Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Why is he not in school

205 replies

Jackanorystory1 · 28/01/2025 23:15

Cousin has an autistic (non verbal) son. He went to childcare 1 day a week whilst she worked and has now stopped. They mainly stay home each day.
Dad is not in the scene at all. They live in a high rise so have no garden. DS will be 5 in March and he has not yet started school so has no friends and no one to play with. She doesn't take him to any groups so he is with her all day every day.
6 months ago she had another baby. DD from the same man as DS1.
DS1 has not yet started school and when I asked her why she claimed that he didn't have a place. Now I'm under the impression that all children receive a school place.
This must be harming the child by keeping him at home all day and not mixing.
Is it not against the law to keep your child at home.
I really do not know what to do. I would like to ask her what is going on but she tends to fly off the handle so quickly. Aibu to think that this is harming her child.

OP posts:
mumofoneAlonebutokay · 29/01/2025 00:44

YoungGunsHavingSomeFunCrazyLadiesKeepEmOnTheRun · 29/01/2025 00:39

Op says that she had a home birth.... apparently.

So for the homebirth the boy was just there? And antenatal appointments that they don't usually allow you to bring a child? Doesn't fully add up tbh

Poor thing, she deserves all the support possible

Princessconsuelabananahammock9 · 29/01/2025 00:50

Being a special needs mom is exhausting.

You have stated you know nothing about it.

Stay out of it and just listen to her.

Spirallingdownwards · 29/01/2025 00:55

Jackanorystory1 · 28/01/2025 23:28

I work FT have children and live 45 mins away so I can give no help.

Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.

Surely school would be beneficial for him.

You do realise depending on his level of autism there may not be a place available at a school that are able to meet his needs. This is unfortunately more common than many realise.

I do hope that your poor cousin realises how judgmental you are of her/her child and doesn't keep you informed of their personal situation anymore. She can do without that type of crap in her life

SeaUrchinHat · 29/01/2025 01:01

I work FT have children and live 45 mins away so I can give no help.
Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.
Surely school would be beneficial for him.

Yes OP, of course school would be beneficial to him - but only if it was the right school. Unfortunately, as others have pointed out, that school is not easy to find. Your feelings on the matter are thankfully irrelevant, bearing in mind you don’t seem remotely inclined to offer support to your relative. The time you’ve spent posting on here is time you could’ve used chatting with your cousin to see if there’s anything you can do to make her life a little easier. I’m glad you’re not my relative.

BobbyBiscuits · 29/01/2025 01:04

Maybe he needs a highly specialist Send school, and it's true there is no suitable place. If he's non verbal then he wouldn't be placed with verbal kids as he'd get left behind. He would need a different type of learning. Has he got an EHCP?

Could you try and help her find something suitable for him, or offer to take the child out at least? If you start acting judgemental she'll get really scared and withdraw from you. Nobody wants to feel like they're being seen to be less than perfect as a parent.
If you really care then try and look at it constructively and how you can be supportive to them as a family.

notatinydancer · 29/01/2025 01:08

Jackanorystory1 · 29/01/2025 00:15

@Seaside31 I couldn't contact them as they may remove them from her. They are healthy and fed and loved with no danger present. She does not drink smoke do drugs or have anyone around them like that. Those were not my concerns.

They wouldn't remove them if all is as you say.

whitbywaves · 29/01/2025 01:09

It took me nearly 18 months to fight for a place at an appropriate school for my son who suffers from autism and additional physical issues. In the meantime the local schools were unable to support his needs therefore he had to stay home. Eventually I researched an appropriate school that could meet his needs and took the local educational authority to a tribunal to get him a place. I wonder if my friends and family were judging me during this time?

Now my son has reached adulthood, I am a foster carer for young people with complex needs and am appalled at the length of time it can take to find a school, even when theoretically a looked after child is given priority.

