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Changes to PIP

345 replies

Orangesandlemons77 · 16/03/2025 12:45

It looks like to qualify for PIP people will need 4 points in one area, see here from the Times
"In future, ministers will require applicants to score at least four points on at least one activity to qualify"
Not sure if this means in each section (care, mobility)

This would exclude quite a few people I think

OP posts:
Thread gallery
5
lifeturnsonadime · 18/03/2025 13:39

Lyannaa · 18/03/2025 13:23

OT has always been a very scarce resource. You can’t just get on a waiting list for it either. So much ignorance 🙄

The other thing about OT Is that it varies region to region.
Our area does offer sensory integration to autistic children but ONLY if they have motor issues as well.

So I have two children with severe sensory processing issues that are disabling but only the one who is also dyspraxic is entitled NHS support. The other has to pay private.

Same with access to CAMHS for anxiety locally, no access for autistic children.

There is tons of ignorance on here.

My son went from school refusal and mental health disorders (didn't leave the house for years and didn't attend any of school from year 6 -11) to now living away from home at university precisely because we were able to access benefits which funded private treatments where there are gaps in services.

Does this government think that depriving benefits is good for the economy in the long run? If we'd left our son to it without support he'd likely still be sitting in his room refusing to eat. Now he's likely able to fully function and won't be reliant on benefits.

I know that he is a success story but attacking the disabled without having adequate healthcare and education services in place is woefully misguided if it is intended to achieve economic benefit.

I can't quite believe that this Labour government has abandoned it's core values to do this.

Whatafustercluck · 18/03/2025 13:43

Lyannaa · 18/03/2025 13:23

OT has always been a very scarce resource. You can’t just get on a waiting list for it either. So much ignorance 🙄

Indeed. Our dd has been referred by paediatrics. We (her parents) were instead invited to a parents workshop. At the end, we were told it was the last session of its kind they would be holding due to lack of resources. So I'm surmising that neither one to one, nor groups, support is now being provided in our area.

As it happens, we did pay privately for OT in the end. And before someone shouts at me about us using benefits to pay for a private service, it came out of our own pocket. However, I'm aware that we're fortunate in our financial situation and certainly wouldn't begrudge another family in our position paying privately from benefits in order to get their child the support they need to attend school.

RejoiceandSing · 18/03/2025 13:48

iwentjasonwaterfalls · 18/03/2025 13:32

I like that people will be able to work a bit without losing their benefits - I hope that goes hand in hand with more support in the workplace, understanding of absences etc.

Scrapping LCWRA is scaring me; I need that to be able to pay my rent etc. My rent goes up by £100 in May; my council tax is over £200 a month. I don't understand what benefit there is to scrapping LCWRA when it's for those who are least able to work? Or is there a "top up" somewhere else that I'm missing?

From what I could work out, there will be a 'health element' to UC, which you qualify for only if you qualify for the daily living component of PIP.
So, sneakily, they're using the reduced scope for PIP (now need 4 points in a single area to get Daily Living) to also affect the new version of LCWRA.

Sorry if that's more stressful x

lifeturnsonadime · 18/03/2025 13:48

I paid privately for private services out of benefits for my children.

And why not? If the public services are inadequate and the child needs support, that's what DLA is for!

Locutus2000 · 18/03/2025 13:51

iwentjasonwaterfalls · 18/03/2025 13:32

I like that people will be able to work a bit without losing their benefits - I hope that goes hand in hand with more support in the workplace, understanding of absences etc.

Scrapping LCWRA is scaring me; I need that to be able to pay my rent etc. My rent goes up by £100 in May; my council tax is over £200 a month. I don't understand what benefit there is to scrapping LCWRA when it's for those who are least able to work? Or is there a "top up" somewhere else that I'm missing?

They did say the reduction in LWCRA is for new applicants, it will be frozen for existing claimants.

Whatafustercluck · 18/03/2025 13:51

lifeturnsonadime · 18/03/2025 13:48

I paid privately for private services out of benefits for my children.

And why not? If the public services are inadequate and the child needs support, that's what DLA is for!

