Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I’ve withdrawn from organ donation register

1000 replies

Purpledogcollar · 28/08/2023 22:04

I give blood and have always been very pro organ donation.

Sadly I have just withdrawn as protest against reproductive organ donation. I can’t support it and am very conflicted as would like to donate other organs.

What are your views and is it a hasty decision (although not sure I would change my mind).

OP posts:
Thread gallery
34
captainjacksparrow · 29/08/2023 18:33

user9630721458 · 29/08/2023 18:25

Does anyone know why it changed from opt in to opt out?

I believe it was because too few people were going on the system to opt in. In most cases it was one of those things forgotten about m, that people meant to do but never got round to etc so this was seen as an easier option, allowing those who felt strongly enough to log on and opt out

Sueveneers · 29/08/2023 18:33

Teder · 29/08/2023 18:23

I cannot express how convey enough how you have zero idea what it’s like to be in that position if you’ve been unfortunate enough
to be in it.

Elphame just said they lost a friend to kidney failure, so I think they have an idea. And they still hold fast to their principle.

Chersfrozenface · 29/08/2023 18:34

BillaBongGirl · 29/08/2023 18:08

You are already automatically opted out of all of that as they are nonroutine donations. The law is set up that way. The screen shot showing that was earlier in the thread from the NHS webpage that pp posted.

You can also file with your GP to get it added to your electronic records. You can let your NOK know your wishes. By law they have to have your or your NOK explicit consent and anything you have on file overrules anything your NOK say.

Legislation.gov

Organ Donation (Deemed Consent) Act 2019 -
Overview of the Act, para 3

"Organs and tissues that are to be excluded from deemed consent will be set out in regulations made by the Secretary of State. These will cover transplants that are currently rare or novel and many may not regard as normal to donate."

It's worth remembering that regulations made by Secretaries of State are not voted on by Parliament.

lifeturnsonadime · 29/08/2023 18:35

BadNomad · 29/08/2023 18:29

What do you think will happen to the uteri of women who don't click this problem-solving opt-out button? I mean, they've technically given permission for the organ to be taken and used, which will just further the research you're so opposed to. Whereas, the way things stand now, there isn't an option to use wombs. But you want to make it an option. Confused

I thought we didn't need to worry about this as it was never going to happen?

I'll go back to the basic premise. Consent should be informed and full.

The current situation is untenable for many women, some of whom are removing themselves altogether. I am sure a focus group of interested parties could come up with a solution to capture this issue.

Sueveneers · 29/08/2023 18:35

SuperNewMe · 29/08/2023 18:26

One persons opinion
That they think might be at least 10 years, if that
Does not mean it will be in 10 years.
I'm going with refusal to see to fit own world view

I'm going with refusal to see to fit own world view

I'm going with what is Denial for 500, Alex. You clearly refuse to see because seeing doesn't fit with your own world view. There are none so blind....

SuperNewMe · 29/08/2023 18:36

Sueveneers · 29/08/2023 18:29

I've already said, repeatedly, that I have no trust in them regardless.

That's a you problem then, as clearly no facts or reality will help as you "don't trust" whatever.

flaffydaffy · 29/08/2023 18:37

rowantree1997 · 29/08/2023 18:20

I opted out of 'all tissue' or however it's worded but opted in for specific organs of my choice.

https://www.organdonation.nhs.uk/helping-you-to-decide/about-organ-donation/tissue-donation/

This is what they mean by tissue. It's bits like bone and skin. It isn't a catchall term for "all organs not otherwise listed".

About tissue donation

Find out what it means to become a tissue donor and how you could help others by signing up to the organ donation register.

https://www.organdonation.nhs.uk/helping-you-to-decide/about-organ-donation/tissue-donation

lifeturnsonadime · 29/08/2023 18:37

Chersfrozenface · 29/08/2023 18:34

Legislation.gov

Organ Donation (Deemed Consent) Act 2019 -
Overview of the Act, para 3

"Organs and tissues that are to be excluded from deemed consent will be set out in regulations made by the Secretary of State. These will cover transplants that are currently rare or novel and many may not regard as normal to donate."

