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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not understand how can you live on £60 a week?

425 replies

Frequency · 14/07/2022 12:22

19 year old DD's social worker has arranged for her to have chaperone at her UC appointments which means she can now claim. She has severe anxiety and cannot leave the house without another person much less speak to a stranger.

I've just helped her fill out a form on Entitled To to check how much she would get.

£60 weekly.

How the fuck is she meant to survive on £60 a week?

Does this mean HMRC still expect me to fund her?

Obviously I will but if I refused what the feck is she supposed to do? how can she eat and clothe herself on £60 a week? What about contributing towards gas and electric? Paying for her mobile phone? Accessing social activities?

I just don't understand how this can be deemed enough to maintain any kind of standard of living?

They asked for my income so I assume they've taken this into account. They didn't ask if I was related to her so would a friend also be expected to feed and clothe her?

OP posts:
Mellowyellow222 · 14/07/2022 20:36

Dobbysgotthesocks · 14/07/2022 20:25

@GlamorousHeifer why? Because you quite clearly implied that it was sufficient for a person to live on. It isn't. So I suggested that you tried living on £60 to see how easy it is. The pure fact that you won't just demonstrates that you know it isn't enough and you wouldn't be comfortable doing it. So why should the unwell daughter of the OP?

But surely the point is this is a teenager who lives in her mothers house? I agree this would be really hard for the girl to live on if she was out on her own. But lots of teenagers live in their parents homes, contribute a small amount to bills and use the rest for socialising?

in these very specific circumstances £60 is actually not bad. A lot of teenagers have less money.

it isn’t sustainable as she gets older - she desperately needs intervention to allow her to make her way in the world and find some happiness.

GCHeretic · 14/07/2022 20:40

XenoBitch · 14/07/2022 19:53

UC has two rates of benefit for people considered unfit to work. One is the same as the job seekers amount (which would be £60 in the case of OP). I know several people on that amount, and they have been on it for years. They get sent on crappy little courses, told to volunteer, yet they still remain unfit to work.
Poverty does not force people to suddenly get better.

If they are unfit to work there are disability benefits available.

Sadly many people who just can’t be bothered also say that they are unable. It’s a sad state of affairs.

Frequency · 14/07/2022 21:04

I tried typing in detail all of the things we'd done to help DD since this started but once I reached 1000 words I lost the will to live.

In short we have tried CAHMS (3 times), a lcoal mental health charity, a charity the rape crisis center referred her to and medication - Citalopram - it made her feel nothing. She'd rather feel shit than feel nothing. She now won't entertain medication at all because she never, ever wants to "feel nothing" again. Online counselling - they wanted to phone her - she can't speak to people on the phone. They felt she needed more support than could offer over text and email and signposted her back to CAHMS.

Wrt to education - when she left school my uncle offered to pay for private school for her - it's out of town so no chance of bumping into her rapist or any of his friends and her cousin goes there but she said no. She was worried she would be bullied and thought it would be too strict. Social services reffered her to "hospital school" a small classroom in the hospital designed for children with DD's needs. She refused to get into the taxi they sent for her because she was expected to stay there the entire day and it was too far away for her to get herself home if she couldn't cope. I tried to work with her social worker to arrange half days/an hours visit etc but apparently this was not possible and they'd already bent the rules allowing DD to attend without a formal diagnosis. Being prescribed medication is not, apparently, a formal diagnosis. To get one of this she needs to actually speak and explain her physical and mental symptoms. This was her first social worker who vanished without a trace shortly after engaging with us. I actually she'd been discharged from social services until her new social worker rang us a few months ago.

I applied to college on her behalf last year but she wouldn't do the interview as they were still over the phone. Her new social worker wasn't involved then.

Her new social worker has now arranged for DD to attend an interview at a local college at a different time (they normally do group interviews) to the other students and with only ine tutor and myself. She knows this tutor as she was my tutor when I went there and DD would come to meet me at the college to model for me. She attended that interview a few weeks and was signposted to a part time,very relaxed course with a small tutor group aimed at helping people back into education.

