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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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6
528htz · 18/03/2025 12:42

@Gloriia A spectrum is NOT the same as a continuum. A spectrum doesn't have a high point or a low point.

WibbleyPie · 18/03/2025 12:47

Lost20211 · 18/03/2025 12:07

To be fair, some who have been under constant stress for prolonged periods of time, may crash. It’s not that they wish to avoid life, they just can’t deal with it - hopefully just in the short term and they recover.

If work is that particular cause, it will help. And if things don’t improve in the workplace, a move to a different role/organisation may be the best for an individual. It’s not always the person who is at fault. Some environments are just very unhealthy.

This is the crux of the issue, there's so many demands on people financially, time wise and in general.
I feel like I'm here just to make other people money some days, no pay rises because business is struggling, more and harder work because they're 'streamlining' yet everything costs more money, everyone wants their cut and I'm just leaned on to provide it (along with many others) I've got less time and less money and constant demands on both still and some days I don't feel like there's any of me left!
Even traditionally low paid and low demand jobs are stressful with the increasing expectations and fewer resources and the expectation that you'll just make it happen anyway.
That causes stress in humans, well any animal really, with less time available to actually deal with that stress, people get sick.
Then you deplete the resources to deal with that sickness, both mental and physical and you're where we are now.
Saying that sickness is over diagnosed isn't going to change what's happening, it's not going to make it go away. Even treating it doesn't make the reasons go away.
Maybe we need to look at why it's happening instead of just declaring everyone's lazy and not resilient and that's the problem.

wishiwasjoking · 18/03/2025 13:12

Depression and anxiety need to be scientifically diagnosed using scans like they are in other countries.

Handing people a questionnaire that they can easily manipulate the answers on is not the way to do it. Even people who do have mental health issues aren't helped by the questionnaires.

JobhuntingDespair · 18/03/2025 13:15

@528htz

I'm amazed that article doesn't mention the higher suicide rates amongst autistic people. They are much higher for autistic women than autistic men too, something that rarely gets mentioned (because us women don't matter, it's all in our fault for not being "resilient" enough 🙄).

DaffodilsGalore · 18/03/2025 13:17

wishiwasjoking · 18/03/2025 13:12

Depression and anxiety need to be scientifically diagnosed using scans like they are in other countries.

Handing people a questionnaire that they can easily manipulate the answers on is not the way to do it. Even people who do have mental health issues aren't helped by the questionnaires.

That is untrue.

Regardless of the country, depression and anxiety are diagnosed trough questionnaires.
When brain scans are done, it’s to eliminate other potential causes.

This is true at clinical level and in research.

There is some research going on on bio markers for depression agd anxiety. But nothing is available to make a clinical diagnosis from bio markers only.

528htz · 18/03/2025 13:23

JobhuntingDespair · 18/03/2025 13:15

@528htz

I'm amazed that article doesn't mention the higher suicide rates amongst autistic people. They are much higher for autistic women than autistic men too, something that rarely gets mentioned (because us women don't matter, it's all in our fault for not being "resilient" enough 🙄).

Yes, the biggest suicide risk is being autistic. People don't realise that ND renders people utterly desperate and socially isolated. These smug "only physical disability matters" people are utterly wrong. They're probably the types to view suicide as a weakness or a moral failing. Utterly lacking in any empathy for their fellow human beings.

528htz · 18/03/2025 13:27

I'd like to see research into biomarkers for ND and depression. This would weed out the wannabees and people doing it for attention or money. These people do exist, plus mental illness is somewhat passed on behaviourally in things like friendship groups and at school, so such people probably legitimately believe they're affected, but don't meet the criteria and just need a more positive focus in their lives.

LakieLady · 18/03/2025 13:33

Anotherdaywasted · 18/03/2025 11:58

But that is by your definition. For some people ADHD is massively debilitating. How would you feel if posters thought the same about your relative or their disability benefits were deemed unnecessary?

I work with clients with mental health problems and sometimes they have ADHD, too.

I find clients with dual diagnoses that include ADHD incredibly challenging to work with. Even using all the techniques suggested in my ADHD training, and following up with written advice, it still takes no end of prompting and reminding if they are ever to get round to doing what they need to do.

