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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you refused to help with older relatives and how that went down?

1000 replies

Fragmentedbrain · 29/06/2025 09:39

I have 2 parents and 2 parents in law closing in on needing care. Reading other threads here it sounds as though this has a high chance of ruining my life over the next decade or so.

My husband and I work full time, love our jobs and don't have any caring responsibilities or instincts, not even a cat. I don't want to give up work or holidays or enjoying this bit of my life before I in turn am too old.

If we refuse to get involved beyond visits to say hello, how screwed are our parents?

(As we are child free I am not worried about any example setting although appreciate the relationship with siblings could get tricky)

OP posts:
Puzzledandpissedoff · 29/06/2025 15:13

My in-laws won't realise I'm serious ...

Let me guess, @Fragmentedbrain - you get tthe flappy hand, the little giggle and the change of subject if you mention it?

They'll realise soon enough if it comes to it, but really it's for your DH to manage his own parents' expectations, so you'd better just hope he isn't onboard with them in expecting you to do the caring

C10000 · 29/06/2025 15:13

My 'Darling' Husbands words to me a couple of years ago 'oh you'll be ok won't you with my Mum or Dad moving in here for their care etc seeing as it's what you do anyway..I'll obviously do what I can'

My reply was 'well you'd better start thinking of your options, if you move one of them in I'll be moving out so you'll be doing all of it as I won't be here. Your choice. Just let me know once you've made it so that I can make arrangements if I need to'

Never mentioned after that

Puppymom · 29/06/2025 15:13

We are all different. I think we should think in advance about what care our parents will need.
i was in an awful situation with my mum and ended up quitting work and everything due to immense pressures. It’s very true as some posters have said that the admin side can be very time consuming. I do look after mum in that I organise everything and she lives well with carers now. But I also appreciate some people aren’t prepared to do this. The social care system in this country leaves a lot to fall on families so I can see why some people don’t get involved

prelovedusername · 29/06/2025 15:14

All old people were young once. None of us thinks we’re going to be a burden, or lose our confidence, or struggle to learn new things.

I daily regret not being kinder to my elderly parents when they tried my patience.

Now it’s me fending off the eye rolls from my DC.

Howmanycatsistoomany · 29/06/2025 15:14

fanmepls · 29/06/2025 14:54

If they moved abroad in retirement presumably they've paid their fair share of NI before they moved.

why would that be the case?

Why wouldn't it?

OPs post said "old people who move abroad in retirement". Suggesting that they've moved abroad after they retired from 40+ years of working and paying tax and NI contributions.

If someone retires to the Costa Blanca at 67 and returns to the UK at 77 on a settled basis why should they not be entitled to access UK healthcare and local authority services, etc?

Rosscameasdoody · 29/06/2025 15:15

Fragmentedbrain · 29/06/2025 10:02

Actually, what happens to the old people who move abroad in retirement then come back after 20 years in need of care? I assume the local authority still gives it to them because we are hopeless as a nation at dealing with such stuff?

Depends on their ability to pay l would think.

LondonJax · 29/06/2025 15:15

Ratisshortforratthew · 29/06/2025 14:12

I really, vehemently disagree. Just because you and your DH are martyrs doesn’t mean everyone else should be. If you don’t want to do it just say no and don’t. Your parents will have to buy in help or order a taxi. I completely agree with OP, but thankfully so do my parents - they’ve always said it’s not my responsibility to care for them and they want me to live and enjoy my life. So I do. There’s nothing wrong with being selfish, I think some people just attach a moral judgement to it because they’re resentful they haven’t prioritised their own needs.

I don't think it's necessarily selfish to want to say no. I do think it's sometimes impractical though.

My DM developed Alzheimer's about 20 years after my DF died. We'd moved her down to live near us (otherwise a 100 mile one way trip) when she was well and she had a good 2-3 years of fairly good health. Then she had a heart attack. We (my DSis's and I) got her over that - daily small walks for 6 weeks anybody??

Then she was diagnosed with Alzheimer's. At this point she had been type 2 diabetic for 30 years controlled by tablets. Well that went wrong pretty fast. We set up a posset (?) box for her. She forgot to take the tablets. We set an alarm then would get a call to ask why the alarm had gone off. We put a note by the alarm telling her about the box. She'd ring to ask what box! We'd call her to take her tablets and she'd forget by the time she'd got to the box or she'd take two! Gradually little things would drop from her knowledge. We got a district nurse via the GP surgery to giver her insulin injections as that was (rightly) deemed to be the safest method of controlling her diabetes.

We got in a cleaner as she forgot to clean and we'd spend most of any visit cleaning the loo or wiping down the kitchen.

She moved into an extra care housing from sheltered housing. All fine for a while, a minimum care team on call 24 hours a day. They'd check in on her and help with personal care every day eventually.