It's worth remembering that regulations made by Secretaries of State are not voted on by Parliament.

Thanks for this Cher, women have every reason to be concerned that they might, in the future, be deemed to consent.

Fififafa · 29/08/2023 18:37

BillaBongGirl · 29/08/2023 18:27

In the absence of an advance directive or NOK, remember you are legally opted OUT of all nonroutine organ donations and they cannot take your uterus or any reproductive organ. The other bits were for extra reassurance.

As I said earlier there is a trust issue. That’s the case as present but it doesn’t mean it won’t change in the future and some don’t want to be “inadvertently” opted in to reproductive organ or tissue donation. I don’t think adding another tick box would cost the millions that you claim it would.

user9630721458 · 29/08/2023 18:39

@captainjacksparrow Many thanks. I don't like this approach. I think it's a presumption to opt people in unless they object, personally.

Dutch1e · 29/08/2023 18:39

PhantomUnicorn · 28/08/2023 23:44

would you like some tinfoil to go with your paranoia?

I read that exact sentence years ago on the feminism board when one poster said that they truly believed it would not be too long before men were winning women's medals, living in women's shelters, and being sent to women's prisons.

flaffydaffy · 29/08/2023 18:39

lifeturnsonadime · 29/08/2023 18:25

It won't cost £1m to put an additional consent in.

Why do you want to deny women this reassurance?

Give it to them and you get more on the donor register.

All consent should be informed and freely given this solves the problem and gets more on the register.

That would NOT be reassuring. It would imply that uterus donation is something they do. People would see that on the form and think "eh oop they take reproductive organs now". But they don't so what function would it serve. They wouldn't be able to do anything with the information. A tickbox for aesthetic reasons.

lifeturnsonadime · 29/08/2023 18:41

flaffydaffy · 29/08/2023 18:39

That would NOT be reassuring. It would imply that uterus donation is something they do. People would see that on the form and think "eh oop they take reproductive organs now". But they don't so what function would it serve. They wouldn't be able to do anything with the information. A tickbox for aesthetic reasons.

If you say so.

Consent options can be drafted in a way that would reassure women. It would take some consideration on how it should be worded.

Why don't you think women should be given the option to refuse to consent?

Poppysmom22 · 29/08/2023 18:41

While I wouldn't want to donate anything while I'm alive once I'm dead they can crack on. I'd be delighted to think that my body which is only going to be thrown away gave someone else the chance at life and I would hope that knowing this would give my loved ones comfort especially as I am very accident prone and could easily 'waste' my life doing something mundane.

Sueveneers · 29/08/2023 18:42

Dutch1e · 29/08/2023 18:39

I read that exact sentence years ago on the feminism board when one poster said that they truly believed it would not be too long before men were winning women's medals, living in women's shelters, and being sent to women's prisons.

Yes. There is not one thing that hasn't happened that we were told we were being 'paranoid' about. Not one. Everything we were 'paranoid' and 'tin foil' about, has happened. Every...single...one.

Poppysmom22 · 29/08/2023 18:43

If in doubt about the gift that donation is please read the immortal life of Henrietta Lacks her cancer cells were unique and are still being used for cancer research today.

Teder · 29/08/2023 18:45

Sueveneers · 29/08/2023 18:33

Elphame just said they lost a friend to kidney failure, so I think they have an idea. And they still hold fast to their principle.

That is not the same unless they lived with that person throughout their illness or attended appointments, dealt with every aspect and was overwhelmingly involved with day to day life and death. If so, perhaps she’s in the tiny minority who would decline an organ transplant. Fair enough.

Most people only know a fraction of it, even if it’s a close friend. If you haven’t lived it, you don’t know.

lifeturnsonadime · 29/08/2023 18:45

Poppysmom22 · 29/08/2023 18:43

If in doubt about the gift that donation is please read the immortal life of Henrietta Lacks her cancer cells were unique and are still being used for cancer research today.

I'm not in doubt.

I also think that informed and express consent to not having reproductive organs used in ways that you don't agree with is equally important.

The two things are not mutually exclusive.

BadNomad · 29/08/2023 18:45

lifeturnsonadime · 29/08/2023 18:35

I thought we didn't need to worry about this as it was never going to happen?

I'll go back to the basic premise. Consent should be informed and full.

The current situation is untenable for many women, some of whom are removing themselves altogether. I am sure a focus group of interested parties could come up with a solution to capture this issue.

I didn't say it was never going to happen. I said it isn't happening. All of you people removing yourselves from the register right now because of this aren't stopping anything. Well, nothing apart from potentially stopping the premature deaths of innocent people.

The current situation is one woman donated her womb to another woman. That's it. Then a lot of people started flapping for clicks over social media and now here we are.

It is still nonsensible to say you won't donate your heart because you don't want to donate your uterus. And it's even more daft to want "reproductive organ donation" to be an official option on the register as a way to prevent it. 🙃

lifeturnsonadime · 29/08/2023 18:47

BadNomad · 29/08/2023 18:45

I didn't say it was never going to happen. I said it isn't happening. All of you people removing yourselves from the register right now because of this aren't stopping anything. Well, nothing apart from potentially stopping the premature deaths of innocent people.

The current situation is one woman donated her womb to another woman. That's it. Then a lot of people started flapping for clicks over social media and now here we are.

It is still nonsensible to say you won't donate your heart because you don't want to donate your uterus. And it's even more daft to want "reproductive organ donation" to be an official option on the register as a way to prevent it. 🙃

I haven't removed myself from the register.

I don't think that women's concerns are unreasonable though and I think they should be listened to.

Especially given that the government has power to imply consent as indicated in an earlier post with the relevant legislation.

user1477391263 · 29/08/2023 18:47

OP, I'm gender critical and understand the concerns about reproductive technology and womb transplants, but I also think that the gender critical--> conspiracy theorist pipeline can be real, and do feel a bit disappointed at the way in which some gender critical feminists have started disappearing down weird rabbit holes. "The government is going to steal my womb" is where it all start to get a bit tinfoil hat, IMO.

Teder · 29/08/2023 18:48

lifeturnsonadime · 29/08/2023 18:41

If you say so.

Consent options can be drafted in a way that would reassure women. It would take some consideration on how it should be worded.

Why don't you think women should be given the option to refuse to consent?

This ironic given how few some vocal people on here have given little consideration to women who are concerned about posters who are gleefully announcing “no organs for you!”. It’s not the action btw, it’s the tone and method. Zero bloody consideration for other women.

flaffydaffy · 29/08/2023 18:48

lifeturnsonadime · 29/08/2023 18:41

If you say so.

Consent options can be drafted in a way that would reassure women. It would take some consideration on how it should be worded.

Why don't you think women should be given the option to refuse to consent?

I haven't got the option to refuse to donate my face either. They really should put a question in about that just in case.

cakeorwine · 29/08/2023 18:49

So people have opted out of organ donation now even though the current situation is that wombs are not on the routine transplant list as it's a novel transplant, surgeons have to consult the family anyway before donations and a surgeon has said that in 10 - 20 years time, transwomen may be able to undertake such transplants and some people just don't trust the Government not to sneak in wombs onto the routine list so they have opted out now even though they were perfectly happy to donate their organs to save people's lives before this news came out.

thedancingbear · 29/08/2023 18:50

cakeorwine · 29/08/2023 18:49

So people have opted out of organ donation now even though the current situation is that wombs are not on the routine transplant list as it's a novel transplant, surgeons have to consult the family anyway before donations and a surgeon has said that in 10 - 20 years time, transwomen may be able to undertake such transplants and some people just don't trust the Government not to sneak in wombs onto the routine list so they have opted out now even though they were perfectly happy to donate their organs to save people's lives before this news came out.

Cracking summary. It's fucking mental.

And will lead to women dying needlessly.

New posts on this thread. Refresh page
Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.
Swipe left for the next trending thread