Nothing about being able to opt out of DNA testing?

[BlueJuniper94]

So why is there no mention of being able to opt out of this? Isn't this just going to encourage some people to avoid engaging with HCPs altogether?

www.bbc.co.uk/news/articles/c1ljg7v0vmpo

It'll be like organ donation where they've made it difficult to opt out and everyone is automatically opted in. I opted out a few years ago, then found out through my driving licence card that I'd been opted in again. I've had to go through two different websites to opt back out.

The state believe they own your body, living or dead.

I'm in two minds about this.
Should a parent be able to opt a baby out of something so potentially important to the childs health?

Well we let them opt out of vaccines…

Sorry to derail, but you have these websites to hand, please?

Not relating to the topic, but out of curiosity would you accept an organ donation for yourself if needed?

Like another poster, I'm also intrigued. Why did you opt out? And would you accept a donor if necessary?

It ceased to be a donation once the state was entitled to take bits. I had a donor card but when that change came in I withdrew. Others obviously feel differently.

That is simply not true! Anyone can refuse to donate as you have obviously done. Let me guess, you also believe 5g is going to kill you, covid was a way to control us and the royals are actually lizards? 🤣

Donation is giving, not something being taken without consent.

It's just a pre-announcement of a plan which is getting unveiled next month. It might or might not have some opt outs but I wouldn't expect that sort of detail to be out yet.

I would be extremely surprised if you couldn't opt out, just like you can refuse consent for any of the usual newborn tests currently.

The organ donation is nothing to do with the state owning your body. It was to try and increase the number of organ donors as there are more people needing transplants than organs available. It was well publicised and you can opt out at any time and change your mind at any time too if you've previously opted in. I've just checked and have found the online form to opt out in less than 30 seconds. Personally though I think if you are willing to accept an organ for yourself or a loved one, then you should be willing to also donate.

Google 'opt out of organ donation'. You fill in the NHS one opting out, then they send you a letter a few days later and you go onto another site in the letter and opt out again. The first one is a notice to opt out and the second is actually opting out. When you renew your driving licence they must revert it to opting in again because I definitely opted out, but must have missed the box to tick when renewing the licence. It's difficult to find apparently and I thought you'd only need to opt out once in your lifetime. Crafty sods.

I wouldn't accept an organ. I did opt out a few years ago, but they opted me in again because I must have missed ticking the opt out box on the driving licence renewal form.

I have very good reasons for opting out.

Personal reasons, and no, I wouldn't accept an organ.

I'm sure it will be something covered in your midwife assessment at booking or similar.

Regarding organ donation they can take any and every bit of me they find useful for others when I'm gone.
I think if you opt out and wouldn't accept an otgan then that's fair.
I'd like to see people who opt out not have the choice to accept one tbh.

Comparing views on organ donation to conspiracy theories is nonsense.

People have varied reasons for wishing to opt out, and differences of view should be respected.

Policy changes related to organ donation are free votes for a reason, people's ethical/religious views and their views about health, the state and human bodies all come into play.

This.

What pisses me off is the sneakiness and underhanded manner of it all.

I'm not comparing conspiracy theories with 'views', I'm comparing conspiracy theories with factually incorrect drivel. Posters are claiming that the government owns your body and take your 'bits' without consent. That is factually incorrect drivel and very much scaremongery, dangerous conspiracy theory stuff!

Exactly this. It says in the article “Parents will be able to…..” not parents will be forced to….. so from that we could infer that there will be an opt in/out to this testing but it’s a few hundred words announcing an idea not a formal proposal or procedure document.

Yes.

m The more pertinent question is should the state be permitted to do this before the child is old enough to consent for themselves?

wWe already do genetic testing when there is a family history or symptoms that indicate a clinical need. There is no proven clinical need for the wholesale genetic profiling of the entire nation.

Not true. The law changed yes. But your organs will always be safely with you unless your nok agrees to donation. You can still opt in but your nok can say no.
to be a donor you have to die in icu. Either from being neurologically dead. Or because life sustaining treatment is being stopped and you are going to die imminently. you are therefore statistically more likely to need an organ than you ever are to be in a position to donate them. If you are able to donate your family is approached by a specialist nurse and given the information to make a fully informed decision. If they say yes then a formal consent form is signed.

but rest assured now you’ve opted out your organs will be left to rot in the ground or be cremated, instead of saving the life of someone else. All because you don’t want the government telling you what to do. (For what it’s worth most reasons people give for saying no to donation I respect…. Just not such an uninformed one)

Absolutely whole heartedly think anyone opting out of organ donation should be refused any organs should they need them

So making it difficult to opt out and having to do it numerous times isn't a problem? They clearly believe that they're entitled to something they're not.

What carry on because you stuffed up filling in a form.