Then she got muddled with her meal times. Her carer came in at 10am ish one day to giver her some antibiotics the GP had prescribed her to find her cooking her evening meal - she thought she was very late eating dinner. She'd forgotten that she'd not long had breakfast that the care team had made for her! That's pretty normal for people with dementia.

Getting her a taxi wouldn't work. She'd not remember she had an appointment, if we called her to remind her, she'd say she would get ready then forget we'd called! I had been at her door having called 15 minutes earlier to say I was on my way up. She'd say she was getting her coat on the phone but I'd find her watching the TV 'hello love, what are you doing here?' type of conversation! A cab driver would just leave. Someone had to be with her for appointments, she'd forget why she was there or she'd forget what the GP etc had told her. No point them writing it down - without someone with her she'd put it down somewhere and we'd have to call the GP to find out what had been said!

The problem is that these sort of things creep up and there's no real way of planning for them. My MIL used to wander with her Alzheimer's - my mum almost did just once. My MIL nearly set fire to her house by microwaving something for the amount of time it said to oven cook it (so 35 minutes microwave instead of the 5 minutes the product recommended). My mum never did that. Every person with dementia is different so planning is very, very hard. You are constantly fire fighting (almost literally in my MIL case!) running to catch up with latest 'drop' in cognitive ability. That means getting a different mix of help which often means getting a new assessment. And, whilst we finally managed to get mum into a good care home, places are few and far between unfortunately.

So, yes, many elderly people can cope with life until the day they die. Others can be told 'get a cab' or 'let's buy in some help'. But some can't manage, their illness is just too debilitating and, unfortunately, you never know which type your parent is going to be. We can all plan for the problems we foresee - lack of mobility, having to give up driving etc but none of us know if we'll suddenly wake up one morning and not recognise the person we've been married to for 50 years and start on that slippery, awful slope. A plan only works if you can remember it...

fanmepls · 29/06/2025 15:17

OPs post said "old people who move abroad in retirement". Suggesting that they've moved abroad after they retired from 40+ years of working and paying tax and NI contributions.

Loads of people move abroad because it's cheaper though.

There is no role that anyone retired here or abroad has paid 40 years of tax & NI! 😆

Shetlands · 29/06/2025 15:17

WearyAuldWumman · 29/06/2025 14:25

Every time that I'm told to do paperwork online for anything, my heart sinks.

I think I recognise your username from education threads? I used to run a school faculty and - of course - I had to do all the admin for that online. Now that I'm no longer working and on my own, my confidence has gone.

Four years ago, I managed to do the bulk of the admin for my husband's estate by myself, but at least I was able to see people face-to-face.

I now manage to cope with doing my banking online, but it's taken me a while. I prefer to do things face to face, for fear of making mistakes. At the moment, my town still has actual banks but I worry about what will happen if the branches here finally close.

My local council now wants everything done online instead of at council offices. Sometimes, the forms are far from intuitive. (In spite of the fact that the one council system - for council tax - has my current address, a council worker input my old address after my husband died. I emailed several times to try to get that sorted out.)

It's supposed to be possible to use an online account to deal with all council related matters. I find that the online forms are badly laid out. You'll find yourself clicking on a link that doesn't work or being sent right back to the beginning. Thus far, I've been able to find workarounds, but my concern is that I'll not be able to do that forever.

So far as banking is concerned, I don't have all my savings with my main bank. I've resisted setting up online banking with my the bank where I have my ISA because I've read that it's security is not quite what it should be and I'm terrified of making a slip that's going to cost me my savings.

I've already had a near miss where I nearly allowed a scammer to access my mobile phone account of all things. (In my defence, it was early in the morning when they phoned, but I nearly fell for it, because part of the scam involved messaging where - I later realised - I couldn't see all the screen at once.) Fortunately, I cottoned on before it was too late.

I'm assuming that they intended to use my account to order expensive iPhones or the like.

Thinking about it, my main problem is that my confidence has gone. At the moment, I can manage to do online ordering via Amazon and the like without too much difficulty, but I wonder when that ability will go.

Oh yes I recognise your name too! You've had a similar career to me (I was a HT) so I know how you've coped and juggled lots of complex issues in your working life.

I really feel for you because it sounds like you're losing your confidence and have started to worry that you won't be able to cope with this fast changing world. I have a very elderly cousin who was in a similar situation (almost blind now and in a care home) and she found she couldn't use her computer anymore so she set up everything over the phone - all her banking and shopping done that way. She's also very feisty and would insist that if the council etc wanted a form filled in that she was struggling with, they'd better help her do it.

