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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think I shouldn't have to pay to see my mum

352 replies

MrsBertBibby · 22/02/2022 19:15

Just that. "Freedom" is no such thing for care home residents. Imprisoned and deprived of family and now, if we want to visit, we must shell out £20 for a test.

Is it unreasonable to call this government absolute sick psychopaths?

OP posts:
alltheapples · 23/02/2022 10:37

@StarCat2020 Yep billions wasted in illegal contracts providing PPE, much of which could not be used. And nothing happens.
People who can't afford to pay for tests being told they are entitled to think they should be provided for free - perfectly fine.
It is totally crazy.

StarCat2020 · 23/02/2022 10:42

billions wasted in illegal contracts providing PPE, much of which could not be used. And nothing happens
Sorry to be cynical here but I don't even believe that it was wasted on useless PPE as such.

I still believe that it was an easy way to pocket funds, blame it on PPE.

I don't know how old you are but I remember seeing the EEC butter mountains on TV when I was younger and thinking "what a waste!"

Why has there been no "proof" of this "useless PPE"?

Actually now I have typed it, it does seem like I am going mad here.

alltheapples · 23/02/2022 10:43

True, there may have been no PPE.

Glasstabletop · 23/02/2022 10:46

Care homes are supposed to be peoples homes, the clue is in the name. The way older people have been treated throughout this is fucking scandalous. This is a barrier to maintaining contact with their families, its not just the financial aspect its the practical one.

So yes OP I think it's appalling, I think the responses in the thread have been appalling. It doesn't matter what your mum needs or wants what's important is the "taxpayer". Never mind the fact that your mother (unless she is unlucky/lucky enough to have CHC) either pays (A) thousands of pounds a month or (B) all of her pension except for £15 a week to live there. Never mind that its her home. She has no say and if she doesn't like it she should have thought about that before she became ill enough to need 24 hour care.

MrsBertBibby · 23/02/2022 11:23

Thank you for responses. I didn't disappear, I read the first few replies but was too upset to read on, some of the replies are horrific, although I guess they're just the usual trolls.

A real gem was this

'Imprisoned'? Really? Take him out to live with you then.

For those who clearly have no knowledge, my mother like many is in a home under Deprivation of Liberty order, so it isn't up to the family, if we up and removed her we'd have been acting unlawfully. I recall a news story about a woman removing her mother from her care home during lockdown who ended up in police custody. In any case, her needs are too profound to be safely cared for at home. It broke my father's heart to finally admit to this. He would have given everything to care for her but it could not be done.

And yes of course I "choose" to see my mother. She is severely demented, anxious, lost. Before lockdown I generally took her out once a week, sometimes more, especially if my father was away or unwell. Before lockdown, she knew me unfailingly. Now she needs many prompts before she remembers. She has forgotten her siblings, and her grandchildren.

FWIW though, I am also required to commit to regular visits as I am my mother's DOLS representative. If I didn't do that, the local authority would presumably have to pay someone to do it.

Zoom calls were meaningless to her through lockdown, and people here don't seem to grasp that for a phone call to take place, a care worker has to be there to operate and hold the device, and keep her focused. Organising that at a prearranged time is impossible, care home staff are simply not available in that way predictably, they are to and fro at a moments notice.

Care homes operate on wafer thin margins, this is well documented. If they are obliged to fund testing, the burden will fall disproportionately on self funders, how is that fair?

Many have likened paying for tests to paying for petrol or fares, but that is a false equivalence. This is an arbitrary expense on top of those costs, purely because my mother is ill.

Finally, to those who say the tax payer can't fund everything, so why should they fund this, I'd say the tax payer pays for many things, and I don't see anyone on here complaining about their free contraception, or their free schools, or health care, or their children's free eye care and dentistry. These are the hallmarks of a civilised society that looks after its population, how is this different.

Oh, and care homes insist on testing because the government tells them to. The guidance is available online.
Clearly the answer is that tests should be provided free to homes for visitors to use. It doesn't seem much to ask, for families that have paid such a heavy price already.

Thanks to those who have been kind in your replies, btw. I am so fucking angry about this utterly callous and despicable action. Your responses helped, and much love to all in this horrific situation.

OP posts:
Blossomtoes · 23/02/2022 11:28

@MrsBertBibby 💐 Been there, got the tshirt, it’s a horrible place to be. The pandemic made me thankful my parents were dead, how awful is that?

StarCat2020 · 23/02/2022 11:44

@MrsBertBibby
I PM'd you

DrManhattan · 23/02/2022 12:34

What a lovely country we live in

littlebilliie · 23/02/2022 13:12

@MrsBertBibby

Thank you for responses. I didn't disappear, I read the first few replies but was too upset to read on, some of the replies are horrific, although I guess they're just the usual trolls.

A real gem was this

'Imprisoned'? Really? Take him out to live with you then.

