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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

NC because clearly, I'm such a rubbish parent. ASD meltdowns.

163 replies

Junipercrumble · 06/03/2022 20:32

DD is a teenager with ASD and probably ADHD.
She is extremely intelligent academically, has zero empathy, cannot imagine being in someone else's shoes, approaches every boundary in life as either a boundary she doesnt care to breach and therefore will accept or more commonly, an obstacle to overcome by any means.

She pushes hard against any boundaries if she doesnt agree with them.

I require the patience of a saint to live in the same house as her.

We dont share many values or beliefs, in fact, we hold opposing views, yet in some ways, we are quite similar.

DD screams, swears, punches, kicks, bites, takes my belongings when she chooses, never asks, doesnt accept that I am in charge ever, never considers other people and their needs, controls everything in the house and all I hear is that this is down to her anxiety.

Well, maybe it is, but that doesnt help me to cope with it.

Anytime I try to explain to DD how her actions or words affect me, she blocks my voice out by singing loudly while I'm talking, putting headphones on and listening to music loudly or shuts herself in her room while leaving me to sort out the latest disaster. If I continue to try in a calm way to talk to her, she will become violent and since she is physically stronger and faster than me, I get hurt, or she will tear my phone/tv remote/snack out of my hand/pocket to 'remove my privileges', because I am not behaving myself. 🤔

This infuriates me, because I'm always left to bear the consequences of her actions, whatever those consequences may be.

She cannot see it from my pov and I cannot live her way. 😫

There are so many things she does that are completely inconsiderate to me, but I will describe one day for you.

She lays in bed until she feels like getting up.
She runs herself a bath and despite explaining until I am blue in the face, will top the bath up until there isnt a drop of hot water left.
I then have to switch on the immersion which gives a small amount of hot water, which I can ill afford, or go without showering/washing hair/washing dishes.

She throws all of her clothes around her room, eats in her room, discards dirty sanitary towels on the floor, in fact, she never ever uses a bin or a washing basket, both of which she has.
She helps herself to whatever food, drink, makeup she wants and then just drops it on the floor, never puts anything away or in a bin, no exaggeration.
She cooks anything she wants to cook and usually I end up putting most of it in the bin because she doesnt want it anymore.
She has absolutely no respect for me at all, and I suspect, views me as a mere domestic appliance, whose sole reason for existing is to quietly carry out all of the tasks she doesnt want to do, whilst making this as difficult and challenging a process as humanely possible.
She refuses to do ANYTHING unless she wants to, EVER!!
I am threatened with violence every single day! I am attacked every single day verbally, and every single week physically.
I am walking on eggshells in my own home.Sad

Today, I went for a shower before she had a bath, I was 15 minutes tops, washing my hair, showering, drying and dressing and I come downstairs to find she has mixed 1.5kg of flour, 12 eggs, a pint of milk and 500g of butter into a bowl, covered the kitchen worktops with it, broken eggshells, sloppy paste all over the work surfaces, floor, fridge handles, splattered all over the kettle, cupboard doors were dripping in the mixture, a letter covered in the gloop, 3 baking trays out of the oven covered in gloop, tea towels wet with gloop, and paints out on the sofa 🙈.

When I asked her what she was doing, she tells me to stfu and then blocks her ears and walks out, leaving me to clean AGAIN.

I feel like a 12th century slave. 😭

I cannot understand her complete inability to accept how horrible this is for me to deal with, when she accepts she would hate to do it herself, but apparently, it doesnt occur to her that other people feel that way too.
We have something along these lines most days. 😭

She doesnt like cleaning, but gives no consideration to whether I enjoy cleaning it. (I dont!)

If your child has ASD or ADHD, doesnt have any empathy, doesnt accept boundaries, and you feel as though you are being bullied by them on a daily basis, how do you determine whether this is a part of their ASD, their need for control, their anxieties, or whether they are in fact just a bully?

A psychopath doesnt necessarily have ASD or ADHD, yet they dont have much empathy nor accept boundaries.

I hear SN parents saying their DC cannot control their meltdowns, but what is the difference between a meltdown and someone who is using particular tactics to get their own way?

Are they the same thing?

How do you clearly identify a meltdown as opposed to bad behaviours? I am struggling to see the difference.

DD is inconsiderate. Is that her ASD?
DD doesn't care about how anyone else feels, only how she feels. Is this ASD?
DD screams, punches, kicks, bites and does everything in her power to sabotage what I'm doing when she is annoyed. Is that ASD?
DD is incredibly lazy. Is this also ASD?
How can anyone define what is genuinely ASD and what is simply the actions of a person who doesnt give a shit about anyone except themselves and is only happy when they are getting their own way?

IABU: All of those undesirable and horrible behaviours are directly attributed to ASD and are completely out of the control of someone with ASD.

YANBU: Lots of shitty behaviour is attributed to someone having ASD, but it is also quite possible that the person is simply a horrible bully who has learned they do not need to try to conform to social expectations or norms, nor control their horrible behaviour because they have ASD, or maybe they're actually an undiagnosed psychopath or a sociopath?
Why arent children diagnosed with psychopathy or sociopathy and if children could be diagnosed with those or similar conditions, how many children who were previously thought to have ASD or ADHD would have been diagnosed with psychopathy/sociopathy/antisocial personality disorder instead?

I am really struggling with DD and how I am always expected to have a never ending fountain of understanding and patience when tbh, I dont.

What even is the fundamental differences between a person with ASD, a psychopath and a sociopath?
And how can I know which one of those is DD?

Sad
OP posts:
BlibBlabBlob · 07/03/2022 10:54

@PleaseDontDriveMeBlind is your post supposed to somehow help the OP? She is living in hell with her extremely troubled daughter, having lost her only other child in tragic circumstances.

Maybe your thoughts could have been just kept to yourself, because they're not going to help the OP.

Notanotherwindow · 07/03/2022 10:54

I would be looking at residential care tbh or if not financially possible, asking to have her taken into the care system to give you a break. Make her their problem and I'm willing to bet that a suitable school place will be found and probably some kind of therapy to try and help her develop some empathy.

As long as you are keeping her at home with you, they will shrug you off as not needing support. Refuse to have her at home any longer and they will do everything they can to support you so that you agree to have her back.

It's a horrible position to be in, I know but your current situation is not sustainable and you need some kind of support.

PleaseDontDriveMeBlind · 07/03/2022 10:56

@BlibBlabBlob

If anything, it shows that she's doing 1000x better than I could do, so she's certainly not a bad parent! The opposite, really.

lollipoprainbow · 07/03/2022 11:01

@PleaseDontDriveMeBlind @femfemlicious completely inappropriate comments.

Chessie678 · 07/03/2022 11:06

It sounds incredibly hard. Specialist school does sound like it would be in your daughter’s best interest. It doesn’t sound like it could make things any worse for her and may give your daughter some strategies for coping with life as an adult. It’s very hard to see from your post how she will cope as an adult without getting into trouble with the police or getting into danger herself and it doesn’t sound like you can go on as you are indefinitely.

Partly the issue is that provision for adults with special needs is generally worse than what is available for children so this may be the one opportunity to get her some help and may also open up more support after she leaves school.

Thisisworsethananticpated · 07/03/2022 11:16

Op I just read that your son died
Oh sweetheart
That’s a huge major loss and will naturally impact you and your daughter

There is some amazing advice here
But I’d gently suggest that before you do anything you have to get yourself in a more stable
Place

As there is help and my god it’s ducking hard work to get it
I’m on SSRI, start therapy this week
I’m also considering cutting my hours at work

I want to send you the hugest hug
I’m very sorry for your loss and this

Was your daughter close to your son ?

Thisisworsethananticpated · 07/03/2022 11:17

PleaseDontDriveMeBlind

I’ve reported you
Don’t post in an sen thread ever again

femfemlicious · 07/03/2022 11:24

[quote lollipoprainbow]**@PleaseDontDriveMeBlind* @femfemlicious* completely inappropriate comments. [/quote]
What exactly is inappropriate about what i said...because you dont agree doesnt make it "inappropriate"

Underhisi · 07/03/2022 11:58

Saying that if the child were your child you would put them in care is always an inappropriate comment. The " If it were your child" tells that you have no experience of that situation. People who do choose a residential route don't just " put them in care". Stop being so glib about very difficult situations that you have no understanding of.

