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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Aibu to expect my siblings to help care for our elderly parents

186 replies

Windleberry · 18/12/2022 18:11

What to do? I think I just wanted to vent really and gather opinions, thoughts, advice.

My parents are 88 and 93 - mother has advanced dementia, doubly incontinent, can no longer converse, can no longer walk. Father - memory now pretty bad but physically okay, has phases in denial that mother is as ill as she is.

I have 5 siblings. We all live over 100k away from our parents and in different directions to each other. Only 2 of my siblings drive. Our parents live in countryside, 7k from a railway station with a very scant bus service from the rail station to their village.

During covid my husband and I, completely by chance, ended up living, temporarily, just 30k away from them so we popped in to them once or twice a week and, as their care needs grew, we got more involved in helping them over the next 2 years.

During this time, even after lock down was lifted, my siblings rarely visited them and when they did it was just for lunch and a chat - nothing practical like laundry, cleaning, bill paying - they left that all to me and my husband. However they demanded to know everything that was going on with them so I updated them on everything we did or planned to do.

In March 2022 my husband and I had to return return home, 100k away from my parents, therefore my husband and I arranged a daily carer to help my parents for an hour a day (they refused more than that - accepting care is and was a huge struggle so it was extremely difficult to put in place).

More recently, with mother's condition ever declining and now needing two people to lift, wash and change her we increased care to two carers for 3x1 hour visits a day. Imo my father also now needs help with houshold things as he can no longer drive to the shops for food etc and often forgets to make meals for them both, yet will not allow the carers to prepare meals for them. My husband and I organised delivery of microwaveble meal and deal with their finances. I asked the carers to contact any of us if/when necessary. Me and my siblings have equal health and financial POA but I am the only one who has bothered to use them.

Due to a disability I can no longer drive and am off work long term sick so rely on my husband to drive us when we visit my parents. I have been by train a dew times but it's a difficult journey because of my disability, lack of buses and my finances won't stretch to taxi fares.

Fast forward, since moving away from my parents my siblings have started a visiting rota but still look to me as lead. If something doing is needed by the carer it is either me doing it or it is met with a silence - I've tried to stand down hoping they will take initiative but it doesnt happen and my parents are thr ones who suffer. My siblings pretend to miss the carers' calls, pretend they have no internet, pretend they're suddenly working full time plus late into the night and/or are "too busy", too tired, too everything.

Recently the carers have taken some days off on which some of us took turns to cover them. The care is mainly getting my mother up from bed, her incontinence pants changed and clean up where she's spread faeces around. It's unpleasant having to deal with changing and cleaning mother and age hates it too. Despite her dementia she is aware and doesn't like her children doing it and besides she's physically stronger than me puts up a terrific fight and my husband and I are afraid of hurting her in the process.

The Carers are taking 5 days over Christmas off. Nobody volunteered to cover for them, all kinds of excuses, so eventually my husband (who is an angel) and I said we would cover Christmas eve, Christmas day and Boxing day. Another sibling stepped up for the other 2 days.

However, yesterday, my husband's elderly mother has been rushed into hospital and is in intensive care, reason unknown. My husband's parents live 200k away in the opposite direction to my parents.

Obviously my husband needs to be available for his mother now and, because the rail network is on strike over Christmas, there are no trains running so I find myself unable to get to my parents and can no longer cover for the carers.

I told my siblings that my husbands mother was urgently rushed into hospital in a critical state, cause unknown, and that as there were no trains over Christmas I could no longer cover care of our parents over Christmas.

So far - days later - not one of my siblings has offered to step in to help our parents. One has said she'll phone the carer, so I expect she plans to ask the carers to cancel their holiday!

I am angry and resentful that not one of them has stepped forward to help their parents, parents that have helped them enormously over the years.

What really rankles is that I've found out from doing my parents finances that every single one of them has had huge financial handouts (one was even bought a house, another a new car etc!) from my parents over their lives but, when I asked for help to pay a dental fee, my parents declined. Yes, I am bitter, yes it is an ugly feeling, and yes I feel resentful that my husband has done more for my parents than my siblings have.

I am waiting to see what they come up with to help our parents now that I'm unavailable. Minute by minute it seems increasingly likely that they're happy to let our mother fester in her bed of urine and faeces while they enjoy their Christmases.

What would you do? Respite care in a home is not an option and I've been unable to find respite carers - so it is down to me and my siblings.

OP posts:
YellowTreeHouse · 18/12/2022 18:12

YABU. They are not obliged to help care for their parents just because they gave birth to them.

Reindeersnooker · 18/12/2022 18:14

You're overwhelmed. Your siblings are under no obligation to keep the show on the road and neither are you. This is so longer working and it may be time to look at residential care. Your siblings may see this and realise that propping things up is not the answer. Even when it's your parents, it doesn't make sense to give more than you are able to.