I can really see how hard it is for people with ADHD to sustain a job. And if the concentration and memory issues ADHD seems to give my clients are typical, I can quite understand how it may be difficult for them to do things like cook a meal or get out and about safely.

Lost20211 · 18/03/2025 13:43

WibbleyPie · 18/03/2025 12:47

This is the crux of the issue, there's so many demands on people financially, time wise and in general.
I feel like I'm here just to make other people money some days, no pay rises because business is struggling, more and harder work because they're 'streamlining' yet everything costs more money, everyone wants their cut and I'm just leaned on to provide it (along with many others) I've got less time and less money and constant demands on both still and some days I don't feel like there's any of me left!
Even traditionally low paid and low demand jobs are stressful with the increasing expectations and fewer resources and the expectation that you'll just make it happen anyway.
That causes stress in humans, well any animal really, with less time available to actually deal with that stress, people get sick.
Then you deplete the resources to deal with that sickness, both mental and physical and you're where we are now.
Saying that sickness is over diagnosed isn't going to change what's happening, it's not going to make it go away. Even treating it doesn't make the reasons go away.
Maybe we need to look at why it's happening instead of just declaring everyone's lazy and not resilient and that's the problem.

Exactly.

I work in public sector, and it may not be as bad as private, but it’s pretty crap. Workloads have been increasing, and have been dealing with legacy of long term recruitment freezes, insulting 1 % pay increases or no increases. Always have to do more with less, with increasing expectations. IT systems are actually a hindrance because they don’t meet needs and have to struggle on anyway.

Then, when people become ill from stress, resilience training is offered. It is an organisation’s way of putting the onus on the individual instead of management taking some responsibility and taking a good long look at what is actually going on - they keep their heads in the sand. Most staff wouldn’t even have time to do it.

Jimmyneutronsforehead · 18/03/2025 14:03

528htz · 18/03/2025 13:23

Yes, the biggest suicide risk is being autistic. People don't realise that ND renders people utterly desperate and socially isolated. These smug "only physical disability matters" people are utterly wrong. They're probably the types to view suicide as a weakness or a moral failing. Utterly lacking in any empathy for their fellow human beings.

As an autistic person this is why I was vehemently against the assisted dying bill.

Sure, it's for people with terminal conditions, but once that foot is in the door it's not as hard to change the rules around it.

I have been suicidal, and the resources just aren't there. The solution isn't to cut benefits for people, nor is it to make them feel like they're a burden to themselves, families or society.

If that is their only goal then it is eugenics.

LakieLady · 18/03/2025 14:05

Although Streeting did not refer specifically to children, I will stick my neck out again and incur more wrath and indignation, by asking if children are awarded DLA for neurodivergent conditions, and what help do their parents buy with it?

Anecdata, but when my friend's son (finally) got assessed by CAMHS, and was found not only to be autistic but also diagnosed with PTSD and depression, she used his DLA to pay for EMDR therapy for his PTSD. CAMHS told her that the waiting time for EMDR via CAMHS would mean he would be 16 and discharged from their service before he got anywhere near the top, and that the wait for EMDR for adults in our NHS Trust was several years.

When he got to 16, he switched to PIP and is now using that to pay for psychotherapy and the cost of the taxi to get to it and back again. He also used part of the arrears payment to buy some high-tech noise cancelling headphones to wear at home so he can't hear the constant screaming, shouting and loud music from neighbours, which used to leave him a quivering wreck.

He has been massively failed by the NHS imo. He's been having problems since he was a toddler, and they've got progressively worse over the 8 or 9 years that I've known him. He was referred to CAMHS at 9 yoa and it took 6 years for him to be assessed. He hasn't been to school since his first year at secondary, the large comprehensive totally freaked him out.

The therapy is helping and he's starting to show some improvement. He was actually able to go walk to his therapy appointment on his own the other week, which is a huge milestone. But with no formal education post-11, and as someone who's inclined to have a complete meltdown when confronted by any unfamiliar situation, it's hard to see what sort of job he'd ever be able to do.

I wish I could say that this young man's case is exceptional, but when I talk to clients about their MH history, it often comes out that their problems started in childhood but were never addressed. If Starmer, Streeting etc want to reduce the cost of benefits, they should play the long game and invest in ensuring that children and young people with MH issues get timely help and treatment so that they are well enough to work when they reach adulthood.

hazandduck · 18/03/2025 14:16

528htz · 18/03/2025 11:14

Disgusting attitude. How do you explain the research that shows ND people have shorter lifespans and suicide rates that are nine times higher than the rest of the population.

