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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Aibu to feel I can't cope with dh illness

799 replies

cakedup · 30/03/2024 15:53

I am menopausal so happy to consider this as a factor. Also ds is having mh problems which has been very upsetting.

Been with dp for 5 years, live apart, love him very much. In last couple of years he was diagnosed with a condition which has had a huge impact on his life. I'm living in constant fear that he'll die (possibility of happening anytime and he is unlikely to have longer than 10 years).

Very difficult to manage as not living with him. He stayed with me during covid which caused big problems in our relationship so don't think we can ever live together. But he shouldn't really be living alone, he is not coping. Doctors say he does remarkably well considering the pain and discomfort he is in, he is a very strong character, not a man flu type of person at all. But in a way he makes things worse for himself, many times he has been advised to go to hospital but doesn't.

I stay at his house twice a week. I hate his house, he is a hoarder and it's filthy. I am confined to one room + bathroom. Because of his medical condition I try my best to accommodate him being calm and happy as agitation can bring on symptoms. This means putting my needs aside a lot of the time.

When I'm at home, I have the phone line open to him from 8am - midnight, making sure he is OK, not having seizures etc. I feel I get very little privacy because of this. He is there in the background when I am on work calls, talking to my son, eating lunch etc etc

I used to love my work but no longer do because a lot of the public facing stuff which i loved I can no longer do due to dp having low immunity. I have not spoken or seen friends in over a year and had very little contact with family, theres just been no time. Not helped by the fact that dp constantly criticises both my work and friends, and specifically my mum as they have fallen out (her fault afaic).

He is understandably fed up with his illness and lashes out at me sometimes. For example when he was with his gp and wanted to ask me a question, i didnt get back to him for 12 minutes (i was in a work meeting) so he shouted at me.

Otherwise when able to be, he is very caring and loving. He will do things to make me happy. But feel like most of everything is on his terms. For example if i want to leave his house by 10pm on sunday night so that i travel home for an hour, get a few things done and get to bed at a decent time. But often he doesn't want me to leave so I stay till midnight. He is dominant as it is, wanting things his way and now because of his illness its hard to say no.

He has told me this is no way for him to live, he was extremely able before illness and now has little quality of life. Even talked about assisted dying. It is heartbreaking seeing him like this.

OP posts:
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MissAmbrosia · 30/03/2024 18:20

The open phone line thing is just ridiculous and so unnecessary! He has you where he wants you - under total supervision. Have you even seen any medical notes? Just ditch him and live your life! Please!

Iizzyb · 30/03/2024 18:20

With the best will in the world you need to set some boundaries.

No need to have the phone line open all day. If he really is so illl that he needs to be watched constantly he needs to be somewhere else.

This all sounds incredibly unfair for you and I really think you should consider having more of a life for yourself op. We only have one after all xx

HippyCritical · 30/03/2024 18:21

I haven't read the full thread thoroughly @cakedup , mainly your posts so apologies if this has been suggested already, but one thing I'm wondering is do you know for certain that his illness is exactly as you think it is? The things you are saying about his controlling behaviour is making me wonder if he could be weaponising some of his condition.

takemeawayagain · 30/03/2024 18:22

He sounds awful and you sound like his carer. Are you married? You say DH in your title. Why on earth would you marry someone you can't even stand living with? This sounds like an awful excuse for a relationship.

Did you have some kind of caring role as a child that you felt obliged/guilted/manipulated into? It's the only reason I can think of that you would think this was any way normal or good.

FloatyBoaty · 30/03/2024 18:23

Your phone is “open” 8am- midnight!? As in- he is there on the phone?!

That is the most batshit thing I’ve ever heard. Ever. It sounds controlling and abusive.

I can think of 100 ways for him to be “kept awake” and not one of them needs you to be on the phone all fucking day.

And if he’s going to the theatre and the cinema? He’s not that vulnerable, or he’s not that bothered about being vulnerable. Sorry, but he’s not. He’s using this “illness” (btw do you have proof of it?) to control you. Run.

DownWithThisKindOfThing · 30/03/2024 18:23

I think you should split up. Ill or not he doesn’t sound a nice person. 10 years is a long time to continue to be miserable. As for him he’ll carry on as he is with or without you by the sounds of it.

cestlavielife · 30/03/2024 18:25

P s if dignitas is what he wants maybe that is the way to go? His choice . If he genuinely has a terminal condition. Why are you against it?

Plus he has money
He can find and fund a rota of carers

You need to decide to focus on your family or not

TheShellBeach · 30/03/2024 18:26

There's no point anyone suggesting cleaners.
Hoarders can't bear them.

Ilikewinter · 30/03/2024 18:30

Im trying to find something helpful or constructive to say, but I cant. This situation is totally batshit. Ive read some crazy situations on MN but NEVER one where you have to have an open phone line to your DP from 8am to midnight. I mean come on, what the AF.