For those who clearly have no knowledge, my mother like many is in a home under Deprivation of Liberty order, so it isn't up to the family, if we up and removed her we'd have been acting unlawfully. I recall a news story about a woman removing her mother from her care home during lockdown who ended up in police custody. In any case, her needs are too profound to be safely cared for at home. It broke my father's heart to finally admit to this. He would have given everything to care for her but it could not be done.

And yes of course I "choose" to see my mother. She is severely demented, anxious, lost. Before lockdown I generally took her out once a week, sometimes more, especially if my father was away or unwell. Before lockdown, she knew me unfailingly. Now she needs many prompts before she remembers. She has forgotten her siblings, and her grandchildren.

FWIW though, I am also required to commit to regular visits as I am my mother's DOLS representative. If I didn't do that, the local authority would presumably have to pay someone to do it.

Zoom calls were meaningless to her through lockdown, and people here don't seem to grasp that for a phone call to take place, a care worker has to be there to operate and hold the device, and keep her focused. Organising that at a prearranged time is impossible, care home staff are simply not available in that way predictably, they are to and fro at a moments notice.

Care homes operate on wafer thin margins, this is well documented. If they are obliged to fund testing, the burden will fall disproportionately on self funders, how is that fair?

Many have likened paying for tests to paying for petrol or fares, but that is a false equivalence. This is an arbitrary expense on top of those costs, purely because my mother is ill.

Finally, to those who say the tax payer can't fund everything, so why should they fund this, I'd say the tax payer pays for many things, and I don't see anyone on here complaining about their free contraception, or their free schools, or health care, or their children's free eye care and dentistry. These are the hallmarks of a civilised society that looks after its population, how is this different.

Oh, and care homes insist on testing because the government tells them to. The guidance is available online.
Clearly the answer is that tests should be provided free to homes for visitors to use. It doesn't seem much to ask, for families that have paid such a heavy price already.

Thanks to those who have been kind in your replies, btw. I am so fucking angry about this utterly callous and despicable action. Your responses helped, and much love to all in this horrific situation.

Thanks
littlebilliie · 23/02/2022 13:16

[quote chiiipsandsalad]@littlebilliie so depressing isn't it.

I can only imagine people like @MintyFreshBreath have got no idea what it's like a I have a loved one trapped in a care home withering away because they have lost access to everyone familiar to them.[/quote]
I was also hospitalised for 6 months during Covid and my lovely kind mum has lost her memory. She tells me at every visit that her daughter no longer visits. It kills me.

wherethewildthingis · 23/02/2022 13:29

This site is awful and getting worse. The absolutely open disablism and ageism on this thread is awful - I am going to report it and hope @mnhq take those comments down. OP I am so sorry for your situation and the awful things people have said here.

For those absolute thickos spouting rubbish, a couple of points. The government doesn't "give us" anything, they are not distributing charity, they should be making responsible decisions about use of OUR money in OUR best interests. Through this whole pandemic they have used our money to allow private companies to make huge profits. Manufacturers of LTFs have made millions and millions of pounds. That's where the money has gone.
You should be utterly ashamed at the suggestion it's wrong to use public money to protect and look after our vulnerable .

Trainbear · 23/02/2022 13:31

Why not ask the care home if they have any you can have? The care home I work at are happy to give regular visitors a box of seven lifts. No charge as we get boxes and boxes of them.

luckylavender · 23/02/2022 13:44

@tillytoodles1

It's £20 for a pack, not each. Surely you want to protect your mum from Covid.
Have you any idea how much some people are struggling just to eat and keep warm? Be more considerate. £20 is a lot of money for a lot of people.
Sparticuscaticus · 23/02/2022 13:44

@MrsBertBibby

It is sad that free LFTs are coming to an end especially for visitors to care homes where covid remains a high risk to vulnerable residents and viruses spread quickly - but it is a huge expense on public funds to continue.

As they were free, there's been higher level of wastage going on. When people have to pay they are careful what they order and wastage reduces quickly. Other countries haven't funded any - people had to pay from outset- and yet they still required LFT testing.
I would suggest you order a few postal boxes before they become chargeable. We don't know how long mandatory testing with LFT before visiting in care home will be In place. It may be 6 months less or a bit more. It won't be forever

But to answer some of your points you raise

  1. As a LPS (DOLs) RPR , the supervisory body (local authority) would expect you to visit once every 4-6 weekly (though not prescriptive) for that role so that isn't a significant expense on LFT test costs (1-2 boxes a year)

It is better for your mum that family visit more often so if you're visiting daily or several times a week, that will mount up with costs- you don't have to visit as often as a you probably do, specifically for your RPR role .

But who should pay then?