I can only think you're driven by cruelty and selfishness.

Also totally typical that it has been deprioritised now that women and girls are finally being diagnosed equally to boys and it is being recognised how it impacts our lives, particularly our education. I am certain my mother’s alcoholism was caused by a misdiagnosis of bipolar when she clearly is ADHD and has been self medicating with drink and prescription painkillers for years, same for my mother in law who succumbed to cirrhosis of the liver last year. It’s a women’s health crisis really. And surprise surprise it can’t be prioritised.

Freud2 · 18/03/2025 14:18

Yes I agree - I think a lot more work needs to be done on prevention of mental illness. Perhaps starting at school - teaching self awareness and how to manage stress. How to develop resilience.

LakieLady · 18/03/2025 14:22

wishiwasjoking · 18/03/2025 13:12

Depression and anxiety need to be scientifically diagnosed using scans like they are in other countries.

Handing people a questionnaire that they can easily manipulate the answers on is not the way to do it. Even people who do have mental health issues aren't helped by the questionnaires.

Is it accepted now that these are sufficiently accurate to be used as the sole diagnostic tool?

It's been a few years since I heard this discussed as a possibility, and the view at the time was that it was far too early to rely on them. There were also reservations about the cost as (iirc) two different types of scan needed to be done and compared.

NapT1me · 18/03/2025 14:57

Freud2 · 18/03/2025 14:18

Yes I agree - I think a lot more work needs to be done on prevention of mental illness. Perhaps starting at school - teaching self awareness and how to manage stress. How to develop resilience.

ND is often genetic and MH struggles can go back generations. You can’t change the way ND brains are wired. ND people are incredibly resilient .Some will be impacted more than others as regards MH.

MusicMakesItAllBetter · 18/03/2025 17:01

Itsenough4now · 16/03/2025 15:57

It's something so easy to say which sounds tough to those who like to hear such things. The reality is that with or without a diagnosis there is still a problem and very little resources to help. Suicides are on the increase, is this because deaths by suicide are being incorrectly labelled? Counselling, therapy and medication are expensive and I don't think this or any government wants to put in the hard work to address the situation. So much easier to gaslight us.

Suicide is on the up because lockdown fucked everyone up.
People lost their jobs, had no support from the companies they worked for (happened to a good friend of mine 😔).
Lack of human connection.
Money issues.

The government have a lot to answer for for that

MusicMakesItAllBetter · 18/03/2025 17:07

NapT1me · 18/03/2025 14:57

ND is often genetic and MH struggles can go back generations. You can’t change the way ND brains are wired. ND people are incredibly resilient .Some will be impacted more than others as regards MH.

I was diagnosed with combined ADHD last year at the age of 46. It explains a hell of a lot. I have since recognised that I have autistic traits but am not actually autistic. I finally feel seen and that my life makes sense. Mentally I have been a prisoner and felt like I couldn't air my concerns/anxieties because I felt like I'd be ridiculed and laughed at so I kept it all in and decades later I'm finally unpacking it all and while it's a healing process, the other emotions in me don't know whether they're coming or going 🤷🏼‍♀️
I also was diagnosed with anxiety and depression in 2012 because I had a breakdown. All that had happened on my life was I'd got engaged. Could understand why it happened to me because my life on paper was fabulous.
Now I'm starting to understand that it was because for the first time in my life I didn't get rejected and I've had a lot of rejection and so I think my brain couldn't cope with just love.

528htz · 18/03/2025 17:30

LakieLady · 18/03/2025 13:33

I work with clients with mental health problems and sometimes they have ADHD, too.

I find clients with dual diagnoses that include ADHD incredibly challenging to work with. Even using all the techniques suggested in my ADHD training, and following up with written advice, it still takes no end of prompting and reminding if they are ever to get round to doing what they need to do.

I can really see how hard it is for people with ADHD to sustain a job. And if the concentration and memory issues ADHD seems to give my clients are typical, I can quite understand how it may be difficult for them to do things like cook a meal or get out and about safely.

Do you realise that having difficulties starting tasks is a hallmark of adhd?

