Nothing about being able to opt out of DNA testing?

[BlueJuniper94]

So why is there no mention of being able to opt out of this? Isn't this just going to encourage some people to avoid engaging with HCPs altogether?

www.bbc.co.uk/news/articles/c1ljg7v0vmpo

Same for a friend of mine. Had a kidney transplant 30 years ago and apart from having to take a tablet every day lives a very normal and active life.

Regardless of how interested you are, you aren't owed an explanation for someone elses perfectly legal choice.* *

They don't at all. This changed a few years ago (and before that in Wales)

If you haven't opted out then they can take what they like. They don't have to get any consent from any family. It's taken as consent.

Most people don't realize how horrific taking organs is. The person is not allowed to die naturally & they are kept 'alive' on a life support machine.

The 'death' technically then happens on the operating table when they have finished helping themselves to your loved ones body parts. You won't be with them when this happens & won't be told the moment it happens.

The NHS sells people a lie of dignified organ donation.

After our experience with my brother I would strongly urge anyone to opt out.

Probably religion which is an absurd reason

I have friends who have an awful autoimmune disease. Their friends have refused testing as there's nothing you can do about it - it's the kind that can be triggered at any point but you could live your whole life with no symptoms. They'd prefer not to know and also I suspect that knowing would make life insurance etc much more expensive.

So protocols improve over time as doctors become more aware of new diagnostic tools. It doesn’t justify universal DNA screening.

I'm not religious, but you don't get to call others absurd for making different choices. 🫣

But this is the improvement

The hospital were dreadful about the whole thing. We have met many other families that have said the same thing.

We did contact PALS, wrote a complaint (they just lied about the whole thing) and our MP who was actually extremely helpful but unfortunately has no power of the NHS.

The police can't do anything as the NHS is legally able to do it.

The worst thing for us was not being with our loved one when life support was stopped which was very important to us.

We were told he is brain dead & to say goodbye. He was then kept alive for a further 24 hours while they waited for the surgeon. He died somewhere alone in a operating theatre with no one that knew him or cared for him.

They callously them called us to give us the date & time of death.

Please for the sake of your loved ones, anyone reading this opt out.

Where is your information from please? It is hugely incorrect

We went through it with my brother. It is what happened.

And this happened in the uk?

And, assuming you're based in the UK, nobody is forced or guilt tripped - you're given a choice to opt out so everybody can make a decision either way. It's really no more complex than that.

Just because not everyone believes the same thing as you doesn't make them absurd. How excruciatingly arrogant.

Yes in an NHS hospital

Firstly, chemo services are relatively well funded.

Secondly, studies such as this one means we can only offer chemo to patients who will actually benefit. In ovarian cancer, we give chemo to everyone, for whom at least 30% of patients will not respond and we have no idea which 30% will. It’s even more important to be able to predict response based on bio markers - such as genomic data - when we are looking at newer therapies that can cost over £100k per course.

Finally the newborn study is not about finding random conditions that will affect you when you are older.

And yes, this is my day job.

This very much sounds like archaic rape excuses. Consent is ACTIVE and continuous. Not saying no isn't it.

If my brother has known the reality of what it would do to his mother especially I am certain he would have opted out.

If he has understood his mum was not going to be allowed to be with him while he passed he would have opted out.

Most people are not aware of the implications of the change in the law. It is deeply disturbing & the reality is legally they can do it.

I would urge everyone (unless already with terminal illness etc) especially young & fit to opt out. You can always opt in again when you are older.

Organ donation is a personal choice and people are entitled to that choice.

but as someone who is still recovering from a heart transplant I bitterly resent the implication that I am selfish and should have opted to die instead, or the insistence that people should opt out.

I’m sorry you had a bad experience, but that doesn’t give you the right to wish others dead.

I figure it's for people who kept meaning to opt in, but never got around to it. Does the new system also prevent relatives from denying donation, even if they knew the person wanted to?

This thread highlights the worst of MN.

What could have been a respectful debate, as per, descends into personal insults, undertones of personal fuck-yous to other posters, and a complete disregard for others having differing opinions. And it’s a thread about, essentially, hypotheticals!

People’s opinions differ. Shocker. Stop trying to bully people to your side.

For those pro donation in the manner this government is going about it, what if you knew your liver was going to a paedophile?

If he wanted to donate, surely his mum would want what he wanted? It is his body after all and he wanted to do something amazing in his last act by giving someone life. Your brother is a hero for that as the vast majority of us won't be able to do so, even if we'd like to.

I'm a little confused by what you think the NHS are lying to us about. How else do you think they're going to get the body parts out other than through surgery? And they can hardly wait until the patient has been dead for ages as the organs will no longer be viable. It's a huge stretch to say they're lying. It actually tells you what happens on the NHS donor website!

I've just done a quick Google search and trawled through various articles and I can't find a single article about people having their organs taken against their will in the UK. It is odd that you claim there are so many and yet there is no evidence of this in the media. The NHS do seek consent from family or a named representative even if the patient is on the register as being a willing donor. If what you say is true, surely it would be all over the media. I'd be interested to hear the full story, including whether his next of kin/named rep was asked.

I imagine you will make the Daily Mail now anyway as this is huge news...

You want a respectful debate... and then suggest organs might go to a paedophile. 🙄🤣

We want and are mainly pleased to have a National Health Service. So why the surprise? We have National treatment and organisation therefore it makes sense to have National planning and research. It is all part of improving care for us and future generations.

Potentially important but not necessarily without unforseen consequences