  1. Others are right as it is equivalent to parking costs. The care homes often let visitors park free if they have spaces available . Hospitals charge (quite a lot) for parking- and we have to accept that even though it can get expensive. It is equally important to hospital patients to have visitors.
  1. If Care homes were to provide LFTs, free to all family /other visitors so that is equitable- it would like run into run into £10 000s- £100,000s pa each care home. It's not just you visiting- it can be 10-60 family /other visitors daily depending on size of home. Care homes would literally have to hike up fees to cover it . Self funders have to pay more, local authority and CCGs would have to pay higher fees..
  1. Unless care homes were given free LFT packs by NHS supply, it would come out of the (even more) limited local authority public funds (already under huge pressures)
For each home that means NHS/Local authority or the care home themself- would / need 10-30 LFT boxes a week at cost of £2000-£6000 per week (don't forget they have staff to test too) and initially restricted care home visiting is opening up more again. Either way (NHS, LA or care homes providing it) , it all comes back to tax increases having to cover these extra costs - as that's how NHS and LAs are funded. (NHS isn't free endless money!) . U.K. has borrowed money /increased national debt significantly to cover lots of covid costs including these free LFTs on NHS.

However it is done, it will be put back onto tax payers. And free things are wasted more than ones you buy yourself. The government committed to doing it for a discrete period when they've made a decision funds have to stop for this at some point.

You can of course write to your MP and ask them to argue in parliament that you want U.K. pay more in tax and want taxes increased, to ring fence for unlimited and ongoing free LFTs for visitors to residents in care homes.

luckylavender · 23/02/2022 13:45

@ClariceQuiff

This is the problem with the 'back to normal' approach. On the one hand the government are saying 'Yay, no more restrictions, we'll live with Covid like with live with the flu from now one' - but when you dig deeper, actually we are not 'back to normal' and you still need a test here, a mask there.

Now people are stockpiling the free tests, predictably.

It's a bit of a mess.

In your specific situation, OP, it would make sense for the care home to have a supply of free LFTs that visitors could take on arrival - you could wait outside/in your car for the test to develop.

That's not what's going to happen. The government has been very clear.
luckylavender · 23/02/2022 13:48

@SockFluffInTheBath

Is it unreasonable to call this government absolute sick psychopaths?

Nope, YANBU but paying for LFTs ‘post’-Covid doesn’t even make the top 20 reasons they’re sick psychopaths.

But it's not post Covid is it? The proof of that is that to keep residents in care homes safe, visitors need to test. It's not difficult to understand.
luckylavender · 23/02/2022 13:49

@Hbh17

Taxpayers (ie all of us) have been paying for the crazily high numbers of test- we can't keep on doing it, and it needs to stop. Most countries have charged for them throughout the pandemic. Maybe lobby the care home to persuade them that testing is no longer needed?
And risk residents health?
luckylavender · 23/02/2022 13:50

@Steelesauce

Will the care home not provide the tests? They will still be getting them from the government
No they won't
luckylavender · 23/02/2022 13:52

@AnEpisodeOfEastenders

£2bn spent on testing PER MONTH by the government. It needs to stop.
No way it cost that much
Sparticuscaticus · 23/02/2022 13:59

@Trainbear

Why not ask the care home if they have any you can have? The care home I work at are happy to give regular visitors a box of seven lifts. No charge as we get boxes and boxes of them.
This will stop though

Visitors to care homes will increase as restrictions lift in general , more and more LFT boxes will be needed and the government has said they are not being given out free anymore. Someone has to fund these free LFT boxes.
When normal visiting restarts in care homes, not pod visiting and bookable visit slots but all those grandchildren, nieces nephews rest of family than the selected ones or two start ti visit again, there'll be sudden increase in Haiti's and far more LFT boxes than will have been or could possibly be supplied

Nat6999 · 23/02/2022 14:00

You can still order free tests but only 1 pack every 72 hours per person. Ds attends NHS Cadets & has to test every week before attending due to it being held in a hospital, we are stocking up before April so we have enough tests.

ilovesooty · 23/02/2022 14:00

It's the mark of a civilised society that those without children pay tax to enable children to receive good care and health interventions.

It should also fall on a civilised society that taxpayers should contribute to interventions that facilitate effective health interventions for the elderly who can't care for themselves and whose relatives might struggle to afford tests to keep their loved ones safe.

Some of the replies on this thread have been appalling,and I imagine most of those posters would be most upset if their children didn't get the taxpayer funded interventions that they can access to keep them healthy.

2bazookas · 23/02/2022 14:02

I'd pay anything to see my Mum again.

WindyState · 23/02/2022 14:07

As a taxpayer I have no problem with my tax money being spent on LFT in instances like this.

In the grand scheme of things the government have wasted billions over the course of the pandemic. If you are going to get annoyed about money being wasted, get annoyed about that, not about funding a reduced number of tests in cases like this.

FFS.

Nat6999 · 23/02/2022 14:07

The NHS should continue to provide free tests for anyone who receives free prescriptions, is ECV & for anywhere like hospitals & carehomes that demands visitors test at least. They can afford vanity projects like getting a fighter plane to fly 200 miles for a photo opportunity for Boris, the money could be better spent.