GreenAnt23 · 30/03/2024 18:31

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

SecretDoor · 30/03/2024 18:33

I am a HCP and cannot think of any condition that fits this set up

DownWithThisKindOfThing · 30/03/2024 18:33

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

How is she greedy?

And how is she also not helping him?

She does everything including having him eavesdropping on her 18 hours a day while he does nothing expect lie around in smoke filled squalor and self pity. He’s repulsive

TheShellBeach · 30/03/2024 18:34

This reply has been deleted

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???
Are we reading the same thread?

PBandJ111 · 30/03/2024 18:34

Sorry but you’re an easy option to him and you’re being taken for a ride.

TheShellBeach · 30/03/2024 18:34

SecretDoor · 30/03/2024 18:33

I am a HCP and cannot think of any condition that fits this set up

Same here, and neither can I.

Noseybookworm · 30/03/2024 18:34

This sounds incredibly difficult and honestly I think it's unsustainable. You will run yourself into the ground OP and who will look after you? You need to make some changes as you are carrying too much on your shoulders. Can he look at outside help? Can you speak to Adult Social Services for support? It may well be that he needs some sort of supported living with a warden on site who can check on him regularly. I would try and limit the time you spend at his place and leave at a reasonable time so you get time to yourself also. Be firm and leave immediately if he starts being verbally abusive. You are not there for him to take his anger and frustration out on. Is there any sort of peer support group for his condition? It would be helpful if he were not so reliant on you. Sending you virtual hugs, you sound very caring but you need to look after yourself too 💐

TheShellBeach · 30/03/2024 18:35

OP what terminal health condition has he got?

Nanny0gg · 30/03/2024 18:36

cakedup · 30/03/2024 16:30

It's remiss of me not to say what he has given me and I think he'd be a lot better looking after me if it was the other way round. We've had lots of happy and fun times together, he has been very caring and supportive in many ways. He makes me feel very loved, he is very thoughtful...except when he is not I suppose, but that applies to us all. He is not completely selfless and I wouldn't expect that.

Whilst his life is never what he wanted or expected and it must be awful to live in constant pain, why does that mean that yours has to be unbearable too?

He is imposing on you almost more than if you lived together and he expects you to live some of the time in his hovel

I think for everyone's sake you need to split

Nanny0gg · 30/03/2024 18:37

cakedup · 30/03/2024 17:01

Part of his condition is drowsiness and if he falls asleep for too long his symptoms get worse. So it's down to me to keep him awake. This goes on for most days.

No it's not down to you.

It's really not.

What would happen if you weren't around?

Nanny0gg · 30/03/2024 18:38

This reply has been deleted

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Are you on the right page?

Where does 'greed' come from?

GreenAnt23 · 30/03/2024 18:39

DownWithThisKindOfThing · 30/03/2024 18:33

How is she greedy?

And how is she also not helping him?

She does everything including having him eavesdropping on her 18 hours a day while he does nothing expect lie around in smoke filled squalor and self pity. He’s repulsive

He’s got a mental illness it’s not his fault

You don’t just abandon the people you “love”

mynameiscalypso · 30/03/2024 18:39

Have I understood this right? He makes you stay on the phone with him from 8am - midnight every day just in case something happens?

GreenAnt23 · 30/03/2024 18:40

Nanny0gg · 30/03/2024 18:38

Are you on the right page?

Where does 'greed' come from?

Bad word choice sorry

GreenAnt23 · 30/03/2024 18:41

DownWithThisKindOfThing · 30/03/2024 18:33

How is she greedy?

And how is she also not helping him?

She does everything including having him eavesdropping on her 18 hours a day while he does nothing expect lie around in smoke filled squalor and self pity. He’s repulsive

When she stops coping she won’t be helping

uf she truly cared she would try to get professional help.

DomingoinLittleOakley · 30/03/2024 18:42

I rarely comment on other people's relationships, but look at what you have said OP. What would you say if a friend or loved one said these things about their partner?

  • I hate his house, he is a hoarder and it's filthy
  • putting my needs aside a lot of the time
  • I have the phone line open to him from 8am - midnight… I get very little privacy because of this
  • I have not spoken or seen friends in over a year and had very little contact with family
  • dp constantly criticises both my work and friends
  • lashes out at me sometimes … i didnt get back to him for 12 minutes (i was in a work meeting) so he shouted at me
  • most of everything is on his terms
  • he is very thoughtful...except when he is not
  • despite his health he will drink and smoke … he chain smokes in the main room I am in when there
  • it's down to me to keep him awake
  • I have no space or time in any given day for them. I'm either with him or on the phone to him.

This is madness. You cannot continue like this, and you know it otherwise you wouldn't be posting here. You need to make space for your own life.

I am also very sceptical that his illness means you have to keep him awake for hours at a time or his symptoms get worse. I'm no medic but this sounds like absolute bullshit if I'm honest.

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