Completely agree. Particularly when it's clear that public services have been so badly damaged that there's little hope of improvement. I'll do whatever I can, however I can, to help my child to thrive rather than survive. Who wouldn't?

Willyoujustbequiet · 18/03/2025 13:53

9outof10cats · 18/03/2025 10:37

Are you saying that if no one ever prompted you to eat or drink you would starve to death? Would your children starve to death also because you need prompting to feed them?

What you describe sounds like the side effects of many conditions. I have struggled with fragile mental health for 40 years and take medication to manage it. My mood fluctuates massively, and when I’m feeling low, I often don’t feel like cooking, washing, or doing housework. It’s not that I’m incapable—I can cook, wash, and use a hoover—I just lack the motivation and desire to do it.

Sometimes I go weeks without making a proper meal, relying on coffee loaded with sugar for some energy.

But I don’t see myself as having a disability that the welfare state should compensate for. I’ve lived with this condition for so long that, to me, it’s just normal and something I manage myself.

I struggle to understand why someone like yourself with a good job, who has managed to give birth and parent children would claim that theoretically, you could claim PIP because you sometimes need prompting to eat and drink.

A serious eating disorder would be something like anorexia, where even with prompting, the person still doesn’t want to eat and faces a genuine risk of death or dysphagia following a stroke. Unless without prompting you would wither away and die I don't see that as a major disability that needs financial compensation.

You are clearly an intelligent woman whose cognition is intact so could easily use your mobile to set up regular reminders to eat/drink - it's not rocket science.

I acknowledge that you said you wouldn't apply for PIP but I wonder how many people like yourself would still apply out of a sense of entitlement.

I think there are too many people claiming to have a disability for minor conditions that with a bit of common sense and planning could easily be self-managed but instead, they expect the welfare state to sort it out for them.

Autism and Adhd are not minor conditions .

The fact you can then go on to say a bit of common sense and would make them easily self managed is a breathtakingly ignorant comment about neurological disorders.

I'm presuming you wouldn't show the same kind of ableism towards Parkinsons or Multiple Sclerosis.

justkeepswimingswiming · 18/03/2025 13:54

Autism is NOT a minor condition. It might be for high functioning but it severely disables my son.

TigerRag · 18/03/2025 13:58

RejoiceandSing · 18/03/2025 13:48

From what I could work out, there will be a 'health element' to UC, which you qualify for only if you qualify for the daily living component of PIP.
So, sneakily, they're using the reduced scope for PIP (now need 4 points in a single area to get Daily Living) to also affect the new version of LCWRA.

Sorry if that's more stressful x

I won't be surprised if claims for pip go up. I mean long term you can't manage on just the basic UC

RejoiceandSing · 18/03/2025 14:02

TigerRag · 18/03/2025 13:58

I won't be surprised if claims for pip go up. I mean long term you can't manage on just the basic UC

I thought that. Seems poorly thought through.

justkeepswimingswiming · 18/03/2025 14:03

@RejoiceandSing no people would still need a minimum of 10 points to get pip but you’d need a single question with 4 points as well.

justkeepswimingswiming · 18/03/2025 14:04

If anything a lot of people will loose pip, and those who apply won’t get it under these new rules.

Willyoujustbequiet · 18/03/2025 14:05

Wildflowers99 · 18/03/2025 13:23

Well, that’s the changes laid out.

Under 22s won’t be able to claim health elements of benefits.

LCWRA to be scrapped, PIP only.

PIP eligibility to be narrowed.

People will be eligible to work a bit without losing their benefits.

JSA and ESA to be merged into a time limited new benefit.

What do you mean under 22 can't claim health elements?

So between leaving education and 22 severely disabled young adults just starve?

Whatafustercluck · 18/03/2025 14:20

justkeepswimingswiming · 18/03/2025 13:54

Autism is NOT a minor condition. It might be for high functioning but it severely disables my son.

And high functioning is only high functioning until you're no longer functioning at all due to unmet/ unmanaged needs. My then 6yo undiagnosed dd was 'high functioning' (I.e. no learning difficulties) until she completely shut down and could no longer leave the house, let alone get to school.

DaffodilsGalore · 18/03/2025 14:27

GabbySolisX · 18/03/2025 09:50

@Ohthatsabitshit I’m sure she said something along those lines! I’ll ask her again and report back.

Thats not PiP.
Housing element is part of UC

DaffodilsGalore · 18/03/2025 14:29

To the people wondering how it’s going to influence PIP.

I get daily living and enhanced mobility.
Daily living was 10 points so VERY close to enhanced. With the new ‘rule’, I get …. nothing
Enhanced mobility was 12 points on 1 question (there’s only 2 questions anyway) so I’m supposed to keep that.

Many people will get fucked by the system (which is the aim).

DaffodilsGalore · 18/03/2025 14:30

Willyoujustbequiet · 18/03/2025 14:05

What do you mean under 22 can't claim health elements?

So between leaving education and 22 severely disabled young adults just starve?

Yep.
Or the expectation is that mum and dad step up. No choice.

TigerRag · 18/03/2025 14:33

DaffodilsGalore · 18/03/2025 14:29

To the people wondering how it’s going to influence PIP.

I get daily living and enhanced mobility.
Daily living was 10 points so VERY close to enhanced. With the new ‘rule’, I get …. nothing
Enhanced mobility was 12 points on 1 question (there’s only 2 questions anyway) so I’m supposed to keep that.

Many people will get fucked by the system (which is the aim).

I'm in the same situation. Do that will mean I can't pay for the care my mum currently gives me. I'll have to go to social services and cost the government more. I don't expect my mum to do it for free especially as it costs her in petrol.

Well thought out, eh?

DaffodilsGalore · 18/03/2025 14:33

TigerRag · 18/03/2025 13:58

I won't be surprised if claims for pip go up. I mean long term you can't manage on just the basic UC

Nah.
I dint think claims will go up.

But social care cost will. Which is fine because it’s local councils that foot the bill so 🤷‍♀️🤷‍♀️🤷‍♀️
fwiw PIP was created for that reason - to move the responsibility of care from the SS in local communities to people because they could finance the help they need themselves.
So I’d expect a rise in claim for a PA instead for example.

Willyoujustbequiet · 18/03/2025 14:33

DaffodilsGalore · 18/03/2025 14:30

Yep.
Or the expectation is that mum and dad step up. No choice.

It's horrific.

They may have no family or a parent may exist on carers allowance having had to give up a career to look after them.

Talk about throwing the most vulnerable under the bus.

Normallynumb · 18/03/2025 14:41

I am shocked by the need to score 4 on one descriptor for daily living.
i have enhanced for both components at the moment as i have moderate CP
i score 2 points on most descriptors, excluding continence needs. I have many aids and adaptions, some bought from my pip, some provided by OT, wear clothing without buttons etc
i can imagine I may just scrape or lose even standard daily living.
Having said that, the green paper will need to pass first
im slightly confused about the combined contribution based ESA/ JSA too as I was placed in ESA group without need for further assessment
in my opinion Keir Starmer appears to be a sociopath.
Thinking of everyone who is worried about further challenges to daily life

Rosesinajug · 18/03/2025 14:45

Willyoujustbequiet · 18/03/2025 14:33

It's horrific.

They may have no family or a parent may exist on carers allowance having had to give up a career to look after them.

Talk about throwing the most vulnerable under the bus.

So under 22 won’t be able to claim pip?

sparkellie · 18/03/2025 14:51

Willyoujustbequiet · 18/03/2025 14:05

What do you mean under 22 can't claim health elements?

So between leaving education and 22 severely disabled young adults just starve?

If you have an EHCP education can go up to 25.
That's not to say I agree with the change, but hopefully it covers a lot of the young people who will otherwise fall through the gap.

Willyoujustbequiet · 18/03/2025 14:51

Rosesinajug · 18/03/2025 14:45

So under 22 won’t be able to claim pip?

I don't know, I just went off the PPs initial post.

But regardless if they can claim PIP but not UC health elements that means they will lose hundreds per month.

These are some of the most vulnerable people. If their families can't afford to support them they'll end up in the residential care system somewhere at a cost of thousands. Its madness.

Ohthatsabitshit · 18/03/2025 14:51

Normal transition from DLA to PIP is 16, how would it work if you can’t claim till 22??

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