I have tried pleading and begging. I've tried withdrawing luxuries such as phone and internet access. I can get her to physically attend the gp. She will not speak to them. She won't even make eye contact with them. I cannot force her to agree to any of the treatment they offer and without her speaking to them it is hard for them to formally diagnose her with anything other anxiety and depression as opposed to manic depression or BPD which she has a lot of symptoms of. She will herself admit she fits the criteria for BPD.

Wrt her socialising - she has small tight knit group of friends she's known since primary school. When they all started going to college they started hanging out at a local student bar. She was desperate to go with them and even got herself dressed a few times but backed out when it came to actually leaving the house. We eventually got her there by me taking her just us two on a quiet, weekday. I then had to go on her very first night out with her and her friends. Since then she's been invited every week. I have to physically walk her into the pub because she panics about walking in alone and all her friends live on the opposite side of town. She plans to go once a week. She manages to make it less than once a month. Approximately 1 out of three times she does make it I have to pick her up because she wants to leave early. I did refuse once. She walked home alone, in the dark and rain and then rang me hysterically crying. I had to use find my iPhone to locate her because I couldn't get any sense out of her and go and get her. It turned out, once I'd calmed her down, she couldn't walk past the park and couldn't reach our house without passing it. She'd been trying to get home for over an hour. We live 15 minutes away but she kept taking different routes to try to avoid the park but kept getting lost as she taking herself down streets she wasn't familiar with.

Wrt her staying in her room. This happens intermittantly. A depressive phase can last anything from a few days to a few weeks. When she confines herself to her room she doesn't shower. She doesn't really eat. She will drink bottled water if I deliver it to her bed and she will eat shit like crisps and toast if it is delivered to her bed. She doesn't even feed or interact with her dog who is normally treated like an actual child by her.

I tried starving her out of her room once. She last nine days and visibly lost a lot of weight. She never asks for food or water. I assume she drinks tap water from the bathroom when I don't bring her bottled water. During these phases I go in every morning, open her curtains, sit on her bed and try to talk to her. If I'm off work I suggest things we could do together. She never responds to me. She hides under her duvet and pretends to sleep. Her phone is switched off for most of the time. Once she starts coming around she will turn her phone back on and start eating more and texting people but it takes a few days after this for her to actually work up to leaving her room and few more days to leave the house. Her friends message DD2 to check she is okay and still with us when she turns her phone off (she talks about suicide occassionally).

My friend is not coming around to the house this week. She never was. I'm going out with my friend next week and DD is invited and will be pushed to come. My sister is coming around this week. I think DD has gotten the dates mixed up or lost track of how long she has been in her room. She only turned her phone back on yesterday.

She has now showered and did briefly appear downstairs when I was with my client. She loves hair and the client is a family member and one of DDs safe people. She's back in her bed now but is still texting me.

£60 a week is enough for DD. My question was how do young people who don't have parents to support them survive? I was expecting the amount to be higher when they never asked who she lived with.

The idea of her having her own money was to encourage her to do more on her own in the future and to take some pressure off me. I currently work two jobs in order to support her financially. Her social worker is currently lisasing with CAHMs and other experts to check if there is any more support we could get i.e a home visit from a mental health professional where DD is not expected to speak.

OP posts:
Charlize43 · 14/07/2022 21:05

I do think the emphasis should be in getting her into work and not condemning her to having a life on the dole (what will she do for the rest of her life?).

Maybe even one day a week with her chaperone to assist her. I'm sure if you spoke to some local companies they would take her as a work experience or volunteer. Maybe even putting books back on the shelves at the local library.

If she's not in employment, then she should be in some for of therapy, like CBT to help her anxiety.

I do find it odd how she can go to the pub (where there are other people) but not into a workplace...

LargeLegoHaul · 14/07/2022 21:13

You need to read up on SEN provision and education. The provision the LA provide to compulsory school aged pupils, as DD then was, unable to attend school does not require a diagnosis, it is based on needs. The LA must provide a suitable, full time education under s.19 of the Education Act 1996. If full days or education out of the house wasn’t possible education at home &/or half days should be provided. As DD is now post 16 this duty no longer applies and the way to get provision is via an EHCP. You should apply for an EHCNA. If you start a thread on the SN boards there’s posters who will help you.

