Onceuponatime
In my own family parents have been told no respite care available for severely disabled three year old with complex medical needs, no entitlement to the 30 hours free nursery care for same child.
I suggest the parents make a request to the CCG for an assessment for NHS continuing healthcare funding for children:
assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/499611/children_s_continuing_care_Fe_16.pdf
It’s a parallel system to social care (and the CCG might ask social services to do the assessing), and if the child meets the criteria, then the CCG funds the health/social care.
A child with complex medical needs is likely to need collaborative working between education, social services and health - although, the funding for care may come from the CCG, as continual healthcare funding. There might be a Complex Needs Panel; and it could be that a school placement is funded by all three bodies in tripartite funding. I have heard of specialist placements funded entirely by the CCG.
It is difficult to predict how the law might change for a 3 year old in the next 15 years; but atm the massive advantage of NHS CHC funding is if it’s carried over from childhood to adulthood, all care is free!
So, for example if an adult is funded in residential care by SS, then SS takes all DC’s benefits, and leaves them an allowance of about £26 per week - which is not much for clothes, toiletries, gifts, a holiday, etc!
An adult on NHS CHC funding gets all their care for free, as the NHS is free at the point of use! So, if they get £200 per week in benefits, they get to keep them all!