There are care groups near me who have volunteers who help with things like that and I'd have no qualms about using them if I needed to. Do you have anything like that around? My local U3A (University of the 3rd Age) has a permanent course running on technology, which keeps updating of course, and I'll join them when my confidence starts waning.

I don't answer my phone to unknown numbers. I run that number through https://who-called.co.uk/ to find out where they're calling from and if they have a track record for scams.

I frequently change my online passwords to banking, paypal, amazon etc.

There's quite a lot of support out there for seniors like us (still active but a bit worried about future changes). Do you have any friends or relations in your age group who you can discuss it with?

tsmainsqueeze · 29/06/2025 15:18

MrsSkylerWhite · 29/06/2025 10:33

Bit patronising to suggest that older people needs help with organising shopping.
Most have been living with technology for 30 plus years.

My MILs church completely abandoned her as she declined. She’d volunteered in various ways for over 60 years. In and out of hospital for several years, not a single visit. My husband complained to the diocese and was told point blank that wasn’t in the vicar’s remit!!

Same thing happened to my dad re church when caring responsibilities-ironically - took him away from his church.
He left a small token sum in his will with my mom , mom still here dad not but when the time comes they won't be seeing that !

fanmepls · 29/06/2025 15:18

If someone retires to the Costa Blanca at 67 and returns to the UK at 77 on a settled basis why should they not be entitled to access UK healthcare and local authority services, etc?

I never said they shouldn't. I just don't understand why you think they will have paid 40 years of NI?

GreenCandleWax · 29/06/2025 15:19

C10000 · 29/06/2025 15:13

My 'Darling' Husbands words to me a couple of years ago 'oh you'll be ok won't you with my Mum or Dad moving in here for their care etc seeing as it's what you do anyway..I'll obviously do what I can'

My reply was 'well you'd better start thinking of your options, if you move one of them in I'll be moving out so you'll be doing all of it as I won't be here. Your choice. Just let me know once you've made it so that I can make arrangements if I need to'

Never mentioned after that

Speechless! The audacity of some men!

Aptapt · 29/06/2025 15:20

I don't want to give up work or holidays

I hope your dh is less selfish than you! As far as your parents are concerned, well, they raised you, so I'm hoping they already know that you are all about what you like and what you want. You sound very "me, me,me" and "its all about me".
Hopefully your parents are not relying on you, and those siblings who do take on the caring responsibilities receive a higher/all the inheritance.

Redpeach · 29/06/2025 15:22

It does seem a bit mean to not want to do anything

2Jays · 29/06/2025 15:23

People may be being honest about what theydon't want but in reality there may not be thatoption. Adult social services are on their arse. Once you start dealing with Local Authorities, you soon realise that it is a resource in serious decline. The gatekeeping of support services is insane.

Private funding soon becomes the only option and even that has to be organised and kept on top of. Power of attorney, managing bank accounts, household stuff etc. These are the responsibility of next of kin.

I'm shocked at how people, who have been raised and supported to adulthood can see no responsibility for those who got them there. If there isn't a backstory, just 'I don't want to do this because it interferes with my lovely life' then yes, I do think it's incredibly selfish and I fear for the future of society.

UtensilTraditionVintage · 29/06/2025 15:25

Holidays

You can still go on holidays

Either you go on holiday with the elderly person & do things at their pace

Or

You find people to help you look after your relative, while you go away
(May need to pay for the help)

fanmepls · 29/06/2025 15:25

I don't want to give up work or holidays

I see that all the time on threads about helping with gc. Why is acceptable for that?

BIossomtoes · 29/06/2025 15:26

fanmepls · 29/06/2025 15:17

OPs post said "old people who move abroad in retirement". Suggesting that they've moved abroad after they retired from 40+ years of working and paying tax and NI contributions.

Loads of people move abroad because it's cheaper though.

There is no role that anyone retired here or abroad has paid 40 years of tax & NI! 😆

I’ve paid tax for 54 years and counting. NI for 44 years. Why are you laughing?

godmum56 · 29/06/2025 15:26

We didn't refuse but all three of us were honest with parents and when it came to it with NHS and SS about what we could and couldn't do.

fanmepls · 29/06/2025 15:26

So what? It doesn't mean everyone who has retired abroad has does lt?!

saltinesandcoffeecups · 29/06/2025 15:29

LondonJax · 29/06/2025 15:15

I don't think it's necessarily selfish to want to say no. I do think it's sometimes impractical though.

My DM developed Alzheimer's about 20 years after my DF died. We'd moved her down to live near us (otherwise a 100 mile one way trip) when she was well and she had a good 2-3 years of fairly good health. Then she had a heart attack. We (my DSis's and I) got her over that - daily small walks for 6 weeks anybody??

