How can she be left like this? Take her back to A&E?

[Fearsheisdying]

Posting for traffic has honestly I'm terrified something is seriously wrong with my Mum and don't know what to do so please be nice.

Last week she started with some pain that she says feels like it's right at the very bottom of her ribs and radiating round the sides. She was in agony, basically screaming with pain so I took her to A&E on the advice of 111. All obs and ECG were normal but the blood tests were abnormal. They were going to do a CT scan but then decided as her obs were ok and they didn't think there was a bleed as no fall/injury, they were not going to do a CT scan there but would refer it to the GP to arrange BUT because of the blood test results and recent weightloss, they wanted it done urgently under the "2 week rule" and from his grave tone, I highly suspect he thinks it's cancer and serious. They couldn't/wouldn't give her anymore painkillers because of the painkillers she's on for severe arthritis but these are not touching the pain.

Fast forward to today, she has been in absolute agony since Thursday and seems worse today and can barely move. She's exhausted and crying/screaming in pain. My sister called 999 today but they said as not life threatening they won't send an ambulance but had to speak to GP within an hour. GP receptionist tried to say no appointments so we couldn't speak to GP but after I explained the issue (and she could hear my Mum crying out in pain) she finally agreed to pass a message to the GP so currently waiting to see if GP will call back today or not. Mum says if I take her back to A&E we'll be sat for hours again and nothing will be done but I can't just sit here and watch her in so much pain and do nothing.

What do I do?! Do I make her let me take her to A&E? Do we wait to see if the GP will call? Just feel so helpless

So glad your mum is finally getting the correct help.

Go home and get some sleep Now OP!

Thinking of you and your mum, hope she’s getting enough pain relief and you have answers soon 💐

@Fearsheisdying I've been watching your post about your poor mum. Hope you get some answers soon, best wishes x

Glad your Mum is getting proper attention now; hope you manage to get some rest.

Its so frustrating when they are dismissive. It does feel like there's no internal feedback when mistakes happen nor learning from misjudgements.

I'd go back to a and e at least you know that you're doing everything you can. So sorry you're going through this, you are handling everything so well and absolutely doing everything you can. At least your mum knows you are there that makes such a difference xxxx

I'm glad the A Team were on last night. Hopefully some answers soon - and fingers crossed for something easily remedied.

That's the thing with the NHS - it isn't brilliant or shit - it's just completely inconsistent. Will be thinking of you today OP.

Hope you get some answers soon OP, thinking of you and your mum.

Much love to you and your Mum. Thinking of you both.

Hope you get answers soon. I can't believe it is getting so difficult to access health care now.

Without a doubt take her back. High pain that’s not being controlled at home is absolutely an A and E trip

My Dad has symptoms for months that his GP ignored, and his liver cancer was finally diagnosed after a long night sat on a chair in A & E.

I know only too well how frustrating the system is (we're still fighting it now when Dad is end of life), but take heart that your Mum has got voices to advocate for her - so many don't and just get left in the broken system. Don't be afraid to shout and demand answers.

Hope you are getting some much needed rest and your DM is more comfortable

Well done OP sounds like you did the best thing for her, hope she is comfortable soon and you get some rest

I'm so pleased that your mum has been admitted, that she has pain relief and she has had a CT scan - and that she had good care. Wishing you both well.

I’m so glad you took her in

Try to make sure you get enough fuel to keep yourself going - food, fluid, sleep 💐

So glad it’s going better. The initial response you got seemed inhumane. Hope your mum is feeling more comfortable

I'm so sorry to hear of the terrible pain your mum has been through OP, and am hoping today you both get some clarification over what's happening.

I had to fight for my friend to be seen when cancer had spread to her liver and she was in incredible amounts of pain.

No one should every have to fight for care.

Im so glad you're now being seen.

OP once this is over, can I advise that you put time into helping your mum find a good GP. It is worth the effort. Our GP practice phones up and pushes for appointments if they are taking too long. They are excellent. A good GP practice makes an enormous difference.

Hope your mum is okay and you get some answers soon x

What analgesia is she now getting ? If it still isn't controlled, ask for a review by the hospital pain team and for a PCA to be prescribed. This is a morphine infusion that is controlled by the patient.

I'm so sorry that your mum and you have had to go through this. You've probably done it, but I had to learn to take notes about everything - doctor's names, advice, medication etc. I even photographed a consultant's name badge at one point!

So.......it seems the pain is refered bowel pain and there is talk of bowel cancer. She has to have a camera thingy but this cannot be done today so the Dr has done the 2ww referal today but Dr has said it is likely. She will be allowed home tonight with higher dose of oramorph allowed above what GP prescribes. Trying to keep positive but feeling pretty numb

I hope your mum is out of pain soon. There is the pain team who can be involved if normal pain relief isn’t helping and things like higher strength patches with oral morphine as top ups.
if the diagnosis is cancer, please stay in touch with the local Macmillan nurses. They have access to lots of non medical support for you as a whole family. I’m v glad you went back. Love to you & your mum xxx

Hope they get the pain under control. I found Macmillan to be amazing if it is confirmed as cancer. My only other advice is to take notes, go one step at a time and stay away from Google. Thinking of you.