SoberCurious78 · 07/03/2022 12:05

@Jellyfishjean

I'd go zero tolerance on her. Won't get up? Wake her up. Leaves sanitary towels on the ground? Refuse to buy them for her till she puts them in the bin. She's living like an animal and treating you like a slave. Cut her off. Give her the bare minimum until she goes by your rules. Zero pocket money - turn WiFi off etc. No way would I ever allow myself to be pushed around like that.
@Jellyfishjean have you got experience with asd? If so your comment is very ignorant. It’s not that easy as just saying no 😞
PleaseDontDriveMeBlind · 07/03/2022 12:10

Don’t post in an sen thread ever again

I'm not done having children yet, maybe one of my future children will have SEN? Who knows. My DD is only young, who knows what issues she could have that won't become apparent until later, so this suggestion is bizarre and you also don't get to tell me where I post.

My comment was ill-thought-out and didn't read how I have intended.

Either way, I couldn't cope, I would want to kick them out, but OP is doing much better than that, yet feels like a bad mum? Why? She is doing way more than many could cope with. She is by no stretch of the imagination "a bad mum".

femfemlicious · 07/03/2022 12:23

I have a child who has autism. I am a single parent and for me it would be too much to ask for to deal with it. I think she would be better off with professionals that are not so emotionally involved. Also i am human and have limits on what i can bear. I would not be able to bear this and i would put her in care residential care or foster care and would visit as much as i am allowed!. I have to stay sane too!. That is MY opinion and i am allowed it.

Icemast · 07/03/2022 12:31

@PleaseDontDriveMeBlind

Don’t post in an sen thread ever again

I'm not done having children yet, maybe one of my future children will have SEN? Who knows. My DD is only young, who knows what issues she could have that won't become apparent until later, so this suggestion is bizarre and you also don't get to tell me where I post.

My comment was ill-thought-out and didn't read how I have intended.

Either way, I couldn't cope, I would want to kick them out, but OP is doing much better than that, yet feels like a bad mum? Why? She is doing way more than many could cope with. She is by no stretch of the imagination "a bad mum".

But you'd have to cope, there aren't support systems in place for young people with ASD like this or for families that mean kicking them out is a viable option. Even when struggling to the point you see no way out or like you can't go on, you still love you child and don't want to see them on the streets; especially as they are vulnerable and it would not end well. Your comment was very ignorant, and saying something along those lines although in your mind might be helpful, absolutely is not.
Pugdogmom · 07/03/2022 12:45

OP, reading this post sounds like where I was 8 years ago. We had to badger SW for help. She kicked doors, broke things etc, and was impossible to live with. I completely feel for you, and understand your frustration. DH and I discussed splitting up over her too ( luckily we didn't)

The " nothing left to lose" gives a clue to what's in her head. Why does she feel like that? Have you asked her? Is there ANYONE she would be willing to speak to? Or would you be able to find something that you can do together ( maybe outside the house) that she would enjoy and see if that could initiate a conversation?
At moment, you are the enemy, actually everyone is the enemy at moment.
I had to change my whole approach to her. To get her to keep her room clean, we decorated it for her, and let her choose her own decor. Got storage systems to help her be more organised, let her pick her bedding. I crossed my fingers as I thought she would destroy it. Weirdly she didn't, and she is pretty tidy( ish) now.
I know it sounds crazy, but I had to change my WHOLE way of thinking to her. When she was standing screaming at me " that she hated me, and wished I was dead", I had to remain calm and say " that's a pity, because I love you". Refused to engage with her when she was kicking off. Oh , it's really hard I know, because that's what you want to do.

No, I don't have all the answers, but I had to change my approach for my own sanity and MH. I can assure you my daughter was VILE.
At 18 she ended up in a Psychiatric ward. It was the best thing that happened to her. She was there for 3 months. We got her psychological help too.
She is 23 now, and in full time education. She found something that interested her. We have a fantastic relationship now, and she is actually thoroughly ashamed of her behaviour back then. I didn't think she had any empathy at all, but she did ( eventually).