Jimmyneutronsforehead · 29/01/2025 01:09

Jackanorystory1 · 28/01/2025 23:15

Cousin has an autistic (non verbal) son. He went to childcare 1 day a week whilst she worked and has now stopped. They mainly stay home each day.
Dad is not in the scene at all. They live in a high rise so have no garden. DS will be 5 in March and he has not yet started school so has no friends and no one to play with. She doesn't take him to any groups so he is with her all day every day.
6 months ago she had another baby. DD from the same man as DS1.
DS1 has not yet started school and when I asked her why she claimed that he didn't have a place. Now I'm under the impression that all children receive a school place.
This must be harming the child by keeping him at home all day and not mixing.
Is it not against the law to keep your child at home.
I really do not know what to do. I would like to ask her what is going on but she tends to fly off the handle so quickly. Aibu to think that this is harming her child.

To offer a different perspective.

My son is almost 6 and should be in year 1. He got held back in reception. He has a 121 but on his EHCP he was granted no funding and it's an absolute slog trying to get that changed or get the LA to agree to specialist provision. Specialist provision costs the council roughly 90k a year and then my son would need transport with a chaperone, this could cost a further 60k. In the entire first year of school my son made no academic progress. On the last day of term all the other kids came out with bags and bags of books they'd filled with work. My son came out with a single piece of paper covered in glitter.

He has the opportunity to have social interactions but nobody else's kid wants to play with a child who can not delay gratification so won't share, can't communicate verbally so cries, hits, pushes and throws, and my son understands what is going on and that others don't want to be near him and he feels lonely. He can't sit and eat with them in the dining hall because he can't cope with the noise and constant changing environment.

This year he has developed emotionally based school avoidance, and although he doesn't have many words in his vocabulary he can say he has no friends and that school is too scary. He has found the words to tell me that. He still hasn't found the words to tell me what he wants for tea on Thursday or how PE went on Monday but the words were important enough to him to be able to tell me 2 important factors that make him anxious about school.

Then there's a safeguarding point of view. My son needs help going to the bathroom. He couldn't tell me if there was a new staff member he didn't trust or if anyone had touched him inappropriately. He's the perfect target for abuse.

He also elopes, which happens when he's scared, happy, frightened, overwhelmed etc and he will destroy whatever is in his way to do so.

If placing him in mainstream wasn't an important step in getting his EHCP so we can fight for specialist school, I wouldn't have put him in there in the first place but I can't offer any sort of curriculum at home as he doesn't see home as a place for learning, and he can't often follow adult led tasks.

Due to his EBSA, we are late or often don't get in at all, and no sooner than I am in the front door am I called to collect him as he is in so much distress.

Please do not judge the parents of SEN children if they delay starting school or choose to homeschool their children as its a fraught, guilt ridden decision where there's no right answer and both have pros and cons, but ultimately the decision is about what is best for each child's safety.

I never could have foreseen the trauma that school causes for my child until it's already happening. I wish I could turn the clock back and not put him through it but there's no other way to get the LA to take the need for specialist provision seriously.

Jimmyneutronsforehead · 29/01/2025 01:15

Oh not to mention he does not sleep to a normal timetable. How on earth can you expect a child who goes to sleep at 3am to get to school for 8:45am.

Sleep issues and autism go hand in hand and even if you can get your hands on melatonin which is still incredibly hard, getting a child with extreme sensory needs and aversions to take something they aren't used to is like herding cats.

DevilledEgg · 29/01/2025 01:20

Jackanorystory1 · 28/01/2025 23:28

I work FT have children and live 45 mins away so I can give no help.

Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.

Surely school would be beneficial for him.

Make an effort in your free time then. Meet halfway

mnreader · 29/01/2025 01:30

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

TipsyJoker · 29/01/2025 01:35

Jackanorystory1 · 29/01/2025 00:15

@Seaside31 I couldn't contact them as they may remove them from her. They are healthy and fed and loved with no danger present. She does not drink smoke do drugs or have anyone around them like that. Those were not my concerns.

OK OP, I’m going to try and answer your question as kindly as possible and explain a few things that might help you understand this particular situation. I have some experience in this area as I have a SEN AuDHD child and I home educate.

