my story - imagine you have a popular boy who struggled a bit with transition from pre-school to primary, a popular boy who was talented at sport. So always had friends and on the face of it was very happy.
Imagine that boy suddenly and unexpectedly can't cope with going to school at 10 years old and starts behaving in an unusual way. Refusing to enter school , refusing to go into classes. Imagine that boy starts completely withdrawing from all of his friends.
Imagine the response from others when this happens to this boy. The parents are told that they have not taught resilience. The boy has stopped eating, the boy wont' sleep, at the prospect of school the boy is trying to escape the house, says he wants to die and tries to jump out of windows in your home.
People think you are making it up because this is a popular boy, so the parents must be getting it wrong, it must be because he was talented at sport and they encouraged it. It must be because their home lives are chaotic (they are not).
Imagine the judgement you get because this boy now won't go to school despite the fact that the parents will be blamed for the poor attendance.
This child was autistic and masked School laughed at the prospect he could be autistic when it was raised by CAMHS when he was in crisis. He is now 14 and is still struggling. He can't cope with school but wants desperately to, there are no services to help him, no schools to help him. because it's either mainstream or learning difficulties, he can't cope in mainstream but is really intelligent.
He has long periods of depression that are not caused by parental indifference or chaotic lives. He would love to be able to go to college but his mum and dad are desperately worried that he cannot, without the services, attain the skills needed to do any normal things.
We are parents just like every other parent, normal non chaotic parents whose world have been turned upside down by neurological differences and mental health issues. We are lucky to have our son alive, that is our goal. Nothing else matters.
We could be any one of you.