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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

How can she be left like this? Take her back to A&E?

703 replies

Fearsheisdying · 23/01/2023 17:51

Posting for traffic has honestly I'm terrified something is seriously wrong with my Mum and don't know what to do so please be nice.

Last week she started with some pain that she says feels like it's right at the very bottom of her ribs and radiating round the sides. She was in agony, basically screaming with pain so I took her to A&E on the advice of 111. All obs and ECG were normal but the blood tests were abnormal. They were going to do a CT scan but then decided as her obs were ok and they didn't think there was a bleed as no fall/injury, they were not going to do a CT scan there but would refer it to the GP to arrange BUT because of the blood test results and recent weightloss, they wanted it done urgently under the "2 week rule" and from his grave tone, I highly suspect he thinks it's cancer and serious. They couldn't/wouldn't give her anymore painkillers because of the painkillers she's on for severe arthritis but these are not touching the pain.

Fast forward to today, she has been in absolute agony since Thursday and seems worse today and can barely move. She's exhausted and crying/screaming in pain. My sister called 999 today but they said as not life threatening they won't send an ambulance but had to speak to GP within an hour. GP receptionist tried to say no appointments so we couldn't speak to GP but after I explained the issue (and she could hear my Mum crying out in pain) she finally agreed to pass a message to the GP so currently waiting to see if GP will call back today or not. Mum says if I take her back to A&E we'll be sat for hours again and nothing will be done but I can't just sit here and watch her in so much pain and do nothing.

What do I do?! Do I make her let me take her to A&E? Do we wait to see if the GP will call? Just feel so helpless

OP posts:
Nimbostratus100 · 24/01/2023 12:59

thanks for updating - lots of love and prayers for you and you mum x

Edders71 · 24/01/2023 13:01

I wish I could do more than send my best wishes to you OP.

Please do let your mum know we’re all here thinking of her and sending her love.

HikingforScenery · 24/01/2023 13:04

i really feel for you, OP. i hope her pain levels reduce drastically soon and you get some concrete answers soon 💐💐💐

Twentyfirstcenturymumma · 24/01/2023 13:11

Yb23487643 · 24/01/2023 12:54

I hope your mum is out of pain soon. There is the pain team who can be involved if normal pain relief isn’t helping and things like higher strength patches with oral morphine as top ups.
if the diagnosis is cancer, please stay in touch with the local Macmillan nurses. They have access to lots of non medical support for you as a whole family. I’m v glad you went back. Love to you & your mum xxx

This. Really feel for you and your whole family op

CavalierApproach · 24/01/2023 13:16

Oh OP Flowers

DaughterOfPsychiatrist · 24/01/2023 13:18

Yb23487643 · 24/01/2023 12:54

I hope your mum is out of pain soon. There is the pain team who can be involved if normal pain relief isn’t helping and things like higher strength patches with oral morphine as top ups.
if the diagnosis is cancer, please stay in touch with the local Macmillan nurses. They have access to lots of non medical support for you as a whole family. I’m v glad you went back. Love to you & your mum xxx

Oh no ☹️

So glad you took her back in last night. Fingers crossed for the best possible outcome for you all xx

Whiskeypowers · 24/01/2023 13:32

Sending love to you both 💐

Arniesleftleg · 24/01/2023 14:04

Go straight to A & E. Please don't leave this. You know in your heart what you need to do, just go. Sending love to you all. Please keep us updated.

JenniferBooth · 24/01/2023 14:06

Oh God OP Im sorry to hear that. Flowers

RandomMess · 24/01/2023 14:06

Such a worrying up date.

I hope at the very least the get her pain under control Flowers

PearlyShamps · 24/01/2023 14:10

Sending love and best wishes to you and your Mum xx

Princesspollyyy · 24/01/2023 14:25

Arniesleftleg · 24/01/2023 14:04

Go straight to A & E. Please don't leave this. You know in your heart what you need to do, just go. Sending love to you all. Please keep us updated.

Read the whole thread!

