[quote NottheSAHP]@jlpartnerrs someone did campaign, several years ago, for vulnerable older people to have a carer with them in hospital. David's campaign or something like that, named for her dad. So it should already be the case that vulnerable adults should be able to have a carer with them, precisely so that they remember to eat, can get to the loo, don't get overly confused etc. Really upsetting if hospitals are not allowing this. Really sorry for your loss
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Yes, its called John's Campaign and its still going:
johnscampaign.org.uk/
You can contact them or two other organisations:
Rights for Residents
www.rightsforresidents.co.uk/campaign/
And Relatives and Residents Association
www.relres.org
The three organisations are now campaigning, spearheaded by Ruthie Henshall, for people in any healthcare or care setting to have the legal right to have an essential caregiver with them. Its to be a right on the patient/resident, not a duty on families or friends. There was a meeting with a cross party group of MPs and peers at Westminster a few weeks ago on this.
Giles Sheldrick at The Daily Express and Eve Simmons at The Mail on Sunday have been supporting this campaign. For instance, there was this article today:
www.express.co.uk/news/uk/159095/care-homes-watchdog-dying-relatives
There should be reasonable adjustments for any person, with protected characteristics under The Equality Act, which should mean they could have a carer with them in hospital. There is also The Human Rights Act, which should apply here.
I would have thought that it would be easier for any hospital staff, to have a carer looking after a patient, so far as they are able, to do basic tasks like ensuring the patient is eating or drinking or wearing their oxygen mask; and which especially would in the case of patients with dementia help prevent "distress behaviour" (previously known as challenging behaviour)? As for Covid, I would have thought elderly spouses or middle aged grown up children, are less likely to be indulging in risky behaviours like going to pubs/restaurants/night clubs than young staff?
Harriet Harman is Chair for the Joint Committee on Human Rights; and they are currently conducting an enquiry into "Protecting human rights in care settings", which covers residential care homes, hospitals and supported housing:
committees.parliament.uk/work/1495/protecting-human-rights-in-care-settings/
It is too late to submit evidence to the enquiry, but you can watch or see the transcripts of oral evidence sessions on the above web page; or you could write to your MP.