Newusername3kidss · 18/03/2025 17:35

MightAsWellBeGretel · 16/03/2025 15:18

Absolutely, and using labels to opt out of every day life and responsibilities.

Yep I agree with this. A friend recently talked to me about her son (she has one child - i have 3 boys ) . She’s worried he has ADHD and was looking at getting a diagnosis as he would rather play football than sit down and do a quiet activity. He’s 6 years old - he’s a boisterous boy who has lots of energy. My eldest was exactly the same - he’s got better as he’s got older but honestly of course he’d still rather play football. He just now understands he has to do stuff he doesn’t necessarily want to do - welcome to the world

Newusername3kidss · 18/03/2025 17:39

Freud2 · 18/03/2025 14:18

Yes I agree - I think a lot more work needs to be done on prevention of mental illness. Perhaps starting at school - teaching self awareness and how to manage stress. How to develop resilience.

Totally agree with resilience - does seem to be lacking with older teens / young adults. My boys go to a small private school and the main thing they all leave with is confidence- and I’m sure it’s mainly to do with the amount of extra curricular stuff they do - so much sports, loads of team competitions (from football to chess to public speaking), dance, drama etc. they all have to get involved in everything even if a bit out of comfort zone and they come out of primary school so well rounded and confident in their abilities as everything is celebrated but at the same time there are winners and they strive to win/ do their best but they also accept they won’t be the best at everything

Holidayfix · 18/03/2025 17:40

I'm not knowledgeable enough to know if they're over diagnosed, but when they're so common, it can't be something that means people can avoid the responsibility of supporting themselves. Harsh as that sounds sometimes you just have to get on with it.

Holidayfix · 18/03/2025 17:43

MusicMakesItAllBetter · 18/03/2025 17:01

Suicide is on the up because lockdown fucked everyone up.
People lost their jobs, had no support from the companies they worked for (happened to a good friend of mine 😔).
Lack of human connection.
Money issues.

The government have a lot to answer for for that

I think this is undoubtedly true, but on that basis, paying benefits that allow people to withdrawn completely can't be helpful either.

JobhuntingDespair · 18/03/2025 18:00

@Flowersinthehood · Today 06:56

I work in MH services, it is difficult to get through the door, you have to be a risk to yourself or others really. What I find interesting is that what people expect from MH services isn’t what they get. People expect to sit on a sofa, chat about their inner most feelings and trauma for years, and be spoonfed support. That’s not what we offer. We try to put it back on them, what are you going to do about this? What solutions can you find to solve this?

What exactly do you mean by "spoonfed support"? People who are utterly broken expecting some empathy, guidance, or therapy? (And these are the people deemed enough of a risk for services to actually see them! They must be severely affected.)

If people know they have been through trauma that is affecting them - that's good. So many people won't even acknowledge their past has affected them/is causing issues in the present. It's a good starting point for beginning to unpick the effect of the past and begin healing and living better.

... And what you do is ask them what are they going to do about it?! You don't think perhaps they figured facing up to things and unpicking their problems in therapy was their way of doing something about it?

What we don’t want is someone attending appointments for years and not being accountable. Yes we will ask you to turn up, yes you can chat about things that have gone wrong this week but for the first ten minutes only and then we change the subject.

What sort of appointments? If the person is awaiting therapy, you can't actually expect them to get better until it's happening, can you? A chat with a nurse or similar, whilst it could be vaguely supportive, is hardly going to do much if the person needs to dig deep in therapy.

Or are you talking about therapy sessions? In which case "changing the subject" seems inappropriate. Wouldn't you start to dig deeper, link their recent difficult week/feelings to earlier experiences, unhealthy internalised attitudes, and so on? Not just shut them down.

People have been lied to by American sitcoms that therapy is all about them opening up, it’s not, therapy is work and self reflection.

Therapy is about both these things. Work and self-reflection in a safe environment where they can open up and access deep feelings without judgement or feeling like a burden. Whilst American sitcoms may have it wrong in terms of lying on a couch, the basic idea is far more in line with the sort of reflection that leads to insight and lasting change, than your idea of how patients/clients should be treated.

So as much as people fight to get in, a lot of people aren’t in the place to do this work and discharge themselves.