PaddyDingDong · 24/01/2023 14:32

Fearsheisdying · 24/01/2023 12:39

So.......it seems the pain is refered bowel pain and there is talk of bowel cancer. She has to have a camera thingy but this cannot be done today so the Dr has done the 2ww referal today but Dr has said it is likely. She will be allowed home tonight with higher dose of oramorph allowed above what GP prescribes. Trying to keep positive but feeling pretty numb

Sorry to read this, I hope there is another explanation. Sending best wishes to you and your mother, it's appalling she was left that way previously and I would put a complaint in about that so hopefully this doesn't happen to someone else.

FlamingoQueen · 24/01/2023 14:51

Thinking of you Flowers

Sugarfree23 · 24/01/2023 15:10

I came back looking for your thread looking for an update. Fingers crossed 🤞 it's not cancer. But if it is I think bowel cancer one of the most treatable cancers.

OneTC · 24/01/2023 15:14

You often get referred pain from diverticulitis as well and some people experience terrible pain from it, broadly along the lines you're talking.

Hope you get a proper answer soon

mamabananaz · 24/01/2023 15:24

Thinking of you and your mum. May she be pain free by now. 🌺

sevenbyseven · 24/01/2023 15:35

Fearsheisdying · 24/01/2023 12:39

So.......it seems the pain is refered bowel pain and there is talk of bowel cancer. She has to have a camera thingy but this cannot be done today so the Dr has done the 2ww referal today but Dr has said it is likely. She will be allowed home tonight with higher dose of oramorph allowed above what GP prescribes. Trying to keep positive but feeling pretty numb

Your poor mum. No one should be sent home in so much pain 😢 I hope you get some answers soon 💐

CristinaNov182 · 24/01/2023 15:53

When someone is on so much pain it’s irresponsible to give them more pain killers that will just make the cause, while the cause, disease or cancer etc will on,y get worse. Tests need to be done asap, and treatment immediately after.

you shouldn’t have taken your mother home the first time, and shouldn’t have kept her at home for days while she was crying in pain , even after her regular pain killers.

pls insist that the camera investigation is done asap, she can’t wait 2 weeks. Her level of pain indicates an advanced and aggressive cancer she needs treatment asap. I’d be a nuisance and call them or show up at er again until it’s done.

I’d also insist on what treatment can she start right away. After more investigations they might tweak it or change it, but can she take or do now for the cancer?

Arniesleftleg · 24/01/2023 16:26

Thanks @Princesspollyyy I've just got out of hospital myself so I didn't have a chance, but thanks

MrsElijahMikaelson1 · 24/01/2023 16:33

🌸

Latenightreader · 24/01/2023 16:33

@CristinaNov182 Your first two paragraphs seem very harsh - the OP was acting with medical advice and is clearly very distressed. Telling her she acted wrongly isn't going to help her at all, in fact is going to make a bad situation feel worse.

@Fearsheisdying I hope your mother's pain is being controlled and you are both getting the support you need. It sounds like an utter nightmare.

CristinaNov182 · 24/01/2023 16:46

@Latenightreader im sorry if it seems harsh, but a lot of people just accept the wrong medical advice against their better instincts. Just see the many stories of children that have died of strep-a the last few months where parents accepted to be fogged off knowing their child was in great pain.

I’ve had friends who absolutely had to insist to get the necessary scans, etc. one who would have died otherwise.

every day counts now for OP’s mum. She doesn’t have weeks to wait around. What if her chances of survival half for each day she waits?

id rather be harsh and impress on her the reality of the situation. The reason is still unknown, no treatment has been started, this is life or death, she needs to take her private or insist to be seen asap.

LuluBlakey1 · 24/01/2023 16:56

Sorry to read your update. You must be very worried. I hope the oramorph does its job and she gets the camera thing soon and you know where you are- hopefully not bad news in the end.

Patineur · 24/01/2023 16:58

I know you may have many other priorities, but at some point maybe you should ask the hospital to look into why your mum was sent away previously. Not necessarily with a view to any claim, but because it does suggest that one or more doctors there need more training.