If DD thinks she fits BPD have you/she considered ASD? Some high functioning women are misdiagnosed with BPD when the true diagnosis is ASD.

Frequency · 14/07/2022 21:23

The provision the LA provide to compulsory school aged pupils, as DD then was, unable to attend school does not require a diagnosis, it is based on needs. The LA must provide a suitable, full time education under s.19 of the Education Act 1996. If full days or education out of the house wasn’t possible education at home &/or half days should be provided. As DD is now post 16 this duty no longer applies and the way to get provision is via an EHCP. You should apply for an EHCNA. If you start a thread on the SN boards there’s posters who will help you

Her social worker pretty much abandoned us after she refused hospital school. I did tell her first school pretty much exactly what you just posted re her being legally entitled to education and asked them to send work home for her but they refused. It was attend school or off roll her so I off rolled her as she really wasn't coping attending the same school as her rapist. We were then completely alone bar the few mental health charities I tried to push her to. I hadn't heard of an ECHP until her new social worker asked if she'd had one because it wasn't on her records and she should have been offered one.

I know the college she is going to and the tutor she has and I am confident she will be offered much more support even if it is me asking for it on her behalf. The main hurdle we will face is actually getting her out of bed and to attend her first day.

ASD is a possibility but she won't talk to anyone. Even I only get half of what she is feeling. She locks herself in her room if I try to push her too much.

OP posts:
GCHeretic · 14/07/2022 21:23

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LargeLegoHaul · 14/07/2022 21:31

It isn’t the school’s responsibility to provide education to CSA pupils unable to attend school, it is the LA’s. If the LA wouldn’t provide suitable, full time education you could have forced them to via Judicial Review. You didn’t need to deregister and EHE, DD could have stayed on the school’s roll but not attended if she wasn’t well enough so the LA retained responsibility.

Even though you have found a supportive college still apply for an EHCNA as an EHCP can provide much more support than would otherwise be available in college.

CrossStichQueen · 14/07/2022 21:33

If he is over 18 not in full time education he can claim UC.

As for PIP if over 16 DLA if under 16 does he have a diagnosis?
Is the GP involved?
Did his school voice concerns regarding his learning age?

LargeLegoHaul · 14/07/2022 21:34

This reply has been deleted

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How old is he as that will determine what he, or someone on his behalf as appointee, can apply for? If he’s an adult and has a developmental age of 5 I am amazed you didn’t claim DLA for him as a child.

Ravenpuff93 · 14/07/2022 21:34

OP this sounds incredibly hard. If you can afford it, private therapy may be the way to go. I’m confused why it’s CAMHS when she’s 19, but I’m sure your social worker would know better than me. There could be a combo of different MH problems and I would’ve want to armchair diagnose but she needs an IAPT assessment ideally. www.nhs.uk/mental-health/talking-therapies-medicine-treatments/talking-therapies-and-counselling/nhs-talking-therapies/

LargeLegoHaul · 14/07/2022 21:35

Some young people in full time education may still be able to claim UC. Contact are worth speaking to about this, here is their booklet about it.

bellac11 · 14/07/2022 21:36

Is this in England OP?

What status did she have as an under 18 with SSD, was she under child protection or CHIN?

How has she got a SW just a few weeks ago as an adult, who referred her to adult services?

SofiaSoFar · 14/07/2022 21:46

I'm surprised that you're surprised at the £60.

If a single, childless person who owns their own home happens to lose their job, they're entitled to £77 per week to cover absolutely everything, including keeping the roof over their head in one piece. All the bills...everything.

Effectively, until they're bankrupt and have lost their home they're utterly fucked anyway. At that point presumably money is found to pay housing benefit (for someone else's profit) or they're left on the street.

At least in your DD's case she's either housed via you subsidising it (rightly or wrongly) or she would get some sort of housing benefit or a place somewhere as a vulnerable person.

Frequency · 14/07/2022 22:23

Yes, England. I have no idea how she has been refferred to SS again. The first time it was proceedural. She was referred by the police after the rape. They assesed us and decided DD had a good home life and no intervention was needed. The second time was when she started school refusing and threatening suicide. I self referred because I wanted support. That SW was around for a few months when she was 13/14 then vanished. I assumed we'd been discharged until someone contacted me a few months ago shortly before she turned 19 so perhaps they automatically passed her from child services to adult or maybe it's because she's not in work or education or claiming any benefit? Tbh, I never thought to ask.