As pp have said, places at SEN schools are extremely difficult to get, so maybe your cousin hasn’t been able to secure a place. Or perhaps she doesn’t want to send him to a school because she doesn’t think it’s the best option for him. Home education has the same legal standing as schooled education in the UK. In fact, home education is the default and school is an opt in service. Given that your nephew is non-verbal, I’d imagine that mainstream school wouldn’t be the best place for him. Also, schools can be very difficult places for ASD children due to sensory issues like bright lights, too many people, too much noise, transitioning from one task to another can be difficult for ASD children and they can also struggle to engage with lessons that they aren’t interested in or engage socially with classmates and staff. Children can be overwhelmed in these environments, become dysregulated and have traumatic meltdowns. They can be easy targets for bullying and if they’re non-verbal, they can’t speak up about any of these things. This can be a major concern for parents of ASD kids.

Similarly, public places like supermarkets, clubs, etc can difficult to manage for ASD children for the same kinds of reasons. This makes it difficult to take them out and engage in activities. Some ASD thrive better in their own environment where they feel safe and sensory problems can be controlled better.

Home education doesn’t have to look anything like schooled education. The child doesn’t have to follow any curriculum or produce any physical work. They can, but it’s not legally required. Children can learn through completely experiential, hands on learning for example, instead of sitting down and doing worksheets, etc. It doesn’t have to follow school hours/days/terms, children don’t have to do tests or assessments. What it does have to be is full time and suitable to the child’s age, ability and aptitude. So, many parents who home educate ASD and SEN kids will follow their children’s interests in order to facilitate their learning. They will use modern tech like online apps for learning all sorts of things from English and maths to music and health and wellbeing. Some children might be very in to animals for example and the parent might use this love of animals to engage the child in their learning.

So, maybe your cousin is educating your nephew according to his abilities at this time. Education comes in many forms. Even reading to a child is education. Watching a nature documentary is education. Listening to podcasts is education. Playing with play dough is education. Colouring in is education. And so on. So, whilst you might not see the value in what they are doing, that doesn’t mean your nephew isn’t learning and developing.

You say there are no safeguarding concerns. That’s great. Home education is not a safeguarding issue. Most children are safest when they’re with their parents who love them more than anyone else and know them better than anyone else.

I think it might be useful for you to read up a little bit on ASD and SEN because it might help you understand your cousin and nephew a little better. And maybe you shouldn’t bring up these issues specifically but just be a supportive ear for your cousin who sounds like she has a lot of on her plate and is doing a great job of making sure her children are well looked after, (no safeguarding concerns).

I appreciate it can be worrying when you don’t understand the situation, the child’s needs and how education doesn’t have to be delivered through a school environment, but you say the children are safe, clean and fed and properly cared for and that’s what’s most important here. Be non-judgmental and supportive. That’s the best thing you can do for this little family.

MountainMomma26 · 29/01/2025 01:42

Jimmyneutronsforehead · 29/01/2025 01:09

To offer a different perspective.

My son is almost 6 and should be in year 1. He got held back in reception. He has a 121 but on his EHCP he was granted no funding and it's an absolute slog trying to get that changed or get the LA to agree to specialist provision. Specialist provision costs the council roughly 90k a year and then my son would need transport with a chaperone, this could cost a further 60k. In the entire first year of school my son made no academic progress. On the last day of term all the other kids came out with bags and bags of books they'd filled with work. My son came out with a single piece of paper covered in glitter.

He has the opportunity to have social interactions but nobody else's kid wants to play with a child who can not delay gratification so won't share, can't communicate verbally so cries, hits, pushes and throws, and my son understands what is going on and that others don't want to be near him and he feels lonely. He can't sit and eat with them in the dining hall because he can't cope with the noise and constant changing environment.

This year he has developed emotionally based school avoidance, and although he doesn't have many words in his vocabulary he can say he has no friends and that school is too scary. He has found the words to tell me that. He still hasn't found the words to tell me what he wants for tea on Thursday or how PE went on Monday but the words were important enough to him to be able to tell me 2 important factors that make him anxious about school.

