a week off work to accompany him, needs her to leave work early every week to collect him from school, take him the therapy and make sure he stays there (rather than running off) etc. It's not an easy life.

A little more empathy for each other would go a long way. Assuming most people are trying to scam the (broken absolutely unit for purpose) system is unhelpful and causes division where it isn't needed.

x2boys · 07/09/2025 14:35

Yellowlife · 07/09/2025 12:54

You have to remember that this research was probably done on a subset of autistic people only, the more articulate ones.

Absolutely and it doesn't take into account those who don't have a voice .

Goldyy · 07/09/2025 14:36

Thank you for the comments and replies.
it was a primary head teacher who said it

OP posts:
Yellowlife · 07/09/2025 14:52

Goldyy · 07/09/2025 14:36

Thank you for the comments and replies.
it was a primary head teacher who said it

I think that does make a difference. I’d expect more from someone in that position tbh.

nc43214321 · 07/09/2025 15:13

Goldyy · 07/09/2025 14:36

Thank you for the comments and replies.
it was a primary head teacher who said it

wow 😮 wouldn’t expect that from a head tbh, think I’d have said something.

OwlBeThere · 08/09/2025 04:56

Osirus · 07/09/2025 11:25

Did you know your existing child/ren had autism before you went on to have more?

I’m sorry you had it so hard, but I don’t think I would have had more children when I already had some with disabilities.

there is less than 6 years between my kids (3 singles and a set of twins. So no, I didn’t know all of them were ND when I had the rest. I did know my oldest was autistic before I had the youngest 3, but this was over twenty years ago and knowledge of how heritable autism is wasn’t what it is now. I didn’t know I was autistic then either.
However I will say despite its challenges I wouldn’t be without any of my kids. They are fantastic people, they have happy fulfilled lives. My post wasn’t to garner sympathy of how hard our lives are, but simply to show that disability has hidden costs that most people don’t think of or realise exist.

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