I will ask her social worker about EHNCA when she next calls.

I've never been on unemployment benefits. I just assumed they were higher. I genuinely do not understand how anyone can survive on the amounts quoted on here.

To me it is impossible to live on £60/80p/w. Especially as adult living in their own home. Who decided these figues and what the fuck are they based off?

OP posts:
Namechangehereandnow · 14/07/2022 22:30

I’m not sure if you saw my earlier post OP … you can claim PIP for your daughter, YOU can manage her PIP claim as her appointee.

user1471504747 · 14/07/2022 22:39

For the GP, do you think she’d be able to physically attend the appointment and be in the room with the GP? If so could she write something out to give them?

It sound like her new SW is doing a lot for her, do you think she would be able to talk to SW about what she would tell the doctor? Doctor might be more willing to listen to a SW acting in a professional capacity rather than a parent

Frequency · 14/07/2022 22:43

Thank you @Namechangehereandnow. I didn't see that but will keep it in mind. I'm not entirely certain I want her claiming PIP unless it is a gateway to more support. I don't want DD to have enough to be comfortable because I don't want her in this situation forever. I wanted to know how other people whose parents can't or won't help support them are expected to live off this amount.

OP posts:
BeatieBourke · 14/07/2022 22:45

Where abouts in England are you OP? A Law Centre might help. You might be able to find a (free) Welfare Benefits solicitor. If they're good they'll understand and unpick all the social security, education and mental health issues and make sure your daughter gets everything she's entitled to.

NoSquirrels · 14/07/2022 22:47

a home visit from a mental health professional where DD is not expected to speak.

Will she write anything down?

If she doesn’t want any help then it’s really difficult.

Frequency · 14/07/2022 22:51

Yes, I probably could get her to physically attend the GP. I don't know about writing things down.

She's actually up and about again. She wants her hair doing now and is currently sat covered in colour remover. I had a little chat with her about college and the GP.

She's terrified about college now it is getting closer and unsure if she can do it. I've suggested we see the GP and ask if there is anything she can take short term to help her through her first week.

I mentioned chatting with him about BPD and she brought up ASD on her own (she's read a lot about BPD as she is convinced she has it). She's aware the treatment for ASD is cognitive behaviour therapy and she is not ready for therapy yet. It involves talking to people.

She is open to me discussing it with her GP with her in the room but she's not open to getting any treatment yet. She is undecided about asking for medication to help her through the first week of college but will think about it.

OP posts:
Comefromaway · 14/07/2022 22:57

who has told her that? There is no treatment for asd. It’s a matter of knowing what adjustments etc may help. There may be help available for co-morbitiies. CBT helps some people, not all.

GCHeretic · 14/07/2022 22:59

CrossStichQueen · 14/07/2022 21:33

If he is over 18 not in full time education he can claim UC.

As for PIP if over 16 DLA if under 16 does he have a diagnosis?
Is the GP involved?
Did his school voice concerns regarding his learning age?

He’s not over eighteen, he’s four at the moment, but if the OP’s daughter can get money like this it seems reasonable to assume that he can, too.

He’s very into HotWheels cars and tracks, and even £30 per week would let him buy some for himself, which would mean the world to him.

CrossStichQueen · 14/07/2022 23:03

GCHeretic

That's not remotely funny.

The OP has explained why her daughter is struggling with anxiety but if you feel someone who was raped at 14 deserves to be ridiculed then nothing I say will make a difference.

Frequency · 14/07/2022 23:07

@Comefromaway I assume it something she has read online. She doesn't talk to people about her mental health or struggles.

If she doesn’t want any help then it’s really difficult.

This is the issue we've had from the start. It's not that she doesn't want the help. Her depression tells her she doesn't deserve the help and her anxiety prevents her from easily accessing it.

She doesn't want to be stuck home and having to have her mum walk her into pubs all her life but she doesn't feel able to access any of the things being offered to her and doesn't always feel that she deserves to get better.

OP posts: