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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to expect my daughter to be a tad more independent?

150 replies

Cloudsandrainbows · 27/02/2022 21:40

First off let me start by saying my daughter has ASD. She is bright and in mainstream school. Her issues are mainly social emotional and anxiety related. She relies on visuals for knowing what's happening daily, and has set routines, she is naive and takes everything literally. However at 7 and a half years old, I am now getting frustrated at her lack of ability to perform self care tasks. Yes I expect to still supervise and support with washing and brushing teeth etc but she literally gets out the bath after me asking 10 times and stands there saying she's cold until I dry her. She will not pick up a towel and wrap it round herself, even if prompted. Should she understand and be able to do this by now? What can your children manage alone and what do they need help with? Or am I missing something that she finds hard about this task?

OP posts:
OhPleaseJustLast · 28/02/2022 08:29

How big is the towel, OP? My two struggle with our large bath sheets to wrap them around themselves, and although my 7 year old would manage, he has always been super independent and ahead on things like self care. His younger brother will definitely still be standing there like a coat hook, as you say, at the same age! Have you tried a hooded towel?

Duracellbunnywannabe · 28/02/2022 08:31

Have you shown her what to do so he can copy you?

Branleuse · 28/02/2022 08:31

Shes only 7. Mine were all still needing lots of help at 7.
Maybe you need to think about your expectations.

Mabelface · 28/02/2022 08:35

I have asd, and even at the age of 52 I find showering and bathing difficult. It is transitions that are hard. If it was possible for me to have someone to run the bath, and then help me dry off and get into pyjamas, it'd be really helpful! Just go with it for now, personal care is hard and a battle I fight every day.

Hankunamatata · 28/02/2022 08:38

@Cloudsandrainbows

Google hooded towel teens - theres loads. Lots of surf shops carry them. We got adult ones from decathalon

gogohm · 28/02/2022 08:39

Unfortunately it's common in girls with autism. Getting dd to shower or brush teeth still requires reminders at 23!

LosingTheWill2022 · 28/02/2022 08:54

I think the Autism Discussion Page on FB is extremely helpful. Bill Nasen explains things very clearly. Understanding the challenges is vital before being able to plan support.

Very aptly this came up on my FB page today which I thought might be helpful.

www.facebook.com/123708701041972/posts/5007794252633368/

The 3 books are worth looking at too. Clear and practical.

ofwarren · 28/02/2022 09:22

@Lostinafjord

Perhaps she is so overwhelmed by the feeling of being cold or the sensory onslaught of the shower that it has overridden her ability to process cognitively and she has got "stuck" in the feeling. That happens to me a lot, autistic and in my fifties.

This is what happens to me too. I hate having a bath or a shower. I know I have to but the transitions of different and often uneven temperatures is horrible.
My middle son (7) is on the pathway and he stands there shivering after a bath, stiff as a board. He can't wrap a towel and even if he could, he's just frozen to the spot and needs help.

xxxsuper · 28/02/2022 09:32

My stepchild with ASD will not do any personal care without huge input and is now an adult. Will say things like, "you do it for me because I want you to" and because they hate the task, have no motivation to do it for themselves and no interest in living according to the social expectations around this.

As an adult who is autistic I have to say I think you have this completely wrong. It's not about being motivated or not being interested in social expectations. It's about executive function, finding transitions difficult and all the sensory things that go along with these seemingly easy tasks. It's sounds as if you are suggesting this is something your SC could change if they wanted to, but don't care. That's not the case at all.

Jobsharenightmare · 28/02/2022 09:51

xxxsuper

Sorry I should have put the second part of my sentence following "and" in quotation marks. These are all things my stepchild verbalises and it's not my place to question them, I was just giving some further examples to the OP that show it isn't about age. I didn't mean to cause any offence to anyone here.

Cailleach · 28/02/2022 10:18

Autistic children - and adults - are generally considered to be at a level of development two thirds of their chronological age, meaning your seven year old daughter is more like a four year old in terms of her functioning ability.

In your first post you appeared to minimise her issues by telling us that she is perfectly bright - this really has nothing to do with anything, as most so-called high functioning autistic people have normal intelligence.

What we DO struggle with, amongst a million other things, is task switching / sequencing (aka executive function issues ) and sensory overload, which is what's going on here.

I really really really think you need to do more reading on autism as it is experienced by autistic people, and to adjust your expectations of her quite sharply downwards. At one point you compare her to her peers - this is very concerning as she is developmentally disabled, they are not.

You need to be very much more realistic about what your disabled child can achieve, both at this stage and possibly later in life.

Around 80â„… of adults with with HFA are unemployed*. No I have not got that the wrong way round. That is a very very telling statistic. All the amount of "normal intelligence" in the world won't help you if you have massive issues with executive function and can't process incoming sensory information effectively because you exist in a world that is a blinding dazzling overwhelming bone-shaking tornado of Light and Noise and Feel.