Thisisworsethananticpated · 07/03/2022 12:45

PleaseDontDriveMeBlind

Fair enough
Honest I knew shit all initially
Even attended a parenting course
I only know as dealing with it all now - and everything was masked as ex was abusive

And it’s a bloody steep learning curve

Reading this thread is like yay , they are using same strategies as me

And trust me cutting off the internet isn’t one of them 😬

Nomoresmoresthensnores · 07/03/2022 15:12

If a child with a disability is extremely distressed and acting out against the only human who loves them... then how is putting them in care or sending them to a residential going to improve that...
Honestly I'm literally wondering why people are posting these things
Luckily I doubt it would happen because resources are hard enough to get..
But you do need help ASAP as you're sinking understandably. And you need respite so you can support your daughter and yourself.

PleaseDontDriveMeBlind · 07/03/2022 15:46

Even when struggling to the point you see no way out or like you can't go on, you still love you child and don't want to see them on the streets;

Of course nobody wants that. When I was kicked out, I had to live in the YMCA and it went badly for me, but I had pushed my parents past their limits and it doesn't make them had parents imo. I admit my comment was ignorant and I apologize, but surely there is something? Like if you can't kick them out because they would genuinely have zero places to go (no type of supported accomodation available?) then is there some kind of respite care for the parents? It's really not fair on parents to be expected to look after a child with ASD who is making them live like this forever, even when the child is an adult surely? They have to move on at some point?

This really shows how poor the resources are for parents struggling in this way.

I do apologise for my initial comment, it was ill-thought-out, but it was coming from a place of trying to show OP she isn't a bad parent, even just thinking you'd rather they were elsewhere for a while and not at home, it isn't wrong.

Thisisworsethananticpated · 07/03/2022 15:54

PleaseDontDriveMeBlind

Not sure if everyone saw this but in her later post op mentions losing a child
So to add to what’s a total nightmare , we have bereavement too for her and I assume her DD

And you don’t need to apologise to me as I’m a relative newbie to this world
But it’s totally cool that you did and shows grace

PleaseDontDriveMeBlind · 07/03/2022 16:01

op mentions losing a child
So to add to what’s a total nightmare , we have bereavement too for her and I assume her DD

Gaah, I had missed that. I'm sorry, OP. I guess the behaviour has cranked up since then.

Is there a function to read certain posts by users? I usually just scroll through a certain number of pages and skim read things but I means I can miss bits, especially if I read the 1st page of comments and then skip to page 3, then page 5 etc. I think I've read there is s function for this. Blush

WhoAre · 07/03/2022 16:08

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

Thisisworsethananticpated · 07/03/2022 16:16

PleaseDontDriveMeBlind
Next to original post you can click on ‘see all’x

notsohippychick · 07/03/2022 16:24

I have two autistic children. One is very much like your daughter. However I have managed to turn it around with the help of various support systems and methods.

Firstly and if you only do this one thing, stop giving her consequences. This does not work with ASD children and causes high anxiety. Simply because the things they need and rely on for calming, (iPad for example) has been taken away and this causes no end of stress. Of course then creating chaotic and violent behaviour.

I’m not saying her behaviour should go unchecked. But to an ASD person a consequence has to be relevant to the “crime”. Taking a iPad away because she stayed out late (for example) makes no sense and isn’t effective.

Natural consequences are better. For example try her to help you clean up the mess. You won’t get her to help do it all. But even get her to put one heap of rubbish in the bin is a start.

Another biggie. De escalate the meltdown. Do not engage and walk away simply stating “you will talk about this later”. Lock yourself in the bathroom if you must.

These techniques are all from a method call “non violent resistance”. I went on a course and it’s brilliant. There’s some books about it so it’s worth reading.

It saved us.

PleaseDontDriveMeBlind · 07/03/2022 16:35

Thank you @Thisisworsethananticpated
Will be using that every time from now on

Thisisworsethananticpated · 07/03/2022 16:42

notsohippychick

Nvr is wonderful
I’ve never done it but when I heard abiut it I did a fair amount of research and YouTube

It’s the only approach that I saw that really acknowledged how fucking hard it is for parents

notsohippychick · 07/03/2022 17:14

It’s great isn’t it. I was lucky and went on a funded course before everything got cut! Takes a while and goes against everything you think you should do as a parent but I’m so grateful for it.

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