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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder is there benefit in getting a label for my DS?

176 replies

Labelicious · 29/10/2021 07:51

When my DS started school, he had such problems in the first term that by the end of it his teacher was recommending a referral for a “processing disorder.” However, he was young for his year which could have explained it, was responding very badly to their strategies (stickers etc) (both teacher and headmaster were inexperienced) and when he turned 5, things improved significantly. They never suggested similar after the first term and all of his teachers since then (4 years on) say he’s progressing well.
However, there are things that make me wonder. He’s a total daydreamer and often doesn’t hear his name being called (I was the same as a kid). His little just started school brother has himself fully dressed in the morning while eldest DS might have managed to pull off his pyjama top. He has often struggled with transitions eg going out on day trips - home is his favourite place. He can struggle socially (like me). He goes through intense interests where he develops encyclopaedic knowledge (again like me). He really struggles to go to sleep at night. I was reading a thread last night which says emotional disregulation is a symptom of ADHD - he can be an anxious child, if something goes badly he can get very very upset and says he hates himself, and he absolutely hates if he “fails” at something or feels he hasn’t done well to the extent he will avoid doing it (eg I think this is why he has never been a fan of doing sport with his class).
My DH would never consent to DS being assessed and having a “label”. When his teachers 4 years ago were suggesting an issue I did some reading and felt like ADD (inattentive) described me in so many ways. I mean, I probably don’t have it, but (through luck and circumstance) I’m the most senior lawyer in my organisation and I could NEVER have got there with that label - who would hire a lawyer with inattentive ADD!
In my DH’s family, a sister and niece have diagnosed ASD and/or ADHD, brother suspected. My DH disapproved of my niece getting diagnosed. The adults have never really held down a job. I guess with my traits and my DH’s family traits it’s possible my eldest DC has something. My youngest is now very delayed talking and is similar in some ways to my eldest at that age (eg hates loud noises).
Should I forcefully insist my DS gets assessed? As I said the school are not currently suggesting it although his current teacher told me he told her he can’t sleep at night thinking about things, and hates himself (he couldn’t identify any of his (many)qualities during an exercise where he they had to name good things about themselves).
(Namechanged as identifying details)

OP posts:
Merrymumoftwo · 02/11/2021 06:00

Op
Having a diagnosis is a positive
Think of it like having a lift or ramp to help you get to the door you need to access in a wheelchair because that’s what it does, helps to have a reasonable adjustment made where needed, so someone can get where they need to. Whether that is learning social skills, life skills, emotional regulation, basically a program/lessons potentially adapted to help access what a child needs to grow.
In doing so this reduces the anxiety, the self loathing and increases self esteem.
In relation to the job market, many companies are keen to have neuro divergent staff for many reasons and that is if your son chooses to disclose it. Aside from all of these benefits another big positive is as parents you will gain understanding and maybe not unconsciously project negative associations with being different

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