I am 45 and as others above have said, I still struggle with all this shit and can only just barely hold down a minimum wage job.

My mother does not get this as I was So Bright At School.

Just saying.

  • Source: Professor Elisabeth Hill, Goldsmiths University of London.
Onlyforcake · 28/02/2022 10:23

Get pictures for a few self care tasks like brushing teeth and practice putting them in order together, make it a game against the clock or something. So brush teeth is get toothbrush, wash it, apply toothpaste, brush etc. Just to practice a few times a week see if it helps?

xxxsuper · 28/02/2022 10:58

Autistic children - and adults - are generally considered to be at a level of development two thirds of their chronological age, meaning your seven year old daughter is more like a four year old in terms of her functioning ability.

I have never heard this before

BestZebbie · 28/02/2022 10:59

We have exactly this situation as getting out of the bath + wet hair/skin + rubbing skin with a towel is all a bit much at the same time, so we stick on a fleece poncho the second the bath is left (I have to help with that in case of 7yr old getting lost inside it) and then move onto self-towelling once the shock of the first part of the transition has subsided a bit.
stuffitoutdoors.com/collections/blanket-ponchos

xxxsuper · 28/02/2022 11:00

Posted too soon

It makes no sense to me. I still struggle as a 40+ adult with things. It's not because I'm behind in age, it's becoming my brain is different. How can it be attributed to being behind in age of it's something people identify always struggle with?

Not challenging you btw, just asking out of curiosity

diamondpony80 · 28/02/2022 11:13

Your daughter sounds alot like mine - ASD, age 7 and a half, mainstream school etc.

I do have to ask her ALOT to do things like getting dressed etc. She's well able, but doesn't want to do it and her mind wanders and she finds it hard to focus.

She'll do things like brush teeth on her own, but she won't do it properly without supervision. She always tries to get out of washing her hands after using the bathroom as she says she doesn't like it.

I still help her with things like bathing and drying. She hated the shower and having her hair washed until quite recently so I don't push her too hard to learn to do it herself yet. I think she could do it if I showed her how, but I haven't given her instructions or encouraged her how to do it for herself yet. I'm pretty sure I was still helping DS at this age though and he doesn't have ASD.

Mabelface · 28/02/2022 11:27

Just to add, if she knows you're frustrated with her, anxiety will paralyse her even more.

Out of bath
Soft, fluffy robe or towel on
After a couple of minutes, say "rub your shoulders with the towel, moving on to each body part bit by bit. Keep it clear and simple with short statements on what's happening next.

cadburyegg · 28/02/2022 11:31

That doesn't sound too dissimilar to my NT 7 year old tbh.

steppemum · 28/02/2022 11:31

I think at 7 I still wrapped them in their towel with a cuddle.

So I think it is age appropriate.

When the time comes to learn to do it herself, I would use picture cues. just as you do in other areas. Have it on the bathroom wall, broken into steps.

Thissucksmonkeynuts · 28/02/2022 11:35

My nt 8yo needs this from me most bath times, I wrap her up and sing a special song and carry her to her bed- she's massive, it's a feat of endurance. I can still remember shouting my mum to come and dry me when I was small. If she has to, she can do it, but it's a good time to connect.

Cloudsandrainbows · 28/02/2022 23:17

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk guidelines.

xxxsuper · 28/02/2022 23:22

I'm surprised by how many people seem to expect autistic people to not be able to do simple tasks. Ok there are challenges in the form of sensory issues and executive function, but these can be overcome with support, can they not?

No. No we can't just overcome it. Fucking hell how ignorant. I suggest you learn a bit more in order to be able to support your child. There are multiple autistic people telling you that even as adults we can't simply overcome our autism yet you are so tone deaf you are here suggesting otherwise Sad

Why should my expectations be any lower for her, compared to a NT child?!

Because you shouldn't be comparing her to any child, let alone a NT child. Your expectations of your DD should be based on her ability - not what you think she should be doing.

I wish I was more articulate. Hopefully someone who is better at explaining things will come along soon.

Keladrythesaviour · 28/02/2022 23:22

Could you try a towelling dressing gown, if she's confident dressing she might find that easier? I'm dyspraxic and I find wrapping a towel around myself complicated at times, I can never seem to work out how to get my arms backwards. So maybe she can't quite comprehend how to get from holding a towel to wrapping herself in it. Just an idea!

xxxsuper · 28/02/2022 23:23

Can't say I've read all the posts but had a quick catch up....

Also, considering you posted asking people to reply it's really rude to just not take the time to even read them Angry

Clymene · 28/02/2022 23:24

I was giving you the benefit of the doubt earlier but now you're just coming across as a bit of a twat.

I'm not autistic.