Then there's a safeguarding point of view. My son needs help going to the bathroom. He couldn't tell me if there was a new staff member he didn't trust or if anyone had touched him inappropriately. He's the perfect target for abuse.

He also elopes, which happens when he's scared, happy, frightened, overwhelmed etc and he will destroy whatever is in his way to do so.

If placing him in mainstream wasn't an important step in getting his EHCP so we can fight for specialist school, I wouldn't have put him in there in the first place but I can't offer any sort of curriculum at home as he doesn't see home as a place for learning, and he can't often follow adult led tasks.

Due to his EBSA, we are late or often don't get in at all, and no sooner than I am in the front door am I called to collect him as he is in so much distress.

Please do not judge the parents of SEN children if they delay starting school or choose to homeschool their children as its a fraught, guilt ridden decision where there's no right answer and both have pros and cons, but ultimately the decision is about what is best for each child's safety.

I never could have foreseen the trauma that school causes for my child until it's already happening. I wish I could turn the clock back and not put him through it but there's no other way to get the LA to take the need for specialist provision seriously.

@Jimmyneutronsforehead Im so sorry. This sounds so hard xx

MrsJHernandez · 29/01/2025 01:49

The British government should be ashamed for inadequately funding schools for SEN children. There seems to be a huge need for them.

They use millions of taxpayers money for overseas aid to line the pockets of corrupt governments. How about we look after our own first?!

It's shameful.

Topsyturvy78 · 29/01/2025 02:11

DrCoconut · 28/01/2025 23:40

As for "she doesn't take him to any groups". Groups aimed at disabled children are very thin on the ground and many parents of NT children don't want disabled kids at "their" groups, not really. You only have to read some threads on here to see how horrible and judgmental it gets. I'd bet she's tried and felt too unwelcome to go again.

Not true I took both my DC to toddler groups and messy play. 1 of the volunteers has a daughter with CP herself. There was talk of a group for autistic children but it never happened. It's not like the older days when they were kept hidden away to be ashamed of.

Hoover2025 · 29/01/2025 02:22

Ok well if this is legit then I really think you need to trust your instincts on this one.

You know your cousin. You know this child.

If you have concerns then you should raise them with someone who can advise in real life. I’m not sure who exactly that is but hopefully someone will come on and give suggestions.

Starlight7080 · 29/01/2025 03:24

Non verbal autistic child is very different to a regular 5 year old.
You sound very ignorant to how difficult it can be to do regular things with autistic children.
My now teen asd child has probably only been in a supermarket maybe 30 times in her lifetime . As soon as she saw a shop as a toddler she would start crying and becoming distressed. So why would I force that on her.
That's just one example of how you have to adjust your life for autistic children.
And I homeschool her as like so many sen parents a school placement was impossible to find . You sound very judgemental .

NiftyKoala · 29/01/2025 03:30

Hopefully she is able to get him a placement somewhere. So he will atleast be out and she will get s bit of reprieve. It sounds very hard. Maybe to help you could do some research on possible help she can get. Sometimes when you are in the middle of it I think looking for help can be so overwhelming.

Iloveburgerswaymorethanishould · 29/01/2025 03:33

OP, the fact you’re posting on here shows you care… my youngest daughter (15) has severe ADHD but hates not feeling “herself” and doesn’t see why she needs to fit in just because society says you have to act a certain way. So doesn’t take her tablets… she is who she is. It’s taken me from Y7 until now (with 4 behavioural school placements failed) for me to finally get her in a specialist setting. She missed 10
weeks of school for this offer to be made. She started this week and just that one session has got her back loving school… this was organised by someone called a children’s champion. Maybe kindly, if you want to help and it sounds like you do, mention children’s champions to your cousin. I didn’t know they existed but they have been brilliant with my family. If someone had said to me long ago, have you heard about….. etc etc things could have been sorted before this I’m sure. It’s the small things that help you know. When you pop round, take a small colouring book for the child and maybe a bath bomb or cupcake or
something for your cousin. Little
actions like this say more than words probably could. All the best to you all.