Then she was diagnosed with Alzheimer's. At this point she had been type 2 diabetic for 30 years controlled by tablets. Well that went wrong pretty fast. We set up a posset (?) box for her. She forgot to take the tablets. We set an alarm then would get a call to ask why the alarm had gone off. We put a note by the alarm telling her about the box. She'd ring to ask what box! We'd call her to take her tablets and she'd forget by the time she'd got to the box or she'd take two! Gradually little things would drop from her knowledge. We got a district nurse via the GP surgery to giver her insulin injections as that was (rightly) deemed to be the safest method of controlling her diabetes.

We got in a cleaner as she forgot to clean and we'd spend most of any visit cleaning the loo or wiping down the kitchen.

She moved into an extra care housing from sheltered housing. All fine for a while, a minimum care team on call 24 hours a day. They'd check in on her and help with personal care every day eventually.

Then she got muddled with her meal times. Her carer came in at 10am ish one day to giver her some antibiotics the GP had prescribed her to find her cooking her evening meal - she thought she was very late eating dinner. She'd forgotten that she'd not long had breakfast that the care team had made for her! That's pretty normal for people with dementia.

Getting her a taxi wouldn't work. She'd not remember she had an appointment, if we called her to remind her, she'd say she would get ready then forget we'd called! I had been at her door having called 15 minutes earlier to say I was on my way up. She'd say she was getting her coat on the phone but I'd find her watching the TV 'hello love, what are you doing here?' type of conversation! A cab driver would just leave. Someone had to be with her for appointments, she'd forget why she was there or she'd forget what the GP etc had told her. No point them writing it down - without someone with her she'd put it down somewhere and we'd have to call the GP to find out what had been said!

The problem is that these sort of things creep up and there's no real way of planning for them. My MIL used to wander with her Alzheimer's - my mum almost did just once. My MIL nearly set fire to her house by microwaving something for the amount of time it said to oven cook it (so 35 minutes microwave instead of the 5 minutes the product recommended). My mum never did that. Every person with dementia is different so planning is very, very hard. You are constantly fire fighting (almost literally in my MIL case!) running to catch up with latest 'drop' in cognitive ability. That means getting a different mix of help which often means getting a new assessment. And, whilst we finally managed to get mum into a good care home, places are few and far between unfortunately.

So, yes, many elderly people can cope with life until the day they die. Others can be told 'get a cab' or 'let's buy in some help'. But some can't manage, their illness is just too debilitating and, unfortunately, you never know which type your parent is going to be. We can all plan for the problems we foresee - lack of mobility, having to give up driving etc but none of us know if we'll suddenly wake up one morning and not recognise the person we've been married to for 50 years and start on that slippery, awful slope. A plan only works if you can remember it...

I think at the point you’re describing a person shouldn’t be living on their own. So that leaves a family member (if there is one willing) or a care home.

I will say that I’ve seen a big difference in in the expectation about old age care between the UK and the US. I don’t know that it’s as common here for someone with Dementia to cared for at home. For sure it happens for awhile but I think it’s more common for a person to be moved fairly quickly into a memory care facility. Same with assisted living for non-memory care old age needs.

I’ve never heard of in home carers as social care that I’ve come to understand as typical in the UK.

I’m not saying either system is better or worse than the other, because I think you probably have people that are being cared for in home much longer than they should, and we have people that could benefit from in home care long before they are moved to assisted or nursing care.

BIossomtoes · 29/06/2025 15:30

fanmepls · 29/06/2025 15:26

So what? It doesn't mean everyone who has retired abroad has does lt?!

Obviously not but I’d say the majority will have. I still don’t understand the hilarity.

Jc2001 · 29/06/2025 15:30

ExercicenformedeZ · 29/06/2025 10:17

Not really. Kids don't owe parents anything, they didn't ask to be born. OP, stand firm. Parents who expect their kids to help them out are CF in my opinion.

Kids didn't ask to be born? That's the sort of argument a stroppy teenager uses to try and avoid doing chores.

Also CF? I expect the same people will have their hand out when it comes to inheritance.

Not saying the op is right or wrong, you have to set boundaries but to totally wash your hands with any responsibility for your parents is pretty low.

saltinesandcoffeecups · 29/06/2025 15:32

Aptapt · 29/06/2025 15:20

I don't want to give up work or holidays

I hope your dh is less selfish than you! As far as your parents are concerned, well, they raised you, so I'm hoping they already know that you are all about what you like and what you want. You sound very "me, me,me" and "its all about me".
Hopefully your parents are not relying on you, and those siblings who do take on the caring responsibilities receive a higher/all the inheritance.

Not giving up work is hardly selfish. You know that work and money is needed to provide for the OP’s old age, right?

Sunshineandoranges · 29/06/2025 15:33

Glad you aren’t my daughter

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