Being a late diagnosed autistic adult woman, single parent, to an autistic child.
I'm not even 30, but I feel like I can't go on at work.
I work from home, I work part time, I'm entirely in control of my environment, but I feel like workplaces purposefully put barriers in place to weed the weak and disabled out.
My current employer routinely does an annual business reshuffle, will only approve 12 month flexible working agreements for people, and then declines the renewals on business grounds and you have to put up a massive fight to try and get your needs met again.
I just don't have the fight in me any more to explain over and over again why it's important I get my needs met, and that I'm not just being that woman.
This is the sixth job in my adult life I've had to justify this, and even when I win, it's not enough. The accomodations allow me to just about keep enough stamina to camoflage so my disability doesn't disadvantage any one else.
I've tried office work, I've tried working from home, I've tried retail work, I've tried service work, I've tried a lot of different kinds of work and I just can't do it.
On top of that, my son isn't in school full time, and even if he were I'd need wrap around care which he's unlikely to get approved for because he's got quite significant support needs as he becomes overwhelmed easily and has no sense of danger and is extremely resourceful and cunning, but with very little reciprocative language, and he definitely couldn't tell an adult about me or his caregivers if he was ever lost.
I obviously didn't plan on becoming a burnt out single parent, and before I got pregnant I didn't know I was autistic, I just thought I had a lower resilience than other people and I could just try harder and eventually I would be ok.
There's no support out there. I don't think I meet the requirements for PIP, I'm on universal credit but because I'm part time, and off sick with burnout again, they're keen to get me job hunting with weekly visits to an illuminated office with people who don't care about me or my circumstances to be penalised if I fail to comply.