Imbusytodaysorry · 29/01/2025 04:07

Jackanorystory1 · 28/01/2025 23:28

I work FT have children and live 45 mins away so I can give no help.

Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.

Surely school would be beneficial for him.

You clearly have no idea what you are talking about. You can’t and won’t offer support just judgements on stuff you know nothing about .
Your original post shows that.
When you have spent time researching in depth on autism and support in an education environment then you can comment. .

PreferMyAnimals · 29/01/2025 04:13

Jackanorystory1 · 28/01/2025 23:28

I work FT have children and live 45 mins away so I can give no help.

Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.

Surely school would be beneficial for him.

None of those things need to stop you offering some support.

If she's not educating, then she may have been given professional support to delay the start of school, or may be waiting for a place.

He doesn't have friends. Well, non-verbal children often have trouble with making friends in the first place.

I'm sure she is doing her best, on her own, with little support and many people around who will judge her and 'know better' than her.

She's got a hard road and is working harder than most, I'm sure.

BackoffSusan · 29/01/2025 04:15

Best to educate yourself on autism OP as you seem to be completely ignorant. Sounds like he has additional needs to an extent that he will require a specialist school which is hard to find. I imagine your cousin is struggling without any support. My son has high functioning autism and life feels pretty hard. He hates leaving our home or any transition. That doesn't mean he keep him home all day but it also doesn't mean it's harmful to keep him at home when he wants to stay inside. Some autistic children will find what seems like the simplest thing, to be the hardest thing. Every day getting dressed, eating, leaving the flat to go to school....are all a battle. So whilst it might seem unfathomable to you that your cousin isn't taking her child out as often as you think she should, it is probably for very good reason. I don't know her financial circumstances as you haven't said but there are specific SEN activities that your cousin could take her child to, but it costs money and I suspect with a 2nd child she will need someone to help.

3tumsnot1 · 29/01/2025 04:23

Skipthisbit · 29/01/2025 00:06

Ffs … child dies from neglect or abuse and MN is full of how did it happen, what about family, why did no one do anything.
Poster asks advice about if it’s normal not to have a school place and the reaction is non of your business, stay out of it etc

Children with SEND are exponentially more likely to suffer abuse or neglect either deliberately or because parent(s) can’t cope.

But yeh just stay out of it, say nothing and don’t question anything 🙄

This

FFS she has come on here to ask for support and raise legitimate concerns. Not just for the child but her cousin who is getting no support. Sounds like the entire world has forgotten about this family. Why is everyone having a pop at her?
she as said several times she doesn’t know the SEND issues, so help her - give some constructive help and advice ??

fallingupwards · 29/01/2025 05:09

Jackanorystory1 · 28/01/2025 23:28

I work FT have children and live 45 mins away so I can give no help.

Im worried for the child's welfare being stuck at home all day everyday with no one else other than his mother & a baby.

Surely school would be beneficial for him.

You are ignorant to the state of education for SEN children in uk at the moment. My then five year old was off-rolled from his independent school and there were no state school places. When we finally got a place it was inappropriate and after doing a full ehcp dance I realise our only option is home ed. Actually it's going well for my son. I'm the least likely person to home ed but I'm forced in this position. We are just starting to enjoy it. I've spoken to three parents this week from his original independent school and both parents and children are very stressed and upset by the pressure of school. They are 5/6 years old. Your cousin may be doing the best thing for him. Don't judge by out of date opinions. SEN kids can take longer to be ready for these things even if academic and smart.

ACandleOnAGinBottle · 29/01/2025 05:20

I think it's really good that you are thinking about this family and expressing concern, but perhaps try to look at it from a different perspective, and see what support you can offer mum, even if it's just a listening ear now and again.

As others have explained, her situation is very difficult and complex, and your judgement and ignorance will add to the heavy load she is already carrying. Don't get me wrong, before I became involved in SEN issues through work, I knew nothing about what other people go through and was just as judgemental through ignorance. The reality of what some families go through shocked me to the core, and some pp have explained their own realities here, so pay attention.

I am curious about the role of the father in all this, as he hasn't been mentioned I don't think.