It sounds like an awful lot of people aren't being offered appropriate therapy to do this work. I certainly wouldn't feel comfortable opening up to someone with the attitudes you have described, and you imply you wouldn't want me to anyway! So perhaps they just leave realising they can't get appropriate therapy. (Or even find the dismissal from services makes things worse.)

So overdiagnosis? I’m not sure. Misdiagnosis I can imagine. I think there are a lot more people with emotional intensity rather than ASD/ ADHD (not clients but people I know socially). But no one is paying privately to get a ‘personality disorder’ diagnosis, because of the stigma, despite the fact that it is still a condition which you had no control over, and usually the result of trauma which also wasn’t your fault.

People don't need to pay to get a personality disorder diagnosis, because the NHS hands them out with ease. Perhaps because they can then dismiss traumatised people as "not mentally ill" and thus no service needs to be provided. More charitably, perhaps services are still way behind in terms of recognising neurodiversity, especially in women, as well as generally having a really narrow and medicalised view of how people "should" think, feel, and function. Whatever the reason, it is extremely common for women to be misdiagnosed as BPD whilst autism is ignored, not the other way around.

In terms of PIP it is near impossible to get PIP for anything that isn’t significant mental health. I know people in psychiatric hospitals for stays of over six months who have been declined. The proposed changes will make it impossible almost.

Agreed. Especially bad as people need it to pay for therapy that isn't available from the NHS.

Rather than carry on as we are, we need more trauma informed, psychologically minded work coaches. We have one in our trust, one!! Because work is generally beneficial for our mental health, but building up tolerance is difficult.

Surely they need appropriate therapy, to get to a stage where they can go back to work? Not just be encouraged to take step ten without addressing step one.

Agree that once they have had a chance to recover to a sufficient extent they should have access to specialist support to help get back into the workplace. But that shouldn't be from MH services - it risks people being pushed into work before they're ready, or as sounds like the case, pushed towards work rather than actually getting treatment. It shouldn't be an NHS outcome/aim to get people to work - doesn't seem fair on staff either. It also creates a perverse incentive to take on only the most work-ready patients so that a "successful outcome" can be met quickly, whilst those needing more help will be denied treatment as they cost a lot and appear as an "unsuccessful outcome" on paper.

I used to be a mouthy angry young woman and I would quit jobs if someone told me I took too long on my lunch break. I needed someone to validate my rage but let me think through my options. Think about the cycle of quitting and then regret and self loathing, think about self harm and how this was a bit like that too. I needed someone to show me why I thought and acted the way I did in the context of the work place and how to rewrite my brain and change that behaviour/ cycle through understanding why I did it.

Not everyone is the same as you. What about those who aren't "mouthy and angry" but are breaking down, in emotional pain, sent home by managers, actually unable to do their job, not just walking out?

And how, exactly, is someone supposed to explore why this is happening for them, why they are struggling so much, if you don't think they should have in-depth therapy? You seem to be promoting a CBT style approach, which isn't suitable for those who cannot even get through the day due to complex trauma.

This is what happened to me. I actually went to the NHS to get therapy as I knew the awful feelings I had related to my past. At the time I had no idea how much had affected me, how long it would take to unpick. I know, however, that if I'd been able to access therapy, rather than a punitive blaming approach from services, it would have been a lot quicker.

The thing that helped me wasn't someone banging on about changing thought processess, with only a cursory nod at the past (I already tried to do that myself). What helped was actually being able to explore the feelings, the past, have insight, more memories surfacing, and being treated with empathy and like I mattered. That way I could have real insight, and somehow, feeling empathy from another whilst in tears recounting past experiences made the nightmares go away, and the memories stopped having an overwhelming emotional impact.

A diagnosis such as ‘adhd’ does not mean someone has done that critical thought analysis/ reflection work. So in some ways it does do them a disservice.

Yes, but they need the diagnosis to be able to accurately understand themselves in context. Finding out I'm autistic was life-changing, it helped my healing process so much. Not to mention understanding the present and future better too. And this is without any specific support after being diagnosed.

Yes, people should be able to go through the work of reflection and analysis. This is important. I don't know about ADHD, but people with autism are often excluded from MH services, as if everything is "explained" by the diagnosis but no method of accessing appropriate therapy for the mental health side.

However, you don't appear to want them to have appropriate therapy, from your other comments.