I completely get what you're saying OP. (I've only read your posts, not the other responses).
My son is very mildly ASD, which is quite difficult, because he is the kid that looks "normal" (sorry). He does have quite significant challenges, but other people don't see. Those people don't realise that the reason why he is doing so well is because he and I work damn hard all the time to make sure he is fine.
To complicate things, I am also mildly ASD, and I have to work damn hard to keep my life OK, while also working 200% to keep his life okay. It's really a lot to cope with.
When he was a toddler I constantly got little remarks from people who thought I was a bit of a helicopter parent. They genuinely don't realise the challenges that DS and I were coping with. It was very wearing indeed.
The thing that has helped me was actually getting the dianoses for myself and DS. I can now tell people directly that there is a diagnosis. They then change from telling me that I need to chill and let him be independent, and say "oh wow, you're doing a great job, I would never have known." They also then let him be himself and are just glad that he's coping.
What's more, because he is doing so well, we kind of became the poster-child for our ASD diagnosis, which is kind of nice. It's nice to feel appreciated, rather than constantly like we're just hanging on by our eye teeth.
I think it's really great that you work in paediatrics. That must help a lot.
The other thing that I would say is, it's probably a good idea to visit a private paediatric clinical psychologist asap, and get advice. Get a recommendation of a good one. Everything got a lot better after I did that. The more you understand what's going on, the easier things get.
Trying to go the NHS route and through the school was a total waste of time for us, as we were always knocked back as DS was considered to be "coping".
Good luck there. I'm sorry it's so hard. Some people do just get a harder hand of cards I think.