RobinRobinMouse · 18/12/2022 18:14

I think you should get some professionals involved and take the choice out of your parents' hands. It sounds like they have needs that are significant and not ones that can realistically ve done with the odd bit of care here and there.

fishonabicycle · 18/12/2022 18:14

Why is a care home not an option? It's obviously at a stage where that is necessary.

Reindeersnooker · 18/12/2022 18:15

It's awful that she wouldn't help you with a dental fee.

Why is respite care not an option? Running yourself into the ground is not an option.

RobinRobinMouse · 18/12/2022 18:15

Also, it is your parents refusing care which is meaning they are in the state they are in, not your siblings.

Merlott · 18/12/2022 18:15

Care home.

You have done more than enough, but now it's time to move to the next stage

Talaforniababe · 18/12/2022 18:16

They sound old and infirm enough that they need a care home.

Underhisi · 18/12/2022 18:16

It's time for residential care.

Mosaic123 · 18/12/2022 18:17

It's a crisis situation.

The siblings need to help out or arrange adequate care ASAP.

After that it seems, very sadly, that it is time to arrange residential care.

Paq · 18/12/2022 18:17

I'm so sorry for your situation but your parents need to be in a home. They should have been in a home a long time ago. Yes your siblings should have stepped up but once it was clear they were unable/unwilling you should have stepped back and/or made arrangements for them to go into care.

Alibabasonethief · 18/12/2022 18:19

Why is a care home not an option? My SIL says this. It very much is an option but one she is not comfortable with whereas sometimes given the commitments people have these days it needs to be.

Cuppasoupmonster · 18/12/2022 18:21

YABU why aren’t your parents in a proper care home? Their requirements are well past drop in carers and microwave meals.

cansu · 18/12/2022 18:22

Temporarily they need to help. That will either mean trying to find a carer at short notice or sharing it out between them. However this is not a sustainable situation. Your parents need either live in care or residential care. You need to discuss this as a family and put this into place. If your siblings refuse to do this then you need to put your foot down and contact social services. They cannot continue like this.

pocketvenuss · 18/12/2022 18:22

YellowTreeHouse · 18/12/2022 18:12

YABU. They are not obliged to help care for their parents just because they gave birth to them.

Jesus. What happened to you that you have so little humanity

CrotchetyQuaver · 18/12/2022 18:22

Time for them to go into a nursing home, why are you saying that's not an option? It's clearly in their best interests. Horrible when it gets to this point but honestly life will be better when they're in a residential card setting. It was the best thing we ever did for my DM, and my brother who was dead against it (because of the money basically) came round completely when he saw how much better she was in every way in the nursing home.

Beamur · 18/12/2022 18:23

Your siblings don't want to do this and to be honest, I really don't blame them.
I've looked after my Mum at the end of her life and my MIL while residential care was arranged. It was horrible. Cleaning up my MIL's faeces on a daily basis was grim and we only coped by knowing it was only for a few weeks.
You cannot look after someone who is doubly incontinent and immobile without 24 hour care and lifting equipment. I think your siblings know this and are refusing to help because it's not viable to carry on like this. She really needs specialist care.

Theeyeballsinthesky · 18/12/2022 18:23

OP you have done all you can but you are overwhelmed

call social services, tell them that neither you or your siblings are in a position to offer anymore support & that it’s a crisis situation

and agree with PP it does sound as if they need 24 hour care now

Wanderingoff · 18/12/2022 18:23

Given what you’ve said about finances - I’d bet there’s a whole back story about your role in the family - I’m guessing scapegoat who’s expected to do all the crappy stuff.

you’ve done what you can. Your mother needs to go into a care home. The reality is that you will probably have to organise that or no one will. But after that big step back.

hoochyhag · 18/12/2022 18:23

Residential/nursing home. Now.

Mummy2C · 18/12/2022 18:23

If you have not already you should get social services involved. They will assess your parents and what they need etc. They can support you in organising care etc.

ForestLilac · 18/12/2022 18:23

Call social services first thing tomorrow and explain it to them.

Can your parents pay? Do they own their house?

MrsElijahMikaelson1 · 18/12/2022 18:25

Refer them to adult social care for their area. They will have to go into emergency respite care. The social worker will arrange a place.

Windleberry · 18/12/2022 18:26

Sorry - I should've explained - respite care isn't an option as I can't find any carers available over Christmas.

I've contacted and visited care homes a few months ago but my siblings want my parents to stay in their own home and it is my parents wish to do so (plus there's no homes with vacancies atm anyway but I have quietly put them on a waiting list). A couple of siblings think live-in carers would be best in the long run but have done nothing to find out about live-in care so won't instigate it and, because my father is dead against would probably refuse anyway.

OP posts:
pointythings · 18/12/2022 18:27

I'm seconding all those who are saying your parents need to be in permanent residential/nursing care. There's no other option any more. Get the ball rolling sooner rather than later.

I'm sorry you're the scapegoat who's always been treated unfairly in financial terms. That must hurt.